Everything seems to be going smoothly
Ty and I decided to take my friend up on her offer and we stayed at her apartment in the city last night - thanks Matt and Juliet!! What a nice, quiet day we had together. We went out to a fancy dinner last night and Ty was a true gentleman (as usual). All of the other women in the restaurant were looking my way with envy and I felt like the luckiest girl in the world ;)
The most exciting part for me was that we stayed just two blocks away from my old apartment on 81st Street, so walking through the familiar streets with Ty was so fun! I was also looking forward to a good night's sleep for a change because we were able to wake up at 6:45AM instead of the usual 4:45AM, but it didn't matter because Ty began sighing and telling me "I can't sweep" starting at 3AM. We've been up watching Nickelodeon since then. Now my eyes are red and countless kiddie songs are running through my head. STEROIDS!!!!
Our appointment with his radiation oncologist yesterday was very promising and we hope to begin tapering Ty off of his steroids early next week. I hope that goes smoothly because I am very eager to get him back to himself as quickly as possible without compromising how far he has come with his eating and speaking over the past few days. As always, I will be sure to keep you posted. So far so good!!
The most exciting part for me was that we stayed just two blocks away from my old apartment on 81st Street, so walking through the familiar streets with Ty was so fun! I was also looking forward to a good night's sleep for a change because we were able to wake up at 6:45AM instead of the usual 4:45AM, but it didn't matter because Ty began sighing and telling me "I can't sweep" starting at 3AM. We've been up watching Nickelodeon since then. Now my eyes are red and countless kiddie songs are running through my head. STEROIDS!!!!
Our appointment with his radiation oncologist yesterday was very promising and we hope to begin tapering Ty off of his steroids early next week. I hope that goes smoothly because I am very eager to get him back to himself as quickly as possible without compromising how far he has come with his eating and speaking over the past few days. As always, I will be sure to keep you posted. So far so good!!
What a great day!!! I am glad that little man is not in so much pain and that the is able to have some happy time in his day!
ReplyDeleteI have been thinking about him so much and passing the word to everyone who will listen.
Big day today little man!
Love ya sweet baby boy!
Mary E. King and the rest of the King family.
GA
Hey Cindy....Glad to hear you had somewhat of a smooth day...... except for 3 am cartoons....lol..lol. gotta love it ! Please pray for my cousin elizabeth. She is getting a biopsy done today of her brain tumor.... she is 4. Ty is a fighter and you have a remarkable family........Keep up the good work and St. patrick will watch over our little loved ones today.........
ReplyDeleteGod bless. It is the little moments that are so precious. We keep praying for all of you and to the commenter with the 4 year old cousin, prayers are send her way as well. We pray that God will grant us the knowledge to cure our precious babies from this terrible disease.
ReplyDeleteGood morning to you guys. Praying for you as usual. Have a Happy St. Patrick"s Day. Glad to hear all is going well and Ty's feeling betta. Love and hugs, Rachel
ReplyDeleteYay! I'm always glad to hear that things are going smoothly and even better than that.
ReplyDeleteI LOVE the glasses. And OMG that Gavin is such a ham - I'll eat him up! You have the cutest kids!
You guys are too funny with those glasses, thanks for the laughs. Glad to hear that you are all doing well.
ReplyDeleteI spoke to a big chief at Sloan and he is not aware of using oncolytic viruses for his type of tumor at Sloan but I am going to keep looking into it. I believe Mayo clinic and Hopkins might have something. I am just gathering info for when he gets stronger as a possible option. But sounds like he is in great hands!!
I have been passing along Ty's story to everyone I know through the hospital and home hoping that someone can help.
Also, we have a two bedroom apartment right across the street from Sloan on 66th St. Its not fancy but its recently remodeled and a decent size. We go home every weekend. We also are away for the dates of April 16th to the 27th. If you can use the apartment on the weekends or when we are away its yours for no cost. If you want the spare room you can use that now and whenever. I can just give you your own key and you can come and go as you want. Let me know if you want to check it out. My email is bilansis@aol.com and my phone number is 570-977-2937. (its a pennsylvania area code, we have a hobby farm there)
Thinking of you all the time and sending you all the luck and love on St. Patty's Day!! : )
HEy Cindy,
ReplyDeleteDid you say hi to Sam the super on 81st??haha I am sure you miss the 5th floor walk up! Glad you had a nice day. Ty is a bright shing star! Happy st. pat's!
Love to you guys, The Cotters
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