We were admitted into the PICU at Cornell very early Sunday morning (around 1AM), and we were moved across the street to MSKCC later on Sunday. Most importantly, Ty is okay. We were just worried about him on Saturday because he was sleeping all day. I mean ALL DAY. There have been times where we felt like we waited too long to bring him in, but this time we think we probably should have stayed home. Regardless, it was good that we came to have him monitored and put our minds at ease. Now we are just waiting for our escort to take us down for his radiation treatment and we expect to get discharged soon afterward. Home in time for a late lunch and to give Gavin hugs before his nap :)
The doctors did perform a useless test on Ty yesterday that just made him miserable, but given his neurological symptoms (his eyes have been jumping around quite a bit), they wanted to be able to rule out seizures as a potential complication. Lou and I never suspected seizures to be an issue, but Ty was a good sport about it and at least we can say that we know it isn't contributing to his current symptoms. Here he is getting the monitor hooked up. Poor guy. He is such a sport.
The first couple of weeks of radiation are the toughest, but I think the break over the weekend helped Ty to bounce back late Sunday. He was smiling and speaking much better. He was awake and playful which we haven't otherwise seen much of all week. Lou and I really had a nice day at the hospital yesterday. The three of us spent time watching movies, snuggling, reading books and doing anything we could think of to make him smile. It was a nice, relaxing day. It doesn't hurt that we scored a private from at Sloan - what a luxury!!
Thank you for always checking in on Ty. He is doing good and tolerating the radiation therapy as good as can be expected. We hope to report improvements in his symptoms over the next month or two. In the meantime, trying to be patient is the hardest part! XOXO from all the Campbell's.