Monday, March 21, 2011

Ready to begin week 3

We had a very tough weekend.  Especially yesterday.  Ty had a lot of head pain, so much so that he wasn't able to sleep much at all.  His breathing is also worse as of last night/this morning.  Right now we are waiting to see his team at the hospital and he is sleeping so peacefully that I suspect he might make a liar out of me when I tell his doctor's how terrible he's been doing :)  I won't mind one bit as long as he continues to feel better and sleep better. 

When he suffers from headaches it is simply unbearable.  He tells me, "Mommy I have head pain" over and over and over and over and over again.  I give him medicine, I put cool rags on his head, I try changing his position but nothing helps.  It's a terrible feeling when your baby cries out to you for help and there's nothing you can do.  It makes me want to jump out of my skin. 

We are looking forward to starting up another week of radiation so we can get back in the game of beating up the cancer.  After week one Ty seemed to bounce back over the weekend break, but this time around the break seemed to do more harm than good, so we want to keep up momentum and I'm sure he will improve over the course of the week. 

By the way... why is it so cold again?  Here is a photo of Ty last summer.  He loves the warm weather and I just can't wait to get him outside more. 

10 comments:

  1. Cindy,

    I am so sorry Ty did not have a good weekend. I truly hope that he bounces back and starts to feel well again. I hate when my children do not feel well, and there is nothing I can do to make them better. I cant begin to imagine what you and Lou are going through. I think of Ty and your family all the time. Please update us and let us know how he is feeling. My heart and prayers are with you guys always! He is such a beautiful brave little boy and I truly believe he will beat this! Stay strong, (as I know you will) :) Hugs from Baltimore

    Joy Marielle
    Baltimore, MD

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  2. What a great picture! I look forward to seeing new pictures of Ty at the Ocean this year. Why do I say this? It's because I have such faith that Ty will beat his cancer. I know there will be good days and bad, I enjoy reading about both. I cry when Ty's had a bad day but feel such joy when he has a good one. If I am so affected by reading about your life, I can't imagine what it must be to live it. I can only say stay strong, everything will be alright.

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  3. Cindy,

    I feel so discouraged by this post. It is absolutely heartbreaking that Ty has to go through this. For an adult to have constant headaches and not be able to sleep is hard enough, but, for a little baby…

    This morning I was talking about Ty to one of my employees and she took the time to share a story with me. Years ago doctors informed her cousins’ mother while her cousin was an infant that she would not have a long life. Initially they informed her that she would not make it until ten years of age. The further stated that her life would be full of constant struggle, that she would never have a “normal life”. As she grew into her teen years the doctors swore that she would not lead a full life, never have children and for her mother to expect the worse anytime. Now she is twenty eight years old, happy, healthy and so is her five year old son!

    There is always hope, if you have faith that there is. Ty will be fine, it is hard right now, it is unfair, and it is heartbreaking. BUT know that you love him, God loves him, and we love him. He is a special little man and he will be a cancer survivor! I pray for him every day and so do many more.

    Love ya Ty, working on something special for you sweet baby boy!

    Mary E. King, and the rest of the King family
    GA

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  4. Love this picture! SO sweet!

    I am wishing for Ty to have a great week and to get stronger and stronger day by day. He is a true fighter!!

    Thinking of y'all constantly,
    Jan
    Georgia

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  5. So sorry to hear that Ty is experiencing so much pain. I continue to pray for you all. My son picked out something for your boys on our visit to Graceland last week. Can you provide an address for shipping?
    Thanks!

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  6. He is definetly gonna do better, this weather is no good for him kinda like arthritis and old people!
    My heart breaks to hear of his pain and yours. My kids have had many of times of screaming and needle pricks and I could not do a thing and it SUCKS it SUCKS BIG TIME, one of the worse feelings in the world!! But you just being there for him does wonders!!

    I was wondering if maybe acupressure or acupuntcure might help. I was and most people are a skeptic about holistical medicine but after personal benefit it truly has its place to help with the healing. Here is a link so you can use so you can try it yourself but Sloan has professionals that they could refer you to as well.
    http://www.chinese-holistic-health-exercises.com/acupressure-for-relieving-headaches.html
    I also have someone I could ask if he could help if you would like.

    Go Team TY, Stay strong!!!!!
    In our prayers and thoughts always,

    Brooke, Eric, Emily and Owen <3

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  7. We have to take the good days with the bad ones.
    We will all pray to make sure this third week of radiation goes smoothly for you all.

    We love you!

    Remember:
    "With time and patience the mulberry leaf becomes a silk gown." Chinese Proverb

    "The two most powerful warriors are patience and time." Leo Tolstoy

    "Be patient enough to live one day at a time, letting yesterday go and leaving tomorrow until it arrives." Unknown

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  8. Ty has been placed on my church prayer list. He now has an entire church of 1500 people praying for him from Tyron, Georgia. My heart absolutely goes to pieces. I keep telling myself that I know there will be good days and bad as you have said, I just wish I could jump in his skin and take his pain. Our love to you sweet baby.

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  9. Our beautiful surfer boy, how he loves the water! I remember when he was just crawling and we took him to the ocean it was like a magnet he just kept crawling to the water time and time again! We will never be able to keep him out of the pool! My love to Ty hope your home soon I can't wait to see him!

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