Wednesday, March 23, 2011

A good night's sleep (and antibiotics) can work wonders

Ty woke up feeling much better today.  Last night his fevers hit a high and they started him on some additional antibiotics.  I think they are kicking in because Ty was feeling much better today and his fevers seem to have subsided.  Hopefully he will continue to improve and we can be home for the weekend. 

The biggest concern is whether or not he has an infection right now (nothing has grown on his cultures, but his symptoms are highly indicative of one) and if that infection has penetrated the CSF fluid.  This is always such a huge concern because then the shunt would have to be replaced again.  I can't even believe I am writing about the shunt again, but it forever haunts us.  As long as he has these foreign objects, they are susceptible to becoming infected and causing complications.  They drew a sample of his fluid earlier today, so please help me in praying that there are no signs of an infection in his central nervous system.  Argh! 

Other than my growing concern over the potential infection, clinically Ty is really feeling well and I think we've seen the worst of this one.  I hope so, anyway.  It's exhausting talking about this yet again... I imagine it gets exhausting reading about it too!!  :)  Such is the life we are living these days.  His neurosurgeon said that he suspects Ty will be ready to get back on his feet and put this behind him in time for summer.  From his mouth to God's ears... wouldn't that be amazing?  He certainly deserves it, there's no doubt about that.

19 comments:

  1. Oh wow the thought of this all behind Ty for the summer would be amazing.. hang in their Cindy and you little Ty......keep strong and fighting............I want to see pics of Ty this summer at the beach or getting quirted with a garden hose or playing.........I keep praying oyu him and my little cousin who is in the hospital right now with her brain tumor. Geez I love her..........Keep it going Cindy.. r u a fantastic mom.

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  2. This post brings tears to my eyes. I so want to see Ty enjoying the summer. As for the shunt, I can't believe it. I read your whole blog a while ago and am amazed at how many times Ty's shunt has had to be changed. Hopefully this will not be the case this time around. I will pray lots for Ty and your family.

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  3. OH MY GOD!!! PUT IT BEHIND HIM FOR THE SUMMER!!!!!!!

    Thank you God for helping this precious child, this innocent little soul, thank you for giving the doctors the knowledge and capability and allowing you to work through their hands, thank you for giving Cindy and Lou strength, thank you, thank you, thank you!!!

    Any foreign object can cause a huge risk, but they are taking the measures necessary! Ty can beat cancer and he can certainly beat an infection (if there is one).

    Happy tears today!!!

    When will we know about how the radiation is working?

    Love you Ty!!!
    Mary E. King, and the rest of the King family!
    GA

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  4. Well said Mary King!! So happy to hear that he is doing better! GO Team TY!! : )

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  5. I read the last few sentences with huge tears (OF JOY) in my eyes. The desire I have for your boy to be better is so strong, and I know it's only a scratch on the surface comaped to yours. We love you, Ty (and all of the Cambells) and are storming heaven with prayers. xoxo, katie santangelo covington, louisiana

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  6. I've been following your blog and praying for your family since I read your story on AOL.
    I'd like to share a video with you. This song and video was created by a yoga teacher that I know. Whenever I read your blog I want to say to you - Stay strong and keep your faith alive. I hope you enjoy the music video.
    I hope the link works. http://www.youtube.com/watch?v=pNFGKfBhtUk

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  7. Everyday I think of Ty and feel hope for his remission. Today I had Cindy on my mind. I don't know if it was me thinking of your grueling schedule, or dealing with another crappy day or just trying to understand something that I can't understand. But I thought of you all day long. Your strength will continue to run deep. I hear the beautiful words of Ty's neurosurgeon and my head and heart scream go Ty - you can do it.

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  8. Praying with all our hearts that Ty's neurosurgeon is right!

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  9. We have been thinking of Ty and praying for him, hopefully there is no infection and this is just the hard part before the light. Before he kicks the cancer and can go home and live freely for the summertime. I cant tell you enough how our thoughts and prayers are with you every day, hang in there.

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  10. Cindy, we never tire of anything you write. I pray all day long whenever I have a moment. You truely are an amazing women and Ty is so special. I know I speak for so many when I say our hearts ache when Ty is not well and we wait for your next update with prayers the God's hand lifts Ty up to continue the fight. God Bless everyone who touches Ty that God will work through them to heal him and I know your deep endless love is working wonders.

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  11. Praying, praying, praying that the surgeon is right!!

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  12. Keep fighting and we will keep praying. May the new spring bring Ty strength to grow strong again and have a summer of fun with Gavin and all his cousins.

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  13. I am praying with all my heart that Ty can have a wondeful summer filled with sunshine and fun with his amazing family. He is such a special little boy and gives me such inspiration!
    Ann in Buffalo

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  14. Want you to know that it never gets old reading what you have to say about our beloved Ty. Whatever you need to get off your chest is what you need to post. We love your family and will continue to pray and send positive thoughts your way. BTW, we are looking forward to seeing updated beach photos this summer.

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  15. Cindy, Keep your eye on the prize! summer with it behind him! what a blessing that would be! Like everyone else I pray that he is right! Also, know that we never get tired of hearing updates on Ty. Good or bad we all want to know how you ALL are doing and if there is anything we all can do to help! Keep strong and keep beating up the cancer!!!! love and hugs! Tammy

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  16. Cindy,

    That is amazing news! How nice that would be for you guys! I am happy to hear that Ty is feeling better! Thinking of your family always. You guys are always in my heart!

    Joy Marielle
    Baltimore, MD

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  17. Everyone is keeping up the prayers and love! Thank you, angels! The Campbells are being lifted and carried by your loving, healing energy. I can feel it, can you? Onward to the home stretch y'all!!!

    The following is a message typed by my cat. I don't know what it says but she only focuses on the positive: [09999999999999999o99 [

    xoxoxoxoxoxoxoxoxoxoxo
    Colleen and Pitty-sing

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  18. I have been reading your blog for sometime now (since it was posted on Yahoo's homepage) and I just wanted to say that I find myself constantly thinking about Ty and your family. I have a 7 year old son and I could never imagine having to deal with all of this. You are a fantastic mother and wife...I wish you all the best.

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  19. I think and pray for your family constantly. I first read about sweet Ty on AOL and cannot go a day without thinking, praying and checking your blog. Cindy & Lou..you are such amazing parents, and I know it is so hard right now to comprehend, but beautiful Ty is so lucky to have you guys, and God put you (and him) here for a reason. Don't understand it..but your strength, love and optimism in the face of such a devastating illness is just incredible. I have 3 boys...Superman, Batman, Power Rangers..you name it..and I see Ty in everyone of them. Please know that you have such love & support from everyone across the nation, and world. And I just know that your superboy Ty is going to beat this. No doubt..."for with Him all things are possible." Stay strong and know you have love surrounding you.

    Kathleen, Dallas, Texas

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