Killing time at MSKCC

Ty has been making the most of his time here.  We did lots of arts and crafts today.  He decorated two foam pumpkins and he created some lovely beaded bracelets for Grandma and Mommy.  We'll post some pictures of his creations tomorrow because he doesn't like me spending any time on the computer tonight.  This will be a short post so I can get right back into bed with him. 

Ty spent most of the day resting and sleeping because he's been running fevers consistently.  Every four hours we know it's time for more Tylenol because he becomes very cranky, his face gets flush and he wants to lie down.  He hasn't eaten more than a few bites of banana and a few sips of milk over the past two days, so we are supplementing with a lot of formula feeds in his belly tube.  Last night he got sick from it in the middle of the night, but he has otherwise been tolerating it well during the day.  We need to keep him well-nourished!  Thanks to everyone who has been sending him thoughts and prayers.  More tomorrow...

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