A bonus day at home with Ty

The kid turns three and all of a sudden he starts saying the cutest things!  I love it.  It's so amazing to hear him talking up a storm, he's such a chatterbox these days.  Music to my ears, especially considering just 5 weeks ago I feared that he would never be able to talk normally, or eat solid food.  The pressure from the tumor on his cranial nerves had caused his speech and eating abilities to spiral downward, and now he seems to get better and better with each passing day.  Today he ate chicken nuggets, french fries, pizza, pretzels, cheerios, animal crackers and ring pops and he is going to the bathroom on the potty again.  Thank you, God. 

So happy we had this extra day at home.  It was beautiful outside today.  We were up really early so we decided to walk to the diner so I could get some coffee, and then Ty suggested we go to the beach.  Naturally, we had to bring ALL of his beach toys (which consists of about 15 different shovels and 20 different pails), his new Spiderman kite, his scooter (?), his Spiderman sprinkler (??) and his remote control cars (???).  Of course, the scooter, sprinkler and remote control cars stayed in the wagon, but he had piece of mind knowing they were there :)

We are leaving for the hospital at 5AM, so wish us luck!  I can only pray that he handles the chemo well, but more importantly, that the chemo kicks this cancer's a**!!!

Comments

  1. mary zOctober 6, 2010 at 9:39 PM

    WHAT a perfect day to have pizza, french fries and chicken nuggets! YUM. Good luck tomorrow and were thinking of you, as always. mad love, mary and pete

    ReplyDelete
  2. Debi FossatiOctober 6, 2010 at 10:02 PM

    I wish you guys all the luck in the world!!! And I will pray that the chemo kicks a**!!! Love you guys!!!

    ReplyDelete

Post a Comment

Popular posts from this blog

Anything but cancer

Image
Cancer is not welcome here.  It can never, ever, ever, ever, ever come back.  As I mentioned yesterday, Ty has been showing some physical symptoms that we haven't seen in a long time.  Please, God, don't let it be cancer again.  Anything but cancer. I spoke to Ty's doctor first thing this morning and he believes the increased weakness we are seeing on Ty's left side is not related to new cancer growth - but that doesn't rule out the possibility.  He feels that Ty is suffering from spasticity, which is becoming more visible now only because Ty is getting stronger.  As Ty's muscles begin to regain mass and tone, the neurological weakness on his left side is becoming more noticeable.  This spasticity is likely permanent, but also treatable with continued therapy.  When I spoke to his physical therapist later today, she agreed that it would explain what she is seeing, and then she reassured me that walking again is still a highly...
Read more

Our baby is finally free. Rest in peace Ty Louis Campbell.

Image
Ty Louis Campbell is gone, but his story continues.  This is our promise to him.  His impact on the world around him gives his short but inspirational life such meaning.  His soaring spirit will continue to fuel a fire in our hearts, and strangers around the world will continue to fall in love with the little boy who fought so valiantly.  The little boy who hurt so much, but maintained a bigger, brighter smile than the healthiest of children.  Ty never did break his fever.  He never really woke up.  Not until he decided to leave this earth and fly freely among the clouds.  At that very moment, he was awake.  He had returned to Lou and I to say goodbye.  To say our hearts are broken would be like saying it tickles to have your stomach ripped open with a spoon.  I went to bed last night with so much worry on my mind, but I was able to fall asleep because I was calmed by the fact that in his semi-conscious s...
Read more

Our aching hearts

Image
My face is swollen.  My eyes are heavy.  I have been crying for what feels like an eternity.  But in between my tears, I have an overwhelming sense of freedom.  Today we were told that there are no more treatment options for Ty.  That his MRI Saturday night shows progressive lepto-meningial disease in three different areas.  Lou and I decided against surgery to fix Ty's shunt, and I am finally free from feeling responsible for whether or not he lives or dies.  Ty is in God's hands. No matter how many times I swore that I leave Ty in God's hands, I was always clinging onto him with every ounce of my being.  Researching.  Fighting.  Begging.  Doing anything in my power to find a way to save him.  Finally, I have exhausted my options and I am letting go.  I may be kicking and screaming, but I am still loosening my grip because I know that I have to.  We have tried so hard, for so long....
Read more