Goo-nite ev-weebody, I wub you

Nothing new to report tonight because we weren't able to coordinate Ty's MRI with anesthesia today.  Instead he will be getting his "picture taken" tomorrow morning immediately following his final radiation treatment.  As always, Lou and I are extremely anxious to see the results.  We will post an update later tomorrow when we know more.

In the meantime, Ty is feeling much better today.  He improved in leaps and bounds over the last 24 hours.  In fact, tonight he ate half a NY strip steak, a hot dog, grapes and cashews for dinner.  He is a force to be reckoned with.  My phone stinks, so the volume on the attached video is very low, but he is saying "goo-nite ev-wee body, I wub you!"  We love you, too.  Goodnight. 

Comments

  1. maryeking83April 20, 2011 at 9:55 PM

    Little man,

    I hope you have a wonderful peaceful nights rest! You are always on my mind and heart little man!We will be praying for you!!!

    I can’t wait to hear how much smaller the tumor is!

    Sleep tight sweet baby boy!!!

    Mary E. King and the rest of the King family

    ReplyDelete
  2. Brooke : )April 20, 2011 at 11:06 PM

    Smart one less intubation. We are so happy to hear he is doing better today. Looking forward to hearing about all the tumor destruction and happy celebrations for the end of radiation!! Whoohooh!!!

    Love and prayers,

    Brooke, Eric, Emily and Owen

    > :0 }= Happy Easter to everyone!!

    ReplyDelete
  3. mojzisekApril 20, 2011 at 11:10 PM

    Good night sweet boy--get a good nights sleep for you and your family. You are such a strong, brave little boy--you give me so much inspiration!!!
    Jennifer in Charlotte

    ReplyDelete
  4. BrianApril 21, 2011 at 7:37 AM

    Ty, you are such an inspiration and you don't even know it. You are amazing, as are you Cindy and Lou. Keep up the great work.

    ReplyDelete
  5. momsjulesApril 21, 2011 at 8:54 AM

    Goodnight little angel , we all love you! Keep fighting!
    oxoxo Raena

    ReplyDelete
  6. GinaApril 21, 2011 at 11:25 AM

    Hi Ty, I am glad you are feeling better and I hope you continue to get better everyday. I look in on you to see how you are doing a few times a day. You are such a strong boy.

    I hope you get to go home for Easter, I am sure the Easter Bunny is going to leave you and Gavin lots of goodies.

    Talk to you soon
    Gina from CT.

    ReplyDelete
  7. JessicaApril 21, 2011 at 1:09 PM

    he just melts my heart!

    ReplyDelete
  8. TraceyApril 21, 2011 at 8:23 PM

    he is just so precious. How could you not just want to kiss those big cheeks all day long. Hugs and kisses being sent his way

    ReplyDelete
  9. Colleen RosenApril 21, 2011 at 11:23 PM

    Thank god he is feeling better. I hate it when you guys are miserable. I hope you begin to string together more and more bedda days.

    Oh - I loved ur "scanticipation" word. Good one. So it's scanticipation time. How fun! The initial CRI results are very promising ;) Keep us posted.

    ReplyDelete

Post a Comment

Popular posts from this blog

Our baby is finally free. Rest in peace Ty Louis Campbell.

Image
Ty Louis Campbell is gone, but his story continues.  This is our promise to him.  His impact on the world around him gives his short but inspirational life such meaning.  His soaring spirit will continue to fuel a fire in our hearts, and strangers around the world will continue to fall in love with the little boy who fought so valiantly.  The little boy who hurt so much, but maintained a bigger, brighter smile than the healthiest of children.  Ty never did break his fever.  He never really woke up.  Not until he decided to leave this earth and fly freely among the clouds.  At that very moment, he was awake.  He had returned to Lou and I to say goodbye.  To say our hearts are broken would be like saying it tickles to have your stomach ripped open with a spoon.  I went to bed last night with so much worry on my mind, but I was able to fall asleep because I was calmed by the fact that in his semi-conscious state, Ty seemed so incredibly peaceful and comfortable.  I laid down next
Read more

Anything but cancer

Image
Cancer is not welcome here.  It can never, ever, ever, ever, ever come back.  As I mentioned yesterday, Ty has been showing some physical symptoms that we haven't seen in a long time.  Please, God, don't let it be cancer again.  Anything but cancer. I spoke to Ty's doctor first thing this morning and he believes the increased weakness we are seeing on Ty's left side is not related to new cancer growth - but that doesn't rule out the possibility.  He feels that Ty is suffering from spasticity, which is becoming more visible now only because Ty is getting stronger.  As Ty's muscles begin to regain mass and tone, the neurological weakness on his left side is becoming more noticeable.  This spasticity is likely permanent, but also treatable with continued therapy.  When I spoke to his physical therapist later today, she agreed that it would explain what she is seeing, and then she reassured me that walking again is still a highly attainable goal for Ty.  And "
Read more

Our aching hearts

Image
My face is swollen.  My eyes are heavy.  I have been crying for what feels like an eternity.  But in between my tears, I have an overwhelming sense of freedom.  Today we were told that there are no more treatment options for Ty.  That his MRI Saturday night shows progressive lepto-meningial disease in three different areas.  Lou and I decided against surgery to fix Ty's shunt, and I am finally free from feeling responsible for whether or not he lives or dies.  Ty is in God's hands. No matter how many times I swore that I leave Ty in God's hands, I was always clinging onto him with every ounce of my being.  Researching.  Fighting.  Begging.  Doing anything in my power to find a way to save him.  Finally, I have exhausted my options and I am letting go.  I may be kicking and screaming, but I am still loosening my grip because I know that I have to.  We have tried so hard, for so long.  Ty's doctors and nurses, they are so special.  They have given us beautiful. prec
Read more