Another week down - Ty is still doing well

I haven't posted for a few days because Ty was actually doing so well there was a possibility we were going to be able to go home as early as Friday and I didn't want to jinx it.  It didn't matter, because Ty ended up taking some small setbacks regarding his infection anyway and it was decided that we should stick with the original plan and tough out the rest of radiation therapy inpatient at the hospital.  I had a feeling it was too good to be true :)

No worries, though.  Ty is feeling great.  In fact, his speech has improved so dramatically that he is saying things that I never heard him say before.  It's as if he's been harboring this vocabulary that he just wasn't able to show off yet.  I can't even tell you how good it feels when Ty helps me to read his books aloud and participates in some of the interactive shows like Dora by saying the answers out loud.  The baby that was diagnosed with a brain tumor in August is acting like himself again, only now he is a BIG BOY!

The candy cart came last night and Ty is sporting a new candy watch that he loves.  Hugs and kisses to all from the hospital.  Two weeks down, two more to go!

Comments

  1. BrianApril 2, 2011 at 9:56 AM

    Keep up the good work! So glad to hear this.

    ReplyDelete
  2. LauraBonuraApril 2, 2011 at 10:20 AM

    I just love this sweet little boy so much!! Makes me so happy to see pictures of him smiling!! I hope and pray the next two weeks go smoothly and that you all receive good news at the end! Love you all so much!

    ReplyDelete
  3. Joy MarielleApril 2, 2011 at 12:54 PM

    Cindy,

    I am so excited that he is doing so well!!! He truly is such a brave amazing little boy!! His spirit is incredible and he is an inspiration to so many people! I am so happy for you guys and hope that this two weeks speeds by and you all can go home! Team Ty! :)

    Joy Marielle
    Baltimore, MD

    ReplyDelete
  4. UnknownApril 2, 2011 at 1:04 PM

    :)

    ReplyDelete
  5. Colleen RosenApril 2, 2011 at 1:20 PM

    All this progress! He is such an amazing kid. This is a good time for us to be hopeful. So much easier when he is feeling good. He looks so good too. Hope it up!

    Thanks for the good news. And what a SMART looking watch ;)

    ReplyDelete
  6. MariaApril 2, 2011 at 4:18 PM

    Cindy - Wonderful news. He looks great in the new pic, thanks for posting. So glad that the infection is better.

    Love and kisses for you, Lou, Ty and Gavin.

    Regards,
    Maria

    ReplyDelete
  7. maryeking83April 2, 2011 at 7:30 PM

    TYYYY!!! I love the candy watch... I had a candy Hello Kitty one not to long ago myself :O)

    Two more weeks little man!!! I can't wait for you to be able to go home, I know you can't eiter...

    I hope you have a great weekend and that the candy cart comes around A LOT MORE!!! Go play some BINGO and have a great one.

    Love Ya, Mary E. King, and the rest of the King family!!!

    ReplyDelete
  8. Bonesteel6April 2, 2011 at 10:33 PM

    Ty, you are such an amazing little man! You are truly a miracle in the making. You're such an inspiration to all of us. Keep up the good work and you'll be leaving that hospital very soon. You and your entire family are in our prayers. Love ya!!!

    The Bonesteel Family
    Indianapolis, IN

    ReplyDelete
  9. JulieApril 2, 2011 at 10:44 PM

    He looks so great in this picture. Love that smile!!! Praying for you everyday!

    ReplyDelete
  10. andrewApril 3, 2011 at 12:18 AM

    Continued blessings.

    ReplyDelete
  11. ChristinaApril 3, 2011 at 3:55 PM

    So happy!!!!!!!!!

    ReplyDelete
  12. Brooke : )April 6, 2011 at 8:32 PM

    I LOVE YOU TY


    OWEN

    ReplyDelete
  13. AnonymousFebruary 5, 2013 at 4:04 PM

    Thanks for shaгing your thoughts about null.
    Regards

    my blog ... online casino
    Also visit my website ; online casino

    ReplyDelete

Post a Comment

Popular posts from this blog

Anything but cancer

Image
Cancer is not welcome here.  It can never, ever, ever, ever, ever come back.  As I mentioned yesterday, Ty has been showing some physical symptoms that we haven't seen in a long time.  Please, God, don't let it be cancer again.  Anything but cancer. I spoke to Ty's doctor first thing this morning and he believes the increased weakness we are seeing on Ty's left side is not related to new cancer growth - but that doesn't rule out the possibility.  He feels that Ty is suffering from spasticity, which is becoming more visible now only because Ty is getting stronger.  As Ty's muscles begin to regain mass and tone, the neurological weakness on his left side is becoming more noticeable.  This spasticity is likely permanent, but also treatable with continued therapy.  When I spoke to his physical therapist later today, she agreed that it would explain what she is seeing, and then she reassured me that walking again is still a highly...
Read more

Our baby is finally free. Rest in peace Ty Louis Campbell.

Image
Ty Louis Campbell is gone, but his story continues.  This is our promise to him.  His impact on the world around him gives his short but inspirational life such meaning.  His soaring spirit will continue to fuel a fire in our hearts, and strangers around the world will continue to fall in love with the little boy who fought so valiantly.  The little boy who hurt so much, but maintained a bigger, brighter smile than the healthiest of children.  Ty never did break his fever.  He never really woke up.  Not until he decided to leave this earth and fly freely among the clouds.  At that very moment, he was awake.  He had returned to Lou and I to say goodbye.  To say our hearts are broken would be like saying it tickles to have your stomach ripped open with a spoon.  I went to bed last night with so much worry on my mind, but I was able to fall asleep because I was calmed by the fact that in his semi-conscious s...
Read more

Our aching hearts

Image
My face is swollen.  My eyes are heavy.  I have been crying for what feels like an eternity.  But in between my tears, I have an overwhelming sense of freedom.  Today we were told that there are no more treatment options for Ty.  That his MRI Saturday night shows progressive lepto-meningial disease in three different areas.  Lou and I decided against surgery to fix Ty's shunt, and I am finally free from feeling responsible for whether or not he lives or dies.  Ty is in God's hands. No matter how many times I swore that I leave Ty in God's hands, I was always clinging onto him with every ounce of my being.  Researching.  Fighting.  Begging.  Doing anything in my power to find a way to save him.  Finally, I have exhausted my options and I am letting go.  I may be kicking and screaming, but I am still loosening my grip because I know that I have to.  We have tried so hard, for so long....
Read more