Meningitis confirmed - Ty is sleeping it off

At least we have confirmation that infection in Ty's cerebral spinal fluid is the cause of the fevers and the pain he has been experiencing since Friday night, and his medication has been adjusted to aggressively fight this infection. As a result, Ty was sedated today for a sterile procedure. They placed a PICC line in his arm so we don't have to continue replacing his IVs and so we can provide him with nutrition intravenously (since he pulled out his feeding tube yesterday). Since the procedure, which started around 1PM, he has been pretty much sleeping it off, which is a good thing because there is a lot of healing going on.


The highlight of the day was that Ty passed a swallow study this morning. He was very reluctant to do it, but we forced the issue and we are so glad we did because it proved that his cranial nerves were not further damaged in surgery and he maintained the ability to eat on his own. A tremendous victory! We can't wait until he feels better so he can enjoy some chocolate milk and ice cream.  This also gave Ty more confidence with swallowing and showed him that his mouth "does work" - he can taste his food.

The worst part of the day was receiving the news that Lou and I are getting kicked out of the Ronald McDonald House. Ty's infection has resulted in "isolation status" at the hospital, and the Ronald McDonald House doesn't allow families in our situation to stay in an effort to control spreading bacteria that could be harmful to other immune compromised kids. It's okay, we can return in a few days when his antibiotics cycle is complete. In the meantime, we will be tired from schlepping back and forth, but we will figure it out.  

Lou is especially upset, because he is so mad at McDonald's but he loves it too much to commit to giving it up. 

XOXOXO from Ty

Comments

  1. Kate and JamesSeptember 2, 2010 at 9:20 AM

    Cindy, Lou, Ty, Gavin - Thinking of you nonstop and sending postive thoughts and hugs your way. You have an amazing, strong fighter in Ty and we are confident that you all can do this. Keep up the positivity!

    ReplyDelete
  2. Rosalyn GaztambideSeptember 2, 2010 at 9:26 PM

    Hello!
    This are sad news at this time, but we are all praying. Don't let this put you down.
    Understand that where you are going you will be in the Lords hand. YOu might meet someone who will make a difference in your life or you on theirs. We are all part of a web. Live in love and love in life.
    We love you and send you peace. One day at a time.
    We will soon hear more knock, knock jokes.

    Juliette send you an email. She is praying a lot for Ty and you all. She wants to send him a drawing. Send us his physical address.

    love you all!

    Remember:
    Never let life's hardships disturb you ... no one can avoid problems, not even saints or sages. Nichiren Daishonen

    ReplyDelete
  3. AnonymousApril 28, 2013 at 8:58 AM

    This is a topic that's near to my heart... Best wishes! Exactly where are your contact details though?

    Also visit my blog: medical school consultant

    ReplyDelete
  4. AnonymousApril 30, 2013 at 9:12 AM

    Hello there! This post could not be written any better!
    Looking through this article reminds me of my previous roommate!
    He always kept preaching about this. I am going to send this information to him.

    Pretty sure he will have a great read. I appreciate you for sharing!


    Visit my homepage: acymca.net

    ReplyDelete
  5. AnonymousApril 30, 2013 at 10:06 AM

    I was suggested this blog by means of my cousin. I'm now not sure whether or not this post is written by way of him as no one else know such distinct approximately my problem. You're incredible!

    Thanks!

    Feel free to surf to my web page medical school Supplemental Application assistance

    ReplyDelete
  6. AnonymousMay 11, 2013 at 5:43 AM

    This design is wicked! You most certainly know how to
    keep a reader entertained. Between your wit and your videos, I was almost moved to
    start my own blog (well, almost...HaHa!) Great job.
    I really loved what you had to say, and more than that,
    how you presented it. Too cool!

    Feel free to surf to my site: good acupunturist near Costa Mesa

    ReplyDelete
  7. AnonymousMay 13, 2013 at 4:25 AM

    It's actually a cool and useful piece of information. I'm happy that
    you just shared this helpful info with us. Please keep us up
    to date like this. Thanks for sharing.

    Stop by my web blog my favorite wedding video specialists

    ReplyDelete
  8. AnonymousMay 13, 2013 at 8:47 AM

    Thanks on your marvelous posting! I certainly enjoyed reading
    it, you happen to be a great author. I will make certain to
    bookmark your blog and will come back at some point.
    I want to encourage you continue your great posts, have
    a nice holiday weekend!

    My blog: San Diego life insurance agent

    ReplyDelete
  9. AnonymousMay 13, 2013 at 11:13 AM

    whoah this weblog is wonderful i really like reading your posts.
    Stay up the great work! You understand, lots of persons are looking round for this info, you can help them
    greatly.

    Also visit my homepage - favorite San Diego video firm

    ReplyDelete
  10. AnonymousMay 13, 2013 at 5:32 PM

    Its such as you read my thoughts! You seem to grasp so much approximately
    this, like you wrote the e-book in it or something. I think that you just could do with a few p.
    c. to pressure the message house a bit, however instead of that, this
    is great blog. An excellent read. I will definitely be back.


    My web blog :: online video market

    ReplyDelete
  11. AnonymousMay 14, 2013 at 1:09 AM

    If you are going for most excellent contents like myself,
    only visit this web page everyday as it offers quality contents, thanks

    Look into my weblog ... usvetdsp.com

    ReplyDelete
  12. AnonymousMay 14, 2013 at 9:08 PM

    Cool blog! Is your theme custom made or did you download it from somewhere?
    A design like yours with a few simple tweeks would really make my blog
    shine. Please let me know where you got your theme. Appreciate it

    Also visit my webpage: Video Marketing

    ReplyDelete
  13. AnonymousJune 5, 2013 at 8:37 PM

    Hi there, I enjoy reading all of your article.

    I like to write a little comment to support you.

    my web site ... bankruptcy attorney san diego

    ReplyDelete
  14. AnonymousJune 5, 2013 at 9:17 PM

    Highly energetic post, I enjoyed that bit. Will there be a part 2?


    Here is my web blog: allaboutkidsinflatables.com

    ReplyDelete
  15. AnonymousJune 6, 2013 at 2:28 AM

    Asking questions are genuinely nice thing if you are not understanding
    something fully, but this piece of writing offers nice understanding yet.


    my blog post; our nearest training video specialists

    ReplyDelete

Post a Comment

Popular posts from this blog

Anything but cancer

Image
Cancer is not welcome here.  It can never, ever, ever, ever, ever come back.  As I mentioned yesterday, Ty has been showing some physical symptoms that we haven't seen in a long time.  Please, God, don't let it be cancer again.  Anything but cancer. I spoke to Ty's doctor first thing this morning and he believes the increased weakness we are seeing on Ty's left side is not related to new cancer growth - but that doesn't rule out the possibility.  He feels that Ty is suffering from spasticity, which is becoming more visible now only because Ty is getting stronger.  As Ty's muscles begin to regain mass and tone, the neurological weakness on his left side is becoming more noticeable.  This spasticity is likely permanent, but also treatable with continued therapy.  When I spoke to his physical therapist later today, she agreed that it would explain what she is seeing, and then she reassured me that walking again is still a highly...
Read more

Our baby is finally free. Rest in peace Ty Louis Campbell.

Image
Ty Louis Campbell is gone, but his story continues.  This is our promise to him.  His impact on the world around him gives his short but inspirational life such meaning.  His soaring spirit will continue to fuel a fire in our hearts, and strangers around the world will continue to fall in love with the little boy who fought so valiantly.  The little boy who hurt so much, but maintained a bigger, brighter smile than the healthiest of children.  Ty never did break his fever.  He never really woke up.  Not until he decided to leave this earth and fly freely among the clouds.  At that very moment, he was awake.  He had returned to Lou and I to say goodbye.  To say our hearts are broken would be like saying it tickles to have your stomach ripped open with a spoon.  I went to bed last night with so much worry on my mind, but I was able to fall asleep because I was calmed by the fact that in his semi-conscious s...
Read more

Our aching hearts

Image
My face is swollen.  My eyes are heavy.  I have been crying for what feels like an eternity.  But in between my tears, I have an overwhelming sense of freedom.  Today we were told that there are no more treatment options for Ty.  That his MRI Saturday night shows progressive lepto-meningial disease in three different areas.  Lou and I decided against surgery to fix Ty's shunt, and I am finally free from feeling responsible for whether or not he lives or dies.  Ty is in God's hands. No matter how many times I swore that I leave Ty in God's hands, I was always clinging onto him with every ounce of my being.  Researching.  Fighting.  Begging.  Doing anything in my power to find a way to save him.  Finally, I have exhausted my options and I am letting go.  I may be kicking and screaming, but I am still loosening my grip because I know that I have to.  We have tried so hard, for so long....
Read more