Finally, an uneventful day

With the exception of a minor belly ache, today was a surprisingly uneventful day.  What a joy!  Ty and Gavin both slept late because they must have been totally wiped out from our trip.  Ty finished one of his antibiotics today, also, which I know he is very happy about because he hated it every time I hooked it up to his feeding tube.  The only problem is that Ty is still wide awake and doesn't want to go to sleep. 

As I mentioned before, he pretty much rules the roost these days and now that he's back at home we're having a hard time regaining any authority.  So, he's sitting here late night surrounded by treats and watching Dora the Explorer.  And I remain at his beck and call, as usual.  Who cares, just having him next to me and seeing his sh*t eating grin every time he asks for something he knows he shouldn't have makes me so happy. 

We don't have any appointments until Tuesday, so we hope to have another easy going day tomorrow, and a weekend filled with family and friends.  Thank you all so very much for keeping tabs on our little fighter and for the outpouring of support we continue to receive.  We are so incredibly lucky to have people like you who care in our lives.  We feel very blessed. 

Comments

  1. Colleen RosenSeptember 24, 2010 at 7:33 AM

    Sounds good. Hope the weekend is great!

    ReplyDelete
  2. AnonymousJune 2, 2013 at 9:22 PM

    Sometimes an ad agency's job is to apply these strategies to improve and pick to pay out in time instead of in money. Email them thanks that day, and nobody ever has to return to be ripped off again. Different businesses and different industries will need a resale certificate from your state. The study suggests that insights into extreme drinking as a cultural phenomenon should be a precious commodity that should be understood is the fact that SEM utilizes SEO and other student loans jobs in the world.

    my homepage: Student Loans for People with Bad Credit

    ReplyDelete
  3. AnonymousJune 19, 2013 at 4:24 AM

    Changing your pillowcase and towel frequently can also help in reducing the redness in lesions along
    with killing the bacteria that cause how to get rid of acne.
    If nothing works, then go with cotton shirt,
    which is frequently used. Simple Home how to get rid of acne Remedies You just
    landed a date with destiny. If you suffer from a lot of dirt on a regular basis.
    If you are one of the best partners in the process.
    Drink a lot of circumstances. Since there are many topical
    creams on the market.

    ReplyDelete

Post a Comment

Popular posts from this blog

Anything but cancer

Image
Cancer is not welcome here.  It can never, ever, ever, ever, ever come back.  As I mentioned yesterday, Ty has been showing some physical symptoms that we haven't seen in a long time.  Please, God, don't let it be cancer again.  Anything but cancer. I spoke to Ty's doctor first thing this morning and he believes the increased weakness we are seeing on Ty's left side is not related to new cancer growth - but that doesn't rule out the possibility.  He feels that Ty is suffering from spasticity, which is becoming more visible now only because Ty is getting stronger.  As Ty's muscles begin to regain mass and tone, the neurological weakness on his left side is becoming more noticeable.  This spasticity is likely permanent, but also treatable with continued therapy.  When I spoke to his physical therapist later today, she agreed that it would explain what she is seeing, and then she reassured me that walking again is still a highly...
Read more

Our baby is finally free. Rest in peace Ty Louis Campbell.

Image
Ty Louis Campbell is gone, but his story continues.  This is our promise to him.  His impact on the world around him gives his short but inspirational life such meaning.  His soaring spirit will continue to fuel a fire in our hearts, and strangers around the world will continue to fall in love with the little boy who fought so valiantly.  The little boy who hurt so much, but maintained a bigger, brighter smile than the healthiest of children.  Ty never did break his fever.  He never really woke up.  Not until he decided to leave this earth and fly freely among the clouds.  At that very moment, he was awake.  He had returned to Lou and I to say goodbye.  To say our hearts are broken would be like saying it tickles to have your stomach ripped open with a spoon.  I went to bed last night with so much worry on my mind, but I was able to fall asleep because I was calmed by the fact that in his semi-conscious s...
Read more

Our aching hearts

Image
My face is swollen.  My eyes are heavy.  I have been crying for what feels like an eternity.  But in between my tears, I have an overwhelming sense of freedom.  Today we were told that there are no more treatment options for Ty.  That his MRI Saturday night shows progressive lepto-meningial disease in three different areas.  Lou and I decided against surgery to fix Ty's shunt, and I am finally free from feeling responsible for whether or not he lives or dies.  Ty is in God's hands. No matter how many times I swore that I leave Ty in God's hands, I was always clinging onto him with every ounce of my being.  Researching.  Fighting.  Begging.  Doing anything in my power to find a way to save him.  Finally, I have exhausted my options and I am letting go.  I may be kicking and screaming, but I am still loosening my grip because I know that I have to.  We have tried so hard, for so long....
Read more