Tuesday, May 24, 2011

Post #203 -- I can't believe it!

When I began this blog, I never imagined it would spread beyond my family and close friends.  I didn't know so many people would care to read my raw, emotional ramblings about having a three-year old with cancer.  I also didn't know how much I would gain from sharing this journey with you.  You all keep me sane :)  So, when I noticed tonight that I surpassed 200 posts - Wow! - Thank you all for inspiring me to keep this up.  I don't know how I would get through all of these twists and turns without an outlet and an audience!  It means so much to me and my family knowing that we have so many people in our corner, praying for Ty. 

203 posts is also a blunt reminder of just how long we have been in this fight.  And, it's a reminder that there may be another 200+ posts in my future until I can announce that Ty is cured, but you all know I don't care.  It can take another 2,000 posts as long as my baby is okay along the way, and cured in the end. 

This picture was taken at the time of my very first post.  It's very blurry, but he still looks cute. 


Then this was taken in early April during one of our many trips home after a long hospital stay. You can see that the steroids were still giving him those chubby cheeks just a few weeks ago.  How much he's changed in these 200+ days!

Tonight, I am pleased to report that Ty is sleeping.  Yes, that's right, he is asleep in bed while Lou and I are sitting on the couch together after a long day.  I don't know what was different about today, but for some reason when I asked him if he would please come to bed with me tonight, he agreed.  Maybe he is getting more comfortable with being home, or maybe his bloodcount is starting to drop from the chemo so he is more fatigued, but regardless I jumped at the opportunity and climbed into bed with Ty before even changing out of my clothes.  We snuggled so close we were sharing breath.  He fell asleep after a while, and I was able to sneak back out for some rare alone time with Lou.  We are both so excited to be here, I think I will have to cut this post short so we can catch up.

UPDATE: I was mistaken.  Turns out lst night wasn't much different from any other.  Ty was so well rested after going to bed early last night, that he has been up for the day since around 2:30AM with only a few intermittent naps throughout the morning.  I am trying to drink my coffee (thank you LOU for letting me sleep while you tended to the Boss), and Ty keeps harassing me to play Hungry Hungry Hippos.  Really Ty?
Before I go, let me share with you my communication with Ty's doctor via email today.  I was over the moon and feeling the love after getting his positive feedback. 

Doc:  How is Ty doing at home?
Me:  He has some emotional issues, but physically he is doing okay.  His pain is managed better than before, as is his nausea.  I'm keeping him on a small G-tube feed as much as possible in order to keep his stomach from contracting while he is getting TPN.  His appetite is otherwise non-existent.
Doc:  Cindy, all of this sounds perfectly fine.  Sounds to me like Ty is doing amazing and I look forward to seeing you Friday. 

9 comments:

  1. That is a beautiful picture of Ty- I always thought he looked so much like you. That picture is a beautiful combination of Debi,Louie and Richie- I see them all.
    Cindy, You are an incredible example of the word strong and are well developed and balanced. Think of all the people who are so fortunate to have you in their lives.

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  2. Whoohoo sounds like Team Super TY is kicking some cancer ass!!! Keep it UP!!!!!

    Thinking and praying for you always!!

    Love and Prayers :) :) :)

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  3. This is precious!"We snuggled so close we were sharing breath."
    Praying that you all get some rest today!

    Bridget
    Memphis,TN

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  4. Your doctor sounds so nice. I've have noticed that Ty is starting to look like his old self more and more. He will get better; I believe and pray for it. When he does, I don't think you'll be able to hold him back from anything. Looking forward to the posts about this one day! Love and prayers as always from Canada!

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  5. I am ready to read each post until Ty is cured! I love you and I hope Ty is beginning to sleep better. Keep up the good work. Let's all look forward to more and more good news.

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  6. We're all rooting for Ty here in NY! God bless you and your family! xoxo

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  8. The Schopfer family sends their thoughts and prayers ahead of you to NYC tomorrow!

    We hope that you have a smooth ride into the city and that once there receive the confirmation of Ty’s medical progress that so many are praying for. We pray that Ty’s doctors continue to use their considerable talents and expertise to provide Ty with the best that medicine has to offer him.

    We hope that the warmth of the sunshine and the gentle breezes have made the time that you have spent together at home even more enjoyable. Hang in there and know that no matter what you are going through, as long as you keep moving through it, you will be out of it soon enough!!

    With much love and continued prayers for a full restoration of your spirits and Ty’s health!

    The Schopfers

    “Become a possibilitarian. No matter how dark things seem to be or actually are, raise your sights and see possibilities, always see them, for they're always there.”

    -Norman Vincent Peale

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  9. Prayers, love, blessings and flip flops waiting for as long as it takes for Super Ty and his Super Family to come and visit us here in Puerto Rico.

    Sleep tight!

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