When I am alone with Ty, a trip to the bathroom is the most stressful experience. Parents are not permitted to use the restroom in the patient rooms unless both occupants are not using it. Ty's roommate is almost four and he uses the potty, so we have to go down the hall to the shared bathroom to wash up, get changed, shower and, obviously, go to the bathroom. I totally get it and appreciate the rules because it is important to be as sanitary as possible for these little fighters, so I certainly don't want to come off as if I'm complaining. That is not my point.
I just thought I would share this with you, because it should be such a simple thing... wanting to brush my teeth before I go to bed... or wanting to wash up with a proper skin regimen and moisturize my face before bed... yet it is the complete opposite of simple when we are here. If Ty is awake, I have to prepare him for the fact that I am leaving him alone in the room for a few minutes. He is never happy about it. I have to put on a movie, bribe him, etc. Then, as soon as I set foot outside the door, the panic begins... what if he throws up? He throws up ALL THE TIME, what if I'm not there?? When I sneak out while he's sleeping it's even worse because I worry he'll wake up nauseous or in pain and have no idea where I am. My trips to the bathroom are comical. I rush everything. I actually floss in the room before I head down to the bathroom to save time, and I leave prepared in such a way that I can go through my bedtime routine as fast as possible (pajamas, brush, splash water on my face, pee, run back to the room).
I am sharing this only because I just returned from that stressful place and I was beyond relieved to find that Ty had fallen asleep in the short time that I was gone. It is just top of mind, I guess. I realize that sometimes this blog gets a little silly or I get hung up on some boring details, but I want anyone who is reading this to know that it helps me. Posting these updates give me a lifeline to the outside world, and your constant, unwavering support helps me to find solace and rest a bit easier. Not to mention that it is an incredible outlet for all of my pent up frustrations (as evident in today's topic :)).
Ty is resting peacefully and he is doing well. He has regained so much strength in his right arm that he is proud to say he can pick his nose again. He also reaches out to me with that hand and wants to cuddle every night, which... how can I even put in words how that makes me feel. He is just so special. I wonder if it gets annoying to him to hear me tell him how cute and how special he is a million times a day!
Goodnight all. Thanks for caring. XOXO.