It's late, just after 3AM, and we can barely keep our eyes open. After a very long day we had to return to MSKCC Urgent Care around 10PM tonight, only to wait for hours on end before our room was ready. Don't worry, Ty is fine. Unfortunately his bloodwork showed that the dosing on his antibiotics is way too high and it may be dangerous so we had to return to the hospital for at least 24 - 48 hours in order to sort this out.
Vancomycin, the antibiotic he has been on many, many, many times, needs to be at a safe, therapeutic level when it is administered. The way they ensure this is by checking the levels in his blood periodically. For whatever reason, Ty's routine bloodwork that was drawn during radiation therapy this morning showed that the levels were twice as high as they should be and therefore dangerous to his kidneys. Our nurse called to break the news to us about 10 minutes before we pulled into our driveway after what already seemed like a long day.
Since the levels were so inexplicably high, the nurse was convinced that the bloodwork was probably contaminated (meaning, perhaps some pure vancomycin had been pooling in his mediport so when they drew back a blood sample it seemed much more concentrated). Well, we certainly didn't want to drive all the way back to the city just to confirm such an error, so we went to work trying to find a facility near our home that could do the labwork at exactly the right time and get the results within an hour so we wouldn't miss a dose. It was frantic and totally frustrating. Quest Labs… Labcore… people don't actually answer the phones at ANY of these facilities! It was driving me so crazy, we ended up getting it done at our tiny, local hospital and it was actually very easy. We were in and out, and sure that everything was fine.
Not such a happy hour on this Friday night
I don't know what we were thinking. After we came home from hospital #2 we settled down on our comfy couch, heated up some pizza, cracked open a beer and talked about the relaxing weekend we had ahead of us. What fools we were! We always get so mad when our doctors are surprised by Ty, so I guess we jinxed ourselves and ended up being thrown off guard ourselves when we got the call tonight. It wasn't a fluke… Ty's antibiotics are running dangerously high and we had to return to the hospital for the third time today, this time overnight.
I took my time and read Gavin a couple of extra bedtime stories tonight. I hugged him extra tight and kissed him twice as much. I am just so sad about being robbed of all this time with that incredible baby boy. I hate the thought of him waking up tomorrow morning to find me gone again. He's such a good boy and I miss him so much.
It also breaks my heart to bring Ty back inpatient. We left at 5:30 this morning for hospital trip #1, returned home at 1PM, left for hospital #2 at 2:30PM, returned home around 5PM and left for hospital trip #3 at 9PM. He is not taking it very well. We have already had a really tough time trying to help him adjust to being home and trying to rid him of his fears and insecurities. Just when we start making progress and he was accepting the daily trips for radiation we are back inpatient. ARGH! Poor little man. We also have the smallest room, most overcrowded room on the floor. Lou and I are so wiped out, I just want to crash until tomorrow afternoon. If I can't be doing what I want to be doing, at least let me catch up on some sleep! (yeah, right, as if Ty would EVER allow that!). Oh well. Looking forward to Wednesday. As long as he keeps getting better, I will continue to try and take all of this in stride. Each step gets us closer to the day we can put all of this behind us.
XOXO - SuperTy