Saturday, April 23, 2011

Deja Vu

The results from Ty's MRI on Thursday are frightening.  I needed a couple of days to come to terms with the news before posting, so I could explain what we were told and how we have decided to interpret everything. I needed to take some time to breathe again.

The radiation is working extremely well on attacking Ty's tumor at the brainstem, but the radiologist discovered two new lesions in his cerebellum.  The final MRI report reads that they appear to be growing very rapidly and that they are indicative of lepto-meningeal disease.  If that proves to be true, our doctors say a cure is no longer likely but they provided us with several alternative treatments to prolong life comfortably.

Let me tell you what we think of that news.  Unacceptable!  I was in a complete panic for a few hours after leaving the hospital (we were delivered the news just minutes before discharge on Thursday evening), however I settled down after a couple of hours and I was hit with such a powerful wave of serene calm, that I just know everything is going to be alright.  We have been delivered this news before, and they have been wrong every time.  I refuse to believe it this time.  I won't let them do this to me again!  I simply can't accept that cancer is spreading in my baby's brain while he is simultaneously undergoing radiation therapy, it just doesn't make sense.  All I have to do is watch him eating and coloring to see that he is getting better.  He is thriving!

Thursday was supposed to be a great day for us.  Ty completed his RT in the morning and we were so proud of him.  During his MRI I ran some last minute errands to prepare for Easter, and when we returned his doctor told us everything looked good but he wanted to wait for the final report prior to discharge.  He mentioned the new lesion, but he said he was sure it was nothing to worry about... that it looked like an old clot or potentially some disease that was eradicated during radiation, but he wasn't concerned at all. 
All day we looked forward to our celebration dinner together, we were so happy.  Of course, during the depressing ride home we debated cancelling our plans, but after talking through everything and coming to terms with the news that was delivered atthe end of the day we decided to be defiant.  We decided that the MRI remains inconclusive and we will not let this impossible guessing game sink our spirits.

I am not naive - I know the extent of how serious Ty's cancer is - but I decided to live in limbo until future tests prove something different.  Yesterday was Gavin's birthday, tomorrow is Easter... I am going to enjoy these days with every bone in my body.  In the meantime, I will be channeling all of your love and strength during these days of uncertainty.  We will schedule a follow up scan to look into this further toward the end of next week (probably Friday) and I will be sure to keep you all posted every step of the way.

HAPPY BIRTHDAY GAVIN
Gavin is two!  He embraced his new age by acting like a complete crazy baby all day yesterday and it was very amusing.  Today we will have all of his cousins over to celebrate with a monster-themed birthday party and I can't wait to share some pictures with you all. 

Ty had a very hard time accepting that it wasn't his birthday, too, so we are allowing him to celebrate his half-birthday at the same time (he turned 3 1/2 on April 4th) and we baked him 1/2 of a cake.  The things you have to do to appease a three-year old!  Gavin was a beautiful baby.  I can't believe he is getting so big and so fast.  So much has happened in our lives since the day he was born, he is so resilient!  He's amazing. 


XOXO from Gavin, Ty and the rest of the Campbell Family.

21 comments:

  1. Nothing is impossible for God!

    I agree with you 100%! + positive attracts positive + let your positive energy be the one to guide you and go through Ty to make his body heal.
    Take one day at a time, enjoy today. Happy birthday Gavin! Happy Mid-birthday Ty!
    We hope you have a great Easter and may our Lord bring you the miracle of Ty's well being.
    Yesterday we went to 7 Eucharistic Monuments and we placed Ty in one of the oldest chapels. We bough a silver charm with his name that we will return there with you after he is healed!

    Patience is your virtue, LOVE is your shield, HOPE is your light and GOD is your path!

    Remember:
    With hope the angels always win as long as there is love.

    Everything has it’s time, but never is to late to try again. You have to learn the rules of the game first, then you’ll play better.

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  2. Happy Birthday Gavin! Happy half Birthday Ty! Happy Easter! Stay strong. We are all praying for you.
    The Panzers

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  3. Cindy,

    Happy Birthday Gavin!!! A 2 year old and a 3 year old, I truly do not know how you do it! I have enough of a hard time with a 3 year old and 11 year old, lol! :)

    I am staying positive and praying extra hard for that amazing little boy! Despite your uncertain news, I truly believe that he is going to beat this!

    I wish you all a Happy Easter, and I will continue to pray for your family!

    Joy Marielle
    Baltimore, MD

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  4. I would push aside those MRI results for now too. As they were wrong before, they are probably wrong now. Ty has had alot going on from cancer fighting to infection fighting. Those spots could be anything and without a biopsy they have no clue!

    Believe me...I have seen the powerful results from radiation treatment, abolishing huge entire tumors into a necrotic mess. Stay strong, fight the fight!!

    Happy Birthday Gavin and 1/2 B-day to TY. We also celebrated Erics B-day too same day as Gavins!! YAY!!!

    We send you all the positive energy we can and are all hoping your Easter and birthday celebrations are fun and exciting with lots of yummy cake, candy and family!!

    Love and prayers,
    Brooke, Eric, Emily and Owen <3

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  5. Not seeing your post made me nervous. Your blog is part of my daily internet visit. I wish both boys a happy birthday and a Happy Easter to all of you. I hope the results show something different than what they told you could be happening. :) Angela (Carmel)

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  6. He is thriving and we don't know for sure what the scans are showing so no one is giving into this. You guys have made it over hurdles like this before (this very hurdle, in fact). I wish it weren't such a roller coaster and so scary.

    Our thoughts and prayers continue to focus on positive results and strides only.

    Mircles happen and they can happen for us. There is a whole river of love flowing to you guys.

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  7. sending you positive energy, peace and love. Happy 2nd birthday to Gavin and happy 3 1/2 birthday to Ty and i am hoping (with everything i have) that the entire family has a happy weekend.

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  8. Cindy, it was so nice running into you and Ty on Thursday. He is such a special boy and he is lucky to have such wonderful supportive parents. You are all always in my prayers, that Ty and all of you receive healing, peace, strength, and that you are all able to enjoy your time as a family. I hope this next test provides you with better news. God bless all of you.

    Love,
    Sarah

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  9. Cindy, you are an amazingly strong woman, and you are right to be defiant. Super Ty cannot be held down by the guessing game that the Drs are required to play.

    Happy Birthday to Gavin!

    xoxoxoxo, Maria

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  10. I have been checking daily and was afraid y'all were having a rough time. I agree with you--unacceptable! Let them speculate, they don't know. We will keep praying. Happy Easter to your sweet boys!

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  11. God bless you. I would give all I have to stop all that Ty is going through. I believe with all my heart that you will shed these ugly shoes. There will be a day we will ready your blog about Ty's teenage antics. I will not stop praying and prayed today for Ty to be well.

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  12. our prayers are with you....sincerely praying that you can find some peace and comfort in the midst of this very unpredictable storm.

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  13. I say pretend u never even heard the news. You know ur baby better than anyone else and like u said they've been wrong b4. Stay positive and positive things will happen! I'm praying for u all everyday <3

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  14. I am thinking of Ty and your family every day. I wish you confidence and strength for the time to come! Show the doctors they are wrong!!

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  15. Praying, praying, praying...

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  16. The power of prayer transcends all that man can do. Fight, fight, fight, pray, pray pray!!

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  17. Ty,

    This has been hard news to swallow. You are so loved and special and do not deserve this.

    You are always on my mind and forever live in my heart. I pray to God that these doctors are wrong again.

    We love you, so very much,
    Mary E. King and the rest of the King family
    GA

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  18. as always...thinking and praying for Ty and your family. I sincerely hope you were able to enjoy your weekend as a family :)

    ~With Love from IL

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  19. Cindy, my father-in-law was diagnosed with stage 4 renal carcinoma in 1999. He has had many 4 or 5 surgeries since then and been on a couple different drugs. While he still has cancer you couldn't tell by looking at him. My point to this is that before one of his surgeries the dr. came to us just before they wheeled him in and said that after reviewing his latest scans he found that the cancer has spread all over his abdominal region. He most likely was just going to open him up and them close it back up.
    After hours of waiting the dr. came to us and brought us into a private room. We immediately thought the worst. But he told us that when he opened up my father-in-law he found nothing. He was amazed. His only answer was that the scans were showing scar tissue that appeared to be cancer.
    I am hoping that this is the case with Ty. Thinking of you guys.

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  20. Cindy - I cannot imagine what you must be thinking or feeling. I am reminded, again, how wise god is... Clearly he knew what he was doing when he chose you to by Ty's parents - most people would not be as strong, courageous, loving, determined, and totally amazing as you and your husband have been through this whole process.

    Stay strong. Keep your faith and determination. Anything is possible with love, prayer, and determination. Ty has everyone in his corner and we believe, like you, that this is only another minor complication/setback but in no way a change of course.

    Happy birthday Gavin! Happy half birthday Ty!

    Love, hope and prayers from the Talbot Family

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  21. I learned a long time ago that radiologists make mistakes or are not always sure what itis they are seeing. TY is on the mend and will continue to thrive. When he is graduating college or getting married you will have a lot of stories to tell him!!! Keep the faith

    Love to all

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