We were discharged from the hospital in time to enjoy the tailend of the weekend, thank God. We caught up on some sleep, and we're ready to tackle our last week of radiation. We have three more days, and we are already in the waiting room ready to finish with day one. This is Ty waiting patiently in his stroller for his "teetmee" (treatment). I use the word patiently with much poetic license, because I'm sure most of the people that are sharing this waiting room would think the opposite, but I have seen much worse :)
There's a lot of emotions going on inside that little head of his, and he just doesn't know how to express himself beyond crying out. Not to mention how funky all of his meds must make him feel. He is still on a low dose of steroids, causing his "roid rage" to kick in several times a day. I've weened him from 10 milligrams of morphine every six hours (that's the largest dose he has EVER been prescribed) down to .5 milligrams over the course of the last two weeks, so he may be having some withdrawal issues. And, due to the misfortunes he faced over the course of the weekends, the team is playing around with his antibiotics again. So, it can be frustrating at times when I can't figure out what is causing him to cry so much, or act out. On top of everything, I can only imagine how scared and insecure he still feels when we are dragged in and out of the hospital so much. And, how frustrating it must for him to be feeling better, but still unable to do the things he wants to do physically.
Ty often says "I don't know what's wong wit me" and I try to explain to him that he is feeling this way for a lot of reasons, but that the most important thing to focus on is that he is beating the cancer up and getting bedda. He really is improving with every single day. I wish you all could have seen how much he ate yesterday. He was a force to be reckoned with :) He is even switching hands to feed himself, using his strong arm to pull his weaker hand up to his mouth. He is working it!!