Brotherly love

Today was an incredible day.  Ty is feeling great!  His headaches seem to be gone altogether, he sat up a couple of times, he was wide awake all day and talking about how he's ready to go home soon.  "As soon as they get the tubie out of my head," he says. 

The visit with Uncle Bill, Aunt Lorraine and GA-GA was great.  The nurses broke the rules for us and allowed Gavin to come into Ty's room - which was such a blessing.  Ty was so happy to see him, and when the doctor asked him, "how is your brother?" Ty replied "BIG!"  Lou and I think so, too!  Not sure what Aunt Theresa is feeding him, but she did tell me he ate two slices of pizza for dinner the other night and I noticed it is going straight to his thighs :)

This was the best I could capture with my phone.  Brotherly love.  Doesn't Gavin look huge?


Tonight Ty said something that made me run out of the room to cry.  He called me in close for a hug and a kiss, and after I gave him an extra long hug he asked, "MaMa...You want me to get bedda?"  I got so choked up immediately, I could barely answer, "Yes, baby.  I want you to get better more than I want anything in the entire world."  I hope God was listening.

Comments

  1. Rachel MarinoNovember 26, 2010 at 9:21 PM

    OMG, totally crying with you. They look so cute. I can't wait to get all our boys together and let them wrestle. Miss you. Rachel

    ReplyDelete
  2. momsjulesNovember 26, 2010 at 10:40 PM

    Praying for you guys everyday! Ty is so sweet and such a trooper! Gavin does look so big in that picture... he looks as big as Ty! So glad you had a nice day together. oxoxox Raena

    ReplyDelete
  3. Colleen RosenNovember 27, 2010 at 1:01 PM

    They are tooooo cute. I'm glad he is feeling better. God please hear our prayers!

    ReplyDelete
  4. Kathy BrunelleDecember 1, 2010 at 9:42 PM

    SO MUCH LOVE, HOW GREAT IS THAT!!

    ReplyDelete
  5. adamApril 29, 2014 at 4:13 PM

    My name is Alona. I read that your research goes towards better treatment options for kids, etc etc. I have a small fund Eitan's Hope for Children in memory of my son Eitan who survived 3 1/2 years beyond medical expectations due to the alternative medical treatments he received..(long story). The treatments eventually damaged his immune system and his body could not survive. The fund is intended for alternative medicine at a fabulous healer I know.He is one in a million. In addition I bring the mind/body connection in the form of personalized baskets filled with all that which makes a child/patient feel like a person with wants, desires, hopes, likes, loves, etc, other than like a statistic. The hospital or two I have been involved with recognize the difference in the kids...Would love to email or connect with you somehow, even see about trying to help some kids you know. My son and I adore kids and he and I both believed in the mind body connection and energy medicine, nutritional counseling, etc...(He was initially given a few months)...I feel for you and pray for you...Maybe we are meant to connect. My email is alona@eitanshopeforchildren.org....

    ReplyDelete

Post a Comment

Popular posts from this blog

Anything but cancer

Image
Cancer is not welcome here.  It can never, ever, ever, ever, ever come back.  As I mentioned yesterday, Ty has been showing some physical symptoms that we haven't seen in a long time.  Please, God, don't let it be cancer again.  Anything but cancer. I spoke to Ty's doctor first thing this morning and he believes the increased weakness we are seeing on Ty's left side is not related to new cancer growth - but that doesn't rule out the possibility.  He feels that Ty is suffering from spasticity, which is becoming more visible now only because Ty is getting stronger.  As Ty's muscles begin to regain mass and tone, the neurological weakness on his left side is becoming more noticeable.  This spasticity is likely permanent, but also treatable with continued therapy.  When I spoke to his physical therapist later today, she agreed that it would explain what she is seeing, and then she reassured me that walking again is still a highly...
Read more

Our baby is finally free. Rest in peace Ty Louis Campbell.

Image
Ty Louis Campbell is gone, but his story continues.  This is our promise to him.  His impact on the world around him gives his short but inspirational life such meaning.  His soaring spirit will continue to fuel a fire in our hearts, and strangers around the world will continue to fall in love with the little boy who fought so valiantly.  The little boy who hurt so much, but maintained a bigger, brighter smile than the healthiest of children.  Ty never did break his fever.  He never really woke up.  Not until he decided to leave this earth and fly freely among the clouds.  At that very moment, he was awake.  He had returned to Lou and I to say goodbye.  To say our hearts are broken would be like saying it tickles to have your stomach ripped open with a spoon.  I went to bed last night with so much worry on my mind, but I was able to fall asleep because I was calmed by the fact that in his semi-conscious s...
Read more

Our aching hearts

Image
My face is swollen.  My eyes are heavy.  I have been crying for what feels like an eternity.  But in between my tears, I have an overwhelming sense of freedom.  Today we were told that there are no more treatment options for Ty.  That his MRI Saturday night shows progressive lepto-meningial disease in three different areas.  Lou and I decided against surgery to fix Ty's shunt, and I am finally free from feeling responsible for whether or not he lives or dies.  Ty is in God's hands. No matter how many times I swore that I leave Ty in God's hands, I was always clinging onto him with every ounce of my being.  Researching.  Fighting.  Begging.  Doing anything in my power to find a way to save him.  Finally, I have exhausted my options and I am letting go.  I may be kicking and screaming, but I am still loosening my grip because I know that I have to.  We have tried so hard, for so long....
Read more