Saturday, November 3, 2012

We're back online! Hurricane Sandy and Halloween

As you probably guessed, we have been out of power and internet for the week.  We just got everything back.  But, please don’t worry about us with regard to the storm. We fared just fine.

Our beloved Long Beach, however, is devastated and that is a fact that has been very hard for us to swallow this week.  Long Beach was Ty’s home.  His favorite place.  I can’t tell you how many times Ty used to tell me, out of the blue, “Mommy, I memba the old how (“house,” in Ty speak).  I wub the old how.”  It was where he lived his life before cancer and it is where we all made the best friends imaginable.  Today, at a minimum, those friends’ basements are filled to the brim with water, their cars covered in heaps of sand, their entire homes are being prepared to be gutted and rebuilt (if the house is even fixable after all the flooding and destruction).  It breaks our hearts.  So many people we love are homeless and it is going to be a very long time before many of them can move back in. 
Lou went out to Long Beach on Halloween and again yesterday to bring heaps of supplies and help with the clean-up, but there is still so much more to do.   We are heartbroken, and I worry that Ty is weeping buckets over all of this.  I wish I was there to hold him and to tell him that his favorite place will be okay again.  I want him to know that his Sissy and Colleen, who took such good care of him and loved him so much, are going to get a great new house.  But, when I try to tell him these things outloud, I feel like I am just talking to the air.  That makes me so sad.  I can’t have a conversation with my son anymore.  I would give anything just to talk to him again.  To hear his voice.  To understand, even a little bit, what he is feeling. 

SuperTy doing what he did best.  Chillin at the beach.

The day of the storm, before it began, there was an eerie silence outside my home with the exception of the sad, panicked cry coming from one lonely bird.  I started crying and telling Lou that the bird was frantically looking for his Mommy.  It was flying between the two trees in front of my house, back and forth, calling out over and over again.  It tortured me.  It finally flew to a branch right outside my window so I could get a glimpse of the bird, and wouldn’t you know it was a beautiful bluejay?  Ty’s favorite color. The crazy in me actually thought I could catch the bird and keep him safe from the storm, but by the time I got outside it was gone.  I just wanted so desperately to comfort the bluejay.  As if I could whisper in his ear, “I know how you feel. We'll be okay? Right?”  Well, the bird was certainly right to panic.  That storm was pure evil.    I pray for everyone affected.

Halloween this year was certainly one that I suffered through.  I didn’t enjoy one second of Halloween.  But, I am very proud of myself because I didn’t let Gavin know, and I put on a great show for Ty.  I gave out all of his candy with a smile.  A few weeks ago he picked out eyeball lollipops, fruity insect chews, gummy earthworms, booger gum and bags of rainbow “slugs” to give away and when I ran out of those things, I gave out pixie sticks paired with chocolate truffles.  I was true to my word.  We will always give out great candy on Halloween, because Ty wouldn’t have it any other way.  I know a lot of friends and neighbors went out of their way to come down my sad, dark block in honor of Ty on Halloween and I want to thank you for coming all this way to “trick or treat.”  Please come back every year:)  

I didn’t get a single picture of Gavin, I feel terrible about that. But he was dressed like Thor and he was allowed to trick or treat with Ty’s Thor Hammer, which was the greatest part of his day.  In May, Mely and I took Ty and Gavin to the mall – the fancy mall with the Disney store – and I let them each buy one thing from there.  Gavin was still completely obsessed with Toy Story at the time, so naturally he chose another Buzz Lightyear.  Ty was totally disabled, but he still chose this huge Thor hammer that makes thundering sounds when you swing it and shoots out a foam bullet.  I got dozens of smiles from Ty reenacting Thor with that hammer and helping him push the buttons to launch the bullets.  It was a treat for Gavin to use the hammer and he was telling everyone about it while going house to house, which made me so proud. 

Forget the fact that this is a holiday that focuses on candy (Ty’s favorite thing).  What made Halloween extra depressing was reflecting on the fact that last year Ty was at his absolute best since his diagnosis.  He was practically standing independently.  He was getting so strong.  He was cancer free for four months and tolerating his daily treatments very well.  Ty decided to be Iron Man because his cousin James always used to tell Ty he was most like Ironman (because Ty has so much hardware inside to keep him alive, just like Tony Stark).  It makes me realize just how much went wrong for him after this.  Actually, it was after Thanksgiving.  Everything began to go downhill from there, but I’ll recap that whole story another time.


These days, Lou and I walk around the house with a very strong face on. We have talked about the fact that our strength may come from our lack of acceptance.  We are both still looking for Ty all the time.  We walk into the den and expect to see him on the couch.  We enter the house and expect to hear his voice and his laughter filling the hallways.   It’s as if we are just missing him and waiting for him to come home from a long trip away.  I can’t wait to see him again.  This life of mine is already beginning to feel long and dragged out.  The only thing I fear is Gavin getting sick.  Pediatric cancer is and forever will be my greatest fear.  My biggest enemy.  

Lou and I were talking about our future the other night.  A sort of, “what do we do now,” conversation, and Lou started crying.  “I know what I want, but I can’t have it!  What I want are my two boys, my sons, who were a perfect 18 months apart and who were going to be the best of friends.  That’s ALL I WANT!”  And all I can do is agree with him.  We used to have it all and we didn’t even know it.   What more do you need that this adorable duo?



I didn’t realize just how much maintaining this journal has helped me survive until I was offline for a week.  Instead of writing, I allowed all of the things that happened over the course of the week weigh on me.  I am in physical pain because my stress has reached a high point.  I was literally freaking out on Lou today because I feel so overwhelmed and all I want to do is get some alone time in front of the computer!!  As always, he gave me just that (along with a glass of champagne and a snack).  I have a radio interview tomorrow morning on WFAN so I have to cut this short to prepare.  If you are awake at 6AM on Sunday (insert sarcastic laugh) please tune in to 660AM.  I will be using this interview as another vehicle to spread awareness for childhood cancer.  Although my pain is still so new and so raw, this is the stuff that keeps me strong.  Getting Ty’s story out there.  Raising money for the cause.  That is all that matters to me now.  It used to be keeping Ty alive, but now my focus needs to be saving the next Ty Louis Campbell.  I need to use my oh so sad free time to fight for the next kid.  Thank you all, so much, for your continued support and encouragement.  You have all been so amazing. 

107 comments:

  1. So glad that you are all ok. Been thinking and praying for you. Every time I saw a Captain America costume, I thought about how incredibly unfair Ty's outcome is. I'm sure he was there, looking down on all the silliness that is Halloween though. Wishing you all a pleasant night and good luck on your interview tomorrow!
    Jennifer, Illinois

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  2. Cindy,

    I can't believe you're going to be on the radio - 6am Sunday? It'll really be 7am - so no big deal! I will be listening for sure:)
    Can't write much now, as it's bath time - will come back later.
    As always, Ty and your Family are constantly on my mind...
    I'm happy you got your power back:)
    As much as you guys are strong, cry by all means is needed, necessary and I believe it helps....
    Hanna, NY

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  3. So glad to hear you all are okay with the storm. Every time I see Captain America stuff, I think of Ty so Halloween felt like it was "The Day of Ty" and honestly I can't think of a better little boy to have his "own day" - youre doing a great job getting Ty's story out there. Please know you're not alone in doing so. You all are in my prayers as always

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  4. I have kept your family in my prayers since I met Ty through your blog. I say met because I feel as if I know him. I was actually talking to him on Halloween as I took my own boys trick or treating. I told Ty I hope he was enjoying halloween where ever he is and that he is missed even by those he never got to meet. I keep praying you and Lou find Solace in Gavin and the beautiful memories of Ty and in believing that you will all be together again one day...I believe you will.

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  5. Cindy, So glad to see You back online!!!!! <3 I missed You! :) Ecstatic to hear that other than power and internet your family made it out safe! I'm a Florida girl I know all about hurricanes!!!!! Prayers always to you and your family! Missing Ty everyday and I didnt even know him! I can't even imagine how you are feeling!!!

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  6. Sorry about your hometown. Im happy you all are ok. I wish you and Lou some peace. Praying for your family.

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  7. I am excited to hear that Gavin still got to Trick or treat! I am so sorry for your pain and Lila and I can only hope that it eases or dulls in time. I'm sure it will never end, but one can hope for small relief. Ty will continue to be an inspiration to us all, and you through him.

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  8. I have been waiting all week to hear your beautiful words- you so keep me grounded and even though I don't know you I wish I could just give you a hug. Please know our hearts ache for you- and together- all of us will help with this mission. You will never be alone and one day this beautiful boy will be in yor arms again! So glad you are safe and your family is okay; we will keep praying for you!

    Melissa- Michigan

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  9. Cindy,

    I am so sad that your friends have been through the loss of their houses and their belongings being ruined by the storm, but very glad to hear that you, Lou and Gavin were only (yes, that is sarcasm) dealing with the annoyance of losing your power and not having your home flooded.

    I am constantly amazed at how strong you are in the face of so much heartache and pain. As hard as it is to face losing Ty, your keeping this blog going is not only helping you sort through your feelings, but also helping your cause of spreading awareness and continuing the fight for others like Ty.

    You are doing such a wonderful thing, and helping those that have not found their voice get the message out there so that hopefully others can be spared the pain and agony of watching their children fight this damn beast.

    Many blessing to you and your family, and I am so thankful that you made it safely through the storm.

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  10. I'm so glad you weathered the storm okay. I'm just an anonymous stranger in your story, but I thought about you and Ty on Halloween. My little girl survived pediatric cancer, but it was a difficult journey. Even with that experience, I can't imagine the tremendous pain and sadness you carry around in your heart. It's surely a small consolation, but please know that your efforts are making a difference. Ty's sweet perfection is drawing attention to this terrible disease and your story is forcing people to appreciate every moment they have with their littles. <3

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  11. I am glad you are back online, I figured you had lost power, and am happy to hear you came through okay.

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  12. Hi Cindy,

    Glad your power has been restored and you are back online. I was checking for your posts to see how you all are doing with the storm, Halloween, long beach. I've been following your blog for some time and knew this would be quite the week for you.

    I was in long beach today helping a friend and I thought of Ty and how much you said he loved it there. I too spent a lot of time in long beach, both in my premarried days up through my current mommy days. My daughter loves the beach too.

    The neighborhood is suffering for sure. But it is also strong and courageous. And the neighbors are out in the streets helping each other and getting through it together. It's as though the entire town of long beach is a representation of the strength of you and your family. You have been through the worst imaginable but your strength, kindness and love will see you though and make you stronger than ever.

    My heart continues to go out to you.
    Joni

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  13. Ty is happy now. He is in a wonderful place.Please believe this,it will give you peace.

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  14. I was so happy to see your new post!! I have been thinking about all of you in regards to the storm and how your faired on Halloween!! I don't know where you get your strength but I admire it beyond words. I continue to think of you and sweet SUPER Ty daily.

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  15. I wanted you to know everywhere we go, Casey and I get complimejts on our SuperTy hats from kids and adults

    Julie in Mn

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  16. Your baby Ty is so beautiful. He is very different. No other pediatric cancer story has ever affected me like this one. I am a total stranger and yet I was physically sick when I read your story. I have cried many nights over Ty...I can't imagine what you the mother are going through.

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  17. Thought I would sleep in b cuz my sons 7 am hockey has been cancelled, but I will be happy to be waking up to hear the 6am WFAN interview . Honored to.

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  18. I've been wanting to post a comment for so long but I don't share your gift of words. I don't know how to say everything I want to say! I have to tell you though that I believe that Ty has his favorite place in Heaven. I've read several books by Sylvia Browne and in "Life on the Other Side" she says that the other side "is a perfect mirror image of earth's natural topography" and "every work of nature on earth all exist in their original perfection on The Other Side". Ty is probably enjoying his favorite place everyday!
    I pray that everyone will recover quickly from the storm. Here in New Jersey, while my home didn't suffer much damage, I see the devastation people have suffered.
    Thank you for sharing your life and your thoughts... you are truly an inspiration!
    P.S. I recommend you read some of Sylvia Browne's books if you get a chance. I have found them to be very helpful and I hope you will too.

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  19. My heart aches for you every day! Sending hugs! Glad you were ok with the storm.. We just got power back now. Thinking of that sweet little boy always!! -Yonkers, Ny

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  20. I'm so glad you posted about your week. I have not checked in since the last one, as we are without power and just consumed with life after the evil storm. Ty must be smiling ear to ear knowing how great of a Halloween celebration you all had. Well done, supermommy.
    I'll miss the 6:00am interview but if you get a link to the 'archive' please post it for us next time.

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    1. Yes, please post a link to interview. Would love to see it!

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  21. Thankful your family survived the storm. We missed hearing from you. We spent Tuesday & Wednesday spreading Ty's courageous battle with as many as we could. It seems such a small thing to do for you and your family, but we will continue to fight and share until a cure is found. There are many others in our state that are spreading awareness for childhood cancer. Never feel you are alone on this road. You have inspired so many of us to help.

    I pray you and Lou can draw strength from all of our prayers to make your journey a bit easier. You both are such an inspiration to so many and to be able to give you both some strength to move forward is a blessing for us all. Hopefully this next week you will be able to find joy in the small things.

    Love to you all from Nebraska

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  22. Each kiddo that came to my door dressed as Captain America on Halloween (and there were many) I thought of Ty and put a few extra pieces of candy in their buckets and thought to myself as I did so, this extra candy is from your buddy Ty!
    Your family is on my daily thoughts and prayers as well as those affected by this storm!

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  23. My sister in law, Debby, from Israel emailed to find out how we were fairing in the storm, and then she said.. "On a sadder note , I am sooooo sad about the loss of your hero, and of late, mine..Ty....
    I had no idea she started following the blog after she heard me talk about him during a short visit here in the spring. See, Ty is on people's minds, everywhere....
    Love you Campbells, Keep to the cause...It will help to heal you and in Ty's merit, it will help to heal the next child with cancer.

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  24. Im happy you are all safe. Too bad I live all the way in California or I would of loved to get those yummy candies Ty picked out. My kids and I went out for a bit and every time I saw a superhero I remembered of Ty. Im glad Gavin had a great time on Halloween. I do hope everyone there gets all the help they need and are able to rebuild. Your husband is great to take time and help out. As always I will continue praying for your family. Good luck on your radio interview. If possible it would be great if your able to post it. Your continued devotion to bring awareness of pediatric cancer is awesome. Ty's story will be known to everyone and it will touch so many hearts just like it touchef mine. God Bless you.

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  25. A broken heart is so very painful. With time that pain will ease. God bless Ty and your family.

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  26. Jennifer Russo, Lake Grove, NYNovember 3, 2012 at 10:39 PM

    So glad to get an update from you. On the night of the hurricane we had already lost power. I opened up my front door before going to bed and saw one bright star in the sky and immediately said, "Hi Ty". I stood there and just stared at the star, thinking of sweet Ty.
    I am sorry to hear about your friends. So terrible. The one thing that struck me is Lou helping out even during his time of sorrow. You are an amazing couple.
    Ty's choices of candy are great. Never even knew they make candy slugs. Love how Gavin was so proud to use Ty's hammer. Though it must have been so hard to see the hammer, you knew it would make Gavin happy.
    My heart breaks for you, Lou and Gavin. Thinking of you all always.
    -Jennifer

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  27. Had the wonderful pleasure of meeting both you and superty though briefly. He was just an amazing little boy with a very strong and compassionate mom. You are both amazing. I have been following your posts and have been praying for you and your family. I tell everyone I meet about your courageous son with the infectious smile. Please keep writing you have such an amazing gift. May God bless you and your family in this most difficult time.

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  28. Ty is with you, every second of every day <3

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  29. I am so glad to hear your family weathered the storm... my heart aches for all of you and the empty feeling you have ...I think of you often and thank God that there are people like you that take the time to open up there hearts and share such a painful intimate experience so that other women can take your words to appreciate what they have.... so I thank you for being so honest and so sharing...i have 3 beautiful children and sometimes loose my patience with them but often bring myself back to my senses by thinking of your circumstances...and then i find myself appreciating the craziness...the love...the innocence ...of my children being children... so thank you and thank Ty for being such an inspiration.....you will be succcessful in saving children and I will pray every day that i never have to experience your pain..God bless

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  30. I think of you and your struggle through your grief, everyday. I live just down rt 22 in Southeast, NY and I thought about you this last week and how all of it must have been compounded for you during the power and Internet outages. I wondered about what the Hurricane had done to your Long Beach community and home and hoped for the best.

    I imagine that holidays have to be extra hard for you and I wonder what I would do to get through it? Throw myself in 110% or try to just think of it as just another day? I think that it would depend on who was depending on me. Maybe the reason it feels like Ty is not there at the moment to talk with you is 'cause he's busy comforting the children and animals that call Long Beach home. That he's soaring above them to give them strength and telling them that it is going to be alright and LB will be back as good as ever. I believe he'll be back to you soon to talk with you about it too. He seemed so wise beyond his years -- his angelic strength and guidance is helping others in need at the moment. He's doing such good things. I found myself today getting so frustrated with my little guy who is 5 but I quickly caught myself and just smiled and enjoyed him even through the 'bad behavior' moments. Super Ty and his awesome mom taught me not to sweat the small stuff and to enjoy every second. I thank you for that. I continually hope, wish, and pray healing strength and comfort for you and that you continue to find that drive, fire, strength, and courage that lives inside your being. You are inspirational. I continue to learn from you. I'm know you are making Ty smile and super proud every day! xoxo

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    1. I think of you and the rest of your family every single day. I live upstairs from a little boy who looks uncannily like Ty and it breaks my heart to be around him. I never thought I could feel so connected and close to someone I've never met. You are amazing. I pray for your strength and Lou's as well. I won't stop praying and thinking of Ty everyday. I will try with all my might to spread awareness too! Love, Liz Collins

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  31. Mumford & Sons - After The Storm Lyrics

    And after the storm,
    I run and run as the rains come
    And I look up, I look up,
    on my knees and out of luck,
    I look up.

    Night has always pushed up day
    You must know life to see decay
    But I won't rot, I won't rot
    Not this mind and not this heart,
    I won't rot.

    And I took you by the hand
    And we stood tall,
    And remembered our own land,
    What we lived for.

    And there will come a time, you'll see, with no more tears.
    And love will not break your heart, but dismiss your fears.
    Get over your hill and see what you find there,
    With grace in your heart and flowers in your hair.

    And now I cling to what I knew
    I saw exactly what was true
    But oh no more.
    That's why I hold,
    That's why I hold with all I have.
    That's why I hold.

    I will die alone and be left there.
    Well I guess I'll just go home,
    Oh God knows where.
    Because death is just so full and mine so small.
    Well I'm scared of what's behind and what's before.

    And there will come a time, you'll see, with no more tears.
    And love will not break your heart, but dismiss your fears.
    Get over your hill and see what you find there,
    With grace in your heart and flowers in your hair.

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  32. My love and best thoughts are with you, Lou, and Gavin. I can only imagine what this journey is like for you and I hope you feel some warmth, strength, and love from me and the many others who wish they could support you. You are amazing and I know there are too many others out there in your shoes and I am glad and grateful you are sharing your journey with the world.

    Huge hug to you guys from Virginia.
    Christine

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  33. I'm so glad that you are all safe and have power back! Please don't stop writing to all of us, we are all here for you, even if just to write to everyday know we listen and feel every ounce of emotin through your words. Although I didn't have many trick or treaters this year, I thought of Ty every time my doorbell rang and saw his smile in every small child that came searching for sweet, yummy, goodness. Next year I'm getting super cool Ty candy to hand out :) I have a hawk that flies into the woods behind my house in Poughquag everyday, I like to think its TLC coming for a visit, your sweet, courageous baby boy will forever be on my mind. I hope you, Lou and Gavin are well and please find comfort in knowing that you are the best mom and Ty is so proud of you.

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  34. Cindy...not sure if you have ever read "heaven is for real" Its a quick easy book...but a great one. I recently read it and thought of Ty. It will give you a lot of comfort. Just remember...Ty is everywhere and the last thing he wants is to see his mommy and daddy sad. I pray for you and your beautiful family.

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  35. Dear Lou, Cindy & Gavin,

    I am very pleased that you are now back online. I have missed reading your online blogs.

    Ty, will always have a very special place in my heart. I think about Ty every single day. Ty is my hero.

    In Ty's honor & memory, I am going to become an active voice - going forward - for increased awareness of & funding for pediatric cancer research.

    My continued thoughts & prayers are with you & everyone in your family.

    God Bless.

    - Rob Swan

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    1. PS - I am also going to become an active donor - on a regular monthly basis - in honor & memory of " SuperTy " to the Ty Louis Campbell Foundation.

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  36. Good luck with your interview in the morning. You are doing such a wonderful thing to help all the other children who are fighting the beast that is pediatric cancer. Know that you are kept in the prayers of so many.

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  37. I know you have heard this so many times but because of you and Ty I look at my kids in a different way. Their smile and laugh are brand néw. You have given me a gift I wish I could do the same in return.
    Lisa
    Poughquag ny

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  38. Cindy, I too have been anxiously watching (from Washington state) for a new post in your blog, wondering how you and your family fared during the storm. So glad to hear that there was no damage except for the loss of power and internet service. I only recently found your blog through a page on Facebook and, starting a couple weeks ago, I read your whole blog from the begining up to the latest. I read it like a book, never looking ahead. I guess what I want to say is that what you have written here is the most beautiful tribute I can ever remember reading. I am a stranger living on the other side of the county but I now know you, I know your family and I know your beautiful lost son. I will never forget. I am so sorry your family went through this, so sorry you couldn't save Ty. But thank you for sharing this life with the rest of us. Your words have made a difference. My prayer for you and your husband and Gavin is for peace in your hearts, the strength to get through each day to come and God's grace, as much as you need.
    Pam, Benton City, Washington

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  39. Cindy...this is the weirdest thing. At the moment i cant remember exactly where i was but the other day i was in my car and turned my head and there was this beautiful blue jay. I swear to you, automatically and without thinking i said to myself that is ty! i didnt even have the honor of knowing ty, but through you i feel as though i did and i just couldnt believe my eyes when i just read about you seeing the blue jay! ok, so the bird isnt ty....but it is! its him sending you signs and messages! so amazing!

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  40. It was soo good to hear from you..

    "always in my thoughts & prayers"
    ~Michelle Hughes, North Ga.

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  41. Good to hear from you and glad you are all safe. Hugs from NC.

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  42. It is so good to hear from you, Cindy. So glad you are all okay. I too, lost power for 5 days but that is nothing compared to the loss so many others have experienced, although NOTHING can compare to the loss of life. Praying for all those affected by this storm.
    My heart breaks for you and Lou. Be there for one another, as no one could possibly feel the same as you both do. Please know that you are amazing parents and such an inspiration to so many lives you have touched. As much as you were blessed to have been Ty's parents, he was equally blessed by having you. It was you and Lou who gave him what he needed throughout his two year ordeal, to be able to survive and smile and laugh, even though your hearts were slowly being ripped out. What strength it took to always make your home a "happy" home, for Ty and Gavin's well being. Nothing will ever fill the void that is there and very real. Please know, that Ty is so happy and pain free now. He is free to run and jump and be the kid he was so robbed of being. That is the only solace one could possibly think of. Ty was an angel on earth, who taught many lessons in his short life. We were able to share in his journey through your beautiful and sometimes, heart wrenching words. As I've said before, Ty's journey is not over. Through him and your beautifully written blog, pediatric cancer will be at the forefront of so many people's lives. Lives, forever touched by Ty Louis Campbell. I pray for peace for you and Lou and I pray that Gavin grows up to be a healthy happy boy who brings so much joy to your lives. Thinking of you always. Loving and missing Ty....til the end of time. Super Ty forever <3

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  43. Your heartbreak has touch me so, a friend of a friend, as I lost my little brother to pediatric cancer when he was 9 and I was 13. I am now a mother of a 3 and 4 year old (12 months apart). What a beautiful boy Ty is and will be forever! As someone told me when I was mourning my little brother's death, love can never die. His love lives on with you forever! He is there with you always. You can talk to him and he he will hear you. Pray to him daily and he is right there with you. It is amazing and you too will soon see. Blessings and protection to your family during this time of sorrow. I will pray for you daily for comfort to your sorrow.

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  44. Cindy,
    I am do glad to hear you all are OK from the physical storm that came through. I pray for you often that God will continue to help you through your storm of grief.

    Sarah in ohio

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  45. God Bless you beautiful Campbell Family,
    I have thought and worried about you all, especially, during the past week and the beauty of your words never fail to take me to my knees in awe. Whenever I see TLC, I think of Ty Louis Campbell in his purest sense..tender loving care. God bless you precious boy, continue to send your magic to your mommy, daddy and brother Gavin, you continue with your mama's strength and grace to quietly move mountains and we all love and miss you dearly.

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    1. I'm so sorry, I meant to type "through your mama's strength and grace".

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  46. I am so glad you are back online. I've missed you and your reflections of Ty this week. You are a Super Hero for sure in the eyes of your beautiful TY. I'll bet he was so happy and proud of you on Halloween! Everything you do will still be for your boys, it will just be different. I'll be listening this morning to 660AM to honor you.

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  47. I came back to check your blog today, and I'm just gutted to find that Ty has passed on. I know I'm a complete stranger, but please know that I'm sending you and your entire family my very best wishes. May you all share your love and your strength with each other. I know that Ty's story has made a big impact on me. Thank you.

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  48. I had Cindy withdrawals all week I am so glad to hear you guys are ok!! Sorry for your friends in long beach, absolutely horrible! I say this everytime, you are absolutely the most courageous person I've ever known of!! I couldn't imagine how difficult it must've been for you and Lou to hold it together for Gavin this Halloween. I wish I could listen to your interview this morning, but we are still in the dark here in Somers! As always you and your family are in my thoughts and prayers.

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  49. Cindy -I listened to your interview on WFAN in moral support. I looked at pictures of Ty as I listened with tears falling into my coffee. You are so brave and articulate, it was simply perfect. You were awesome! Ty is up there beaming in pride for you. Believe it. Giant hugs for you today.
    Chris, NY

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  50. Cindy--You are amazing. Please know that there are lots of people like me who have heard Ty's story and who are working every day to raise awareness of childhood cancer so that we can save the next Ty. I won't write a bunch of words about how sorry I am for your loss, because they're just that--word--and they won't bring your beautiful boy back. All I will say is that you are not alone in your fight and that somehow, we WILL demand research for a cure for childhood cancers. For Ty, for Ronan, for Isabella, for Lane, and for all the other children who fought with everything they had to beat this awful disease. Next September, the world will be lit up in gold and I personally will give out candy to everyone I know in Ty's memory. (((hugs)))

    Alyse
    www.endchildhoodcancer.wordpress.com

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  51. You are so amazing. I just listened to your entire interview via the WFAN website and if Ty was Iron Man, you are Iron Mama. The fact that you are selfless enough to seize this opportunity to promote awareness of pediatric cancer so soon after losing your own battle is plenty to make you my hero, but you did not miss a beat. Every word was perfect. I couldn't help but wince when you'd spoken for some time, and then the announcer asks you the question, "Do you think someday there will be a cure for pediatric cancer?" after you stated repeatedly that Ty had "brain" cancer. People just don't get it. Pediatric is kids, like geriatric is elderly and cancer is malignant cells of different kinds in varied locations and you even mentioned that the treatments are specifically chosen based on those facts, yet he asked the "blanket question" that let me know that he didn't "get it" so I just hope that other listeners groaned along with me as they DID get it and that the NFL will be gold next September. Bravo, Cindy. You did great.

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  52. I just think people need to realize that there can't be A cure. It's not that simple. The need for understanding is so great because there needs to be MANY cures, which requires an enormous amount of education, awareness, and a gigantic amount of funding in order to defeat this beast, and the need is even greater when we're talking about children who've only just begun their lives. They deserve better. They deserve more. You, Lou and Gavin deserved more. Life isn't fair, but sometimes, motivated individuals like yourself can move mountains and level that playing field. You clearly grabbed the baton from Ty, because you're a warrior now, and you're amazing.

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  53. Hi Cindy. My condolences to you and Lou for your greatest loss, and my empathy to your current issues with "Sandy". I wanted to contact you regarding the fight agaisnt cancer and in particular child hood diseases.
    I am in agreement with some posts here that there is no real cure for cancer, in that it is a random mutation of cells and the word "cancer" has become a sweeping, generic, term to describe or explain the various and numerous conditions we humans suffer (more than any other species).
    I can be reached at oliverjames at bookwormedu dot org I wish to discuss with you other, more practical and tangible, ways we can limit the extent that our cells become mutated and go rogue. I am not holistic or "alternative". I am not a medical practioner by any stretch, but I do know that millions of donated dollars are in the wrong area's of research and development. To that end, we will never find a cure(s), and monies will continue to be wasted.
    I am long winded, so I don't want to waste too much of your blog space or time. If we can speak in another forum, I will help you to extend your dialougue to reach a great number of people about cutting down on a host of things in our homes that cause cancer, that cause cells to turn malignant, things that we eat that are carcinogenic etc. Including telling you which things, foods, feed cancer (strengthen rogue cells).
    I will show you how we can work in tandem with Chemo and other way to powerful drugs and treatments (especially for tots), to minimise the need for these drugs which in many cases do very little to address your childs needs yet still are prescribed to children (and even adults).
    I also would like to discuss with you a topic you mentioned on the FAN this morning (66Am and 101.9 FM), regarding "smart drugs" - diagnosis', and treatments specific to each patient. Thanx Oliver

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  54. Cindy, Lou & Gavin-
    SOOO glad you're ok & the storm spared you any direct damage (except loss of power). I am SO sorry about Long Beach. Not living there anymore either (grew up on Long Island now live in Tampa), but feel your sadness b/c of all the tragedy back home. Of course your loss is now even deeper b/c of Ty. But...knowing Ty, he will spread light & use his superhero pull & power to be an angel to those in need, there in Long Beach. I just know it.
    My kids & I talked about Ty all day on Halloween. Candy, Candy, Candy! I thought about you a million times & prayed you were hanging in there.
    Continuing to spread the word & the color GOLD!!!!!
    Still here with you - Prayers continue. So glad Gavin enjoyed Halloween!
    Peace and love-
    Diane

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  55. Always in my heart...you, Lou, Gavin and Ty. God Bless you all

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  56. I am so very happy to see you are all ok. I was starting to worry. I love the photos you posted today. You have so many beautiful memories of Ty. If only we could climb back in those photos and relive those happy times it would make us the happiest people on earth.

    You are doing an amazing job in bringing awareness to this horrible disease and to be doing this so soon into your grief just shows the strength you have. You truly are an Iron Mama! You can see where Ty got his strength from.
    Love to all of you. X

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  57. Glad all is well.( as well as can be ) We did much better up the road a piece from you. You and Lou have great faith, and a great family.

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  58. Cindy & Lou,

    I wish I would have read this last night because I would have made sure I was up to listen. Is it possible you may post the interview at a later date or we can find it online? Please let us know.

    Thank you for posting. I feel like I can finally relax for a minute! I figured you guys had no electricity, but still we were all so worried!

    What happened to Long Beach was devastating. My mother's house in Smithtown was fine, thank god, but she says it looked like a ghost town.

    I want to tell you that there were so many Captain America tric-or-treaters out I was so surprised! Everytime one approached my door way, I smiled thinking of SuperTy!

    My heart breaks for you and Lou and I just don't know what to say. I can't imagine being in your situation, how you function and blog and fight this fight against Cancer is beyond me. Both you and Lou are so strong I just don't know how you two do it. Actually, maybe your strenth is Ty. He is the one who pushes you guys every second of the day.

    I know you have been bombarded, but please let me know about the website for Ty's foundation. I sent you an email. I would be honored to do that.

    Thinking of you always!

    Joy Marielle
    Baltimore, MD

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    1. This IS the website, Joy. It's supterty.org and the DONATE button for the foundation is at the top of this page in the column on the left. Ty's facebook page is found here: http://www.facebook.com/thelittlefighter?fref=ts

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  59. I believe the link is at:

    www.superty.org

    The Ty Louis Campbell Foundation

    Online donations are accepted. Click on the " Donate " icon. PayPal is accepted.

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  60. Cindy, Lou and Gavin,

    I just want you to know that I have been thinking of you a lot over the past week. Every time I saw a Captain America costume, I thought of your SuperTy. When my almost three year old son specifically chose a blue lollipop from his trick or treat bag and it turned his lips and tongue blue, I smiled thinking of Ty's love for blue lollipops and figured that Ty must be having a great time trick or treating too.

    And I also knew how devastated you must be about Long Beach. You and Ty shared so many memories there. I always thought that the term was very cliche, but we are Strong Island. This term used to make my eyes roll, but ut is true. We banded together post 9-11 and we are doing so again. Long Beach will be ok. It will take a while, but the beach you know and love will be back and ready to enjoy for years to come. And I am sure Ty knows this.

    On a seperate note, we just sold our home in Sayville and bought a new place in Massapequa. The whole main floor flooded and the house needs to be gutted and rebuilt. We now have no home to go to. We have no idea where we, our kids or pets will live. Does it suck? Yes. But we do not even care. We will make do. We will find temporary housing somewhere. We are safe. Our family is together. Houses can be rebuilt. Your story has reminded me that physical things do not matter. Your family and love for each other and memories you share is what makes a home a home. Thank you for being so special and an inspiration to all those around you. SuperTy lives on forever.

    Kate on LI

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  61. There are just no words that I can think of to console the pain in your heart and soul. Nothing can fill that eternal void. I think of you daily and I wish there was a way we could rewind time and bring back Ty before he was ill, and fix it so that he never had this horrific disease! A family should never have to suffer this type of loss! My heart goes out to you, I think of Ty everyday, in all of my actions. That little boy I never met found a place in my heart! He was special!! And changed so many lives!! My boys run around wearing their SuperTy shirts all the time!! Stay strong Cindy...I send my love to you Lou and Gavin! Xoxo

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  62. You ask what can happen next? I'm not sure - the one thing that comes to mind and I'm sure this is something that might get me in trouble with others, would it be a thought down the road to consider a brother or sister in Ty's memory? I think you two have youth on your side.

    No way in heck am I ever suggesting a baby would replace Ty and I'm sure that's why the idea seems so outlandish. And, I know a lot of time must pass to even consider it but maybe that is the answer to move forward?

    Either way, I'm rooting for you and miss Ty as well. Please be aware that my new "cause" will always be pediatric cancer and your story as well as that of Lane Goodwin's has opened my eyes to this severe need to increase research and find a cure and better treatments. Much love to you and your family, The Lederer's.

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  63. doesn't it figure that I've been checking the blog on my phone as much as I can considering my lack of power - and I missed this post and your interview :( Now that I have power I'll check the FAN's website to see if your interview is posted. I would like to hear it.

    I am so sorry about what has happened to your friends in Long Beach. So many people were devastated by this storm - it breaks my heart. That was amazing that Lou came down to help - I'm sure your friends were happy to see him. I imagine Halloween must have been very tough but love you for asking people to come and trick or treat - you guys have really given so much to all of us, amazing to see how your generosity of spirit never ends.

    I'll always be so sorry that Ty was taken from you all. It's so unfair I can't stand it. That picture of him and Gavin as Yoda and Luke is so adorable. Every day I wish I could've made a difference in some way to keep Ty alive - some miracle I could have performed.

    The more I learn about pediatric cancer the more scared I get - we all must do more to raise awareness and money for research. It's so important and critical. I promise I'll be by your guys side the whole way - anything you arrange to get the word out, I'm here to be a foot soldier. I want my son to grow up and understand what this beast is and that we'll work together to help - I pray that we're spared the horror that is cancer, but we'll never walk away and pretend it doesn't exist.

    Thinking of you guys always - wishing the best for your friends in LB. The human spirit is a beautiful thing and we'll work together to make a difference. SuperTy Always and Forever.

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  64. Could not stop thinking of you and Ty while I brought my 5 1/2 year old trick or treating...tears in my eyes, I forced myself to cherish every moment of it, and to allow my son to feel the magic in the day. You and Ty will forever inspire so many of us. No one has ever inspired me to be a better mother, partner and friend. xoxo to you.

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  65. Debbie from CaliforniaNovember 4, 2012 at 9:46 AM

    Cindy, I have been thinking of you and your family. I'm glad you are ok after the results of the hurricane. I am originally from LB and it is devastated. My parents live 2 blocks from Sissy & Colleen and the canals were hit hard. They lost a lot but they are all okay. I was praying to Ty during the storm to watch over all of them and be their Angel as well. Thank you for continuing to let us be a part of your life and Ty's Legacy. You are an inspiration to me.

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  66. As soon as we heard about what happened to Long Beach we thought of Ty. You and Lou are so thoughtful to go down there to help with all you are going through. Sending prayers for everyone. Please let us all know if there will be another trip down there with supplies...we would love to donate. - the Morrison's from Mahopac

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  67. Cindy and Lou, so many people are still thinking of you. I will continue to follow your blog and pray that you continue to gain strength and comfort by sharing your story. As an adult oncology nurse, pediatric cancer is my worst fear as well. Ty will always be with you and your family. You have inspired me to appreciate the little things that my children teach me every day, that every day with them is precious. Keep up the good work spreading awareness and I too hope they find a cure for this evil disease.

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  68. I know I am a little late but still want to wish you a great interview.
    Taciani

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  69. From Elizabeth Edward book about not knowing what the most important lesson that she has taught her children, but she does know that they can say that their grandmother stood in the storm and when the wind did not blow her away, and surely has not, she adjusted her sails.
    Campbell family, you will be adjustin your sails to so many things and have been, but in the end with your family and guardian Ty, you will have fared the storm together. Keep adjusting :) hugs

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  70. Thank you for reminding us of how lucky and fortunate we are. It is so easy to take things for granted. I look forward to your posts as a daily reminder to appreciate what I have and to not sweat the small stuff. Thank you. Xoxo

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  71. Your boys are beautiful!!! Stay strong knowing that you will all be together again one day.

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  72. Dear Cindy,

    I went out to Long Beach yesterday to help out in the west end. I thought about your family while I was there. It's a mess and the people are devastated but they are strong and will rebuild. Hang in there and please keep writing.

    Heather Stott-Mason

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  73. That little bird was calling you Cindy. It was ty. Know that he is trying to find a way to let you know he is there. That was perfect and you even recognized a call to his mother. You are blessed with such a beautiful heart and family. Thank God you are all safe.

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  74. I feel like I should share my story. I know how hard it is to lose your child. I hate the pain and the constant voice in the back of my head, asking if we did the right thing by letting our daughter go. I feel like I did but sometimes I wish we could of held on longer and spent more time with her. You got to spend 5 wonderful years with Ty, I got to spend 5 weeks with my baby. Here's our story: I found out I was pregnant around the holidays last year. I was shocked but also so excited. We found out we were having a girl. I didn't care what we had as long as the baby was healthy. My pregnancy went perfectly. Around 37 weeks, the doctor told me I had a lot of fluid and if the baby wasn't gaining weight properly, they would induce me. He had me come back the following week and I was so excited that she was gaining weight perfectly. She went from 5'13 to 6'9 in one week. The doctor called and he wanted me to go to the hospital right away. I was exactly 39 weeks. They started me on pitocin and an IV drip. The nurse was worried because the babys breathing and heart rate were low so she thought dehydration was the cause. I sat there for 6 hours and finally decided I would do a C-Section scared of what might happen if I continued my slow labor. My little girl, Aurora Jade was born at 9:37 pm on 8/22/12 weighing 5'7 and 19 inches long. I was a little surprised when I found out how little she was. She had some trouble breathing and keeping her heart rate up so they whisked her away to the NICU. That night she was transferred to another hospital without me. I had to stay behind and recover. They brought her to me and she was hooked up to oxygen and a feeding tube. She was in the isolette but I didn't know anything was terribly wrong. The doctor discharged me 2 days later. I went straight to the other hospital to be with her. I got to hold her and I remember smiling at how much she looked like her dad! Then I noticed her extra fingers, a dent in the side of her head and her weak cry. I figured the doctors messed up and she was born a little too early. I found out a week later that she had this chromosomal disorder called Trisomy 1. I cried. My perfect baby was given a death sentence. She wasn't expected to live past 3 months. She spent 4 weeks in the NICU before coming home. She was home for about a week and a half. I noticed small things when her health started to decline. She was fussier than normal, She would stiffen up her body, she wouldn't sleep like she normally did and she was throwing up a lot. In general she just wasn't herself. We went back to the hospital and she was admitted. They said she was dehydrated but her kidneys looked bad. They weren't sure if her kidneys were failing or if it was just the dehydration. She was there for 3 days. She took her last breath in my arms on 10/2/12, a day before she would have been 6 weeks old. I don't think I ever cried harder in my life but I felt like a piece of me went with her. I'm content knowing she's not suffering but I still miss her every day.
    I know that I will get through this but I had all these hopes and dreams and they were just snatched away from me. I got a job at the Disney Store, specifically so I could buy her all these wonderful clothes for the holidays. I had this hope that she would make it through the holidays and she didn't. If losing our child wasn't enough, we couldn't afford to bury her and my insurance wouldn't cover the $3,000 funeral. That's just a rough estimate. Hospice contacted us and helped us out. They chose this funeral home that they've worked with before.We obviously couldn't afford the funeral so we chose cremation. The funeral director was so welcoming and understanding.

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    1. I am so sorry to hear of your loss...God bless

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  75. He waived all fess except for the mandatory ones. The total was $323. SSI said they would cover it. Still haven't heard from them. My insurance said they would cover it but we haven't heard from them either. DYFS said they would help. Haven't heard from them yet either. They were contacted when we left the hospital because they thought we weren't spending enough time there. It was emotionally and physically draining. I had a c-section and I couldn't even hold my 5 pound baby. I could barely walk and I couldn't get a ride to the hospital. My parents were on my case constantly about getting out and getting a job. Never mind the fact that their granddaughter was in the hospital. I yelled and I cried at them because they will never understand what it's like to have a terminally ill child. Aurora was cremated and the funeral director said he would hold her there until someone came through to help us with the payment. It's been a month and I haven't heard from one person. I'm so glad that everything worked out fine for you and you got to spend time with Ty after he passed. I couldn't hold my daughter after she went. It was so painful. I carried her wherever I went and that night I went home without her. I cried and my family stopped by and they cried with me. My wonderful 4 year old nephew drew a picture of Humpty Dumpty and told me it was for Aurora. He doesn't understand that his cousin is never gonna grow up to play with him. I remember the silly grin he gave me when he placed his head on my belly for the first time and he got kicked. I remember how he told me that the baby is making me fat. My 4 year old niece was here the other day and she told me this, "my mommy already told me that the baby is in the sky now. Do you miss her?" I said "Yes, Ali, I miss her every day." She said, "I miss her too." She had all these plans for when her and Aurora. They were gonna have sleepovers and they were gonna go camping. It breaks my heart that she'll never get the chance to do all these things but I know that she is free now and she can finally rest peacefully.

    (Had to post my story in 2 parts)

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    1. I'm sorry for your loss, Melissa, but everything didn't "work out fine" for the Campbell family and that's why Cindy and others who loved this amazingly courageous and spirited little boy are trying to create a greater awareness of what children afflicted with pediatric cancer endure and do what we can to prevent other children - and their families, of course - from suffering a similar fate.

      Perhaps you could honor your daughter's memory by creating awareness for children afflicted with Trisomy 1.

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    2. Nicely said, Joon. I'm also sorry for your loss, Melissa.

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  76. SuperCindy, Glad you are all safe. You are doing wonderful things, Ty's story is making a difference, people are listening and becoming aware. Don't ever stop fighting... we are all behind you.

    SuperTy, you are missed and thought of every single day in Boise. Hope you are enjoying all your yummy Halloween candy, sweet boy. XOXO-

    Kylee - Boise

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  77. As usual a beautiful story!sometimes I cry sometimes I don't when I read your stories. You, Lou, Ty and Gavin are in our hearts and thoughts. I'm so happy you keep posting stories so we can see how you guys are doing.
    Ty will always be there for you and even you dont see him, he can hear you.I think of him everyday and pray for him and you guys every night. Send our love to all..... Maria Savlick

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  78. Sarah from ScotlandNovember 4, 2012 at 6:26 PM

    So lovely to hear from you and your beautiful family. I keep you all in my thoughts and prayers. Your beautiful boy is always on my mind in everything I do xx

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  79. love and prayers to you all

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  80. So happy to see you are back on the grid! Sending prayers to your beach home and family as usual. Went to visit my grandparents' graves yesterday at the cemetery and what did I see when I was leaving? A beautiful hawk soaring above. I couldn't help but think of your lovely Ty. I was having a hard time yesterday, feeling a little down, but when I saw that hawk it snapped me right of my unnecessary funk. Continued thanks for being brave and strong and sharing Ty's story. You are such an inspiration.

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  81. I'm so sorry about your old house and neighborhood. In a jersey girl living in the south now and it's breaking my heart seeing all the damage and hearing from my family how awful it is.

    Ty had to be proud of your awesome Halloween stash. I can't imagine how difficult it was for you but I'm sure he was there with you in spirit.

    Allie

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  82. I've missed your posts and I am so glad you are back online and that you guys are safe. I was thinking about you on Halloween and I was so happy to see your post that night.

    My son wore his superty captain america hat trick or treating. It was his decision to wear instead of his angry bird hood that came with his costume. He says the hat makes him smile. I thought about Ty the whole night and I was so glad you were able to hand out the candy that Ty picked out. I bet that made him so happy to see all the smling faces when his candy was put in their bags.

    I shared Ty's story again today with a friend who was not yet aware. I showed her some of Ty's beautiful pictures and I just keep thinking how angelic his face is. I know there is more to beauty than looks but his smile shows that the beauty in his face runs through his soul.

    Thinking and praying for you, Ty, Lou and Gavin.

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  83. Does any one know where I can listen to the WFAN interview from this morning with Cindy.. I missed it, wish I hadn't.

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  84. I'm so thankful that you keep posting Cindy! I have checked Ty's blog every day since the storm, wondering how your little family is doing. The story of the bluejay made me cry. You must miss Ty with every breath you take. I miss him and I never even had the honor of meeting him! But I feel like I got a glimpse of his beautiful little spirit through your loving words as a mother. God bless you, Lou and Gavin!

    -Lisa from AZ

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  85. Cindy, I wanted to share this. My community and an entire local high school recently rallied around a young boy dying of leukemia. And then it was discovered that it was a giant hoax. There was no financial fraud but an entire community was duped. I thought, maybe this is an opportunity to spread the word. Maybe all people need is a face to attach the devastating story to? So, I posted on my facebook page that people might turn their outrage into action. I posted links to your blog and to Ronan's. And I recommended that people DONATE to pediatric cancer foundations! Because in my mind, if everyone is going to freak out over the hoax, then why not freak out over the deaths that happen in appalling numbers because there hasn't been a new pediatric cancer drug developed in 25 years. I tell you this because your story deeply touched me and I want you to know Ty didn't die in vain. Good will come. People will know. xo
    JB

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  86. Hey Cindy I made a video for you on YouTube it is called fro Ty's mom!! Sorry I missed spelled for but can you please watch it and comment so I know you watched it!! But one day I hope I can meet you and maybe the rest of the family!!

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  87. Oh Cindy if he would be mine I would be looking for him all my life too. How can you not?! He was perfect he was sweet he was beautiful and he was your baby. Your perfect family was supposed to be this 4 amazing people and now you were robbed of it. You were robbed of the ability to continue to hug your boy to raise him and to whisper in his ears every night about how much you love him. Lou was robbed of raising his son to be a great man that he turned out to be, to play sports outside with him, to make jokes and of making him most comfortable at night. Gavin, oh baby Gavin, he missed having this older brother being his role model playing with him wrestling with him and calling him his brother. I'm so so sorry for that. I will never get over this, I wish I could have met him, I would have hugged him so tight I would be scared you would call a police on me. How can a mom love and strength and fight can't be enough to save your baby. It's unnatural. I imagine Lou tears and I cry myself to sleep. I wish I could share with you my happiness and take your pain away. I could never love another baby whom I never met the way I loved yours. I cold never put another face to pediatric cancer. Cindy, thank you for writing to us. Thank you for thinking of others during this crazy hurricane. Nothing though can compare to loosing Ty. Nothing. I'm so in love with your little boy and your family. Good night.

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  88. I don't picture Ty crying during the storm, I picture him watching over all of his friends and family, protecting them. I picture him calm and angelic guarding those people who needed it the most. It is devastating here on long island, and especially Long Beach and Island Park, but considering the damage there has been very little physical loss. Someone was watching over, and I believe it was Ty.
    My children are now just a little too old to play at the Magnolia playground, but I know it will be back for others. That doesn't matter,the property doesn't matter, all that matters is loving your children right now and this is a time when that lesson is most important. You and Ty have taught me that. Please don't ever think of him sad in heaven, I am not too religious, but I would have to believe that it isn't the way it works. Please picture him helping, and at peace. There are miracles all around us that prove this to be true.

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  89. I miss the smile of the day I miss Ty I didnt know him physically but I miss him. The day after ty' s passing I was holding my my 15th month old we were in the kitchen I was thinking about Ty and how I could not believe he was gone no more picture smile of the day in my mind I was remembering how you described his smile that day his white suit and the blue pocket I felt like I could not breathe I kept thinking maybe he's still here ( kinda silly) I then kissed my baby girl I pictured giving Ty a kiss through her she then pointed at the ceiling smiling she put her hand down and pointed again as if she was pointing at someone she just had the biggest smile she pointed as if she was trying to show me someone was there she blaberred something in her baby language and kept smiling I swear this is true and I'm not making it up. I wanted to share this with you but I wasn't sure if I should, Im convinced it wasn't a coincidence. My best wishes for you we still love super Ty - analy from las Vegas Nv.

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  90. Dear Cindy,
    I am thrilled to inform you of a special event taking place at my son's school in Ty's honor. I graduated from Mahopac with your husband, but we did not know each other. My son and I have been reading your blog and praying for Ty every night. After Ty's passing my son went to his principal and asked that they have a superhero day to raise money for pediatric cancer. Happily, the principal said yes and the event will take place on the 15th at Beekman elementary school in Poughquag. Keeping all four of you in our prayers.
    Sincerely,
    Maryellen Locker

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  91. Dear Cindy, thank you for sharing. I am so glad that writing is therapeutic for you and you will continue. When I heard about Long Beach on the news, I first thought of Ty and your family. They will rebuild! Lou is an amazing person for going down to help so soon after Ty's passing. My 2-year-old daughter said "we love you, Ty" with me and then right after that "Ty angel"...without prompting. I showed her some pictures of Ty as well. My thoughts and prayers continue to be with all of you and your beautiful boy. God bless.
    - Lisa

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  92. Good Morning Campbell Family. I'm so glad you all made it through that awful storm. I currently live in the south but I'm originally from Jersey and I've been heartbroken this past week. The Jersey Shore of my youth is no longer. :( My family up there came through ok as well.

    Ty's story has touched me in so many ways. I've had such a run of bad luck lately, but thanks to you and Ty, I'm able to really put things into perspective. I can't imagine what you are feeling but allow yourself to feel the way you need to at any point in time. You and Lou will get through this. The love you share with each other is strong and amazing. It did, after all, create those 2 wonderful, beautiful boys. I promise there will come a time and you will think about Ty and you will smile, and laugh at the wonderful memories you have of him—perhaps with fewer tears. The pain will always be there in some form, and the tears will come, but they may be fewer and less often. Don’t rush. It’s only been a few weeks.

    The work you have ahead of you with Ty’s organization and pediatric cancer awareness will be hard, frustrating, but rewarding at the same time. I think of your sweet Ty as an angel watching over us all, but especially children who are suffering. I truly believe, with your efforts and with Ty on your shoulder, that there will be a time when pediatric cancer is no more and when that happens, it will be synonymous with www.superty.org!

    God bless you and your family.

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  93. I've learned in my life that grief is such an unwelcomed visitor....just keeps showing up unannounced, all times of day and night. I'm a mom of a 14 amd 15 year old, both boys. Last night they got into bouncing each other off the wall, laughing, headlocks, fun punching, pillow smashing. I would ordinarly say, "Stop, enough...." I held my words and thought of your Ty and let them go on until they were exhausted. Learning to live without someone is so hard. I believe your Ty is so proud of you. Each day as each day comes.

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  94. Sorry I missed the WFAN interview; I was awake on Sunday at 6 sitting in a diner on Route 6 in Mahopac as we had no power in Weschester and ended up driving up into Patterson to get gas. I'm not complaining-you, Lou and Ty have set me straight about what is important in life.

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  95. Just take 1 day at a time. And you will find the strength to go on for Gavin and Ty. You must continue to make more people aware of children's cancer, this horrific monster!! Your strength is magical and your super Ty will live on forever for what you are doing. May you see your Ty in your dreams.. Always in my prayers..xoxo

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