Wednesday, September 19, 2012

Ty Loves Life

Yesterday was pouring rain for the entire day.  It was so fitting, I loved it.  After I picked up Gavin from pre-school it had eased up into a slight drizzle and Gavin ran off into our backyard instead of into the house like he was supposed to.  He found a big 'ole puddle in the walkway and started jumping like crazy.  As you know well, jumping in muddy puddles is something that Ty has been talking about doing for over a year now.  Lou and I told Ty that he will finally be able to do that soon. My only regret is that I had to drag Gavin inside before he was ready to stop playing because I was so eager to get back to Ty's side. 

Let your kids jump in muddy puddles whenever they want.  Soon they'll be all grown up and see the wet pants and wet shoes as nothing but a nuisance.  It's beautiful that children can find such joy in the simple things that we no longer appreciate as adults.  I hope I never forget that.  I couldn't truly enjoy watching Gavin have fun in the rain because I am so burdened by sadness, but at the same time I am grateful to be so aware of what is really special and important.  I didn't think in the midst of my grief that I would be able to appreciate beauty, and instead it is amplified.  I see it in the clouds, the trees, the wind, the stars... everything.  The world around me and the overwhelming kindness that has been expressed through spoken words, written words, actions and a simple nod or smile from an acquaintance is what is keeping me balanced.  Just be forewarned that if you give me a hug, I'm probably gonna start to cry.  I'm totally okay with it if you are :)

Late last night, after the house was clean and ready for the final "lights out", we discovered this small gift left by Gavin.  It's hard to see, but this is his Jessie doll (from Toy Story) in the sink in his play kitchen.  Watching Gavin play is one of the funniest things in the world.  Some kids are just so great at playing with toys.  He's not into cars or building blocks, but he spends hours on end acting out imaginary scenes with his toys.  I love it. 

Jessie is upside-down with her legs split for balance

Tomorrow we will meet with Ty's hospice nurse for the first time.  This will be the second time I had hospice in our home - the first time was December 2010.  At that time, Ty was also diagnosed with lepto-meningial disease and given 4-6 weeks to live based on the progression that was seen over the course of a month.  What a miracle it is that we were granted almost two more years with him.  As I said in my last post, I'm always praying for another miracle, but I still have to acknowledge that I have already been blessed with one. 

Ty back in December 2010 - how much he has GROWN!

 
Ty going to nursery school last year is my happiest accomplishment for him since he became tortured by cancer.  It was so cute and normal and he enjoyed it so much.  His teachers came by for a visit today and he was such a good boy.  So happy to see them.  I wonder what he's thinking, though.  If he ever wonders why he isn't getting better.  If he longs to be back in school with all of his little friends.  Based on the fact that this kid keeps on smiling despite every brick thrown at him, I believe he understands more about what is happening than we do.  Just look at this face.  He is one special little boy, laughing at his brother who was running around in front of him instead of feeling sad that he can't do the same.  Always.

 

So many things race through my mind, I wish I could keep track.  Sorry if my thoughts are all over the place tonight. 

Today I realized that after riding around with Ty in my back seat for hours and hours every single day for years, watching him in my rearview mirror almost as much as I watch the road in front of me... he probably won't ever ride in my car again.  I can't take him anywhere at all, and it is so surreal to look in my mirror now and find an empty seat, or Gavin... alone.  I see the head supports and his neck brace that we've become so accustomed to and it is so strange to think I don't need them anymore.  Because Ty is dying.  Is that really happening?  It can't be.  No more trips to the supermarket.  No more candy stores.  No more anywhere.  We can't even take a walk outside because he can't tolerate being moved (it gives him pain) and he can't breathe unless he is lying flat and on his side so that the secretions he can no longer swallow can easily drain out of his mouth. 

Slowly, cancer has robbed Ty of everything that he loves.  First, it robbed him of his home.  We had to move upstate away from the ocean, his playground on the boardwalk and all of his friends.  Granted, he has a beautiful home and he is happy here, but it was an adjustment that I'm sure he didn't understand at the time.  Then, the simple concept of "home" was taken from him too, when you consider that he spent over 200 nights in a hospital bed.  His ability to speak became compromised very early on, as did his eating and drinking.  He became too weak to walk only two months into treatment.  Steroids made him so upset he wanted to jump out of his skin, and they made him completely incapable of sleeping at night because he was so agitated.  The chemo made him throw up constantly and lose his golden curls.  The countless infections forced us to live in a bubble.  He suffered headpain that I can only describe as wicked, cruel, vile and evil.  One by one, all of the joys in his life were taken away from him.  After he worked so hard on his physical recovery, late effects of radiation left him paralyzed from the head down.  When he could no longer play with his toys, he fell in love with candy.  As of five days ago, he can't even lick a lollipop without a choking effect. 

Regardless.  Last night his brother was dressed up like superheroes and playing around the house.  When I stripped him of Ty's old Iron Man costume, I was surprised when Ty whispered "I want to wear that."  I draped it over him to make pretend he was wearing it and just look at this grin.  He truly is UN-friggin'-BELIEVABLE!  No self pity here.  We have so much to learn from Ty Louis Campbell, I swear.  Live life to the fullest and love every minute of it.  He does despite all he's been through and all he is going through right now. 


Your comments have been so thoughtful and kind.  I can't even begin to tell you how much it means to me and to Lou.  Thank you so much for loving Ty and our family.  You are helping us more than you know just by reaching out with your supportive words and prayers.  Thank you from the bottoms of our hearts. 

PS - I want to find a little boy who could really benefit from Ty's wheelchair.  It is brand new.  He sat in it only once at home.  If you know someone, please inbox me at tylouiscampbell@gmail.com

133 comments:

  1. Continued prayers and thought for you, Ty and the whole family. You're truly an inspiration!! Ty is stealing hearts and changing lives everyday. He's such a blessing.
    Praying for another miracle.
    Much love!!!

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  2. I have followed you for well over a year. Like so many others, I have fallen in love with your little boy. I am in awe of you as parents. And Gavin's antics keep me rolling. I am sorry, beyond words, at what your family has to deal with. I cry with you. I pray for you always. Thank you for sharing your journey with such beauty and grace. Your whole family makes me want to be a better person. Please know that I will continue to pray, no matter what for you all.

    Blessings from Colorado
    Shelly

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  3. It is so amazing how Ty has touched so many of our lives. I don't remember exactly how I found his story but I am so grateful I did. Ty you are the most strongest, bravest and most handsome super hero that I know! I have never met you but I love you and your family so much! I will continue to pray for you Ty! I believe in miracles.
    Always praying for the Campbell family,
    Marissa

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  4. Cindy,Lou,Gavin & Family,
    I am so incredibly blessed that I came across your page two years ago. Ty is the most incredible& beautiful boy a true hero and sent here on earth for a purpose.
    I went to the cemetery which I haven't been able to do in many years to visit my baby boy. I sat there on my knees and broke down i cried like i never cried before. I thought of Ty and you all and begged God, begged my son to watch over and to heal Ty to give u one finale miracle to live a long healthy pain free disease free beautiful life. I thank you for blessing me with how beautiful life truly is. L
    I have never met you but i love Ty and Gavin and not a day goes by that i don't think & pray for him and all of you. Cindy u are such an incredible mother and woman, your strength gives me strength and for that i will be forever grateful. I will pray and pray every single day and may god bless you and your entire family <3 Ty you are so special, so beautiful and you are a TRUE HERO <3 Deb N.Y

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  5. Praying for your family. You have shown such unbelieveable strength and faith through this journey. Ty has an incredible spirit and has inspired many. God bless you all. Continued prayers from Oregon.

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  6. Good night little Iron man. Try to sleep Mama. God is in charge. Love and light.

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  7. I have come to fall in love with your sweet Ty from a link I came across on Facebook a while back. I check your site daily, and spread your amazing story with my friends/family. I'm praying for you and your family during this heart breaking time. Please give Ty a hug and kiss from all of us "cyber friends" that have never had the honor of meeting the sweet angel in person. Thank you Cindy, for sharing your story with the world. Your words remind me just how precious and fragile my children and our lives really are. Prayers and love sent to you all from South Carolina. -Brenda

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  8. Cindy,
    I need to say that I pray Ty will improve, get better and better...and stays with us. Loosing a child is unnatural and I truely don't understand what you are experiencing! That being said, if it is Ty's time to leave us, I am so grateful that you can see beauty all around you. I had the same experience when my brother passed. It was beautiful and so peaceful after watching him being cripled by desease. I remind myself everyday that my children are truely a gift from God. We think that we, as parents, are here to teach them...but the reality is that their beautiful little souls teach us so much more that we let ourselves believe. When they have taught us what WE need to know, their time here is done. These children like Ty are only ment to be with us for a short time. Ty, after all is God's child. We only borrow them for a short time but they leave us forever changed. I pray that if it is truely time for Ty, that you will continue to feel and see the beauty and unimaginable peace. Trust in the power of the Holy Spirit to comfort and hold you and your beautiful family close. Remember to ask our own Blessed Mother Mary to intercede for you...if you continue to see beauty it is because she is with you and knows the pain you feel..as she has felt it.
    I have never been so touched, so in love with a family I have never met. I am FOREVER changed because of Ty. Thank you for that.
    With much love,
    Tavelle

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    1. This sums up so much better exactly the way that I feel, but was not able to put in to the right words. I have never been so touched by a family and learned so much from such a little guy! I came across your blog a long time ago during a time when Ty was feeling "bedda" and it stuck with me partly because I have a son named Ty who was born exactly one year after your Ty and second because he is such a happy kid even though he has been through so much. I think about and pray for your family daily.

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  9. I, like many others, have never met you, but I am amazed by you and your whole family! The way you and Lou love each other and your boys is so beautiful! I will pray for you and hope God has another miracle for Ty! Stay strong and know you are loved by many!

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  10. Cindy- holding your hand, here in my heart. Love to you and the incredible, amazing, superTy. Our lives are all enriched from knowing your baby. Xoxo

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  11. I don't know Ty or his family personally but I got to know you all from your blogs. You and Lou are amazing parents..I don't know what I would if I were in your shoes..I have learned so much through all your experiences I hug my children extra tight and say I love u at least a few times a day..I try to appreciate every moment with them..Ty is a superhero there are no words to really describe him..he has more strength and courage than anyone I know and he is still smiling. There is nothing fair about cancer no one should get it but especially a little boy. I have to thank you for sharing your story i am learning to appreciate the little things and cherish every moment with my kids...You are a very brave mom with all that has happened the last couple of years you have stayed strong shared your story, I look at the pictures on here and I can see the love in your family...Ty and his family are in my prayers, praying for that miracle daily all in my prayers..I don't know what else to say..You and your husband have done an amazing job with Ty bringing positive into a negative...making his life as happy and fun filled as it could be..Ty was here for a reason that little boy has touched more lives in 4years then most do in a life time, you and Lou have taught so many parents to appreciate the little things and never take time for granted ...I am so sorry praying for a miracle xoxo for you all...God bless Ty and his family...Lisa Long Island NY

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  12. I came accross Ty's page over a year ago and am always reading your posts. I am heartbroken to hear that Ty is not doing well.Two years ago my daughters boyfriend Luis passed away after a 7 yr battle with non hodgkins lymphoma. He was only 23 yrs old.I am forever touched and changed by the courage displayed by Luis and his family. My heart goes out to you and your family.May your days with Ty be peaceful.I was blessed to be able to be with Luis when he passed and for that I am greatful. You are a beautiful person and thank you, thank you, thank you, for allowing me to follow your journey. I have laughed, cried and admired your strength.I am forever changed! May God bless you all.
    Connie

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  13. I have followed your blog for the last two years. I have been sad with you in Ty's setbacks and was happy for you guys when Ty was doing well. I so heartbroken for you guys. I pray that God gives you and Lou the strength and peace in this very difficult time. He truly is Super Ty always with his beautiful smile no matter how he is feeling. You and your family are in my prayers. Stay strong and God bless.

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  14. Cindy,
    Cancer did not rob him of everything he loved....because it did not rob him of you. You will always be together and take each other on whatever paths you each follow.

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  15. I only recently came across your blog, but have been moved to tears by your family's story. You are amazing, each of you. Thank you for sharing your Ty with us. I am so sorry your beautiful boy has battled this ugly disease for so long yet so bravely. My thoughts and prayers to you and your family.

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  16. I don't know how you feel, but I knwo how it feels to take care of someone youlove so much and can;t take the illness away from them., I lost both my parents at a young age to non terminal diseases, but they were sick for a long time. It just plain sucks. I miss them terribly and some days are good, some not so much. When my Mom was sick (for almost 4 years) I prayed to a specific saint and one time, when the doctors told me there wasn;t a chance, I prayed extra hard to that saint and she ended up making it thru and living another 2 years. It was our miracle.
    You are an inspiration in how you are living and loving Ty each day. He is remakable because he learned from the best. You are an amazing family.
    I had my sons pray at school for little Ty and for your family and you have been on my mind every day.

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  17. Love and prayers to Ty and to your entire family. May you all find the peace you deserve

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  18. Dear Cindy, as I wipe the tears from my eyes, I continue to Pray and Thank God for the miracles I have witnessed throughout this long and hard road you and your family have been traviling.
    I know there are no words that anyone can say to really comfort you, except that we all Love TY very much.... and continue to Pray.. I think about him everyday, and the strength God has given you. I have been Praying the "Healing Prayer to St. Jude" always for your amazing son,and will continue to Pray for your little Super Hero..May God Bless you all... Love, Kathy Brunelle and the Guardian Brain Foundation..

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  19. Beautiful, beautiful, beautiful boy. Your existence is a true blessing to all those around you. You have impacted my life through a mere computer screen and your story has opened my eyes to the ugliest reality that is cancer. I will never be unaware again and I will never stop praying. You are a victor no matter what the outcome. Some people live 80 years and don't get to become as beautiful as you are. You are so wise beyond years and I love that you can watch your brother and love and laugh with him despite all your suffering. Truly my hero. I will pray again tonight for you and your family. God is in total control and He will bless the Campbell family.

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  20. His smile is just so amazing .. He is surrounded by angels who comfort him and a family who loves him most. I have grown to know Ty and love him through your posts and today his beautiful smile made me cry...He is going through so much ..he smiles ...he is a true warrior. I am grateful for all that is and all that will be and I have been blessed by your many posts. I followed them faithfully .. once you read one thats it ..your hooked. May Gods peace and love and comfort continue to be a blessing to your family and to adorable Ty and Gavin. its amazing that little boy has been robbed of so much... but still has the most amazing smile and just oodles and oodles of love from around the world. He is truely a blessed little boy...I have fallen in love with him and carry him around in my heart.... Much comfort and love to all of you and may angels continue to surround TY and bring him joy and comfort.
    love n Blessings Debbie from Hawaii

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  21. Ty is such a precious and special little boy! My candle here keeps burning for him and I think of him every single day, several times.
    I keep on praying for a miracle to happen.
    Love and light
    Beate

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  22. Cindy,
    It is five in the morning here, and I woke up early to do some work, only to find myself thinking about Ty. Hoping and praying for a miracle, and at the same time totally in awe of the power of his and your human spirit. That smile is pure, sweet and majestic, he is one noble human being,and a testimony to all that is beautiful in this world. God acts in mysterious ways, we know all too well, but the fact that Ty can feel joy at this time, despite all he has been through, can in some way serve as comfort, and a divine message, that amidst all we perceive as horror, there is always that light, and Ty's spirit is aglow. The body is just a cloak to the spirit, which, for whatever time we have on this earth, we are to preserve and keep as pure as we can. Ty is a living model of what we all should try to achieve in our lives and his and your example of grace will forever be etched in our minds. Thank you Campbells.

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  23. may God bless Ty,Gavin, and you as well as Lou...i pray for your whole family everyday....

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  24. I have been reading your blog for at least a year now and I feel like my heart is breaking now. My son turns 5 today and it may sound crazy but your blog has made me appreciate life and my kds so much more. Ty has an unbelievable family as well as he is an amazing little boy. He deserves a miracle and I pray for one today. Keep your strength up.

    Rita Beemer

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  25. You are truly an amazing family! Thank you for sharing Ty with us. A true testimony of love, courage, strength and faith . You guys are in our prayers. Thank you for the daily reminder to live and love..... Thank you to lil Ty❤❤❤ - the Plotkin Family

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  26. Other people are expressing my thoughts so much better then I am able to - but please know your son and your family have touched my soul. Maybe because my son is so close in age to your boys. Or Maybe it's just because Ty is one of the most beautiful kid I've ever seen and I just cannot fathom all that he's been through. You and Lou are inspiration to parents everywhere. Your love and support of each other is a reminder to all of us to really invest in your spouse and your marriage. And of course your love for your children goes without saying. I will cherish my son and hug him harder today and I promise we'll jump in puddles and think of Ty always. I am hoping every day for a miracle - Ty deserves another! But if it's not to be - the lessons we've all learned by you sharing him and your family with us, will go on. Thank you all. God bless. Superty always.

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  27. I've been checking in daily for an update. I started following your blog just over 2 years ago and feel so connected to this little guy. My heart breaks for ALL of you. I am a mother of a 3 1/2 year old and 6 year old, and I can't begin to imagine.
    When my youngest was just 9 months, I discovered I had melanoma. Thankfully, being proactive saved me from any further treatment. However, I still worry all the time. This past June I participated in my first Cancer event. A friend who helped organized the event lost both her parents at young ages due to cancer. We raised over $14,000 for our This is a huge amount considering we live in a very small town in Southern Vermont.
    I will continue to pray each and every moment!!! Praying for just one last miracle! Thanks for the pictures, I can't get over that smiling face!
    Sending my best!

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  28. Ty is a precious little boy and so are you. Thank you for sharing. Our love and prayers to Ty and your family <3!

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  29. Though I've never met your family, or that amazing little boy, I feel like I've known you for years. That's because you have chosen to share SuperTy with us and I am so glad you did. Reading this makes me want to be a better mom and a better person. I am in awe of your strength and courage in all that you've been through. Ty is an angel here on earth, i truly believe that. He has taught us all lessons about life, ones that i will never forget. I think of you all daily and you continue to be in my prayers. Thank you for sharing your family with us. May God bless you and keep you and continue to give you strength!! I will forever let my daughter jump in puddles and think of Ty every time and smile. Keeping you all in my prayers.

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  30. No child should ever go through what he is going through and no parent should go through what you are. My heart aches for you. It helps me realize how lucky we are with are very small problems. Ty is so blessed to have you. May God be with you.

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  31. Cindy, thank you for sharing your beautiful boy with all of us. Even thought we have never met I feel like you are all family. Your family is and will continue to be in my prayers. God Bless Laurie

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  32. Cindy, Because of you, and Lou, and Ty, I am a better mother to my five year old. Through endless tears I have so much more to say, but I will leave it at that because I can't find the right words. You have all made me more aware, more patient, more grateful. Thank you.
    Sending all of our love and thinking of you every single day. Ty is so incredibly beautiful.
    xoxo

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  33. I don't even know what to write to you today. I can't seem to stop crying. Seeing that precious baby with the costume reminds you how young he is. The simple pleasures our little angels get from walking around all day in a costume. My one son who is the same age as Ty and looks a lot like him walked around dressed as a shark for about a year. My mother used to tell me it was crazy to let him go out like that. Having followed your story for so long it was with great joy that I allowed my son to dress as a shark. Cindy you are the one that taught me that. You have taught me more than any parenting book or magazine could ever. Ty has changed my life and I am thankful for each day of "knowing" you. The wisdom and appreciation I have for everything now, is surrounded by you and Ty. His story and his will to live have touched me beyond words. Throughout all of this Ty still has a smile that lights up my room through a computer screen. God bless all of you..

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  34. I'm so sad reading Ty's blog right now. I can't begin to tell you how the Campbell family has touched my life. When I read the blog I can feel so much strength, courage, perseverance and love shine through. You have more than defined the word "MOM".....I think if each of us could, we'd reach out and give you a giant hug xoxoxo NO CHILD EVER should have to endure what Ty has and NO PARENTS either......

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  35. Thank you for sharing your beautiful boy with all of us. He is special. Through your families sufferings you have accomplished great things. You helped us all realize what is most important in this life. Moments, acts of kindness, innocence, hope, and our connection and love for each other. Thank you for helping us grow and understand life more by sharing your story. You have touched us and Ty has touched our lives forever.
    I searched for understanding and opened the bible. I came to Tobit chapter 3. God makes all things new. Trust not in medicine and treatments but in God alone and His works. You did this before and that was when you recieved a miracle. We just need to give up (not hope) and fall into Gods arms let Him Who created us take over.
    Ty is happy because he is innocent and unburdened. He can enjoy every sweet little moment. Precious angel. I cant stop thinking of you and waiting to hear about your next miracle. Sending kisses and love to sweet Ty.
    Much love to your entire family. God bless you

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  36. My heart is aching for you and your family. Thank you for, even now, continuing to share your story with us. Ty is truly an amazing, amazing boy, but that shouldn't be a surprise considering the family who surrounds him. May God and all the prayers being said on Ty's behalf continue to be a source of strength, support and comfort for all of you.

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  37. Cant stop crying . Wont stop praying. He is in good hands , Gods hands, His mother and fathers hands.

    Ty in that costume is my new screen saver.

    Your family is part of my life now and I just love you all....

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  38. You're son is beautiful, a miracle from the moment he was born. The lives you have changed, that your son has changed are too numerous to count. My prayers and thoughts are always with you and your beautiful family.

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  39. Their are no words for this heartbreaking thunder strom of tears and pain.i know their is a rainbow on the other side.i pray it is the mirale you so much want. the second rainbow is ty playing in the mud puddle with that heavenly smile of his. i will keep praying that your faimly has the rainbow you want. i want you to to know our tears are falling like rain too. and last let the lord be with your whole faimly

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  40. Thank you so much for sharing your story with the world. Ty makes me be a better mom, and gives me an understanding of the world, that I may have missed if I had'nt been touched by him. I have an idea for you. Tear catchers:
    take a white pillow case, and some sharpies and fabric paint. With Ty, you can use the sharpies to write on the pillow case all the things that Ty loves, like candy! make a nice long list on the pillow case, then use the fabric paints to make his hand prints on the pillow case. when it dries, you and Lou can use Tys hand prints to "catch" your tears and keep his happy thoughts with you all night.
    My prayers and my love are with you every day. Thank you!

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  41. You amaze me! I say Ty has a Super Mom and Super Dad! I am glad you will have hospice there to help you as I'm sure things will get overwhelming somedays and you will need to know you can take a break or a shower and know someone is there to watch over your precious Ty. I am so happy that he has kept his beautiful smile and is enjoying watching gavin play. I think Ty is a very wise soul and is very aware of what is going on deep inside and is ok with it.He is loved and he knows that,it's all that matters in a childs world.If Ty sees you crying just let him know it's just because you love him so much and are so greatful that he is yours.It's ok to let him see you cry as long as he knows it's a happy cry.I am crying for you too.I will continue to pray for all of you. You and Lou hang on to each other tight and praise each other for all the great things you have both accomplished on Ty's behalf.What wonderful parents you both are.Know God is there with you always and will hold you up when you begin to fall.God Bless the Campbell family. Love, Jean

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  42. Cindy, my heart aches for little Ty and your family. Reading your blog posts makes me feel as if I know you and your family. You all are truely wonderful people. Praying for a miracle for that sweet boy of yours . Your family will forever be in my heart especially Ty.

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  43. Cindy- I'm reading all of the comments and also feel so inarticulate at this time. I have been following your blog for many months now and I honestly think and pray for Ty every day. I have a friend that also reads your blog and we talk about him and what an amazing family you all are on our runs. We both feel as if we know you and we love your little boy. I have a 19 year old son and 16 year old daughter who I have also talked about Ty with. I want them to know what an inspiration Ty is to me and to so many others. I want to thank you for sharing your life with all of us. It can not be easy for you but it has given all of us so much. I am continuing to pray for a miracle and for god to give you strength. Ty's smile is amazing and bringing tears to my eyes. I can't really understand why you have to go through this but I do know that Ty has taught us all something about how we should try and live our lives. I hope you can feel the love and support from all of us out here who have been following your story. You are not alone.

    Continued prayers.

    Ann from Buffalo

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  44. What a beautiful child. What a beautiful mother. You amaze me with your ability to see the beauty in life even during the hardest days any parent could endure ... and yet you are in awe of Ty's ability to remain happy and smiling ... quite obviously that gift was passed down from you and Lou. A gift that you are also passing down to your darling Gavin. I can't help but keep thinking about Ty not being able to jump in puddles ... maybe you could somehow bring in some visqueen and wet it down so Gavin can jump in a puddle indoors for his big brother to see. Yes, a mess, but only for a while ... water dries, but memories last forever.
    I promise that the next time it rains I won't avoid a single puddle ... I'll give each one a little jump just for your boy.

    God bless this beautiful boy ... God bless this beautiful family.

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  45. I just came across your blog by way of Reddit. I'm in awe of your truly amazing little boy and family. Many thoughts and prayers for you and yours. Thank you for sharing Ty with the world. <3

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  46. My heart breaks for you and your family! I pray that Ty doesn't suffer any longer than he has to and if there is another miracle out there for him that it comes now! Your story really puts things into perspective for me. Thanks for sharing.

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  47. I just wanted you to know, that you are a special person and have made me a better person from reading your blog. My daughter, Katie Trifiletti went to Marist College with you and I have been following Ty's story. Katie stayed overnight with us last night and when she saw me this morning, she knew I had read the blog. Tears were flowing down my cheeks and I wanted to hug you, but the best I could do is hug Katie and let her know that there are good people everywhere, but she has meet you and you are heaven sent and pone of the best. May angels follow you and and your family as this journey begins and know I think of the Campbell family everyday.Prayers and positive energy is always heading your way. Catherine Trifiletti (Katie's Mom)

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  48. Ty is the first cancer warrior that I ever followed. He opened my eyes to the ugly world of pediatric cancer and how little funding there is. You made me live him with your words. He made me love him with his strength and courage to fight. His smile that lights up a room and has brightened my day time and time again. He has given me the desire to do something to help whether with donations of money or time or just to stop and say a daily prayer for all of the children that fight so hard. YOU are my inspiration SuperTy and I will NEVER stop fighting for you and all the others I love so dearly. NEGU little man. You have made such a difference in my life, my children's lives and the lives of others. I love you with all my heart. Prayers for comfort and healing surround you.

    All my love always,
    Elaine hinkle

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  49. Hoping and praying for another miracle for your beautiful boy. God Bless you and your family.

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  50. Cindy,
    I am in awe of your faith, your strength and your pure love for those around you. Soak Ty in, your senses are allowing you to see, hear and feel everything right now in a way few will experience. We are all here Cindy. I wish I could climb through this computer and be there for you personally but my prayers and simple words will have to do. I would say, "May God be with you", but I know he is so present in your home. Cathy from Colorado

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  51. Ty is so happy to be home!! You are an inspiration to all who have followed you through your journey. We fell in love with a little boy, with a big smile. May God place his hands upon you!! Peace-be-with-you xo B.C.

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  52. Dear Cindy, I want you to know, and I'm sure that all of your followers would agree, that you and Ty have been a gift from God for us. We have learned from you and Ty about true raw strength, courage, faith and absolute love. Thank you for sharing Ty with me and making me a better mom. One day my children stoppped to pick dandlions, my usual self would tell them to hurry up because I have errands to run but then you and Ty came into my mind. How much Ty would enjoy this and how much you would have liked to see Ty doing that. Because of you and Ty, I let my kids take the time to do the little small things that mean so much to them. You, Ty, Lou and Gavin have been a blessing to me and you have taught me many things through your blogs and throughout your journey. When I think I am having a bad day I think of what Ty and all of you are going through and stop myself. I continue to pray and ask God for another miracle. Today is my birthday and when I blow out the candles, I will make a wish for Ty and all of you. Thank you for showing us all what motherhood is truly about. Love, Kathleen

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  53. Hello Campbell family we are thinking of you everyday and hoping for anther mirical to happen to such a super kid. I have 4 year old twins and cant even think of going thru this with one of them, and to think that there is a chance that one might be lost for ever, I feel for you guys and thinking of you.

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  54. I am so in awe that in your situation you are still finding positives. You and Lou are angels on earth. You have helped myself and others realize that a lot of our everyday "crisis's" are really not so awful. Picture of Ty smiling has made my day!! So many people care and are supporting you.

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  55. Ty, I hope you know little man how much you inspire those around you. Even through the pain and discomfort, you continue to choose joy, love and laughter. The picture of you smiling as your brother plays says it all... what a big beautiful heart you have! Thank you for always reminding me how to be a better person and to make each day I have matter. I am always thinking about you and your family and sending mighty prayers that you get the miracle you deserve. xoxo

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  56. Campbell Family and devoted prayer warriors

    I shared this once before, but it seems like now is an appropriate time to remember that God has a plan, part of which is to see all of us through the difficulty of the journey. Clearly we have all been blessed to witness God’s strength through Ty and his family’s unending faith and hope as they remained committed to ensuring that Ty’s life was a life well-lived with purpose, dignity and immense love. Praying for peace in the days ahead, however many there are, and for the acceptance of God’s will for Ty, knowing that His love for Ty exceeds even our collective love for him.


    The Brave Little Soul
    Not too long ago in Heaven there was a little soul who took wonder in observing the world. She especially enjoyed the love she saw there and often expressed this joy with God. One day however the little soul was sad, for on this day she saw suffering in the world. She approached God and sadly asked, 'Why do bad things happen; why is there suffering in the world?'

    God paused for a moment and replied, 'Little Soul, do not be sad, for the suffering you see, unlocks the love in people's hearts.' The little soul was confused. 'What do you mean,' she asked. 'God replied, 'Have you not noticed the goodness and love that is the offspring of that suffering? Look at how people come together, drop their differences and show their love and compassion for those who suffer. All their other motivations disappear and they become motivated by love alone.'

    The little soul began to understand and listened attentively as God continued, 'The suffering soul unlocks the love in people's hearts much like the sun and the rain unlock the flower within the seed. I created everyone with endless love in their heart, but unfortunately most people keep it locked up and hardly share it with anyone. They are afraid to let their love shine freely, because they are afraid of being hurt. But a suffering soul unlocks that love. I tell you this - it is the greatest miracle of all. Many souls have bravely chosen to go into the world and suffer - to unlock this love - to create this miracle - for the good of all humanity.'

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  57. Just then the little soul got a wonderful idea and could hardly contain herself. With her wings fluttering, bouncing up and down, the little soul excitedly replied, 'I am brave; let me go!! I would love to go into the world and suffer so that I can unlock the goodness and love in people's hearts! I want to create that miracle!!'

    God smiled and said, 'You are a brave soul I know, and thus I will grant your request. But even though you are very brave you will not be able to do this alone. I have known since the beginning of time that you would ask for this and so I have carefully selected many souls to care for you on your journey. Those souls will help create your miracle; however they will also share in your suffering. Two of these souls are most special and will care for you, help you and suffer along with you, far beyond the others. They have already chosen a name for you.'

    God and the brave little soul shared a smile, and then embraced. In parting, God said, 'Do not forget little soul that I will be with you always. Although you have agreed to bear the pain, you will do so through my strength. And if the time should come when you feel that you have suffered enough, just say the word, think the thought, and you will be healed.'

    Thus at that moment the brave little soul was born into the world, and through her suffering and God's strength, she unlocked the goodness and love in people's hearts. For so many people dropped their differences and came together to show their love. Priorities became properly aligned. People gave from their hearts. Those that were always too busy found time. Many began new spiritual journeys - some regained lost faith - many came back to God. Parents hugged their children tighter. Friends and family grew closer. Old friends got together and new friendships were made. Distant family reunited, and every family spent more time together. People checked a website and sent notes of encouragement. People made and brought meals to the family of the suffering. Everyone prayed. Peace and love reigned. Lives changed forever. It was good. The world was a better place. The miracle had happened.

    God was pleased ......

    (By John Alessi)

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  58. Dear Cindy,
    I have been reading your blog for at least a year and a half, perhaps longer. Time has become indistinct for me as my 18 year old son Tyler died from a clival chordoma in October 2010. I am so sorry for all that has happened to Ty and your family and continue to hope that somehow another miracle will occur. Although our families have faced the pain of cancer, we all experience and feel it differently. If you ever want to write to me or call on me for support, I am here to help as much as I can. I will keep you all in my thoughts.
    Diane

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  59. Hi, I've never commented before but have been following your story for years now. You and your family and Ty have been such an enormous inspiration to me. I pray for Ty and all of you daily. Ty is such a strong little fighter and relentless in his happiness. And he is lucky to have such amazing parents and a sweet brother. Much, much love to the Campbell family from Kansas!

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  60. Kelly Crowley SaposnickSeptember 20, 2012 at 9:12 AM

    Cindy,

    We went to high school together and I have been following your story for a while now. My heart aches for you and your family as you go through what no Mother should ever have to go through. I am so very sorry for the pain. I have learned how to be a better Mother to my sons because of you. I will appreciate the little things and know that every moment is a gift. I wanted to let you know that up here in Saratoga we are thinking of you and praying for Ty.

    Love,
    Kelly Crowley Saposnick

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  61. Cindy, my heart aches for you and your family. May God grant you all the strength, courage and faith to make this journey with Ty. You will all be in my thoughts and prayers, as I say the most difficult prayer of all: Thy Will Be Done.....

    I pray that His Will is another miracle for Ty.

    With love from Florida,
    Michelle

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  62. I am humbled by your strength, your spirit...yours and your family. My soul aches for what you all are going through. Your family will always be in our prayers. Thank you for sharing your life, for the lessons that you teach. Your family has inspired so many...may God bless you each and every day.

    Hugs,
    Kim

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  63. My dear little Super Ty, You are truly a gift from God and I am honored to have gotten to know you and your family through your mom's posts. I have been following you for well over a year and you are never far from my thoughts and you are forever embedded in my heart. Keep smiling baby boy.

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  64. God bless you and your family. I am praying for Ty.

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  65. Ty--you are the most inspirational little boy I have ever encountered. I have been reading your story for about a year and a half and to see those smiles, you amaze me. You have made me a better mother to my children and we are all praying hard for a miracle. Your parents are amazing and your mom should become a writer. Keep smiling sweet boy!!!!

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  66. My heart aches for all of you, your story has affected my life as well as the many others who do and don't comment here. Thank you so much for being able to share your innermost thoughts at this incomprehensible time in your life.

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  67. There are no words to comfort you or make this easier. Just please remember you have so many people all over this world praying and sending love to you all. Love to SuperTy and your family.

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  68. Cindy, Thank you for blessing me with the opportunity to get to know your family. I am a different person from following Ty's story. Ty is so full of love & life that it just beams through in every picture you take. When I look at him I just want to scoop him up and give him big hugs & lots of kisses. If only he could realize all the lives that he has touched just being himself. I know there must be angels all around him, helping him through this because beams of light just pore from his beautiful smile. I know in my heart that if God should take Ty, his spirit & smile will live on through all of you and all of us. He will never be far away,he has left a stamp on all of our hearts that will never fade. I am praying for another miracle for Ty each and every day. He is such an inspiration and I love him so much. Please know that you are not alone, our hearts & souls are with you and your family. Stay strong & continue to enjoy the beauty around you, we all need to take a note from Ty's playbook. Keep up the fight my beautiful Ty!!! God Bless! Love, Rose

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  69. I am literally sitting at work with tears streaming down my face. It's amazing how much of an impact Ty has had in the short time that he has been on this Earth. I was at a dinner with a friend last night in a neighborhood bar in Rockaway and overheard people talking about Ty and his story. Of course I had to jump in, and we proceeded to talk about your family for a good while. Please know that people all over are praying for Ty and your family, and that he has touched more people than you will ever know. Even without knowing him, there will always be a special place in my heart for Ty. I pray to God that Ty wakes up one day cancer-free, and goes on to lead a full, healthy life. God works in mysterious ways, and many things that happen throughout our lives cannot be explained. But always remember this - should Ty pass away, you were granted time to share with the most amazing little boy and you will forever be a better person and family for having shared in his life. No parent should lose a child and my heart is in a million pieces for you, Lou, Gavin and the rest of your family and friends. May God watch over you all.

    Prayers from Rockaway

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  70. I am so sad. I have a very heavy heart and I just need a good cry. I have to hold it back, as I am at work....but, as soon as 5:00 gets here, I know I will let loose.

    I love the pic of Ty above w/ the costume draped over him. Such a sweet smile and such a sweet spirit.

    I truly love your family,
    Jan
    Georgia

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  71. I have cried so many tears for you and your family. I have only posted here once or twice, and have not read too many of your entries, because I become beside myself with grief and tears. I have often had to leave the room, hiding from one or both of my kids (7 years, and 17 months old), because while I've always been open with them about sadness, and even sickness and death, I cannot even speak whenTy comes into my mind (literally, I can't speak), and frankly, it would probably scare them to see Mommy hysterically crying over something she's reading on the computer.

    But I want you to know, that since my sister Jennifer (one of Lou's friends from Oneonta) first told me about Ty, you have all been in my thoughts and prayers so often.. I light candles for Ty. I hug my babies for Ty. I smile for Ty when I see gingerbread houses and candy. I am moved to tears, and think of the real meaning of courage and that of a real fighter, when I hear the Rocky theme song.

    And - more importantly, know this: the ultimate gift that you, by sharing your story, and Ty, by living this story, have given the world, is immeasurable. and that gift is this:
    While cancer had robbed him physically of so much, his life and spirit have demonstrated EVERYTHING that childhood should be, if life were perfect.
    Ty has known only love and affection in his life. He has brought into sharp focus for so many of us what is truly important: Family. Love. Friends. Courage. Determination. Fun. Laughter. Creativity. Joy despite the most daunting of situations. As you just posted, genuine appreciation for the simple beauty that surrounds us all every moment of every day. You have inspired thousands of parents to love their babies so hard, every moment of every day. To appreciate our babies, and to love every single part of their being.

    While unlikely, maybe someday I will meet you, and if you do, I will give you the biggest hug, and if you cry, I am ok with that, though you should know, I will be crying too.

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  72. Sending so much love, hugs and prayers! This post was so incredibly beautiful as are all your posts about Super Ty and your family.

    In my thoughts and in my prayers, I will keep Ty and your family and forever and always will I keep you in my heart - MY INSPIRATION to live a good life!

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  73. How can this be??? I am on my knees for you. Ty is a sweet child just like so many other kids that has randomly been ravaged by cancer. It just isnt fair. I wonder how we can live in a world with such injustice and pain for such an innocent little thing. There is nothing worse than this: a beautiful, innocent child with cancer.

    I have been following your story for almost 2 years, and I will continue to follow always.

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  74. Speechless. My heart goes out to you all. May you, Louie, Gavin and Ty get the strength you need to get through this.

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  75. The four of you are an amazing family and I am inspired every day all of you. Thank you for sharing your story with the world.

    Dear sweet Ty, thank you for all you have done for me and for so many others, just by being you. Sending love to you, your brother and mommy and daddy.

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  76. I have followed Ty's story for a long time, but have never commented. I just wanted to let you know that Ty has truly touched my heart and made me appreciate the little moments in my son's life. Praying for a miracle.

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  77. ps - the pics in this post keep me coming back today. As sad as I am to know where Ty is in regards to his health, the pics of him smiling warm my heart. And to see what Gavin did to Jessie makes me laugh - my son loves Jessie so it just cracked me up. Bless you guys.

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  78. A lot of my friends have been praying for Ty on Facebook, and that is how I came to learn about Ty. I haven't stopped crying and praying for you all since then. I am a mother of two boys and I can't even imagine what your family is going through. Your journey has not been an easy one. I know that I will hug my boys more often and will let them jump though puddles because you have taught me that life is very much too short. May God bless you all and grant you the courage and the peace you need.

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  79. You're story is beautiful and so sad. I have followed it from the time it started as a friend of Kelly Sheehy.I pray for Ty and your family every day. I can only begin to imagine all you have been through and I commend your strength and faith in God. May he continue to bless you with hope, comfort and miracles. ♥ Kadi McVay

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  80. Cindy and Lou, I've been trying to think of the right words to say, but I know there aren't any. I'm so very grateful for what you and your family has taught me in life...what's really important and how to recognize it...and to take time to enjoy it. You all have given me so much more in this life than I had before knowing of you, and for that I'm truly grateful. I hug my girls more, I leave the dishes and enjoy spending time with them instead, and I am so ever grateful for all that I have in this life, both good and bad. My family has also been touched my cancer, my little baby girl, although different than that of your special boy Ty, I can only imagine what you are all going through, but you continue to amaze me with your spirit, strength, and love for each other. I’m still praying for another miracle to come your way…with much love and hugs to you all.

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  81. I am so sorry for what you have been going through, as a mom I can't imagine your heart ache. I have been following Ty's story from day 1, I have to tell you he's amazing, a real angel! Becausand Lou's strength and love you have taught me to be a better Mom. I no longer yell and scream as much, I try to talk and use kinder words, I try not to freak out from all the mess and chaos my 4 crazy kids make, I don't sweat the small stuff, and I treasure every day, every minute I get to spend with them, thank you for allowing us all to get to know your story, you're amazingly beautiful and inspirational! I have also learned from Ty, that gorgeous little boy and his infectious smile! He makes you realize that with all that's happened to him, he remains happy and smiles! I wish I had the strength of precious Super Ty! He has touched so many people lives, I don't think no matter what may happen, that anyone could ever forget about Super Ty and his family! Again thank you so much for sharing with us, teaching us to love more, and never stop fighting! God Bless all of you, especially Super Ty, always in our thoughts and prayers! I believe you all deserve another miracle, will never stop praying until you get it! ❤❤

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  82. Cindy,
    I've been so very sad all day after having read your update this morning. I, myself cannot believe this is happening to you all. After all you have been through in the past two years. I have two children, the same age, and we (you &I) went school together. I know through mutual friends and just seeing you around school back then that you are not the person this should have happened to. However, I do know from reading your entries what an amazing mother and wife you are to your family. I can say I have definitely gone to your story for encouragement from time to time to see what strength and bravery you have, to remind me what is important in life. Praying for you always...Lisa Fingerman Asimake. xo

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  83. Ty continues to inspire me every day. Sending you love and peace and sparkling smiles...xo

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  84. Cindy-

    My sister and I read your blog everyday and are truly amazed by your strength and courage...I will continue to pray for Ty as I have for the past 2 years and will be thinking of you and your family...both whom are inspirations!

    God Bless Ty!

    -Meg Burke

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  85. You will never know how many people are praying for Ty and his family. People who never met him but who have been touched by his story. I got to meet him a couple of times in the playroom at Sloan, and my heart is breaking for all of you. Hopefully the flood of prayers is carrying all of you through. Stay strong and thank you for sharing this journey with us. God bless Super Ty.

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  86. We have been praying for Ty since he began this terrible journey. He is an amazing, strong and beautiful child, and you, Cindy, and your family are truly inspiring and exceptional people. Ty is so lucky to be surrounded by so much love every day. Wishing you strength and praying for a miracle.

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  87. Cindy,
    I have not been able to stop thinking of little Ty & your family. Found out about him through Team Jack's FB page a few days ago. I have to tell you in my everyday routines he is on my mind now. In the grocery, driving my kids to school, folding the laundry I start to cry, then pray and again cry then pray. I had someone in the store ask me if I was ok. I felt guilty "yes I'm ok, just thinking of someone who's not." What a blessing of a mom you are to Ty that you are able to find beauty amongst the sadness. I instantly thought of the song What a Wonderful World, one of my favorite songs. Reading your story I keep thinking how loved he is. What a treasure our children are. For some reason in my dreams & my thoughts I always hear music, like a soundtrack to a movie. While in thought & prayer of little Ty I kept hearing these songs. I hope you don't mind me sharing. Bless his heart & soul. Still praying for a miracle in Ohio. God Bless~ Christine

    https://www.youtube.com/watch?v=uEBBGSgO16M
    https://www.youtube.com/watch?v=gOx2tumeqZo
    https://www.youtube.com/watch?v=D9AFMVMl9qE
    https://www.youtube.com/watch?v=L_j-tpmdPlI&feature=related
    Beautiful, Beautiful, Beautiful Ty

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  88. I am hoping, wishing, begging, praying for another miracle for your precious lil Ty. It makes me so incredibly sad and angry at the same time that lil Ty has suffered and keeps suffering so much or that any child must go through this its just so unfair. Im heartbroken. I have prayed every single day since I first read about lil Ty almost 2 years ago, I have prayed crying and begging on my knees and I will continue to do so. I pray God hears us

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  89. Reading this blog has brought me to tears many times, but I continue to admire Ty's endless courage, strength and beautiful smile! You are such a great mom and have an amazing family. I continue to pray for another miracle for sweet Ty! I, like many others, have learned so many wonderful things through Ty and your family. Much love and prayers to you....

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  90. Reading your thoughts today sure did make me cry my eyes out....as i could hardly see as i am writing. You are an unbelievable human being, besides the best mother in the world...Ty is truly amazing,a child that could teach a world of hostility,greed, anger, etc...how to let go,and enjoy the ride ,whatever your ride is.He has touched my heart and I will always have your family in my prayers,You and Ty are inspirational :} {:

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  91. There are no words, just prayers, hope, and compassion for your family that they will find peace, love and light in your son today, tomorrow and always.

    Thank you Ty, Cindy, Lou and, Gavin too, for sharing your story, living in the moment and believing in the power of prayer, family and friends. Your family is inspirational and gives so much strength to those around you. God Speed.

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  92. Cindy,
    I have been sitting at my desk for quite a while now staring at Ty's face. I have run threw my head 1000 different things to say to you. If I could just come up with that one thing, that one word or action that could take all of your pain away. I want to change your life the way you have changed ours. I think of what a wonderful friend you would be and how sorry I am to have met you this way. But also so grateful that you have made a presence in my life. I wish so much I lived closer just so I could hug you and tell you everything is going to be okay. You have given such a special gift by sharing Ty. I look at him and see the eyes of an angel, such perfection. I look at that and know why Ty is here. He has given to me more than you can possily imagine. You have allowed that, you have changed lives. Through all of your struggles, the Campbell family has made such a postive impact with so many. I am so very sorry that while helping us you have had to endure such heartache. As you see, I am at such a loss as to what I can offer you... if I could take your pain away and offer Ty the health he so deserves I would in a heartbeat. I wish for you now, moments with Ty that will last a lifetime. Lots of hugs, kisses and all the snuggling time you can stand:) Silly chats and all kinds of crazy dances from Gavin. Your are in my heart and my prayers!!
    Michelle - NH

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  93. Cindy, I cannot explain how I feel like we are family, you have just affected my life in so many ways. I can't talk enough about you and Lou. Once I made the boys some blankets and people at work, were like are you related,and I told them only through our hearts. I cannot imagine a day I do not log in to check on Ty.
    He is such a blessing, I have been there for every up and down, and can't explain how the good and the bad days always affect me accordingly.His picture hangs in my kitchen and brings me many smiles,I won't give up praying for him! He is truly a miracle and makes me appreciate all my miracles, too! Love and Prayers to you guys, Terri

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  94. Cindy,
    I heard 'Yellow' bu coldplay today and could not stop bawling. You had used that song in your love song to Ty. I will never be able to hear that song again without thinking of your sweet little boy. You are not alone. We all love you and your family. I selfishly do not want Ty to be gone but I do agree with your decision that if that's what is best for him...I'm so sorry that you and anyone has to go through this. You have raised my awareness of this horrible thing though.
    Please kiss that adorable little face for me.
    Jennifer in NC

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  95. Cindy & Lou,

    I received the email to Ty's blog this morning and I had to pull over and read it. I broke down. My heart is breaking for you and your family and I truly do not know what to say except that you and your little boy have completely changed my life. I am a better person and mother because of your family.

    I just sat today and thought of Gavin. He is so little and I am not even sure he is capable of comprehending what is going on. I am not giving up. I am not one who prays often, but I find myself praying every single second for Ty. It is not fair and I don't understand why this has happened to him and your family.

    I am praying for another miracle. I love you Ty! You are truly an angel on earth.

    Joy Marielle
    Baltimore, MD

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  96. Cindy & Lou,
    My heart is broken my sorrow is deep for your beautiful amazing son TY. I was telling a friend his story and I broke down crying he has changed my life. I see him as my own little boy which I have and I feel the pain so deep. I had a brother who died at 3 from drowning and I always asked my mother how did she go on in her life after. She said she had no choice she had my other 2 brothers who where young at the time that needed her. She could not give up she also said she kept very busy which helped. I will forever be changed by this journey. Much love & prayers and hope
    April Coburn
    Port Jefferson, NY

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  97. My heart goes out to you and your family. You are an amazing writer. Keeping Ty in my prayers.
    Maryellen DeAlleaume Locker

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  98. I am in absolute awe of this little boy and his beautiful smile. Thank you for taking the time to share him and his grace with the readers. You’ve reminded us all what is most important in life. May you and your family find peace in this difficult time in whatever way is most meaningful to you.

    A loving mother of 2
    Williston Park, NY

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  99. I have been following Ty's love story for almost 2 years. Thank you so much for sharing him with so many others. It has been an incredible gift and privilege to get to "know" you and your wonderful family. Still praying for and believing in miracles, especially when it comes to Ty.

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  100. Ty,
    I just want to say that you are always in thoughts. I's been almost 2 years that I first learned about you and since then you have filled my heart with love, hope, compassion, and admiration.
    You are my superhero.
    Much much love,
    Taciani

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  101. Your story has made a difference in many lives. I now let my boys play in the puddles and get dirty and wet. I no longer sweat the small stuff. I go to bed every night praying for Ty and your whole family. It is so sad to read about Ty, yet it is the most beautiful love story I have ever known. I am a better mother because of you. I cant thank you enough for sharing your life with us. There is no doubt that the world is a "bedda" place because of Superty. May God bless you all!

    Rockville Centre, Ny

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  102. What an strong boy you have. Thank you for sharing him with the world. You are all in my thoughts and prayers. Just remember that it is not goodbye. You will all see him again in our heavenly world.
    Jennifer, Illinois

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  103. I'm thinking and wondering....couldn't you carry Ty out and wiggle his toes in the mud puddle then get him quickly in a nice warm bath so he diesn't catch a chill???? :)

    Sending love, as always,

    Marianne from California

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  104. Every day that he smiles is a miracle! I recently looked back through your blog from the very beginning of your journey and shook my head in awe at all of the pictures of Ty smiling. Hooked up to machines...smiling; post-surgery...smiling; confined to wheelchair...smiling; I am convinced he smiles when he sleeps! How can this angelic little boy be faced with so many hardships and still come out smiling? God has obviously shared a secret with Ty that we all aren't privy to.

    I hope that his story touches people the way it has me. I smile more, I pray more, I believe in miracles. I will continue to pray for miracles for Ty and for your family. God Bless you all!

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  105. Cindy-
    I dont know you but my sister went to high school with you.. I have been following your blog for about a year and my heart is just breaking for you today. I want you to know how much Ty's life has touched mine.. I feel like I am a better mother because of your story. I will forever think of Ty when I see children jumping in puddles.. Thank you for sharing your story and please know you, Ty and the rest of your beautiful family are in my thoughts and prayers...

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  106. Prayers and love to your family. No matter what may come, Ty has shown himself to be a soul with more strength and more guardian angels than could be thought possible. Peace.

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  107. Can't get my mind off of ya'll..please know many are praying for you and your family.

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  108. Cheryl Donnelly- Setauket, NYSeptember 20, 2012 at 7:25 PM

    Dear Cindy and Lou,
    I've only been introduced to Ty's journey this week. I am friends with Colleen Liebowitz, an amazing woman and mom like you. Your sons story has touched me so deeply....I've held a baby in my arms that didn't come to term. My first son had anencephaly And my third son had heart defects.....I've grieved the loss of a child and I know the gut wrenching pain the loss of a child is. I was a walking zombie and the loss of my sons have changed me in ways that only other moms that have lost children can understand. What your family is experiencing of couse does not compare.....there are no words for the pain that Ty has endured, but by sharing his story with the world you are changing lives. You have changed mine, only in the few days that I have known your story. I have been blessed with three beautiful children and I have always been that mom that lets them get messy and jump in puddles. The next time they are enjoying being kids i will think of Ty and smile.....you have given me an appreciation for my sometimes very difficult 3, 5, and 7 year olds. I sometimes forget just how blessed I am. Ty is a miracle and I pray for you peace and strength. You are a strong, brave and amazing mother and Ty is so lucky to have you as a mom. They say that we are only given what we can handle.....and I questioned that for so long. But know I am stronger and wiser from my journeys with my boys in heaven, Conner and Tyler. I'll be sending you love and strength during this unimaginable difficult time and I still believe in miracles.

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  109. CINDY, pineapple is a great anti inflammatory, try it if he can. Straight from the fruit, not in juice.

    I know this has to be the hardest moments, enjoy every second you can, Ty is guiding you, telling you that you should be ok. What he does not know he will never miss. All he wants is you guys and your l♥ve. That is what matters. That is what life is about. Many people never get a portion of the l♥ve Ty has received and will continue to do so. Thank you Ty! Gracias, te quiero mucho ♥ ♥ ♥ ♥

    I have faith that there could be a miracle and my only hope is that he feels no pain. His smile is as beautiful as both of you. You know his body is small for all the l♥ve he has.

    Now it is up to God. Put it in his hands. I believe in miracles. Ty is a miracle.

    In our thoughts, prayers and our hearts.

    R♥osalyn, Ke♥th, Christi♥n and Juli♥tte

    Remember:

    I existed from all eternity and, behold, I am here; and I shall exist till the end of time, for my being has no end. - Khalil Gibran

    Life without love is like a tree without blossoms or fruit. - Khalil Gibran


    Your living is determined not so much by what life brings to you as by the attitude you bring to life; not so much by what happens to you as by the way your mind looks at what happens. - Khalil Gibran

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  110. Dearest Cindy,
    I have never in my life read words such as yours. Your blogs are a reflection of the beautiful person you are, your honesty about your feelings each and everyday are words from the heart. No one could ever write this way, the way make us all feel like we are right there with you, eventhough some are far away. We all fell in love with TY, Gavin, you and Lou and feel you incredible pain. I hope you can find peace in all of this someday. We pray for another miracle for all of you. Always in my heart.

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  111. I have been reading your story for awhile now. There are no words that can take away your pain and heartache but I hope you find comfort in knowing that so many people are praying for Ty and your family. You have shown unconditional love, strength and support to Ty during this very difficult time. You are wonderful parents and may you always continue to believe in MIRACLES. I will continue to keep all of you in my thoughts and prayers.

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  112. Discovered your page Ty a few days ago and have laughed and cried and smiled looking at your pictures, listening to the music on your videos and otherwise loving you from a small town in Mississippi. G'nite mate.

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  113. My thoughts and prayers are with you and your gorgeous, lovely little boy. My heart is broken for you and all you and your beautiful son have had to endure. I am sending you all the love in my heart.

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  114. Please, Please, Please 1 day you have to turn your blogs into a book!!! You are an AMAZING writer, you write from your heart. We feel your happiness, sadness & pain.
    It hurt me to read "Ty is dying " ... He can still get up from his bed! Miracles happen! The power of all our prayers reach the heavens...
    Give Super Ty extra extra extra {hugs} & kisses from all of us that read/write to you.
    God bless Ty & may God give you, Lou & Gavin the strength to get through each day!
    Looking forward to your next post!

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  115. I am amazed by you and so thankful that Ty has such amazing parents. He is incredible and has touched so many lives. I pray for you and Lou to be strong and have faith. I will keep praying for a miracle.

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  116. So heartbreaking to read the last few posts and all you and little Ty have to deals with. I can't imagine having to see my little son go through this, and knowing that you will loose him. My thoughts are with you, and I pray for strength for you. Thanks for reminding me to let my son jump into puddles whenever he wants to.

    Dagmar ~ Dagmar's momsense

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  117. Sending you a big kiss and hug, Cindy. You are so amazing and strong. Please let me know if you need anything. I just have Jake tomorrow. Let me know if you want me to entertain Gavin for a couple hours.

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  118. My 34 year old husband was killed right in front of my 18 month old daughter and I three months ago. This grief has so many facets. One of them was my anger for losing him in an instant. No sickness, no goodbye, just gone.
    Reading your blog about your tough little man has granted me some much needed perspective.
    I pray you are comforted in a million ways, somehow. You and your entire family. Please tell Ty how much I appreciate his endurance and smiling face.

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  119. We are all living a better life because we know Ty and the lessons he has taught us- and you and Lou. We now know a new meaning of courage and you all have been an exemplary personification of this. Keep doing your thing, Cindy. You are a divine mother and can do no wrong- you truly know your son best and always keep his happiness at the forefront of every decision you make. Just as it should be....

    Sending much love to you and your entire family.

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  120. I've been reading this blog for years now, although this is the first time I have posted. I have been so inspired by Ty's story. He is an amazing little boy. I hope you find comfort in knowing that he has touched and affected many lives. I have two boys also, very similiar in ages to yours - 3 and 5. I can't even imagine what you are going through. But I can tell you that you and Ty have helped to make me a better mother. I've become much more appreciative of what I have. My boys are constantly fighting lately and instead of getting frustrated, I appreciate that they have each other to fight with. This world is beautiful and because of Ty, I'm appreciating it even more. Thank you for that.

    Jumping in puddles is my favorite thing to do with my boys. Just know that the next time it rains, we'll be out there jumping in them for Ty!

    Sending lots of prayers and love to your family.

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  121. Cindy and Lou, I have also been reading this blog for years and I have to say that you guys are the greatest parents I have ever come to know during this time!! You are loving parents and the best mom and dad any child could ever ask for!! Thank you for sharing your journey thusfar....I have two children also 6 and 4 and my heart goes out to you both for having to go through this with your sweet little precious baby boy!! As everyone else has stated in the previous comments reading this does help me become a better parent to my two children and I know how things can change in the blink of an eye for all of us.. I am also a Cancer Survivor..I have been praying for you guys to get through all of this and for Ty to be healed!! I will continue prayers for Ty as he has recovered in the past and can recover again...I dont know what you two are going through but I can tell you I feel your pain...Through your writings on this blog Cindy...God Bless You and your beautiful family and we are all sending prayers for sweet Ty and your family.

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  122. I cannot find the words to express to you that no others have done. Love goes along way and Prayers are still coming. If I could take away some of the pain for you I surely would. Try to find some comfort in the fact that TY has the biggest fan following that anyone could ever have. I don't think Justin Bieber has this many followers. Much Love and Strength to you and many more memories.

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  123. Ty is such an inspiration. I pray every day for Ty and your family. My heart goes out to you. Thank you for sharing.

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  124. I have a feeling Cindy, the next time it rains you are going to see thousands of mom's and their kids jumping in puddles and laughing like they have never laughed before.. All from the effect your family has had on all of us.. Hope Ty did okay today.. Love and prayers coming your way
    Michelle

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  125. I saw a rainbow the other night, its been awhile since Indiana has experienced one, and my immediate thoughts were about Ty, what a beautiful little boy he is and how he has taught us all so much. I pray for another miracle and for comfort for you, Lou and Gavin. You all are never far from my daily thoughs, even though I have never met you, I feel like I have experience all the downs and awesome ups with you. You are a strong family and a wonderful mom. Maura (Carmel, IN)

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  126. We welcome another day and a Hugh prayer your way! God Bless you and give you strength little super hero. Lots of love.

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  127. My daughter stephanie Giordano told me about your little boy I am Nancy her mom I am so sorry for all your family is going thru, CANCER SUCKS!!! I am going thru it now with my fiance its hard Life is hard & it does change you forever. May God watch over your precious Ty I will add him to my prayers, god bless all of you & such a beautiful tribute to your son, I hope I have the strength as you have shown to get thru all I am going thru its not easy for anyone. May he not suffer & god will wrap his arms around him. Nancy Morsch/Freeport NY

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  128. There are no words. My heart is breaking and I don't even know your family but I feel like I do because I have followed Ty story for 2 years. He is truly and inspiration as are you as a mother. My thoughts and prayers are with Ty and your family.
    Lisa/PA

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  129. I pray for each of you everyday. I will always remember the time I shared with Ty blowing bubbles at Janice's bbq. His smile is forever in my heart. My God bless you all.
    ~Joanne Danca-Fischer

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  130. Another day. Hooray! Please God make him well.

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  131. dear ty's mommy and family. My only experience w/hospice has been for my elderly grandparents in their home.This experience was difficult but I can't imagine enduring it for someone so young. Hospice is an amazing resource for family's living with and watching a loved one suffer and in daily pain! The main caretaker's are also very special but all too often don't get the help and rest they need, to stay sane and healthy. I have been a health advocate for my older sister, a never ending battle with mental illness and multiple sclerosis. My mother is suffering from parkinson's and most recently I just came back from a dear friends service for her 24 yr. old daughter violently murdered in south america!Amongst all this, I can't imagine watching a young child suffer like ty has. Life is brutal, but love and courage can conquer the many hills it takes to climb daily mountains. May you and your family find the strength to endure this journey with your precious little ty. Some where, somehow you are giving someone else the ability to hold on to something similar, and in return create an inspirational instrument of love for others. keeping all of you close to my heart mary s./pawling

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  132. Dear Campbells:
    I recently came across your blog from "Rockstar Ronan's" Blog. You are truly an inspiration. Thank you for sharing your family with us. It has touched my heart. Maybe that is what Ty was meant to do on this earth: bring awareness to a terrible disease. Even though I can't imagine how hard this journey is for everyone, most of all Ty, the fact that your little guy can still smile is a special gift for you. Bless you, I will keep you all in my prayers.

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