I am so emotional, I can't possibly write something reflective or attempt to be inspirational. Did you watch the Stand Up 2 Cancer telethon? I am blown away.
Yesterday I wrote about two boys that we shared hospital rooms with and with whom I fell in love with over the past two years. Taylor Swift just performed a song in honor of one of them (that honors all of our little fighters at the same time). I didn't know this was coming at all! Sometimes I check in on his mom's blog to see how she is "healing" (the wrong word, I know, but I am at a loss right now). Never did she say anything about the fact that Taylor Friggin' Swift was writing a song about her little boy, Ronan! In fact, his amazing mama is credited as a co-writer. How Amazing!
It was the most beautiful, painful song. Every word hit me so hard. I can't stop crying. All of it, the entire tele-thon, has touched every part of my soul that hurts. I am still having trouble breathing and I'm not exaggerating. It was so perfect, so true, so painful to my heart.
"I remember your blue eyes; looking into mine; like we had our own secret club."
These are the words of a mother who loves her son like I love mine. We all have a secret club, I guess. The only thing I could think to do after watching this performance was to grab a bottle of wine, which, by the way, isn't helping yet.
This is a good hurt. This is an exciting thing, that is happening. Stand up to Cancer? I had no idea how amazing this movement is. I am most impressed by the way this organization is creating a collaboration among scientists in medical research. This is the key to progress. I always get so frustrated knowing that institutions, researchers and physicians compete in the search for a cure instead of working together. They compete for recognition and funding. Stand up to Cancer is looking to change that, and my eyes are open. And, they are collaborating with the St. Baldrick's Foundation to create a pediatric oncology "dream team". All of this is amazing progress. I feel that amazing things are on the horizon and that fills me up with hope.
I don't know how to post a link to buy the song (all proceeds go do pediatric cancer research) but here is the link to the performance.
All of this doesn't mean I am any less enthused to support the Weill Cornell "Children's Brain Tumor Project". I know that funding within large institutions is spread according to need (for example, the American Cancer society only spends 3 cents to the dollar for pediatric cancers because the percentage of adults with cancer far outweighs the percentage of kids). The Children's Brain Tumor Project is specifically researching rare pediatric brain tumors - which means Ty. It is not too late to register to run for our upcoming 10K in Prospect Park Brooklyn on October 13th. Email me at firstname.lastname@example.org for more information. Thank you.
Tomorrow - back to "Ty's Story" in honor of pediatric cancer awareness month.