Monday, September 17, 2012

Our aching hearts


My face is swollen.  My eyes are heavy.  I have been crying for what feels like an eternity.  But in
between my tears, I have an overwhelming sense of freedom.  Today we were told that there are no more treatment options for Ty.  That his MRI Saturday night shows progressive lepto-meningial disease in three different areas.  Lou and I decided against surgery to fix Ty's shunt, and I am finally free from feeling responsible for whether or not he lives or dies.  Ty is in God's hands.

No matter how many times I swore that I leave Ty in God's hands, I was always clinging onto him with every ounce of my being.  Researching.  Fighting.  Begging.  Doing anything in my power to find a way to save him.  Finally, I have exhausted my options and I am letting go.  I may be kicking and screaming, but I am still loosening my grip because I know that I have to.  We have tried so hard, for so long.  Ty's doctors and nurses, they are so special.  They have given us beautiful. precious time with Ty and for that I am so grateful.  But he has suffered so much and I just can't allow that anymore.  Maybe this time is what I needed to learn and to find the ability to say "no more." 

I need to make one thing very clear.  Letting go does not mean giving up or losing faith or abandoning hope. I know it sounds that way but I still smile at the thought of Ty sitting up and saying something like "why are you all crying, I'm fine!"  I swear to you when I tell you that I believe this is still a possibility and I'm not even sure I would be surprised after all that has happened.  In fact... well... I'll save the latest updates for the end. 

There are three things happening here.... First and worst, Lou and I are grieving for the impending loss of our son.  We are in unimaginable pain, and we know it is only going to get worse.  I can only compare it to when I was pregnant.  We were so in love and so excited for our baby, but we had no idea just HOW MUCH we would love that baby until he was born.  It's crazy how your heart just explodes with something that is impossible to put into words.  I realize that I am currently in a place that is the polar opposite.  I am waiting for my child to die.  And I am utterly devastated beyond words and I know I will be even worse off when the time comes.... but the pain of him really leaving us will be something that is incomprehensible even to us, regardless of all we have seen and suffered through already.  I will forever be a fraction of myself.  A walking zombie.  A very, very broken person.  When I try to imagine my life without him I get lost in a fog of pure grief.  How am I going to do this?  How am I going to be a good Momma to Gavin, who deserves so much.  And what will he make of all this?  Can I take Gavin to the Bronx Zoo without crying my eyes out because I never got to take Ty?  Will his first Little League game be nothing but sadness for me because Ty never got to wear that adorable football uniform that Lou has been training him for since he was born?

Gavin at Aunt Debi's house yesterday

The second thing that's happening in our life right now is... Holy Sh*t... Ty is dying and we are here, in our own house, armed with only a suction machine, some morphine, and a phone number for an on-call hospice nurse.  In fact, an hour ago Lou called my cell phone from upstairs in the bedroom so that he could tell me he needed the suction machine immediately.  He didn't want to scream and panic and wake up Gavin, but Ty was unable to breathe because his secretions were blocking his airway.  We rushed, we freaked out, we fumbled, but we fixed it.  We were a good team, and afterward poor Lou had to hold his head and pace the floor a good twenty times before he could get back in bed next to Ty and try to fall asleep again.  We aren't sure we are up for this.  Our wonderful doctors and nurses at Memorial Sloan Kettering have urged us to come back anytime we feel overwhelmed, but we want to have him home at all costs.  I hope we can.

The third thing is, what if they are wrong again?  Lepto-menigial disease.  We have heard that before.  We signed up with hospice before.  We have seen Ty through miraculous recoveries and we believe in miracles.  Our faith has never wavered.  In fact, our understanding of unified, unwavering love for everything in this beautiful world that God gave us has only grown stronger.  Our perception of what's important in life has changed and made us so much better. 


Ty's scan showed that he was suffering from hydrocephalus on Saturday.  His ventricles were enlarged, the shunt was malfunctioning.  When the MRI showed progressive disease, all of the recent problems with his shunt finally made sense because an increase in proteins within the CSF fluid (which would happen if disease was present), or the presence of any cancer cells within the CSF (which often goes hand-in-hand with lepto-menigial disease) would change the consistency of the fluid and cause clogs.  Wouldn't you know it!  In typical Ty fashion, a sample of his CSF was sent to the lab and it was later determined that the level of protein found was very low... and the cytology (a close examination of the types of cells "floating around in there") showed no signs of cancer cells.  Ty's clinical state has been improving since we got home and his eyes that were severely crossed as of this morning were almost 100% back to normal when we put him to bed tonight.  That tells us that his shunt is working again.  And.. that maybe, just maybe, another miracle is in the works...

I can't even tell you how overwhelmed Lou and I are.  Your love and prayers and positive thoughts lift us up and keep us strong.  We receive, read and share amongst each other each and every message.  Thank you, thank you, thank you. 

Over the past week there have been a couple of "signs" that have helped me through.  I hope to have time to share them with you in detail tomorrow :)

235 comments:

  1. May God be with you always.

    ReplyDelete
  2. Prayers headed your way from Nebraska. Our son, Jack, also has a brain tumor. Like your son, he has been the recipient of special gifts from college football players. In fact, it was Scott Shirley of Uplifting Athletes that told me about your son's fight. We are absolutely hurting for you and will include Ty in our prayers. While we have had multiple brain tumor surgeries, and now chemo, we cannot even begin to comprehend what you are feeling now. We will begin praying like crazy for you. Take care and God Bless. Thank you for sharing your feelings.

    ReplyDelete
  3. God has got you mommy just hold on. Love him and kiss a million times and just do it again.

    ReplyDelete
  4. You're truly inspirational, even in your darkest times you bring light. God bless you all. Prayers for the family, and sweet Ty.

    ReplyDelete
  5. oh my heart is breaking for you. i am so sorry for what you and your beautiful boy are going through. many, many prayers...

    ReplyDelete
  6. Please keep the faith. Ty's miracles are amazing and the two of you are incredible. You are in my prayers constantly.

    ReplyDelete
  7. Thank you for sharing your amazing pain and love for your son and eachother.

    ReplyDelete
  8. I wish I had some wise words or words of comfort, but I'm at a loss. All I know is that I've followed your posts for a long time and your lives have become intertwined with my daily thoughts. Ty has influenced me in ways that make me strive to be a better person. You and Lou have made me strive to be a better parent. I am praying so hard that God gives you a miracle. I am praying that He will continue to strengthen you no matter what. I'll leave you with what my Pastor says before we leave church that always lifts me up:

    “The Lord bless you and keep you;
    the Lord make his face shine on you and be gracious to you; the Lord turn his face toward you
    and give you peace."

    Hugs,
    Kim

    ReplyDelete
  9. My heart is aching for you. I too lost a child to an inoperable problem and I can feel the pain you are in. I did not have the time you have been afforded by God. Know there are others and we are with you. Love him forever, hold him as long as you can, and believe in those miracles that he has been privy to. We love you Ty and Gavin. Hugs and prayers

    ReplyDelete
  10. Keeping Ty and your entire family in my prayers.....God makes no mistakes...you and Lou are amazing people!!!

    ReplyDelete
  11. Keeping Ty and your entire family in my prayers.....God makes no mistakes...you and Lou are amazing people!!!

    ReplyDelete
  12. Keeping Ty and your entire family in my prayers.....God makes no mistakes...you and Lou are amazing people!!!

    ReplyDelete
  13. Keeping Ty and your entire family in my prayers.....God makes no mistakes...you and Lou are amazing people!!!

    ReplyDelete
  14. I am just sitting here weeping for this little boy and his family that I don't even know. I have followed your story for so long, and find myself thinking of your family off and on during the day- I often send positive thoughts your way. I am praying with all of my heart that God continues to work miracles for Ty, continues to give Ty's mommy and daddy strength, and surrounds you all with his love. Keep the faith. And I will continue to pray with every part of my being that our healing prayers are answered.
    Love to you all
    Dolly

    ReplyDelete
  15. Your words are beautiful - and so are the photos. I will pray the words, "Thy will be done, on earth, as it is in heaven" I will pray for your family's peace and comfort. What a truly beautiful family!
    Prayers from El Paso, Texas

    ReplyDelete
  16. God will continue to bless you and your family no matter what the outcome is! I am devestated for you and will pray for you all! Ty and Gavin are very lucky to have you as a mom! Stay strong and keep the faith!

    Lisa

    ReplyDelete
  17. Cindy, I am beyond words ...my heart aches for your beautiful son TY. I also believe in miracles~!! We are all "Praying" for him to get better. TY is very blessed to have such a wonderful family, and so many people that love him very much. On my facebook page I started a Pray chain. God Be With You All!!! We Love You Ty~~~~ Kathy Brunelle

    ReplyDelete
  18. Please keep the faith and know that we are all here praying for Ty and your family. I've seen miracles happen and it only takes one person to prove us all wrong...that, yes, miracles "do" exist to believe is what God wants us to keep doing. Just keep giving Ty those kisses and hugs, and catch and hang onto those special moments!! My heart goes out to you and especially Ty right now. I will keep him in my prayers!! Much love & (((hugs)))!!

    ReplyDelete
  19. I have been following Super Ty's story here and on FB. I pray for you all regularly, cheer your triumphs, and heart-broken for the setbacks. What an amazing little guy, and how blessed he is to have such wonderful parents! Ty is certainly an Angel here on earth. What an inspiration...both you and Ty! Wishing you God's continued Blessings. Hugs and prayers from Ohio.

    ReplyDelete
  20. Cindy,

    I am at a loss for words. I am so sorry for the pain that you and Lou must be in right now. I'm grateful that you are able to have Ty home with you, and you can be together as a family during this time. I will continue to pray for Ty's miracle...you just continue to love him and be with him every second that you can.

    With much love and a heavy heart,
    Brenda

    ReplyDelete
  21. I sit here in tears! I understand what you are going through. I lost my brother, mother & father to cancer within a few years apart. I was their care taker & yes it is hard, you want to give up at times because you can't take the bad news anymore. It's like a roller coaster ride. I won't lie, I haven't been the same since their loss but I asked God for strength & he has given it to me. I admire you as well or your faith in God, that's where you get your strength to get you each day! Like my mom use to say "while there is life, there is HOPE!" Drs can tell you one thing but it's Gods decision. Ty can God willing wake up tomorrow & be cured. Why these things happen? An answer we'll never have. I send you sooooo much positive energy your way. I'll say extra prayers for Ty. Like you said "your not giving up" , don't mourn him...he's still alive & a happy little boy, your baby boy. Tons of {hugs} !!!! God bless you all!!!

    ReplyDelete
  22. I heard about your son from Andy Hoffman and i have a strong faith and i will pray for your son and your family. May the angels in heaven watch over your son. GOD BLESS

    ReplyDelete
  23. May God hold your family in the palm of His hand, now and in the future.

    ReplyDelete
  24. Ty and your whole family are in my thoughts and prayers. Be strong and keep the faith. I believe in miracles and he is nothing short of a miracle thus far.

    ReplyDelete
  25. I just want to hug him and all of you so badly! My heart bleeds for you.
    I almost lost BOTH my boys exactly two years ago in a tragic car accident when a man evading a high speed police pursuit hit the car they were in. They were 2 and 4 then. I was devestated and bitter for so long until I started following your blog and was quickly humbled. You and Lou are beyond amazing. Ty...well he is beyond amazing and has taught so many so much about life.
    Continuous prayers from Sacramento, CA

    ReplyDelete
  26. Ty and your whole family are in my thoughts and prayers. Be strong and keep the faith. I believe in miracles and he is nothing short of a miracle thus far.

    ReplyDelete
  27. May god watch over you and your family during this difficult time. My thoughts and prayers are with you all. *Hugs*

    ReplyDelete
  28. May god watch over you and your family during this difficult time. My thoughts and prayers are with you all. *Hugs*

    ReplyDelete
  29. I have been following every post from day 1, I am so sad to read tonight's. I am the mother of 4 children and I amazed by you! The way you love your children is beautiful. You have never stopped fighting for Ty, I believe because of your love and strength for him, is the reason he always pulls through! My family is praying for you, Ty, Lou and Gavin. I wish you all the love and comfort you need to get you through this no matter what the out come may be, I will always believe in miracles because that's what see when I think of Ty! He is a miracle, your miracle.

    ReplyDelete
  30. I love you Ty and I'm praying for you harder than ever please know that I'm praying for all of you as I do every day

    ReplyDelete
  31. With every tear I am sending up a prayer for your family and that sweet sweet boy! Keep your faith and your heart open to receiving miracles!

    ReplyDelete
  32. I cannot believe that this is meant to happen to Ty after all that he has been through. Dear Cindy and Lou, I am sad beyond words and at the same time full of hope that Ty will beat the odds again like he did before. I just lit a candle for him and will continue to do so. You are in my thoughts and prayers. I cannot even imagine what you are going through. Let me send you hugs from far away.

    ReplyDelete
  33. My heart is breaking. I am sending you all my love, positive thoughts and prayers so that you may find peace. Sweet, beautiful Ty is on my mind tonight and every night. We are all here with you. You are not alone. And we are all hoping for another miracle.

    ReplyDelete
  34. Praying this precious little boy proves the doctors wrong once again. I have been following Ty's Story for a long time now and I have to say you two are amazing parents! You both should be really proud of yourselves.

    ReplyDelete
  35. I read your blog every night. And I pray for all of you.... Your strength amazes me, I can't even imagine the pain you are feeling and yet you still have faith and hope and that's beautiful.you are awesome parents and Ty is a miracle... May God bless you all. I will continue to keep u in my thoughts and prayers.... Amy

    ReplyDelete
  36. I read your blog every night. And I pray for all of you.... Your strength amazes me, I can't even imagine the pain you are feeling and yet you still have faith and hope and that's beautiful.you are awesome parents and Ty is a miracle... May God bless you all. I will continue to keep u in my thoughts and prayers.... Amy

    ReplyDelete
  37. I read your blog every night. And I pray for all of you.... Your strength amazes me, I can't even imagine the pain you are feeling and yet you still have faith and hope and that's beautiful.you are awesome parents and Ty is a miracle... May God bless you all. I will continue to keep u in my thoughts and prayers.... Amy

    ReplyDelete
  38. I read your blog every night. And I pray for all of you.... Your strength amazes me, I can't even imagine the pain you are feeling and yet you still have faith and hope and that's beautiful.you are awesome parents and Ty is a miracle... May God bless you all. I will continue to keep u in my thoughts and prayers.... Amy

    ReplyDelete
  39. My love and prayers go out to your entire family both immediate and extended!!!! Praying for super Ty!! Continue to use your superhero powers Ty!

    ReplyDelete
  40. You don't know me, but I read about you guys and your son through Team Jack's page, by Andy Hoffman. I am praying for strength for you and your family and for your son to get through this. It took me a bit to read through your post as tears were pouring after the first paragraph. All of you will be in my thoughts and prayers.

    ReplyDelete
  41. I just read your FB post then blog and the comments...huge lump in my throat and tears. I have also followed you since early on and we feel like we have been on this journey with you and experienced so many highs and lows , we have wItnessed mIracles, the pain and the glory, we feel like we know you and your family....Thank you for that. I feel forever changed. I feel like God wanted me to stumble across Ty's page and the strength that one little boy has is beyond inspiring. You have done much more then parent him...I don't even have words. My prayer for the Campbell family is for Peace <3

    ReplyDelete
  42. God bless you all, what an amazing fighter with an amazing spirit. My heart is aching for this little angel I've only read about. What a special gift you were given.

    ReplyDelete
  43. Praying for super Ty and his amazing parents. You two are stronger than you realize. Ty is so lucky to have you both as earthly parents.

    ReplyDelete
  44. May God give you stregnth to get through this difficult time. May your family continue to be strong for each other through love and prayers. Ty will always be your son. My heart is breaking for all of you. Words can never express how sorry I am. With love, hope, and stregnth.
    Kerry

    ReplyDelete
  45. God bless you all!

    ReplyDelete
    Replies
    1. My heart breaks for you and your family. I couldn't imagine what you must be feeling and going through. Have FAITH in GOD and comfort that he is watching your love and strength for you and your family. My prayers and thoughts are with you all and that miracle may be there.

      Delete
  46. My heart breaks for you.....one day last month I sat and read your blog from the beginning and I have to say that I do believe in miracles. If one is possible, it is possible for Ty. Your strength as a family is awe inspiring. Your strength as parents is beyond compare. We stand by your side...please draw strength from us when you are feeling as if you have no more. We are one family. Sending love and light from PA.

    ReplyDelete
  47. My heart goes out to you. we serve a awesome God who can do ANYTHIG dont lose your faith.

    ReplyDelete
  48. Your strength and faith overwhelmes me. You are a wonderful mother to your sons and an inspiration to many. Prayers to your family.

    ReplyDelete
  49. My Prayers Are For Peace And Comfort For You All.....Breathe, Just Breathe

    ReplyDelete
  50. Prayers are with you and Ty

    ReplyDelete
  51. I am so sad for you all. I sat in temple yesterday for the jewish new year and prayed for ty and for your family. Sometimes there are no answers as to why any of you should have to suffer like this. I hope you have some comfort in knowing that you have done and are still doing everything you can for Ty. He knows how much he is loved. We're thinking of you every day.
    Kerrie and Phil

    ReplyDelete
  52. Your family is in our thoughts and prayers. Enjoy each and everyday with that beautiful little boy. All our love to you at this difficult time xoxo

    ReplyDelete
  53. I go to bed at night thinking of your family and wake up ready to read your latest updates...I dont know you, you dont know me, we live thousands of miles apart BUT we are on this journey with you. We (all your followers) are part of SuperTys Army and its because of Ty and your family that I hug my children harder, have more patience, and its because of you, Cindy and Lou that my heart is bigger and I love more. SuperTy and Gavin were born heroes and thats only possible because their parents are such special and magical people. Im keeping fingers and toes crossed, praying harder, and squeezing my kids tighter before school every morning..all because of Ty. May God bless you all.

    ReplyDelete
  54. Thank you for sharing your amazing but tragic story. My heart goes out to you and your family. I will pray for all if you. God Bless you all!

    ReplyDelete
  55. I cannot even begin to imagine the state of your and Lou's emotions. I so admire your courage and stremgth, but most of all your amazing faith. We continue to pray for all of you. Thank you for sharing your story with us.

    ReplyDelete
  56. I pray for Ty all the time. I keep reading this post over and over again. You are an amazing Mother and Lou is an amazing Father. There isn't much more that I can say, the tears are just flowing.

    xoxo,
    Amy - Cleveland, Ohio

    ReplyDelete
  57. My heart is breaking for you - I don't have any amazing words of wisdom, I cannot begin to imagine your pain, please hold that little boy for all of us who think of him each and every day and know that he is so very very brave, what a true hero!

    ReplyDelete
  58. Suzanne - Charleston, SCSeptember 18, 2012 at 8:19 AM

    Because I can't even find words right now, I'm going to hope that Amy from Cleveland doesn't mind that I steal hers. I don't even remember how I came across Ty's FB page, but I've been following his journey since that time. I think you and your family are all amazing and think of all of you every day. God bless you, Lou, Ty, and Gavin.

    ReplyDelete
  59. My thoughts and prayers to you and your family. That you have the continued strength in this very difficult time.

    ReplyDelete
  60. My heart is breaking for your family. Please know that much love and many prayers are being sent your way. I cannot imagine the pain you must be feeling and pray for you. As it has been said many times before, you are AMAZING parents. God bless you, Lou, Ty and Gavin.

    ReplyDelete
  61. My prayers are always with you guys and Ty, I keep remembering him reaching for the tablet and playing with the color game, as well as smiling at me when i mismatched the shapes on Candy Castle. He is an amazing child and I am blessed to have been able to work with him and your family, even if it was for a short amount of time.

    ReplyDelete
  62. I will Pray for you and your family. My heart aches for you all.

    ReplyDelete
  63. As I read you blog today my tears are flowing yet again for your lovely and amazing son. My heart breaks for you and Lou. What you are going through is unamagineable to someone who has yet to encounter the disease. I almost now feel that I have... I pray for you and Lou for comfort and peace- OUR GOD IS AN AWESOME GOD! Miracles do happen and I love your faith. Your faith is such an inspiration Cindy! Please know that you and your family are wonderful amazing people and God has a plan for you.

    ReplyDelete
  64. I have been reading your blog for over a year now and have fallen in love with Ty and your family. I was in tears sitting in line at the bank reading your last blog post. My prayers are with you, Ty, your husband, Gavin and the rest of your family, friends, doctors and nurses. I pray that the doctors were wrong. That God will show us another miracle in Ty. He has fought so hard. But I also pray that if the doctors are right that he only knows the love he has from you wrapped in the arms I know he loves to be in. You are an amazing woman. You and Ty have taught me to cherish each and every moment with my children and to not take them for granted that they will be here forever. My God be with Ty, you and your family through these hard times. Because of Ty's story I registered with Be the Match.org to donate bone marrow over a year ago. While I know it is a different type of cancer I could only think that what if it was my child that needed it and I wanted to have a part in helping someone live longer if I could. Again my prayers are with you and Ty.

    ReplyDelete
  65. Cindy, My prayers are with you, Ty, Lou and Gavin. May God bless him and hold him tightly in his hand. I'm praying for a miracle, and I remember each one he has already been given - he is SuperTy! You are such amazing, inspiring parents, and I'm praying also that God continues to give you strength during this horribly difficult time.

    Hugs,

    Andrea Ireland

    ReplyDelete
  66. Below is an excerpt from a friends blog that seems fitting. She writes about trusting God to take care of her children. After all, it is all up to him.

    "Today, I want to replace my “What if’s” with God’s “I will’s”.
    • God will never leave me or forsake me – “Be strong and courageous. Do not fear or be in dread of them, for it is the LORD your God who goes with you. He will not leave you or forsake you.” ~ Deuteronomy 31:6
    • God will supply all that I need — “And my God will supply every need of yours according to his riches in glory in Christ Jesus.” ~ Philippians 4:19
    • God will help me in times of trouble – “and call upon me in the day of trouble; I will deliver you, and you shall glorify me.” ~ Psalm 50:15
    • God will lead me and direct my life – “In all your ways acknowledge him, and he will make straight your paths.” ~ Proverbs 3:6
    All of these promises are truth because God’s Word is truth. When doubt creeps in, and Satan whispers that I can’t really trust God, I will cling to these truths. When the habit of worry starts to overcome my heart, I will claim these promises and remember that God will take care of each of my children and the struggles they face.
    My children are most precious to me…. but they are even more precious to God."

    My heart breaks for you and your family. I am praying hard for Ty that he continues to feel better and better in the face of all these challenges.

    ReplyDelete
  67. Thank you for surrounding your son with so much love. God bless you and give you strength.

    ReplyDelete
  68. As a mom of two, I cannot even begin to imagine what you guys are going through right now. Or what Ty is going through. He is such an amazing little boy who is an inspiration to everyone who reads his story or gets to actually meet him. This is probably the hardest part of your journey so far. I really really hope Ty pulls through with another miracle and proves the doctors wrong. If he does not, just know that he is free from suffering and he will definitely be watching you guys from above. No child should have to go through what he has had to endure. I personally think a lot of the fight in him comes from you guys. You have done such an extremely amazing job as parents. I am praying for Ty and for all of you. xoxooxoxooxoxooxo

    ReplyDelete
  69. Wish I could give you a huge hug. You and Lou are amazing people. Ty is so lucky to have such loving parents. Please keep the faith, miracles do happen.

    ReplyDelete
  70. God bless you as you go through this battle. Prayers are being sent for you.

    ReplyDelete
  71. This comment has been removed by the author.

    ReplyDelete
  72. Jen Berger AntonelliSeptember 18, 2012 at 9:12 AM

    You and Lou are strong...you have remained Ty's biggest fighters his whole life. You can do this...God is watching....he is near....keep praying for his plan. I haven't stopped. You can do this.... God Bless

    ReplyDelete
  73. Your family is an inspiration. You are the strongest, bravest people I have ever seen. We are all weeping with you and hope that there is something we can share that gives you an idea of the support and love each of us sends your way. Faith and hope are yours, no matter what. No one can take that away from you. You are the most amazing parents, EVER. I cling to the prayer that somehow you will feel The Peace That Passes All Understanding...

    ReplyDelete
  74. I admire your strength and courage for sharing Ty's story and your raw emotions. Sending lots of hugs and prayers your way!

    ReplyDelete
  75. The freedom you feel now is the same as a childs blind trust in their parents. God has Ty in his hands now and always did. Trust Him. I will always pray for a miracle for Ty. I love him and my heart aches with yours. Whatever happens... nothing can ever take your son from you and your family. He is yours for all eternity. The time we spend here is the blink of an eye and Ty is yours and you are his for eternity. Constant prayers for you and your family.
    Lord Jesus Christ have mercy on Ty. Most Sacred Heart of Jesus I place all my trust in thee.

    ReplyDelete
  76. I have been following your journey since last December 2010 and have read about Ty's impossible struggles and miraculous comebacks. I'm praying for another comeback. He is such a determined little boy just like all of you. God Bless you, Ty, Lou and Gavin.

    ReplyDelete
  77. Dearest Cindy and Lou,
    My heart is breaking for you both. It's been so long since I've seen you and Ty. But I've been following here, and today I continue my prayers for Ty, and the both of you. Ty is amazing, you both are amazing, and I am totally blessed and privileged to know you, and call you friends. I love you all very much, and I am sending you lots of hugs, faith, strength, and hope your way. xoxoxo love, Sue ( Ty's MSKCC nurse)

    ReplyDelete
  78. Oh my goodness! The fact that you were even able to write what is happening and might happen leaves me without words! Reading them just makes me cry! Cindy, your family has been through so much and I still can't believe that after all you've been through it has come to this! We thought that you had won! We kept hoping what we all had been praying for...that God wanted Ty to show the world about his love and miracles! We don't know what will happen in the future, we still don't know what he has in store for you, Lou, Ty, and Gavin...but his will be done and we will be here with you throughout this journey helping you in whatever way we can. The power of positive thoughts, prayers and calling on all of our angels will hopefully send those healing wishes Ty's way!
    He is Super Ty! I believe that with my whole heart and soul and will continue to believe in him and you throughout these coming days!
    Stay strong Cindy! We will overcome!

    ReplyDelete
  79. I am so saddened and sorry to hear this! I have been reading and following up with tys progress ever since i met your sister and heard about what a miracle she has had for a nephew. I just became a mother myself and can't imagine what your family a adorable brave tough amazing son has endured. My heart and prayers are with you all . Your son is definately a miracle and inspiration to all ! Praying for all your mitacles to keep coming true x

    ReplyDelete
  80. God Bless your whole family. I am amazed at the strength and love you all show for each other! Ty is so special and he, as well as the rest of the family, has been and will be in my thoughts and prayers. We all love you SuperTy

    ReplyDelete
  81. I am devastated, I feel like I'm losing one of my own babies! I have grown to love and almost need you guys everyday! Love and Prayers to you, Terri

    ReplyDelete
  82. My heart is broken.. I don't know how you are doing this.. I feel so terrible for all of you. I pray for a miracle for you. Cindy, you are the strongest woman I know. You have done everything for Ty and more. If it is his time which I pray it is not maybe you guys all needed this time to come to terms with everything. Hopefully you can find some comfort in knowing that there are a lot of people out there going through this journey day by day with you. I am truly devasted for all of you. You are all in my thoughts and prayers. Love and encouragement to all of you that you are able to get through this.

    ReplyDelete
  83. Cindy & Lou, My heart goes out to both of you. Ty is so lucky to have such wonderful parents. I don't know if I would be in your shoes if I could have handled it all. I have never met any of you but yet I feel like I know all of you and my heart is breaking and tears are rolling down my face. I wish I could be there to give all of you a giant hug, to support you in your time of need. I hold Ty in my heart just as he is one of my own. I am praying for Ty, I know in my heart that he can beat this with the grace of God. Let him prove everyone wrong,if anyone can do it he can. We need special people like Ty in this world that is so filled with such hate. I pray that God will allow him to stay with us so that he can continue to make the world a better place. Ty has made me a better person and has shown me the kind of person I want to continue to be. He has touched so many lives. Should God take him, I know that heaven will have a one extra special angel looking over us all and although it would break my heart at the same time I find peace in the fact that Ty would finally have the peace that he deserves. With that said, I am with you, I will never give up on the hope that Ty will persevere and grow to be a fine man some day. May God Bless you and keep you, may his face shine upon you and give you peace. In the name of the Father, the Son and the Holy Spirit. God Bless. Love Rose

    ReplyDelete
  84. I couldnt sleep at all last night after reading yesterdays blog and wondering what today would bring, This is going to be a MIRACLE !!! God will save your baby
    Ty will live , Ty will live , Ty will live . He will be a true testimate to the power of God and prayer
    God will grant you what ever you believe so please dont stop believing that Ty will come out of this with a Big smile like he always does. When I read your story's my heart breaks for you even though I don't know you, I have been following this since the beginning , It cant and wont end like this . Just picture Ty running around , dressing up for halloween anything but thinking that he will not make it . Today is the day that the lord has made let us rejoice and be glad. Be a Gladiator and FIGHT !!! FIGHT !!! FIGHT !!!! May God keep you all strong and give you new hope everyday xoxoxo
    DT.

    ReplyDelete
  85. I hope that all the prayers and love that have come your way brings you comfort. Ty is an amazing little boy and he gets his strength to fight from his parents. May the miracle continue and please know that you and Ty are loved.

    ReplyDelete
  86. Oh Cindy, Lou, Ty, and Gavin. I have been a long time reader and am just overcome with how special your family is. Those boys are so lucky to have you both as parents. I am just so heartbroken for you all and praying and praying that Ty pulls off another miracle. You have to know that Ty is having such a positive impact on so many people. I know I am a better person because of Ty and his story. There is not a day that goes by that I don't think about him and your family. Know that so many of us are rallying around you all and trying to give you strength and support. God bless you all. You will always always always be in our prayers. Hillary from Virginia

    ReplyDelete
  87. As I sit here crying for Ty and all of you, I can't imagine the pain in your heart. I will continue to pray for all of you , that God gives you the time you need to see Ty recover once again ,or to say goodbye and do all that you need to do. You are both such special parents and both Ty and gavin are lucky to have you.You have taught us all so much through this and we are greatful to you for letting us get to know Ty and his wonderful family.He really is SUPER TY and I believe he will do it again!I pray with all my heart to give you peace in yours, knowing you have done all you can do for him and that whatever happens was what was meant to be.Love that boy to pieces....Jean <3

    ReplyDelete
  88. It is amazing how much someone I do not know can be on my mind. I cannot stop thinking about Ty and about you, his mom and dad, his little brother. We have a daughter who just turned five. Perhaps this is why I can't stop thinking about all of you, because your story not only breaks my heart and saddens me so deeply, but also terrifies me to my core. My husband and I talk about you often. My girlfriend in FL sent me a text last night asking if I've read your blog lately, and I happened to be reading it just then. There are so many people out there saying prayers and sending you positive energy. We all wish so desperately that there were something we could do to bring Ty, and you, some peace. As we go through our day we are distracted by life, but our thoughts often come back to you. We just wanted you to know.

    ReplyDelete
  89. Words can't even describe what I feel reading your latest post. I can't even fathom what you all are going through, as I feel so sick myself and want to just lay down and cry my head off at the news you shared.

    I love your whole family w/ all my being and can't even begin to try to put myself in your spot. I am just shocked!

    All we can do is pray, hope and BELIEVE that Ty will once again fight his way out of this.

    I love y'all and I love Ty so much!

    Jan
    Georgia

    ReplyDelete
  90. May the Lord bless and keep you all. God bless-you will all continue to be in my prayers. "Thy will be done". Is the hardest prayer to say, but we need to trust and stay strong-no matter how impossible it may seem...

    ReplyDelete
  91. Our thoughts and prayers are with you all that you find continued comfort and strength. Our hearts are with you.
    Liz and Jeff Weinstock

    ReplyDelete
  92. My thoughts and prayers are with you. I pray that the strength you have found for the past few years will remain with you and your whole family, for always.

    ReplyDelete
  93. There isn't a person on earth or an angel in heaven that won't fall in love with Ty. No matter where he is he will be loved, protected and cared for. He is beautiful, sweet and strong. God bless him and be with him. God bless you, Lou and Gavin. You are amazing. I am praying for you as hard and as much as I can. Lots of love.

    ReplyDelete
  94. You are an inspiring, loving mother. Both Gavin and Ty are so, so lucky to have you and your husband. Don't question whether you can be a good mother to Gavin. You already are. One mother to another, sending you love and light. <3

    ReplyDelete
  95. We love you Ty, Gavin, Cindy and Lou! Keeping you close in our hearts, thoughts and prayers. Praying, praying, praying for comfort, peace, joy and all the love in the world to fill you! You are all our inspirations. May God bless you and may you feel his loving arms wrapped around your beautiful family ♡ ♡ ♡ ♡

    Big Love and Big Hugs, The Matta Family

    ReplyDelete
  96. Reading this just breaks my heart...my prayers are with Ty and all your family...

    ReplyDelete
  97. May God be with you always. My thoughts and prayers are with you and your family.

    ReplyDelete
  98. praying, praying - I keep praying for Ty - my heart hurts so much reading what you all are going through. It is so unimaginable and I just wish there was more we could do to help you all. Hopefully our prayers will continue to help - Ty is so brave and so strong. You all are - a true inspiration and a model of love I learn from every day. God Bless you - take care - sending love and hope

    ReplyDelete
  99. I cannot imagine what your family is going through. My heart skipped a beat when I saw the name of this entry, fearing the worst. I'm so sorry that you are all suffering and that Ty is so ill. It breaks my heart. I'm so sorry. I will continue to pray for Ty and your family.

    Allie

    ReplyDelete
  100. I am crying thinking of you, Ty and your family and all that you have endured. Ty is such an incredible fighter and I hope all the love and support you get will help you through this. Praying for another miracle for Ty. He deserves it! All my love, thoughts and prayers!

    ReplyDelete
  101. I cant fathom the strength it takes to wake up every morning in your shoes. I cant fathom the pain your family feels every day.

    I can fathom and pray that LOVE and HOPE and Faith will surround you on this day, and every day fwd...

    ReplyDelete
  102. My children, whose beauty and spririt are only rivaled by that of your Amazing Ty, have been hooked on the Wizard of Oz. Every day I read your blog and every day, my heart breaks for you and your beautiful family. However, as I heard the Wizard say this very weekend "Hearts will never be practical until they can be made unbreakable." But he also said "A heart is not judged by how much you love; but how much you are loved." Your Ty, you, and your family have the most amazing hearts.

    ReplyDelete
  103. My thoughts and prayers are with you at this difficult time. Always remember, Gavin needs you just as much as Ty does. Gavin will save you. He will be your shining light, just when you think you have no more light at all. There is a reason for everything, and in the end, Gavin will show you that. No matter what, always remember that Ty will be with you, Lou and Gavin, in physical being, or spirit. Never shed tears for what you could have done with Ty, but she happy tears for what you can do with Gavin. It's is possible for Gavin to come out of this and lead a normal life. From what I read all the time, you have done an outstanding job with making sure he is loved.

    ReplyDelete
    Replies
    1. Agree 100% with your words - I couldn't have said it better.

      Delete
  104. Praying for you all.

    ReplyDelete
  105. I have been following your blog for so long now that I honestly feel like Ty is part of my family. I think about him and pray for him every day and will continue to do so. I wish I could do more for you. You are an amazing family and have been such an inspiration, honestly. I will continue to pray and hope for a miracle. It would not surprise me in the least. Stay strong and know how many people love your precious little boy.

    Ann from Buffalo

    ReplyDelete
  106. You and Lou are the most amazing parents and an inspiration to me. God bless Ty, you, Lou and Gavin.

    ReplyDelete
  107. Dearest Cindy, I know you plate is full, but if you find even one minute for one sentence, please keep us posted. We are all praying...and carrying your family with us today.

    Much love, Marianne from California

    ReplyDelete
  108. You and your family are truely unbelievable, and this really does put things into perscpetive...Everyone should read your story, I think it would make the world a better place. My thoughts and prayers are with you always...

    ReplyDelete
  109. I am so sorry to read this. My heart was stuck in my throat the whole time. I have followed this blog from the very beginning and hope and pray to read about Ty's miraculous recovery soon hereafter. Thank you for having the courage to be so open and honest during this nightmare of a time. I hope you know that me and all of those reading are inspired by Ty and your families strength, determination, faith, and unconditional love that you all have for one another. I am sending so much love and prayers to Ty.

    ReplyDelete
  110. My heart aches so much as a dad reading this, you guys. We have a little boy here in Nebraska who has been taken under the wings of one of our football players, and his parents provided this link for us on Facebook today. I know you know you are well-lifted up in prayer, and I'll add to that. I hope you've been recommended a really good book, which I believe will help in your understanding of where Ty will land when his time on this particular place is done. It's called "Heaven is for Real", by Todd Burpo. If you've read it, you know the peace that is coming and can take comfort in that. If you have not, please do so at some point. I believe you will be uplifted by knowing just Who Ty will be with when his time comes. Jesus needs a LOT of children in Heaven, and he's just waiting on Ty. :)

    ReplyDelete
  111. I am inspired by your grace throughout this whole ordeal. Know that we are praying for Ty and your family. "Do not be anxious about anything, but in every situation, by prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus." Philippians 4:6-7

    ReplyDelete
  112. Cindy & Lou,

    I truly do not know what to say except that I love your family and your little boy and I know that I have never even met you guys, but its true. I have been following Ty's story for quite some time now, and I think about him everyday.

    I cannot even begin to imagine how difficult this is for you guys. I know you will never give up. My heart breaks for you guys.

    I love you Campbell Family

    Joy Marielle
    Baltimore, MD

    ReplyDelete
  113. I found out about Ty through Jack Hoffman’s FB page. Our family has been following Jack's fight & praying for a miracle & cure. I am so saddened to hear of your struggle. So many children are afflicted. One child is too many to have to fight this awful disease cancer. We are answering Jack's Team call for prayers for little Ty. You have it!! Prayers are being lifted up for you precious little one right now. I am praying for your miracle, strength, comfort & wisdom. May God hold little Ty and your entire family close and heal his little body. My grandmother was a prayer warrior. She once told me she was to old & feeble to work but her mind & heart were strong. She spent much of her days & nights praying. She told me she was sending prayers up for me and the rest of our family so long after she was gone that the prayers were still being laid before the feet of our creator. She also told me it doesn’t take an extraordinary person to be a prayer warrior, God is extraordinary; it just takes a person taking the time to pray. I treasure her words of wisdom & still feel those prayers she sent up even though she is not here with me now. I will be sending up prayers for today and days to come for little Ty and your entire family. When you feel you don’t have the strength to go on I hope you feel the love & prayers supporting you. God Bless you. Christine ~

    ReplyDelete
  114. Your family is always in my thoughts and prayers! I have been following Ty's blog for a long time now and I am so touched by the love you have for your son. You are such an inspiration! I pray God guides you thru this difficult time and heals Ty, whether here on earth or in heaven, so that he never has pain or suffering again. He deserves that and so do you! God bless your family!!

    ReplyDelete
  115. Cindy and Lou,
    Like everyone else who reads Ty's story, I have fallen in love with your special little boy. My heart is breaking for your family and for Ty especially. I will continue to pray for you all.

    Courtney Kennedy
    Danbury, CT

    ReplyDelete
  116. Hang in there little man. We are thinking of you and hoping for the best.

    ReplyDelete
  117. I don't know what I can ever say to help ease your pain. You have given the word strength a new meaning. Keep the faith. I will continue to pray for Ty and family every night. I love Ty and you and keep hoping for a miracle. Never give up on miracles. They continue to happen!

    Prayers from Texas,
    Robert

    ReplyDelete
  118. Thinking of you guys and praying for Ty..

    ReplyDelete
  119. I could never hope to match the eloquence and power of all the people who have already written. I will simply say that I join in their thoughts and prayers as your near-neighbor in Brewster.

    ReplyDelete
  120. Ty is an amazing gift to this world. You and Lou are amazing gifts to this world. Prayers and hugs are being sent your way and you all remain in my thoughts.

    ReplyDelete
  121. I am so touch by your story And I will pray for you every night. God will give you the strenght at the hardest of times.You are in my thoughts and prayers


    ReplyDelete
  122. Reading your story today~ sobbing. My heart breaks for you and today after reading has changed my life forever! So many things in life we take for granted. I want you and your family to know that prayers surround you each and every day! iYour strength amazes me. God bless you.

    ReplyDelete
  123. My heart aches for you all. Thinking of you and sending prayers your way. Ty's story, his personality and his impact are larger than life.

    ReplyDelete
  124. My heart hurts for you all. Thinking of you and praying for peace in your hearts.

    ReplyDelete
  125. My heart is breaking,along with yours.After such a long, tough battle-Hes going to lose ?????? NOOOOOOOOO .My heart can't accept that yet my head tells me the true medical facts.So very hard .My thoughts,wishes,hope and prayers go out to Ty and all of you. I've grown to love you just through reading of your struggle.Be kind to yourself.This is certainly the hardest pain you will ever know.

    ReplyDelete
  126. I pray to god for strength and love. You both are wonderful parents. Hold your angel he knows and will always feel your love. God will always be with you. And Ty's love and spirit will never leave your family.

    ReplyDelete
  127. Campbell Family, I am sick over this post. My ongoing prayers are with you in your darkest moments. Bless you, Lou, Gavin and special precious Ty. I am so sorry.

    ReplyDelete
  128. My heart is so crushed to hear this. I have no words only pain for a child I dont even know only know about and have been reading and following and praying for every single day since I first found about lil Ty. I will never stop praying to God for him. There has to be another miracle for lil Ty.

    ReplyDelete
  129. Praying for Ty and your family.

    ReplyDelete
  130. My husband came home with a story a few months ago that I wouldn't have believed if we didn't know the person it happened to. One of his coworker's wives was diagnosed with cancer and had been through tons of treatments (keep in mind that she had three young kids). She finally couldn't take it anymore and stopped all treatment. She then went to church, prayed at the altar, and placed her life in God's hands, accepting whatever his plan was for her. She is now cancer free :) So yes, miracles DO happen!!
    I'll stop by church and light a candle for Ty on my way home from work.

    ReplyDelete
  131. Ty and your entire family has been in my prayers since day one. You aren't giving up ... You are letting God take it from here. God bless you all.

    ReplyDelete
  132. All of my love and thoughts are with you, Lou, Ty, and Gavin right now. You are a warrior mother who has been so brave for your son, an inspiration in love and strength. My heart aches for you and all of my prayers are going towards a miracle for sweet Ty.

    ReplyDelete
  133. I am beyond crushed after reading the first few lines of this post. Tears streaming down my face I felt my heart breaking. And then you made it possible for me to hope. You and Lou are so very special. It is no surprise that SuperTy is so incredibly special to so many. I will never stop praying and never stop believing that Ty will once again prove the medical world wrong. I know if anybody can do it, Ty Louis Campbell can!!!

    I love you, Ty. Don't give up.
    Elaine Hinkle

    ReplyDelete
  134. Please continue to trust in God,may he continue to walk beside you all no matter what his plan for Ty. I will continue to pray for Ty and the rest of your beautiful family.

    ReplyDelete
  135. I cannot even imagine how much it must hurt. When I read this post I could not stop my tears. It hurts me so much and I do not even know Ty personally so I cannot even imagine how much it must hurt for you.
    Although the odds seem to be dominating Ty's situation right now, I want to tell you that I am with you in never giving up hope. I pray and hope for a miracle as I know thousands of other people out there are doing the same.
    Much much love,
    Taciani

    ReplyDelete
  136. Saying many, many prayers for Ty and your family. May God wrap you in His loving arms and comfort you. You are loved by so many people, please let us help to hold you up when you feel that you can't stand on your own.
    Trish

    ReplyDelete
  137. I don't know what the right thing to say is? I can't even imagine what your feeling right now. I do know that I love this little boy! I have been following your blog for over a year and love reading every post good or bad. I have never heard of such an amazing little boy and what a brave boy he is. I believe in the power of prayer and i sure am sending some your way!! My thoughts are with all of you..

    ReplyDelete
  138. debbie &amp; phil mantiaSeptember 18, 2012 at 1:58 PM

    Cindy & Lou stay strong we are thinking & praying for all of you! Ty & Gavin are lucky to have you♡ xo

    ReplyDelete
  139. I sit here at my desk at work with such a lump in my throat and tears in my eyes. I have been reading your blog for so long now. I have cried and I have laughed right along with you. Ty is such a special boy and has made such an impact with so many. I feel like you, there is one more miracle ahead of us. Ty is so loved and has so many prayers and angels surrounding him right now. Cindy, you and Lou are such amazing parents. You have opened your life to us and I'm so glad you introduced us to Super Ty. Stay strong and keep fighting! Ty will let you know if he's had enough. Somehow I doubt our Ty will give up easily. You are all in my thoughts and prayers!! (((Huge Hugs)))

    ReplyDelete
  140. I learned about Ty from an AOL article and have followed him ever since. All I can say is that your wonderful boys have two parents who have fought harder than seems possible for the health and happiness of their children. I am so moved by your story and send love and positive energy to your family. It is easy to see where Super Ty gets his Super powers.

    ReplyDelete
  141. We will make it through this. Our existence here is but a blink of an eye compared to timelessness and eternity on the other side. If we have to send him there, where there is no suffering or loneliness, by the time you join him there it will be as if no time passed for either him or you. There no time, lacking, or suffering. That's only the stuff of this world.

    And as long as I am stuck here with you I will care for and tend your broken heart. We will bend over through the tears and pick up the pieces. You are the most important thing to me right now. I love you so much.

    ReplyDelete
  142. I have been following your story for a long time now! I just wanted to say that I am praying for your precious boy and your whole family! God can do great things....whether it is healing on earth or in heaven.

    I have asked for my prayers for your family on my blog with a short post about Ty.... http://thesimplymade.blogspot.com/2012/09/super-ty.html

    Blessed is the one who perseveres under trial because, having stood the test, that person will receive the crown of life the lord has promised to those who love him. James 1:12

    ReplyDelete
  143. Keep fighting! That beautiful boy is going to live ! He's been though so much and came out of it.....this is just something else for him to beat. He will do it. He's superTy. Love and prayers being sent your way

    ReplyDelete
  144. I have been following your blog almost since the beginning. I type this with tears flowing down my face and a huge lump in my throat. I love and pray for you, sweet Ty. You have a wonderful family that loves you very much. I don't know what else to say because I am so shocked by what I just read. I don't want to believe it. Please prove everybody wrong, Ty, and pull through as you have before.

    Laura in Texas

    ReplyDelete
  145. I am praying every time I think of you guys, which is often! Ty is in such good hands with such wonderful parents who would move the sun and the moon if they had to, stay strong and I hope you can feel the love and support of everyone who reads your blog!

    Jenni

    ReplyDelete
  146. Cindy
    I have been following Ty's story for a year and a half now. We also have 2 boys (one is 7 & one is 3-born same time as Gavin.) I have debated several times about posting a comment but always decided not to because I figured you have a lot more important things to do than read messages from strangers. However, today when I got online I was so caught off guard by the recent developments that I just knew I had to write to you. I don't really even know what to say other than God bless you and grant you peace & comfort through whatever comes. Also know that we are praying for you all.

    Sarah-in Ohio

    ReplyDelete
  147. We pray every day to give you and Lou the strength to go on, you are amazing parents and have gone beyond the limits for your children. Please give Ty a kiss from Diana, Lenny and Griffen. He will forever be in our hearts and has left a footprint in our memory from each of the times we were together. He is quite an amazing child and quite the little fighter.

    ReplyDelete
  148. Please know that I will be saying prayers for all of you to help Ty pull through this and to give you, Lou and Gavin strength to get through what is yet to come. No child or family should have to go through this. My heart goes out to you as a mother of two little girls. God bless you all.

    ReplyDelete
  149. My thoughts and prayers are with you and your family, may you find strength in eachother throughout the days that lie ahead.God bless you all.

    ReplyDelete
  150. Hi Cindy, I Have been following your pages on a daily basis. We live in Europe so every morning I check your blog to see how is Ty and your family. I cannot even express how much I am wishing the doctors are wrong again. I will be thinking of you.

    ReplyDelete
  151. I pray that all of you have the strength to keep going with whatever God has in store for you. My heart aches for you as I can't imagine anything worse than watching your child suffer. He is an amazing boy who has touched all of us and he will never be forgotten. Hoping and praying for one more miracle. Please give him a big kiss from me.

    ReplyDelete
  152. Just to know there are thousands of people out there who are praying for a little boy named TY who they have never met just amazes me, he along with your family is so loved across the U.S. Our Heartfelt prayers and Love are coming to you stronger then ever waiting for that miracle to happen that TY can beat this once more. Cindy you and Lou are an inspiration to many on how you have gone to hell and back for your child and have never given up and won't ever give up. I pray daily for him and always have him in my heart. May God hold you all in the palm of his hand and watch over TY as he fights this battle. Love to all of you and big kisses for TY and Gavin 2 amazing little boys enduring so much. Stay strong and keep fighting. Love Janine Paul Ciara & Nevada Yip xoxo

    ReplyDelete
  153. I can't stop thinking about Ty. He is truly an amazing little boy. The strength you have is something that not many are blessed with. My heart is breaking for you and your family. We are praying for you and Lou to continue to have the strength. Both of your boys are so lucky to have parents like you. You are a wonderful mother that is something you should never second guess. The smiles on those boys faces and the inspiration you have given to everyone that has been blessed with the opportunity of following Super Ty shows how very special your family is. God bless you. Thoughts and prayers are with you every day.

    ReplyDelete
  154. I have been following your blog since the beginning. Thank you for opening your heart and letting us all in. Ty is an amazing boy, and you all have inspired so many. I will keep praying for Ty, and the rest of your family.
    God Bless
    Daphne Belle Croteau & Family

    ReplyDelete
  155. We believe in miracles. Keep fighting Ty. We love you.

    ReplyDelete
  156. I came across your story on FB just moments ago. I write this note to you through the blurriness of my tears and the breaking of my heart. I am a mother of 3 year old twins who are my everything. The pain you are going through right now is inconceivable to me. I pray that you can feel the strength, love, prayers and hope that I am willing to you and your family. May God bless you and keep Ty comfortable throughout his journey however long or short it may be.

    ReplyDelete
  157. I read about you on Facebook and wanted you to know I will pray immediately. My heart is breaking for the struggle you and your husband have had to endure.

    Be assured that Christ is there to carry you en you feel you can't stand the pain.

    There are people all over the world who care about TY and his parents. (sent from an American retiree in France)

    ReplyDelete
  158. I have followed your story for so long. My heart just absolutely breaks for you and your sweet family. Ty is on my mind daily and I will continue to pray for him and for you.

    ReplyDelete
  159. I am so so so sorry. I have no words. I just wanted to thank you for sharing Ty's story. I have never met either of you but I have been following your story for so long that I feel like I know both of you and my heart is breaking for you. My little sister and best friend died because of brain cancer 6 years ago. She was 20 years old but hers was classified as a "pediatric cancer". It's a horrible disgusting thing. We only knew she had cancer for 2 weeks before she passed away and I know how hard it was to watch her go through hell and to be completely helpless, so I can't even imagine what your family has gone through. You have been fighting for so long and have endured so much devastation along the way. I am just so sorry. Ty has beat the odds before and I will be praying for him to do it again. Your family has been on my mind all day and I just wanted to let you know that you have inspired so many people through sharing your story and we are all praying for another miracle. God bless!

    ReplyDelete
  160. I've been a constant follower, reading and re-reading your blog daily. This news makes my heart hurt for you. I can't imagine the heartache and pain you have dealing with this disease, but as a mother I know what it means to protect your children at any/all cost. I commend you for the mother you are and the selflessness you give day in and day out. Ty and Gavin are lucky to have you as their mother. Stay strong! Praying and hoping for the best for you always!

    ReplyDelete
  161. I have been following Ty's story since I read about him in an AOL article a year or two ago, and my heart is so heavy for you guys. My Mom sometimes recites the following quote to me, "To have a child is to forever have your heart walking around outside your body." Now that I am a mother I understand the quote. I can only imagine how difficult this must be for you and I marvel at your amazing strength every time I read your blog. Please know that you are all in my prayers.

    ReplyDelete
  162. My prays go out to you and your family. I pray God gives you strength to keep your head high and hope to keep you going. I pray that God will heal Ty and that he will play football one day! I have faith in God that you you will be able to take him to the zoo. Positive thoughts and prays your way.

    ReplyDelete
  163. I am speechless. I too have been following your story and I read each entry aloud to my family. Your strength patience and faith is awe inspiring. And those qualities are what will get you thru tomorrow and the next day. I lost a child 17 yrs ago this past Saturday ... Ty will ALWAYS be with you.. no matter what...whether with another glorious miracle or as a glorious angel. He will be with you at the zoo and the ballfield. I promise you. Our prayers are and always will be with you and your whole family.

    ReplyDelete
  164. Sending many prayers to Ty and to you and your family. I was saddened to read your post to know that the cancer had returned. The strength in your heart will help you and your family. The prayers for Ty and your family I hope that you know many are here for you who care. I wish as a nurse I could come and help you but I am not close in location... I hope that there are nurses near you who can come and be of help to you all.
    I thank you for sharing your beautiful family with total strangers. I can see from reading the replies that we really are not strangers we are friends.
    God Bless you all and I send comfort and love.
    Joanne

    ReplyDelete
  165. I do believe, I do believe, I do believe that there is hope for a miracle. Just put Ty in His hands and let Virgin Mary cover you. I close my eyes and see them next to you, helping you. There is NOTHING better than the power of LOVE!

    I repeat Ty is a miracle and he will be the testimony of the power of constant prayer. Every soul that lifts a prayer for him, every mother that puts herself in your shoes and has shared with you this and every moment will lift the pain of this process.

    I know Granny is with you, ask her. Her peace and wisdom will guide you.

    We love you and continue sending ALL of our LOVE, FAITH, HOPE for TY, Gavin, Cindy and Lou the BEST family in the world!!!!!)

    Remember:
    God will not permit any troubles to come upon us, unless He has a specific plan by which great blessing can come out of the difficulty. - Peter Marshall

    The child must know that he is a miracle, that since the beginning of the world there hasn't been, and until the end of the world there will not be, another child like him. - Pablo Casals


    ReplyDelete
  166. We are praying for Super Ty every day and will continue to do so. xoxoxo

    ReplyDelete
  167. How does a family that I don't even know touch my life so deeply? I believe in miracles. You have my thoughts and prayers for a lifetime.

    ReplyDelete
  168. Cindy, Lou, Ty, and Gavin,

    I have been reading your posts, and I marvel at the strength that you have all shown through this terrible, horrific experience. My heart bleeds for all of the pain and strife you have had to endure these last few years and for what you are battling now. You and Lou are amazing parents, and for lack of a better, more eloquent way of saying it, it beyond sucks that have to go through this. You are all in my thoughts and prayers, and I pray for a miracle for Ty (he's already proven that they exist).

    ReplyDelete
  169. Your family touches my heart in ways I can'e even explain - I pray for you all always and will continue to. I have no words to express my heartfelt love to you all. Thank you for sharing Ty's story - praying for another miracle.

    ReplyDelete
  170. I believe in miracles and I am praying for Ty and your family. I am going to share your story with my family and we will put Ty and your family on a lot of prayer lists all over this country. My thoughts and prayers are with you all.
    Cheryl Weir

    ReplyDelete
  171. I start each and every day with reading your blog and have for the past 2 years...although I have never met you I feel like I know you. I've thought about you guys all day and tried to think of the right words to say but I am at a loss. As a mother myself I cannot even begin to imagine what you are going through right now. You are amazing parents and somehow God will see you through all this. Thank you for sharing your story you have truly opened my eyes to pediatric cancer. God bless you all.

    ReplyDelete
  172. I will continue to pray for Ty and ur family. God is good and puts us in situations to see how far our faith will go. Please know that u both r not alone n u have all these people following Ty's story n r praying with u. Hang in there Ty...u r such a strong little guy that u will get through this.

    ReplyDelete
  173. Caren O'Brien-EdwardsSeptember 18, 2012 at 8:41 PM

    Praying for Ty and your family. Peace and strength to you all!

    ReplyDelete
  174. May God's amazing strength and love be with you. Praying for what is best for Super Ty whatever God choice may be.

    ReplyDelete
  175. Cindy, we continue day in and day out to pray for Ty and your entire family. I shared your story with so many on Facebook yesterday and received so many responses -- all connecting in some way to your story and love for your child! Life just isn't fair! But I have to say your strength, poise and grace has been infectious over these last two years and I truly believe your journey, as rough and awful as it has been, has helped and influenced so many. Lots and lots of love, The Reamer Family

    ReplyDelete
  176. Sending lots of prayers to you and your family. May your son be pain free. May you and your husband get through this. I know it will be tough. I am also praying for his little brother Gavin. Just know that you did everything you could and letting him be pain free now is the best gift to him possible.

    Love Karen Kopp Acquilino and family.

    ReplyDelete
  177. If I could give my life for Ty I would, without question. I know the road ahead is so dark and endless. I wish I had the right words to take just a little of your pain away. Love does not die and we carry it with us and it fills that void. You will not cheat Gavin out of being a good mommy, thats the beauty of love. Hold on like no bodies business to faith and love, it will see you through. Remember Foot Prints In the Sand, Jesus is with you.

    ReplyDelete
  178. Your family is amazing as even you wait to see what God's plan is. We keep a candle burning at church for Super Ty, and I can't tell you how sad I am that you even have to plan and think of what each day might bring. The roller coaster ride must be exhausting beyond what i could ever imagine as a mom and a priest. Blessings and peace to all of you; God will perform a miracle, no matter what happens, and you will have whatever you need to face each day. May the peace and love of God fill your house and heart and even better, bring streams of healing miracles for Ty! P.S. its ok to get really, really mad at God.... he can take it and you deserve the chance to shout at Him in frustration, anger and grief!

    ReplyDelete
  179. Cindy, Lou, Ty and Gavin, I hope you can feel the love and support we are sending out to you. I am so, so sorry that you all have to endure this incredibly difficult journey. No one should have to go through what you all have been going through, and for so long. Your continued faith is an inspiration to all who are watching and sharing. In those overwhelming moments, when you feel you can't go on -- lean on Jesus; He is right there for you. There is so much evil in the world but God is with you and grieving as you grieve the circumstance. Take one day, even one moment at a time and don't anticipate the future. Today is difficult enough. If I can be any inspiration to you -- I assure you, you will go on. I lost my son 18 months ago; the pain sometimes seemed more than I could bear but you do go on and eventually you even can breathe again. You must - because you both need each other and Gavin needs you too. I think you are all incredible. We walk with you. hugs to all, Nancy (artie's sister)

    ReplyDelete
  180. Praying without ceasing. My mom wrote a post when we learned similar news about my brother and I share it in case helpful. My heart is aching but is also full of hope that miracles can and do happen. Fight on little Ty until you no longer have to fight. Http://joshuacasteel.com/?p=317.

    ReplyDelete
  181. Cindy & Lou- Words can't express how deeply we care for Ty, Gavin and the two of you. We are praying to God and all the guardian angels for Ty. He has battled so much over these past two years and has beaten the odds numerous times. He is proof that miracles happen. Keep fighting Ty, you are so beautiful and amazaing.

    ReplyDelete
  182. Ty's journey has strengthened every family who hears his story, including mine. You are amazing parents and I am praying for you, for Ty, for Gavin, for all of your extended family.

    ReplyDelete
  183. I have followed superior Ty with his courageous battle for such a long time. He is beyond amazing and adorable. I have learned so much from his strength and ability to overcome.

    This morning when I read your post, with the confirmation of the scans diagnosis, I was instantly in tears, and have been throughout the day quite often. Feeling helpless and at a loss, I e-mailed Erik. He is a Minister in CA, but he is also the father of a very special girl, who lost her battle with brain cancer in January. Jessie started the NEGU- Never Ever Give Up foundation. She filled joy jars, with gifts for other children fighting cancer. Her father has made sure her legacy and wishes continue to live on, and encourage children and their families to NEGU.

    I asked Erik to please pray for Ty and your entire family. He replied back, that he would be honored to. I also asked that his precious girl be there in heaven when the time comes, to show Ty around, and help him get to do all the little boy things he has missed. Erik replied Jessie will be a good friend to Ty. And i do believe that.

    Somehow, in some way, I hope that helps.

    Sending lots of love and Hugz to all of you. Thank you for sharing your family with all of us, and thank you Ty for being an.inspiration to all. NEGU little one!

    Robin

    ReplyDelete
  184. Cindy & Lou - You don't know me, but I sure feel like I know your family. I have been following Ty's blog for a while now; friends from Long Beach passed it along and I can't help but check in on Ty and his progress. When I logged on tonight, I didn't want to believe the words I was reading. Not having children yet, my husband and I have not experienced the explosion of love that is felt when becoming a parent, so I cannot even begin to imagine what you guys are going through. May God watch over you all and take special care of you and Lou during this painful time. I have every faith that Ty will receive another miracle - this time to wipe away the cancer forever. Always remember that you were the best parents to the best little boy. Your entire family is an inspiration to all, and I only hope and pray that Ty wakes up one day and says, "why are you all crying, I'm fine!" May God watch over your family, now and always.
    Sending love and prayers from Rockaway, NY

    ReplyDelete
  185. I didn't believe in miracles until I began following Ty's journey almost a year ago. I am confident through the never ending prayers out there for him and your family, more miracles are to follow. You are all forever in my thoughts and heart. You truly are an inspiration for all women out there. We can only hope to have your amazing strength and be the picture perfect mother you are today, and everyday.

    ReplyDelete
  186. God bless you all and I pray for you

    ReplyDelete
  187. Love and hope abounds around your family. We are many and all by your sides. Here's to strength in numbers.......

    ReplyDelete
  188. Love and hope abounds around your family. We are many and all by your sides. Here's to strength in numbers.......

    ReplyDelete
  189. I have no words to comfort you, only love and prayers to send to you. Ty has been a gift to all of us. As we walk the Earth, there are lessons to be learned. I believe God sends special angels to teach the most important lessons. Sadly, one of the hardest lessons to learn is to feel true compassion and empathy for our fellow man. So many have learned how to be compassionate from reading your blog and to some extent feel a little of your pain with tears shed for you and your little boy. I also believe that he creates miracles and answers prayers. God Bless you and keep you strong.

    ReplyDelete
  190. I've read your blog since the beginning and thank you for being so brave in sharing your journey with us. You are a truly amazing mother to your boys. To call what you are dealing with heartbreaking doesn't even scratch the surface. I am a new mom and your story hits a nerve that only a mother can understand. Your strength and bravery through this is inspiring. I pray for your little boy and hope for the miracle that you all deserve.

    ReplyDelete
  191. God bless you and your family and your precious Ty <3

    ReplyDelete
  192. Praying.
    and crying.
    but still so Praying.
    ~Julie

    ReplyDelete
  193. Praying harder than ever. I know God will keep a special hand on you during this time...Ty is a so loved, he is a gift to everyone. From reading your blog it is so evident what amazing parents you both are. Sending love and prayers your way God bless you all.

    ReplyDelete
  194. Ty, Cindy,Lou, Gavin
    You have changed the lives of hundreds, (likely more) of people..
    Your boundless love for one another and Cindy your example as a mother is something extraordinary. Lou, Ty's face in that picture is your face (exactly) , He is your little man and will forever be...nothing will change that.May God do what is best for Ty at this moment while we continue to pray for a miracle. When there is life there is hope!!

    ReplyDelete
  195. Kept waking up last night and thought of Ty - saying a prayer every time. Hoping prayers will bring the miracle you need. God bless Ty and all of you. Light and love and hope. Superty always!

    ReplyDelete
  196. You guys are always in my prayers. I have been following your story since the beginning. I truly believe at this point it is in God's hands and he does have a plan for you and that gorgeous Angel. But on another note, I wonder if you have any idea how many people's lives you have touched and changed. I cannot speak for anyone else but I know for myself things haven't been easy for my family for the last year or so. We have huge financial stress and then trying to do our best to raise 4 children. You are the one that gives me the strength to put everything in perspective and realize that things aren't that bad they will get better... You have made me stronger and made some tough days seem easy. You have taught me what is truly important and what's not. Most importantly you have made me a better mother.. I think of you all the time and when I am tempted to yell at the kids for something stupid or they are on my nerves because I am stressed and trying to work.. I think of you and I stop what I am doing and focus my attention on them. I am sharing this with you because when you are looking for reasons and answers maybe somehow you and Ty were meant to change many many lives.. I know you have changed ours.
    I'm sure you have more people than you can imagine in your corner hoping and praying for you.. God bless you, your family and that precious little boy.. You are not alone we are all here for you

    ReplyDelete