We are thankful

We are thankful for our incredibly supportive family and friends.  We are thankful for the doctors and nurses who give Ty love.  We are thankful for Ty and everything he does.   We are thankful for our baby Gavin and his happy attitude through all of this. 

Today we spent Thanksgiving at the hospital, and it was a good day.  We are so grateful for the time we have with Ty, especially when he is feeling well.  Today he had a good stretch of about 6 hours where he was awake, happy and without headaches.  It was a blessing.  There were several volunteers who served a delicious Thanksgiving feast in the playroom today that Lou and I particularly enjoyed.  All things considered, we had a nice holiday!

Tomorrow Gavin is coming to the hospital!!  Today was the first day that Ty talked a lot about his brother, so I am excited to get them together tomorrow.  He wanted to see pictures of Gavin, and he said "I miss Ga-Ga."  I really wish I was able to record it, because it was so sweet I almost cried.  Lou and I miss him beyond words, too. 

I just know Ty is feeling better because this morning he wrapped his arms around my neck and insisted I hug him, face-to-face, for three hours.  I cherished every minute of it (despite the neck cramp and the twisted back from the awkward position I was in).  One of the hardest things about Ty being sick is watching him in pain.  Before this disease turned our lives upside-down, I remember fondly the sleepless "sick" nights when I would hold and snuggle my babies through fevers and bad colds.  How I could rock them to sleep and cradle them until they felt better.  When Ty is suffering, he can't be held.  In fact, he can barely be touched.  It hurts so much because I just want to hold him into the wee hours of the night.  The hugs this morning made my heart sing! 

Enjoy this picture of Ty with his chocolate turkey that Nana gave him.  See the smile?!  He is doing well!


Thanks to all of you for reading Ty's blog.  It means so much that you care enough to follow him on this journey of strength and courage.

Comments

  1. Colleen RosenNovember 25, 2010 at 9:23 PM

    Good report! I'm glad you had a delicous meal prepared with love. A success of a Thanksgiving celebration!

    Ty better watch out...I'm gonna get that chocolate turkey!!!

    ReplyDelete
  2. Rachel MarinoNovember 25, 2010 at 10:28 PM

    So happy he's feeling well. Love and hugs to all 3 of you. Enjoy Gaga tomorrow.

    ReplyDelete

Post a Comment

Popular posts from this blog

So Gray Today

Image
Ty and Gavin, July 2010 Gold is an appropriate awareness color for childhood cancer (shiny and new and triumphant), just as gray is a fitting awareness color for brain tumors. Gray matter (get it?), but even more so, the overwhelming feeling when thinking about brain tumors is quite gray. It’s all gloom because it’s all just goddamn awful.   I’m glad it’s been cloudy, cold, rainy and gray because that’s exactly how I feel on this first day of Brain Cancer Awareness month. My memories of what I witnessed leaves me with a dark, colorless range of emotions. I can’t stop thinking of all the things, large and small, that occurred during my son’s far too short time here with us.     For Mother’s day when Ty was two, Lou bought me a bike with a seat on back for Ty. Ty was so excited to show me in the morning. We went for a ride on the boardwalk but he ended up crying the entire time. He hated the bumps. What I didn’t know is that he hated riding with me because it was giving him a headache. T
Read more

Anything but cancer

Image
Cancer is not welcome here.  It can never, ever, ever, ever, ever come back.  As I mentioned yesterday, Ty has been showing some physical symptoms that we haven't seen in a long time.  Please, God, don't let it be cancer again.  Anything but cancer. I spoke to Ty's doctor first thing this morning and he believes the increased weakness we are seeing on Ty's left side is not related to new cancer growth - but that doesn't rule out the possibility.  He feels that Ty is suffering from spasticity, which is becoming more visible now only because Ty is getting stronger.  As Ty's muscles begin to regain mass and tone, the neurological weakness on his left side is becoming more noticeable.  This spasticity is likely permanent, but also treatable with continued therapy.  When I spoke to his physical therapist later today, she agreed that it would explain what she is seeing, and then she reassured me that walking again is still a highly attainable goal for Ty.  And "
Read more

Our baby is finally free. Rest in peace Ty Louis Campbell.

Image
Ty Louis Campbell is gone, but his story continues.  This is our promise to him.  His impact on the world around him gives his short but inspirational life such meaning.  His soaring spirit will continue to fuel a fire in our hearts, and strangers around the world will continue to fall in love with the little boy who fought so valiantly.  The little boy who hurt so much, but maintained a bigger, brighter smile than the healthiest of children.  Ty never did break his fever.  He never really woke up.  Not until he decided to leave this earth and fly freely among the clouds.  At that very moment, he was awake.  He had returned to Lou and I to say goodbye.  To say our hearts are broken would be like saying it tickles to have your stomach ripped open with a spoon.  I went to bed last night with so much worry on my mind, but I was able to fall asleep because I was calmed by the fact that in his semi-conscious state, Ty seemed so incredibly peaceful and comfortable.  I laid down next
Read more