Tuesday, November 30, 2010

Post #100!

Wow.  I can't believe this is the 100th post to Ty's blog.  With the exception of a couple of difficult days here and there, we have tried to post updates on a daily basis which would mean we began this painful journey more than 100 days ago.  After 20 days in the hospital this time around, it's beginning to feel more like 20 years... but when I look back to the days when our daily routine involved picking up a buttered roll on the way to preschool, and sunset trips to the beach after picking up the kids at the sitter, it feels like those normal family days were just yesterday. 

We weaned Ty off of his IV morphine today, and converted his pain meds to oral.  It's been difficult to manage his pain, so we won't go home until tomorrow.  But, regardless, WE'RE GOING HOME TOMORROW!!!  Based on our previous experiences, I think just leaving the hospital will lift his spirits and help him to feel so much better instantaneously. 

The doctors met with us around 3PM today and they said the cytology report has not been posted yet.  We will hear from them tomorrow morning whether or not Ty's cancer has become systemic, meaning whether or not it has spread to his CSF and the rest of his central nervous system.  If that is the case, we will have a lot of difficult decisions to make - but we will never lose hope and neither should you.  Right now, we obviously hope that the cytology report comes back negative.  If not, well, we will cross that bridge when we come to it.  In the meantime, keep the prayers coming, cross your fingers and toes, rub your favorite good luck charms and send positive light our way.  We love you all and we can't thank you enough for your support. 

Here is a video of Ty when he was 4 1/2 months old.  He was always the sweetest boy in the world.  I will never understand why cancer can attack such innocence and beauty.


video

4 comments:

  1. Prayers are coming your way -glad you are going home tomorrow!

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  2. We will never regret having BIG, HIGH hopes and aspirations for Ty's well-being. We know that everything is going right for Ty here and now - even if we can't comprehend this truth from our perspective. For any pain and suffering experienced here on Earth is but a POOF in time of a journey longer than we could ever imagine. And though none of us are protected from the experiences of pain and suffering in this life, we seldom give up hope!

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  3. It is so nice to hear Ty's baby voice! He is the most special little boy in the whole world! I will never ever give up hope and I will continue to send all my prayers, love, heart, soul and light to him always and forever! I love you!

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  4. I HAVE ASKED EVERYONE TO LIGHT A CANDLE FOR A MIRACLE FOR TY TO BE HEALED. ITS ON MY FACEBOOK PAGE.. Kathy Pitti (BRUNELLE) I am MARY PALLOTTA'S SISTER FROM THE GUARDIAN BRAIN FOUNDATION!!! My heart goes out to you and your family more then words could say..... xoxoxxo

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