Posts

A glimpse into Lou's life

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Before I share Lou's speech, I wanted to share Foundation news.  We are so incredibly proud to introduce Emily Peachey as a new ambassador for the TLC Foundation. Emily stars in the upcoming film The Fault in Our Stars - alongside Shailene Woody, William DeFoe and Laura Dern (based on the NYT bestseller by John Green).  For those of you who haven't read the book yet, it is a story about young love and the reality of childhood cancer.  It is a beautiful and heartbreaking story, and of course it touched Emily deeply since working on the film.  She worked with several cancer patients on-set and was driven to do something!  Many young, up and coming celebrities wouldn't be so caring and selfless, and I find her actions to be so very admirable. We are truly humbled and honored to have her support :) Together we will raise awareness for childhood cancer and make a difference for these kids! The past two weeks have been spent trying to juggle event planning in b...

World Cancer Day

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Cancer is the second leading cause of death around the world, just behind heart disease.   One in four people die of cancer.   Sadly, I doubt there is a person reading this post that has avoided being touched by cancer in one way, shape, or form.    So, I’m not sure we need a dedicated day to remind people about the tragedy that is “cancer” but I do believe that having this day is actually more empowering than it is depressing.   We are not alone.   This is a worldwide problem that isn’t going away.   We stand united, and as tragic as it may be to watch our newsfeeds fill with Placards and ribbons, it is also inspiring.   Awesome, actually.  E ach and every one of the fighters – big and small – show strength and courage, and the network of support from the world around them is as humbling as it is beautiful.   Ty is not the first person I love to die from cancer, and he won’t be the last.   That is such an impossible and hopel...

I am many moms

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When my first son was born, I was a quintessential “new mom.”  God gave us this incredible gift.  He entrusted me to take care of this most beautiful baby?!?!  The weight of that responsibility was tremendous.  I wanted to be perfect for him because I never loved anything like that before in my life. I bought every ridiculous and completely unnecessary gadget available.  I actually liked going to Babies R Us and browsing this unknown territory of all things soft and fuzzy (or Buy Buy Baby, even better).  Did I really think that the PeePee TeePees I purchased for $11 were going to spare me from getting pee’ed on once in a while?  I pored over every single thing that went in his mouth, and I beamed with pride over how he just loved his peas and carrots, I must be doing something right! (I didn’t realize that pretty much all babies eat their vegetables when they’re only six months old).  Every tiny little thing Ty did prompted a phone call to my...

Join us - Share the Love - Give a half a sandwich

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There is a beautiful young boy who is fighting for his life tonight.  Justin Miller has been fighting cancer for seven years, and he is only 11.  He had multiple relapses.  His story reminds me so much of Ty, only with all of the ups and downs extending into many more years.  I fell in love with Justin when he was designated an ambassador for St. Baldrick's in 2012, and when I saw his incredible video on the Stand Up 2 Cancer telethon while Ty was home on hospice in September 2012.  The picture of Ty below, with his hands in a heart, were taken at that same time.  Not that I need a reminder, but days like today, when I read about what Justin is going through and how his journey has taken another unfair turn - a really bad one - inspires me to share this event again, because it is a reminder of why we do what we do so passionately. And, because "everyone can give a half a sandwich." as my friend Mary Pallotta taught me.  Although, in this case ...

Introducing #poopcrumbs

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"Ewww.  Did someone make a poop in this bathroom?" "I don't know, Gavin - you tell me?  You were the last one to use that bathroom." "Hmm.  I don't wee-member.  But I fink so because I see a couple of poop crumbs left." Never, have I ever heard anyone use the term poop crumbs.  I find it so amusing, so much so that - you saw it here first - I went ahead and prefaced it with a hashtag.  This one is right up there with Ty calling Hannford's "HeineyFarts."  Kids are just so funny!  When did my baby become a "kid" anyway?  Where did my baby go? I guess I first realized he was growing up when he announced "My butt has to tell you something," before farting.  Ahh, the joys of motherhood.  Boys will be boys :)  I swear, I promise, I really don't know where he gets this from and NO I don't condone it - although sometimes I do have to hide my chuckle in response to his ridiculous potty humor.  Gavin...

Another year gone. I wonder what he's doing up there all this time?

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Today we spent the first day of 2014 on the slopes in Vermont.   The cold, crisp air really helped me get out of a funk I’ve been since Christmas. I tried to imagine Ty soaring around the mountain with me, perched on my shoulder – but of course that idea can’t overpower the real longing in my heart, and the feeling of remorse when I consider the fact that here I am enjoying another treat in life that Ty will never get to experience. I know, I know.   New year, new chapter in life.   Moving forward.   Resolve to eat well, be healthy in body, mind and spirit, have more fun, all that stuff.   But for me, on this New Year’s Day, I am stuck on reflecting rather than moving on.   I can’t help it.   The holidays are hard and I’m a little stuck in the past.   Remembering Ty and reflecting on an entire year without him.   How did that even happen?   Gavin has grown so much, I am always asking him, “where did my baby go?”   I haven’...

Christmas Memories

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It goes without saying that this time of year can be as uplifting as it is heartbreakingly difficult.  To me, it has always been a time when I reflect on all of my many Christmas's past, fondly remembering the magic that filled my house when I was a child myself and hoping I am doing a good job recreating that for my own children.  Christmas marks the time of year for memories old and new, getting together as a family, going "home" and making a conscious effort to do something kind for others. Naturally, it is also a time when absence is most obvious. A glaring reminder of our loved ones who are not coming home this time.  When memories only remind us of who is missing.  Every single person who has lost a loved one can relate to how the missing person in our lives becomes that much more absent - even when we least expect it, we may be knocked over the head with longing. There's just something about that Christmas tree, the smell of cookies, t...

SHARE THE LOVE - SAVE THE DATE

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A night of cocktails, couples and casino tables to benefit the Ty Louis Campbell Foundation Where :  Hyatt Regency Greenwich.  Old Greenwich, Connecticut When : Saturday, February 15, 7:00 - 12:00 Midnight What : Open Bar, Cocktail-Style Dinner Party, Silent and Live Auction, Music and Dancing SAVE THE DATE - MORE DETAILS TO FOLLOW  

Can I interest you in a cookie?

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So, I had a very different beginning to this whole motherhood/parenting thing than most.   Ty was only 2 ½ (Gavin 16 months) when he was diagnosed with a brain tumor.   For many reasons, we soon moved to Pawling, which was as suburban as I have ever lived.   The usual path might have led me to cupcakes and crayons, but Ty’s cancer didn’t allow for much of those activities.   I had a very different introduction to motherhood – and suburbia – but I so wanted to experience “normal” motherhood   (whatever that means) , even when I was in the trenches of his illness.   Ty at the time we moved,  I could wrap myself up in those eyelashes! At Christmas that first year, I was invited to a cookie swap.   I had no clue what that was, but I heard that wine and cookies were involved so naturally I was IN!   I was essentially alone in this town, and I was really looking forward to meeting some of my neighbors.   Couldn’t wait! Soon I rea...

I'm gonna love you forever

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“I love you, Mommy.”   Gavin says that to me several times a day, out of the blue.  It is one of my most favorite things.  This morning he asked, “Do you know why I always say ‘I love you?’ ”  “No, why?” “Because I am gonna love you forever.”  And just like that, my broken bleeding heart burst with happiness.  Today was a snow day.  We got bundled up and headed outside so Gavin could play while I shoveled.  I watched him as he stood with his mouth open, hoping to catch some snowflakes.  I watched him lay on the snow and look up into the sky in undisturbed silence for several minutes.   Everything is so quiet under the peaceful insulation of the snow.  It is almost as if the beauty itself has more clarity – at least I think so – and I believe Gavin was feeling that very same phenomenon.  I tried to leave him alone to enjoy the illusion of solitude in the soft and peaceful surroundings of our yard (with the...

Christmas, Giving Tuesday, TLC Foundation Year-End Impact

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"Crimpy" time is here That's what Ty called Christmas, "Crimpy."  Thanksgiving came and went with delicious food and an overall quiet, ho-hum day - just as I wanted.  Perfectly appropriate given the void in our lives this holiday season.  Christmas will have to be different though.  Christmas is magic and Gavin is four, so we need to go all out for him and make it as wonderful as possible despite my conflicting urge to skip it altogether this year. We went to our favorite tree farm and cut down the biggest tree we've ever had - as is our family tradition since moving to Pawling.  I looked for Ty everywhere but I didn't really feel him with me.  I could only feel the incredible weight of his absence.  I looked up at the sky several times, hoping for a hawk soaring overhead or clouds in the shape of his name.  One cloud kinda sort-of resembled a "T" but I know I was just forcing something that simply wasn't there.  I guess cutting down the...