Beach days

After a great night with friends last night (Janice, thank you so much for hosting such a fun party – we all had such a great time, especially Ty), today was the perfect day to relax on the beach. My family came to Long Beach for a day at the beach, and it was wonderful. The weather is supposed to be nice again tomorrow, so Father’s Day should turn out to be another great day at the beach. It’s also been therapeutic for Ty. We do some stretching by playing with a fishing pole toy, and he helps me with the shovel when we fill the pail with sand. Little things like this help him to feel like he is still able to have fun. He was happy at the beach today, so Lou and I were happy, too. I met a stranger at the supermarket in Oceanside today. I was with the boys because we needed milk and a few things for lunch. She introduced herself to me and told me that she reads this blog to check up on Ty and that she can feel/relate to the love I have for my boys in my writing. Erica, I can’t tell you how much that meant to me. It was very special for me to hear those words, thank you. I am so happy that Ty has touched so many people. He is a special little boy and I am so lucky to be his Mommy. PS - I have resorted to posting from the i-pad because I can't get online with my regular computer. I can't post the pictures I want to post, I can't figure out how to create a break in the paragraph, and this post was very delayed (I wrote it last night but couldn't get it up until Sunday afternoon. Tonight I will find a way to post the video montage of Lou and Ty in honor of Father's Day and I hope to get to a Starbucks tomorrow so I can share some pictures and type on a normal keyboard. As always, thank you for all of your postive thoughts, posts and prayers.

Comments

  1. Erica TolinAugust 11, 2012 at 10:06 PM

    It was so great to meet you and your precious boys at the supermarket. I felt like I was meeting a celebrity family! :) You often write how lucky you are to be Ty's mom. This is true, but even more so, Ty is lucky to have YOU. Whether you wanted the title or not, you have become Hero to your family, those near and dear to you, and even complete strangers like myself. Thank you for bringing us into your world and letting us get to know you and your family through this blog. Sending nothing but positive thoughts your way...... Erica

    ReplyDelete

Post a Comment

Popular posts from this blog

Our baby is finally free. Rest in peace Ty Louis Campbell.

Image
Ty Louis Campbell is gone, but his story continues.  This is our promise to him.  His impact on the world around him gives his short but inspirational life such meaning.  His soaring spirit will continue to fuel a fire in our hearts, and strangers around the world will continue to fall in love with the little boy who fought so valiantly.  The little boy who hurt so much, but maintained a bigger, brighter smile than the healthiest of children.  Ty never did break his fever.  He never really woke up.  Not until he decided to leave this earth and fly freely among the clouds.  At that very moment, he was awake.  He had returned to Lou and I to say goodbye.  To say our hearts are broken would be like saying it tickles to have your stomach ripped open with a spoon.  I went to bed last night with so much worry on my mind, but I was able to fall asleep because I was calmed by the fact that in his semi-conscious state, Ty seemed so incredibly peaceful and comfortable.  I laid down next
Read more

Anything but cancer

Image
Cancer is not welcome here.  It can never, ever, ever, ever, ever come back.  As I mentioned yesterday, Ty has been showing some physical symptoms that we haven't seen in a long time.  Please, God, don't let it be cancer again.  Anything but cancer. I spoke to Ty's doctor first thing this morning and he believes the increased weakness we are seeing on Ty's left side is not related to new cancer growth - but that doesn't rule out the possibility.  He feels that Ty is suffering from spasticity, which is becoming more visible now only because Ty is getting stronger.  As Ty's muscles begin to regain mass and tone, the neurological weakness on his left side is becoming more noticeable.  This spasticity is likely permanent, but also treatable with continued therapy.  When I spoke to his physical therapist later today, she agreed that it would explain what she is seeing, and then she reassured me that walking again is still a highly attainable goal for Ty.  And "
Read more

Our aching hearts

Image
My face is swollen.  My eyes are heavy.  I have been crying for what feels like an eternity.  But in between my tears, I have an overwhelming sense of freedom.  Today we were told that there are no more treatment options for Ty.  That his MRI Saturday night shows progressive lepto-meningial disease in three different areas.  Lou and I decided against surgery to fix Ty's shunt, and I am finally free from feeling responsible for whether or not he lives or dies.  Ty is in God's hands. No matter how many times I swore that I leave Ty in God's hands, I was always clinging onto him with every ounce of my being.  Researching.  Fighting.  Begging.  Doing anything in my power to find a way to save him.  Finally, I have exhausted my options and I am letting go.  I may be kicking and screaming, but I am still loosening my grip because I know that I have to.  We have tried so hard, for so long.  Ty's doctors and nurses, they are so special.  They have given us beautiful. prec
Read more