Off to the PICU

Every single time I lay down next to Ty, I am overcome by pure love.  I could stare at his face for hours and hours on end.  I am so grateful for him, no matter what.

Thank you, God, for giving him to me
For letting me be his mama
I haven't done anything to deserve such beauty and perfection
I am humbled beyond words
And eternally grateful for every single minute
For every breath we share, lying face to face like this
I give you everlasting thanks.


Ty is being moved out of Memorial Sloan Kettering to the Pediatric ICU (PICU) across the street.  His physical strength hasn't improved much and his heart rate is dropping.  This is just a precautionary measure, just to be safe, because the heart rate is most likely tied to all of the steroids he is on right now.  On the plus side, I think his head pain is finally slowing down.  He had a very good night's sleep and for that I am grateful. We will be taking an ambulance across the street - we have done this many times before - and all I keep thinking is how much I hope this is his last trip in an ambulance, ever.  Calling all prayers.  XOXO.

Comments

  1. Joy MarielleMarch 25, 2012 at 12:30 PM

    Cindy & Lou,

    Saying special prayers for Ty. I am so sorry he is going through all this. I cannot believe all this little boy, and you guys as well have been through. But, I do believe Ty will get better, and be "surfing in the sun"! Dont worry about those gray hairs, gosh I have been gray since 19 years old! Thank god for hair dye! I know he will get better. Super Ty beat up the cancer, now he just needs to beat up everything else!

    Praying all day!

    Joy Marielle
    Baltimore, MD

    ReplyDelete
  2. Susan LevyMarch 25, 2012 at 7:59 PM

    Snuggle up and sleep well tonight, Cindy.
    Prayers and wishes for a great week of recovery

    ReplyDelete
  3. Kathy BrunelleMarch 25, 2012 at 9:30 PM

    Cindy, my Prayers are with you all ... My heart, My Love, and Faith are with your beautiful son Ty.. We Love You... Kathy Brunelle

    ReplyDelete
  4. AnonymousMarch 25, 2012 at 10:02 PM

    I have to share this - Today as we do every Sunday we went to church and I prayed for Ty. To day the children's choir sang a song and there was a verse about maybe blessings are in tear drops and rain drops. As a tear slid down my face I pictured Ty and looked up to Jesus with arms spred and said in my heart, Ty, my tears are for your blessings. Mommy tears are special, they carry the hurts away.

    ReplyDelete
  5. mariannefrostMarch 25, 2012 at 10:40 PM

    Dear Cindy and Lou,
    I check in on Ty and your family every single day. And I pray. And I send healing thoughts. Positive thoughts. And I ask my angel to give my prayers to Ty's angel. Your positive beliefs are a healing elixir for your little guy! Sending all positive thoughts and a blanket of love your way. What I haven't been very good at doing has been commenting on your posts. I will try to be a better support. :) Much love to all of you, Marianne

    ReplyDelete
  6. TinkMarch 25, 2012 at 10:58 PM

    Praying for Ty's recovery and an ease to your fears and concerns. I will pray hard as I normally do that all of this will be just a thing of the past soon and you can all go on with your fun and joy-filled lives, cancer free! Stay strong girl and give that special boy a kiss from his biggest fan! Be well and get some rest xoxo :) Much love and hugs
    Allison

    ReplyDelete
  7. NellieMarch 26, 2012 at 1:10 PM

    Ohh, I ache for you -- sending so much love, prayers and positive thoughts your way!

    ReplyDelete

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