Home for the holiday weekend!

We are home!  And, the best part about all of this is that Ty's doctors took him off of his TPN because he is eating so well.  That means we were able to "de-access" his mediport and he can go swimming over the holiday weekend!  I hope he will give it a try. I think it would be a lot of fun for him, and great for his PT if he gets in the water and kicks around a bit.  I think the weather in NY is supposed to be beautiful.  I just hope Ty improves with each day because he still isn't 100% which has me worried.

Ty's eyesight still hasn't returned to baseline, but his eyes are improving slowly.  I was hoping to see a more significant improvement by today, so I have very high anxiety over whether or not the doctors may have missed something during our latest hospital stay.  They deliver their thoughts with such confidence that I am totally reassured Ty will be fine, right up until they walk out of the room and my mind starts racing again.  I must have asked every doctor that came into the room about whether or not it is okay that it is taking so long for his eyes to return to normal.  I can tell that they are a little baffled by it, too, but they don't seem very concerned about it either.  It's so hard for Lou and I to stay calm during days like these.  We were pretty much silent the entire ride home while Ty slept because our minds were racing with worry. 

Luckily, when we got home Ty really perked up.  He was so happy to be here, Gavin was so happy to see Ty (it was adorable), and Ty began eating like crazy which I consider a sign that he is feeling really good.  He smiled a lot and was full of "I wub you's" all afternoon.  I felt so much better after seeing that.  Right now he is resting peacefully on the couch and I can barely keep my eyes open.  I'm guessing he will wake up rearing to go as soon as I try to whisk him off to bed with me.  Per usual.

Anyway, while we wait for improvement, Ty will be chillin' in his sunglasses, passing time eating chippies and blue lollipops.  Love him so much.  So happy to be home!!!!!!  I hope Ty and Gavin enjoy the fireworks this weekend.  Happy fourth everyone!! 

WUSSUP?
Special shout-out to GLOW - a very "happy fourth" to all of my favorite Wantagh girls :) Big huge hugs. Also to Linda and Catherine, you are the best. I had SUCH A GREAT TIME last night, thank you for the spontaneous dinner. I laughed so much and it felt so good. Thank you :)

Comments

  1. KyleJuly 1, 2011 at 11:39 PM

    Hope you guys enjoy the weekend! Always praying for you all.

    It's truly amazing how your story has touched so many people. I have faith that you will all be able to look back on this and Ty will be healthy and victorious!

    Happy 4th!

    Kyle in Milwaukee, Wisconsin

    ReplyDelete
  2. ChifuruJuly 2, 2011 at 4:01 AM

    I am so glad that you could return home, this must be a huge relief for all of you! Hope that Ty's eyes will improve soon!

    Enjoy your holiday weekend!

    ReplyDelete
  3. stellau1July 2, 2011 at 11:24 AM

    I'm so glad to hear the Campbell's are home nd spending the holiday weekend together. I'm praying for lots of healing nd even more fun for our little fighter!!! Hope u venture into pool with everybody, would love to see pics of that. Lots of smiles!!!

    All my love,
    Elaine

    ReplyDelete
  4. AnonymousJuly 2, 2011 at 12:48 PM

    I'm so happy your family is home for the holiday weekend. I hope it's filled with lots of laughs, snuggles and I wub you's. If Ty goes in the pool you must post pictures! I just picture the joy and excitement on Ty and Gavin's faces while watching fireworks and i can't help but smile. Sending prayers for Ty to get stronger and healthier everyday. Thank you for your blog and sharing Ty's story with all of us. When I read your posts I feel your pain as well as your joy. I tell everyone I know about Ty and ask them all for prayers. I hope you all have a wonderful and relaxing weekend. Looking forward to some pictures. Ty looks like on cool little dude in this sunglasses!
    Much love to you all.
    Annette
    Los Angeles

    ReplyDelete
  5. Susan LevyJuly 3, 2011 at 8:07 AM

    Ty is such a yummy boy in that picture. Likely his eyes just need a little time to return to normal. It will happen!!
    Just like Annette, I show and talk about your blog to everyone. The amount of people praying for Ty grows every day.
    With love and much admiration.
    Susan

    ReplyDelete

Post a Comment

Popular posts from this blog

Our baby is finally free. Rest in peace Ty Louis Campbell.

Image
Ty Louis Campbell is gone, but his story continues.  This is our promise to him.  His impact on the world around him gives his short but inspirational life such meaning.  His soaring spirit will continue to fuel a fire in our hearts, and strangers around the world will continue to fall in love with the little boy who fought so valiantly.  The little boy who hurt so much, but maintained a bigger, brighter smile than the healthiest of children.  Ty never did break his fever.  He never really woke up.  Not until he decided to leave this earth and fly freely among the clouds.  At that very moment, he was awake.  He had returned to Lou and I to say goodbye.  To say our hearts are broken would be like saying it tickles to have your stomach ripped open with a spoon.  I went to bed last night with so much worry on my mind, but I was able to fall asleep because I was calmed by the fact that in his semi-conscious state, Ty seemed so incredibly peaceful and comfortable.  I laid down next
Read more

Anything but cancer

Image
Cancer is not welcome here.  It can never, ever, ever, ever, ever come back.  As I mentioned yesterday, Ty has been showing some physical symptoms that we haven't seen in a long time.  Please, God, don't let it be cancer again.  Anything but cancer. I spoke to Ty's doctor first thing this morning and he believes the increased weakness we are seeing on Ty's left side is not related to new cancer growth - but that doesn't rule out the possibility.  He feels that Ty is suffering from spasticity, which is becoming more visible now only because Ty is getting stronger.  As Ty's muscles begin to regain mass and tone, the neurological weakness on his left side is becoming more noticeable.  This spasticity is likely permanent, but also treatable with continued therapy.  When I spoke to his physical therapist later today, she agreed that it would explain what she is seeing, and then she reassured me that walking again is still a highly attainable goal for Ty.  And "
Read more

Our aching hearts

Image
My face is swollen.  My eyes are heavy.  I have been crying for what feels like an eternity.  But in between my tears, I have an overwhelming sense of freedom.  Today we were told that there are no more treatment options for Ty.  That his MRI Saturday night shows progressive lepto-meningial disease in three different areas.  Lou and I decided against surgery to fix Ty's shunt, and I am finally free from feeling responsible for whether or not he lives or dies.  Ty is in God's hands. No matter how many times I swore that I leave Ty in God's hands, I was always clinging onto him with every ounce of my being.  Researching.  Fighting.  Begging.  Doing anything in my power to find a way to save him.  Finally, I have exhausted my options and I am letting go.  I may be kicking and screaming, but I am still loosening my grip because I know that I have to.  We have tried so hard, for so long.  Ty's doctors and nurses, they are so special.  They have given us beautiful. prec
Read more