Ty continues to amaze us

Ty had his fourth ventricular drain placed in his skull today, and he is doing SO GREAT! Right now, Ty has three huge incisions on his head, one smaller incision and several other open wounds from where sutures held his drain in place. He has another new, 2-inch incision on his stomach from where they snaked the tubing from the the valve in his skull to pour out into his abdomen. He has holes all over his hands, wrists, ankles and feet from the various IVs that were placed (or attempted to be placed) during his past two surgeries, two of which are still in use. He is covered in bandages, bumps, bruises and bacitracin. Know what he did today? He ate pizza, he played "i spy", he watched Bambi and he read books. Know what he didn't do? Complain. Not once.

Ty, you continue to amaze us all. Keep fighting my sweet, special boy. Home on Friday!

Comments

  1. SimoneFebruary 15, 2011 at 11:13 PM

    Thank god for the good news. I have been praying for you all since I read about you on AOL. You are a wonderful mother and have amazing sons.

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  2. According to JosephineFebruary 15, 2011 at 11:25 PM

    He's a fighter. I've been praying for your little guy for a while now. He's blessed to have such a great family by his side. He's an inspiration to all. Stay strong Ty.

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  3. mommyto4qtsFebruary 16, 2011 at 12:38 AM

    I have been bawling ever since reading your story on AOL this morning. I have been checking back frequently for an update and am elated to hear that he did so well today! I have a little guy born the same year as Ty, only in January, and it really hits home!! Unfortunately, there are so many families in the same horrible situation as you, this world is full of so much pain :( Your little guy is so AMAZINGLY strong but it must be pointed out how AMAZINGLY strong his parents are!! I could only wish that I would have half the strength you have should I ever be faced with such heartache! I truly believe that a positive attitude is half the battle and it is a great power in helping people heal and with the attitude that your family has, you are already well on your way!!

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  4. AnonymousFebruary 16, 2011 at 2:01 AM

    May God keep his hand on this little angel and wrap his arms around you and your amazing family! Sometimes it hard for those of us who have never had to experience what it is like to have a child with this horrible disease. Ty has the best parent he could ever hope to have! Stay strong and alway know you will never be alone...(Hugs)

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  5. AnonymousFebruary 16, 2011 at 6:48 AM

    Awesome news!! SO GREAT!!! YAY TY!!! GOOD JOB MOM AND DAD!! In my prayers, Never Give Up!!

    Brooke :)

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  6. jaylynsmomFebruary 16, 2011 at 7:49 AM

    So happy for the good news!!! Awesome job Ty!!

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  7. JulieFebruary 16, 2011 at 8:43 AM

    Such an amazing boy! But that's of little surprise given his amazing mom and dad. Praying for you every day! Miracles do happen.

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  8. stellau1February 16, 2011 at 9:13 AM

    I have to say that I am sooo amazed at the strength and bravery of your very special boy. Your family is in my heart and the heart of thousands of people every day. Take comfort in knowing that all of us are praying for all of you.

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  9. otter6297February 16, 2011 at 9:22 AM

    You go TY!!! Glad to hear he is having great fun today. As so many have previously said ... Ty is blessed with the best Mom and Dad he could ever have and blessed with such an amazing brother, family and friends. The world is speaking and we are going to continue to let you know that we are here and that we will continue to pray and offer support. All our love!!!!

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  10. AnonymousFebruary 16, 2011 at 9:29 AM

    Thank you Ty for your life example. Never give up!!!. I want you to know that you are receving universal love healing reiki energy through people from Argentina, Spain , Canary Islands. We are one!!! Much light and much Love Love Love Love for you and your family.

    ReplyDelete
  11. AnonymousFebruary 16, 2011 at 9:35 AM

    I just read your story yesterday on aol and immediately sent the link to your blog to my sister because I was so moved and inspired by your little guy. I am a mom also and I just wanted you to know that I am praying for Ty and I'm so impressed and moved by his strength. I've never written to a complete stranger like this but I also believe in the power of positive thinking and I want you to know that positive thoughts are being sent your way. You are truly an amazing mom!

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  12. twinmomFebruary 16, 2011 at 9:49 AM

    I'm so happy to hear that Ty is recovering so well! I have been following his inspiring story for a few months now. It looks like the interview on aol has really boosted awareness! I continue to pray for Ty and all of you each day. How excited you all must be to be going home in a few days! You remain in my thoughts and prayers and I look forward to hearing more good news!

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  13. MariaFebruary 16, 2011 at 9:57 AM

    I spy an amazing little boy! GO TY!! You continue to wow us all every day. Much love and many prayers continue from IL.

    xoxoxo,
    Maria

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  14. mommyto4qtsFebruary 16, 2011 at 10:21 AM

    Thinking of precious Ty and his family again today as I will from this day forward....Only three more days until homecoming!! YAY!! Give lots of cuddles and kisses to that beautiful Superman of a boy!!! XOXOXOXO

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  15. AnonymousFebruary 16, 2011 at 10:24 AM

    We are including Ty in our personal daily devotional, and will also add him to our Church Prayer List, at Oak Grove Baptist Church in Elmo Tx. Keep looking to God, our provider.

    ReplyDelete
  16. Bella StevensFebruary 16, 2011 at 10:45 AM

    Your an amazing little boy with amazing parents.. Together YOU can kick Cancers BUTT! Cure it! Go away Cancer!

    ReplyDelete
  17. AnonymousFebruary 16, 2011 at 11:02 AM

    I think everything I was going to say has been summed above. Like millions of others, I too learned of your story through AOL. My thoughts and prayers are with you all. God bless.

    ReplyDelete
  18. AllieFebruary 16, 2011 at 1:04 PM

    He sounds amazing (: All of you together will win this fight!

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  19. NicoleFebruary 16, 2011 at 1:52 PM

    *****PLEASE READ BELOW****
    Cindy,

    I recently started following Ty's story and am verkelmpt by the incredible strength of all of you and the bravery of your son. My son was recently diagnosed with Type 1 diabetes at three yrs old and I understand the unwavering desire to overcome the fight of adversity and search the ends of the earth for a cure. My father is the CEO of a company called ProGenaCell. They help facilitate a way for America patients to receive life saving stemcell treatments in Europe and South America. He recently flew over with a biy named Cody Day. Cody was diagnosed with a brain tumor when he was nine years old. It briely went into remission and has now come back at age 15. He went to Germany for 6 days and received intravenious stemcells. Miarculously his parents have already witnessed progress in his speech, motor skills and ability to walk. I beg you to considergetting in touch with my father and trying ONE more thing that may save your son. I'm planning on taking my son over for a transplant to see if I can stop his diabetes.

    http://www.progenacell.com/

    Google: Cody Day cancer Patient to see his story.

    ReplyDelete
  20. MichelleFebruary 16, 2011 at 2:44 PM

    I recently started following your blog. I am amazed and inspired by your strength. You are clearly an amazing family that has the world coming together to pray for a cure for your amazing little boy. Lets pray that the power of prayer and well wishes can help Ty win this fight! We can do this together:)
    Stay strong! Michelle

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  21. pvcabcoFebruary 16, 2011 at 3:12 PM

    God kids are so amazing aren't they? I am SO glad to hear he is doing so well. I just started reading your post yesterday as well and I am praying little Ty makes it through this whole thing and he'll grow up and not even remember any of this. Thank you so much for sharing. You are an inspiration to us all really! Take care of yourself and stay are strong!

    ReplyDelete
  22. NicoleFebruary 16, 2011 at 3:23 PM

    *****AGAIN PLEASE READ BELOW*****
    Stem Cell Treatment for Cancer

    Special Guest Speaker

    Ulrich Friedrichson, M.D., PhD.

    An internationally recognized physician, scientist and oncologist, who has used human and animal stem cell transplants for treating solid tumors since 1976. Dr. Friedrichson attended high school and college in Indiana; later receiving a PhD degree in biochemistry and human genetics from University of Tubingen, and medical degree from the University of Heidelberg. Dr. Friedrichson maintains a large private practice outside Stuttgart, Germany and has treated in excess of three thousand solid tumor patients since 1980.

    He is speaking in Newport Beach, California on February 27th from 4-7:00pm.

    ReplyDelete
  23. Colleen RosenFebruary 16, 2011 at 4:40 PM

    HOME ON FRIDAY HOME ON FRIDAY HOME ON FRIDAY HOME ON FRIDAY.

    I'm amazed but I'm not going to say I'm surprised with Ty doing so great. He is a GREATER than GREAT in all that he is and my expectations are therefor 100% for him to amazeder than amaze us all. I expect some serious amazement SERIOUSLY. I can just feel it and sense it as if it's already there..because it already is!!! Feel it! Join it! Expect it! WOW!

    ReplyDelete
  24. Kathy BrunelleFebruary 16, 2011 at 5:27 PM

    I AM SO SO HAPPY.... BUT STILL LETS TAKE ONE DAY AT A TIME!!!! WE JUST KEEP PRAYING. OUR HEARTS BELIEVE THAT TY WILL FIGHT! HE IS A FIGHTER!!! AND SO MANY PEOPLE ARE PRAYING!!!!! WE LOVE YOU AND YOUR FAMILY SO VERY MUCH. TY HAS BEEN AMAZING, YOU ALL HAVE BEEN IN OUR THOUGHTS AND PRAYERS!!!!!

    ReplyDelete
  25. LalenaFebruary 16, 2011 at 5:56 PM

    Ty, you are a very special angel! I'm praying for you and your beautiful family too! May healing, strength, and peace always be yours!

    ReplyDelete
  26. Rosalyn GaztambideFebruary 16, 2011 at 9:25 PM

    Ty, Cindy, Lou:
    Hola!
    We are happy to know that besides all the openings, etc. he is doing well!

    We will continue to pray for the miracles of a GREAT EASTER! Spiderman searching for chocolate eggs soon!

    We love you VERY MUCH!

    Remember:
    A garden is a grand teacher. It teaches patience and careful watchfulness; it teaches industry and thrift; above all it teaches entire trust. - Gertrude Jekyll

    ReplyDelete
  27. RavenFebruary 16, 2011 at 9:42 PM

    GOD BLESS TY HE IS MY HERO. HE WILL AS WILL HIS FAMILY BE IN OUR DAILY PRAYERS. DIANE WALSH

    ReplyDelete
  28. Kimberly HFebruary 16, 2011 at 10:39 PM

    I came across your story on aol yesterday, it moved me to tears and touched my heart to no end. I have been thinking of Ty every minute since and I am speading the word so that prayers are sent from everyone everywhere. I fell in love with your son and his strength. And you as his parents are an inspiration! xoxo

    ReplyDelete
  29. AnonymousFebruary 18, 2011 at 9:51 AM

    Go Ty, Go!! He has my vote for President one day. My prayers and throughts are not absent of Ty. I have asked God to lend him my Guardian Angel to give him more strength. You area all not alone. I will continue to pray. I love that he had pizza.

    ReplyDelete
  30. UnknownMay 10, 2011 at 8:11 AM

    congrat Ty, strong angel.

    by the way, please, can Anyone show me how to contact this miracle-worker-doctor???i need him to cure more children. thank you and god bless.

    D.d.

    ReplyDelete
  31. nemoMarch 2, 2012 at 11:47 AM

    Such an amazing boy! But that's of little surprise given his amazing mom and dad. Praying for you every day! Miracles do happen.

    Twin baby cribs

    ReplyDelete

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