Our hearts are bleeding, our souls broken
The news we received following Ty's MRI was devastating. It was not the miracle MRI we were praying for. I'm sorry for keeping everyone on pins and needles, but I needed some time before posting this update so I could digest everything and control my emotions. I will keep it short tonight, and I hope to have more time over the next couple of days to share with you all that is swimming in my head.
When we were told that Ty had a tumor, it was the most horrifying news imaginable... but hearing that his cancer has metasticized and that there is no chance of a cure has completely crushed our souls, stolen the air from our lungs and shattered our hearts into a million pieces. It has been a struggle just to keep breathing. I have to sigh constantly just to catch my breath.
We have already arranged for on-call hospice care at home and we are setting up a trip to Disneyworld next week through the Make a Wish foundation. We want this time with Ty to be magical. We are told to be prepared for as few as four short weeks, or as long as three months. During this time at home, Ty has been amazing. He believes he is getting better with every day. He says, "I peel bedda all-weddy!". He told me just yesterday that he's ready to visit his school in Long Beach and find another school near his new home. I struggle to smile without tearing up and I tell him, "of course." He has been so happy, his belly laughs keep me smiling despite my broken heart and my throbbing head.
Today we went to cut down our Christmas tree. Ty picked out the most perfect tree I've ever had in all my life. He is so proud of his tree, I can't wait to brag on his behalf by posting some pictures. We are living every day to it's fullest, and making sure that Ty is treated like the perfect, most special little boy that he is. I want you to enjoy and appreciate every minute of his time with us through photographs, so I promise to share photos of his new superhero room and the pictures we took with Spiderman, Batman and Superman the other day. I will also share pictures of him at the tree farm and with his choo choo train under the tree and so much more. Next week we will make a trip to Long Beach to visit with Ty's favorite Eva, with his beloved Sissy and Colleen, and all of our friends and neighbors. In the meantime, here is one I took with my phone this morning. The loves of my life :)
When we were told that Ty had a tumor, it was the most horrifying news imaginable... but hearing that his cancer has metasticized and that there is no chance of a cure has completely crushed our souls, stolen the air from our lungs and shattered our hearts into a million pieces. It has been a struggle just to keep breathing. I have to sigh constantly just to catch my breath.
We have already arranged for on-call hospice care at home and we are setting up a trip to Disneyworld next week through the Make a Wish foundation. We want this time with Ty to be magical. We are told to be prepared for as few as four short weeks, or as long as three months. During this time at home, Ty has been amazing. He believes he is getting better with every day. He says, "I peel bedda all-weddy!". He told me just yesterday that he's ready to visit his school in Long Beach and find another school near his new home. I struggle to smile without tearing up and I tell him, "of course." He has been so happy, his belly laughs keep me smiling despite my broken heart and my throbbing head.
Today we went to cut down our Christmas tree. Ty picked out the most perfect tree I've ever had in all my life. He is so proud of his tree, I can't wait to brag on his behalf by posting some pictures. We are living every day to it's fullest, and making sure that Ty is treated like the perfect, most special little boy that he is. I want you to enjoy and appreciate every minute of his time with us through photographs, so I promise to share photos of his new superhero room and the pictures we took with Spiderman, Batman and Superman the other day. I will also share pictures of him at the tree farm and with his choo choo train under the tree and so much more. Next week we will make a trip to Long Beach to visit with Ty's favorite Eva, with his beloved Sissy and Colleen, and all of our friends and neighbors. In the meantime, here is one I took with my phone this morning. The loves of my life :)
We were at Cherrywood last night and found out the devastating news about Ty. My heart is breaking for you. I think it's amazing that you have the energy to plan a trip to Disney World and figure out what to do over the next coming weeks and months. There are no words. We are thinking about you every day.
ReplyDeleteOh Cindy and Lou. Emilio and I, our hearts are broken for you all. There really are no words. Just please know that we think of you and pray for you all every day, and that we are always here for you if you need anything ever. xo
ReplyDeleteI love you guys.
ReplyDeleteI hate this so bad! That baby is too sweet and it's not fair! I love you all so much, I'm so sorry!
ReplyDeleteIts very very hard for me to even think about what to write in between my tears......I just want you to know we love Ty and your whole family so very much. This morning in church we made a circle and prayed for Ty. Afterwards the Pastor who started the prayer told us that TY wasnt such a common name, but he has a son also named Ty. It put a little smile on my face. You know after my sister Mary started The Guardian Brain Foundation 8 years ago... I never really got involved.... this was my first year, even though I live in Fla. I will always keep our Foundation alive!! I put my heart and soul into talking with people, collecting donations, and also got emotionally involved.Mary said it was normal...... but for me TY became an everyday thought, and I pray every morning on my way to work for him... I even have a candle lite for him in my bedroom... There are not to many words to say to you, except Ty is in my prayers and God is with him and your whole family.... MAY GOD BLESS YOU ALL THROUGH THIS VERY TOUGH TIME. LOVE ALWAYS, YOUR FRIEND KATHY BRUNELLE
ReplyDeleteI have been struggling to write because of the lack of words. I have rather tears of sorrow and my heart throbbing of pain. I wish I can make miracles for you but all I can do right now is pray for your strength and know that GOD is watching over Ty and your family.
ReplyDeleteWe love you all and we will always be here for you. XOXOXOXOX
Cindy & Lou - My heart is broken. I will continue to pray for you, Ty and Gavin every day. I wish there was something I could do or say to help. I pray that God gives you the strength to embrace every moment.
ReplyDeleteLove,
Maria
Cindy & Lou
ReplyDeleteBobby & I are heart broken. He is such a cute little boy it is not fair. I've never known anyone as strong as Ty he is an inspiration. I consider my self very lucky to have been able to meet you guys and your adorable kids. Ty will be forever in my heart. Cindy you are a great woman the way you have kept your family together is be on words. Ty and Gavin are the luckiest boys to have such an awesome parents. Know that you guys are always on our minds.
Love,
Vanessa
Debbie,
ReplyDeleteYour Blog made it's way to me from my sister. I can not even imagine the pain you and your family are suffering right now! I really was praying for a Christmas Miracle for you and your Family! Your nephews are so Beautiful! This story will be a reminder to me to never let a day go by with out appreciating my children's health! It was really nice running into you on those school benches! You are such a beautiful, strong person! God Bless you and your Family!
XOXOXO Sue
Thinking of you..
ReplyDeleteWith love,
Susana and Chris Annunziata
My heart aches for all of you and I wish I could take all your pain away. There aren't any words that can be said that feel right. Just know that we love you, we are here for you and we are always thinking of you and praying for your strength. You are an amazing family. Ty and Gavin are so lucky to have you both as parents.
ReplyDeleteWith all our love,
Steve, Renee, Corey & Tyler
Dear Cindy and Lou,
ReplyDeleteMy heart is breaking for you and your family. I wish there was something...anything I could do!!! This is just unmimaginable. I hate how cruel life can be!! You both are amazing parents!! All my love, thoughts and prayers with you always.
Love, Raena
Dear Cindy & Lou-
ReplyDeleteOur whole family is praying for yours...
With all of our love and faith- Eileen, Thomas, Henry & Finn Gibbons
Dear Cindy & Lou,
ReplyDeleteYour family is in my thoughts and prayers everyday.
Love,
Alsina
Dear Cindy & Lou ~ ~
ReplyDeleteIt makes so sad to hear news like this.... such a beautiful soul just taken away far to early . It also make me feel the beauty in us having us... too comfort and share in our grief and time of hardship.. I shall grieve with you Cindy & Lou .... compassion.... Love ...
Billy ~_~
My heart is breaking; I cannot even imagine how hard this is for all of you. May God grant you the strength of body and soul you need as you continue to love your little fighter through this.
ReplyDeleteIn our prayers,
Julie Regoso-Gardner & family
Although we don't know one another, as a parent of an October 07 baby myself, I am sending lots of healing thoughts and prayers to you and your family...Ty is a courageous little boy, as all of you are.
ReplyDeleteThe Rawcliffe Family
Your courage and strength is an inspiration! I pray for your beautiful special sweet boy everyday. My god bless all of you. I hope you have many, many more pizza filled afternoons.
ReplyDeleteLove and prayers,
Julie Georgetti
I am Ty's cousin, Riley Introcaso, and had gone to New York for the holidays. While Ty was at Disney World, we went to his house and decorated it with tons of Christmas lights to make it as festive as possible! It turned out great! When Ty came home, all the decorations brought a huge smile to his face! I was lucky to be able to spend time with Ty. It was fun watching Ty sitting in his favorite Spiderman chair, watching a movie of himself being Spiderman while eating a whole package of bacon, his favorite food. When Ty went to open his presents, one of them was a Christmas wish present. Ty's mom then asked him what he wished for and he said, "he wishes that his cancer would go away, a wish we all hope comes true!!! I had so much fun visiting Ty and it is my Christmas wish that I will be able to visit him again. Our prayers are with you everyday! Love you Ty!
ReplyDeleteLove Riley
My heart goes out to you. I expect you've done so much research that you're about over-loaded already. But let me please encourage you to do one more search on "baking soda, maple syrup, cancer cure". Not expensive or difficult, and it can do no harm. Our family has had outstanding results.
ReplyDeleteShelly
I came across Ty's story through my local news. I had to come see his website. I have no words for your family except you are lucky to have such a handsome little fighter. GOD has blessed you with him and he with you. Keep fighting little man. There are so many miracles out in the world. I pray for YOUR miracle!
ReplyDeleteMichelle Gregory
I will light a candle for Ty today. I pray for him and your entire family!
ReplyDeleteWe pray that God~Jesus & their Angels would Bless~Heal & Protect Ty,
ReplyDeleteNO WEAPON FORMED AGAINST HIM SHALL PROSPER= THROUGH JESUS CHRIST STRIPES MAY HE BE HEALED (Isaiah 53)... Who will agree with me???
fight it =beat it = Go Ty!!!!
After reading this story I was left speechless and full of tears. He is a strong little boy that had to go through so much. My prayers goes to him and the family. Be strong !!! I believe you can beat this!!! Gos bless you little Angel. parents you doing a great job god bless you be strong!
ReplyDelete