Tuesday, August 6, 2013

Outer Space and Instagram

I was driving Gavin home from camp and he was talking away in the backseat.  I was preoocupied about the upcoming event (just 4 days away!!!), so I was only half-listening until I heard Ty's name and I asked him to repeat what he was saying.

"I am going to be a space man.  And when I'm a space man I will have a rocketship.  Like Ty's rocketship.  And when I am a space man I am going to fly all the way up to the brightest star and GET TY OUT!  Because Ty is not sick anymore."  That just might be the best idea in the whole world.  I so want him to go and get Ty from that star, too!  More than Gavin will ever understand.

I love that Gavin knows Ty is in the brightest star.  I love that he remembers going to see Ty "take-off" in his "rocketship" that one time (aka - the hyperbaric oxygen chamber).  I love that he wants his brother back and I love that he said it as though he was going to rescue him.  As he could pluck him right out of heaven and bring him back.  And, of course, it goes without saying that I absolutely hate every bit of it simultaneously.  Gavin misses Ty so much.  He is so lonely and his life is just so different than what I want for him. 

I want a busy, loud house, bustling with chaos and laughter and two boys chasing one another around.  Instead I have a quiet, clean and boring house.  And Gavin misses the way things used to be, even when our days were long and sad because of Ty's suffering, our home was so full of love, warmth and comfort.  Our family is simply incomplete without Ty - and without Mely, for that matter.  So much has changed and we will never be the same.  We are coping, though, and we find so much happiness in watching Gavin.  He is such a love.

Gavin is still such a funny kid and obsessed with super heroes.  He still loves to dress up, although I haven't had to go out in public dressed up in quite a long time.  I think he is feeling like he is too big to do those things already, and that makes me feel a little pang in my heart because my baby is growing up so fast!!  My mom came to visit recently, and she brought him a spiderman cake, just because.  Look at how big he is - and handsome, too!

The event on Saturday is going to be huge.  A true MESS FEST.  I can't even begin to tell you how happy it makes me.  Every single piece of this event has been inspired by Ty in one way or another.  It is everything he ever would have wanted in a party.  And party we will!!  If there is one thing I promise Ty every night, it's that we will continue to celebrate him forever and ever.  The Mess Fest will be one, huge, messy, funny celebration!  I hope he sends me a sign soon so I know that he is happy about all of this.
TLC Foundation on Instagram
We will be using the official TLC instagram (TLCFoundation) to post event photos and short videos, so please be sure to follow us!  If you can't be there in person, I think you will love what you see in the pictures.  You won't want to miss it!  www.instagram.com/tlcfoundation
That being said, it is time for me to share some other information about instagram.  This announcement has been a long time coming.  I have just been reluctant to share because I was hoping it would just go away.  The last thing I need is to invite more anger or drama into my life.  But it's been going on for so long, it needs to be stopped..... 
There is an account, SuperTy_Campbell, that is counterfeit.  God only knows what would possess someone to make pretend that my pain and heartache is hers.  This instagram account claims to be me, Cindy Campbell.  I have never had an instagram account of my own, and I don't know for sure who this person is or why she is doing this.  The truth is, I looked at the account a few times over the past few months and the photos she posts are beautiful!  I was even a little reluctant to shut it down because I don't do instagram and liked that someone was giving Ty a presence out there - but the fact that she is posting AS IF SHE IS ME is just bizarre and completely unsettling.  She has hundreds of followers!  All I want is for her to shut down the superty_campbell page, but before doing so she owes us all an apology.  She should be forced to come clean to her followers and encourage them to follow tlcfoundation instead.  She needs to be held accountable and to understand how serious this is.
People can't continue to hide behind the internet!  To create false personas and make pretend to live a life that is not their own!  This is beyond dangerous.  People who do this need to seek help.  First it was the "remembering reilly" blog, now the instagram.  I am not the only one who this is happening to, either.  It is all just so unnerving and completely crazy.   What is wrong with people??  If you have posted to this account, thinking you were talking to me, all I can say is "I'm sorry."  I never saw your posts.  I didn't really know this was all going on.  I am just so grateful to the Warrior Eli Hoax group - a band of loving and dedicated individuals who have become internet watchdogs for dangerous and illegal actions such as this.  They have been so supportive to me through all of this, and beyond. 
Time to come clean, whoever you are.
Most importantly, please know that I forgive this person.  I forgave the person for the crazy counterfeit blog, too.  They are mentally ill and need help.  But that still doesn't make this kind of behavior okay.  It is dangerous, hurtful and borderline psychotic.  I have enough pain in my life and every day I struggle to put one foot in front of the other.  This is cruel whether the person realizes it or not. 


  1. I LOVE that Gavin is going to rescue Ty from the stars - the best good brother in the whole wide world!! Love the pics - and I sure hope he's not outgrowing his superhero phase yet!!! Christopher is just entering it and I love how excited he gets when he's dressed up as one or sees other kids dressed up as one - it melts my heart. Here's hoping Gavin buys in for a little while longer!

    I'm so sorry about this instagram thing!! Of course I followed that account thinking it was yours - in fact the description SAYS it's Cindy, mother to Ty. I can't believe someone would go online and pretend to be you - well I can believe it - but I can't understand why. I hope this person does the right thing and pulls the account down. That's definitely a headache you DON"T need.

    Can't believe the Mess Fest is only 3 days away!!! So excited and can't wait to see a whole mess of kids getting messy for Ty. Going to be an amazing day and I'm happy to be a part of it.

    Thinking of you guys always -

    Donna T

  2. I can't imagine how you must feel looking at the fake Instagram account?!? What is wrong with people?? I just looked at it and the person doing this clearly takes info from your blog posts and uses it to post as you. Why anyone would want to do this is beyond me - they have to be very sick individuals and are starved of attention. How hurtful to you and your family. Stay strong, Cindy. I am so sorry you have to deal with this.

    Sweet Ty is forever in my heart, as are all of you. God bless.

    Latham, NY

  3. I'm glad YOU are such a forgiving person, because this makes my blood boil!!! How DARE someone pretend to even begin to know how you feel, what you've been through, and most importantly, pretend to have given birth to, loved, & cared for Ty!!! Ugh! The audacity of people astounds me!!! This is sick! I don't instagram, but I might make an account JUST to give this lunatic a piece of my mind! I mean, looking at the page, she not only posts pretending to be you, but she has "conversations" with people and these people think they're actually talking to YOU!! She "apologized" to someone as YOU - Lord only knows what for!

    YOU and ONLY you are Ty's mother!

    Okay, enough ranting. Thanks for letting me vent out my frustrations. And, YOU are a MUCH better and stronger person than I am!!

    You are my hero.

  4. Wow - that is so crazy on the fake Instagram account. That is crossing a line for sure. I hope that it doesn't bring you down. I'm looking forward to watching the mess fest unfold.

  5. I just reported the account - hopefully everyone will do the same. So Sorry Cindy, some people really need help!

  6. Wow...what is wrong with people?? I just dont understand!!! I hope the page gets taken down, thats so hurtful.
    On the brighter side...looking forward to the mess fest this weekend! Ty will be smiling down at you for sure!!

  7. Honey, that is nuts. Could be a guy too, for all you know. It might be informative to read up on the psychology of what might make a person do that. I guess, you have been brave enough to put it all out there, unfortunately tou have to tolerate a few flies landing on you, just brush them off. (kind of like a champion athlete leading a race has to deal with attacks on their lead.) The person needs help. Good luck w/your event.

  8. Oh baby Gavin, you are the best medicine for your mom's heart. Your thoughts are so wonderful, I hope that you will one day succeed in yur rescue mission of Ty :) When I saw the picture of Gavin in a cape my heart almost dropped because I just hoped for a second that the boy in a costume behind him is Ty. Wouldn't it be soooo cool that it was alla cruel joke and Ty is here and okay. That is the only hoax I would be okay Cindy. Otherwise it saddens me that people's life are soo freaking perfect that they need to steal someone tragedy and to make their own. If you life is so great how about finding a soul that you can really help with instead of creating a fake sad story about you.
    Anyway Ty this just shows me that your perfect beautiful face and your short but but full of amazing memeories life captivated so many people and their connection to you sometimes goes overboard but at the end we all feel so connected to you and love you so much like you are our baby. I wish I would have met you even if only for a moment.

  9. oh my goodness, how awful people can be. I am so sorry to hear this about the fraudulent site. I hope it is closed down asap.
    But on a positive note, I wish you the very best with the Mess Fest. I would have loved to bring my kids ... we live in Ulster ... but we are leaving town for vacation that day. Have a wonderfully messy day. I'm sure there will be many exhausted, happy children at the end of the day. And I hope it brings you and your husband some joy as well.

  10. I hope your Mess Fest is a huge success and Ty gives you an awesome sign that shows how proud he is of you! You are an inspiration and I wish you the best always ❤❤❤

  11. I remember seeing a fake Ronan fb page pretty recently too, pretending to be his lovely mama. I have no idea if she knows of it, as it thankfully has few followers. It is disturbing and not healthy behavior for sure. Hopefully your imposter gets shut down soon and seeks help for whatever issues they might have.

    On a brighter note, your Gavin is too cute. Him and my 3 year old share a love of superheroes. His determination to go get Ty is so sweet. I am glad that you and Lou have Gavin to bring joy to your lives.

    Wishing you good luck and loads of fun on Saturday. Can't wait to see pictures and updates. :-)

  12. Cindy, I can't wait to hopefully see pictures after the Mess Fest! TY is definitely so proud. You are the most amazing Mom and person. No wonder Ty is so special!!

  13. Cindy, I also saw a superty07 on instagram with your sweet boy's pics. Im assuming that is a fake too?

  14. The Mess Fest is too close now for us to lose site of the big picture! FOR YOU TY! ANYTHING FOR YOU :( :( :(----- :)--

  15. Wow I didn't know about the fake instageam how crazy did she ever come clean