Monday, October 15, 2012

Sweet Dreams


Ty's hair is just pure awesomeness.  We don't do anything to style it, he is just a natural hipster :)  Then there's those slightly parted heart shaped lips when he's sleeping... they are more tempting than the reddest, ripest apple.  How can I resist not pressing my own lips against that pucker right there and stealing a smootch? Taking in the sweet smell of his warm breath? It's as delicious as it was the day he was born.  Not a day has gone by that I haven't kissed those sleeping lips since.  What will I do???? 

It's been a long day and I ran out of time to write much, but I did want to share just one quick story behind his smile of the day so you know that all is well with the Campbell's. 

Ty has been having it pretty rough, so we asked Nana to take Gavin overnight last night, and then he spent the majority of the day with Aunt Debi and his cousins today.  As much as I love and miss Gavin, of course, when he is home the dynamic of the household changes drastically.  He is boisterous and full of energy and he just wants us to play, play, play.  When Ty is feeling crappy, that can become a problem.  I stress over trying to keep the environment around Ty as quiet and serene as possible, without offsetting Gavin's natural need to be a kid.  This morning it was perfect.  A lovely morning with Lou and I surrounding Ty with love and silence while Gavin lived it up at Nana's house.  Ty was neither happy nor sad.  He seemed comfortable and rather sleepy all day, but very peaceful and it was nice. 

In runs Gavin at the end of the day.  Full of energy.  I played supergirl while he was superman, I played Robin to his Batman, and he wanted me to be Hulk when he was spiderman.  When I put on the hulk gloves and began "smashing" up the place, that is when I saw Ty break into full-blown smiles for the first time all day.  It made my day, as always, and I couldn't stop myself from punching everything in sight to keep his interest.  The floor, the walls, the chair, Gavin!  Ty was eating it all up and that made today a happy day.  I wasn't able to capture a photo because I was too busy playing when the smiles finally came, but trust me, they were priceless.



Ty's sores seem to be getting a little better.  They still pose a huge challenge, but Lou and I are doing our best to keep it under control and so far, so good.  Please pray for a good night's sleep for everyone, especially Ty.  No more nausea, no more head pain, no more congestion... and a complete miraculous recovery :)  Thank you for all of your hope and prayers.


91 comments:

  1. Ty: You are pure awesomeness!!! I love your hair and sweet lips. I wish I could smooch you, too. I hope you have a wonderful night. Your mom looks hilarious with those giant green fists! I'm glad you smiled at that. I hope the hole in the pillow relieves your decubitis sores. I know your mom and dad will take great care of you. I love you and pray for you daily.

    Laura in Texas

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    1. We are praying for Ty' s miracle everyday...your words are so powerful and full of love...it's overwhelming how many people love your little Ty...God Bless him and protect him always...

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  2. You are so beautiful and Ty looks just like you, you are all so special and beautiful. Lord hear our prayers.

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  3. Our family does hope for a very restful night, a very peaceful night .. may his angels keep his head pains away .. :) Aiden says for Ty to get bettr so they can play Spiderman && superman .. Aiden && Jr say luhh u Ty Ty .. get better .. night night .. sweet dreams ..

    love

    the brewington

    Aiden ((3)), Jr ((1)), && Sofii

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  4. Sleep tight little one we are thinking of you as we always do with prayer and hope! Have a peaceful nights sleep and dream of all the fun things you love to do. We are still calling on your angels to bring a miracle your way. We love you Super Ty especially those sweetheart lips and punk rock hair style! Kisses & hugs to you Super& Gavin and strength and peace for Mom & Dad xo. Love Janet & Jayden

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  5. I can picture it now! The things we will do for a smile. It makes me happy to know that you had that moment today.
    I saw a video of you linked through my friends fb page. It showed you and Lou with Ty. Ty was having a moment where he seemed he needed to cough. You picked him up and pat him on the back. You were so loving and so calm. I admire that about you. I get very nervous at things like that and sometimes feel like an unfit mother. Like the time my little Charlie had croup and was barking in the middle of the night. I was a mess and felt so helpless. God bless you for your bravery and your patience.
    The video was nice to watch. It was nice to put a face and voice to you. You have a beautiful smile. Your smile seems effortless and oozes with a sort of peacefulness. Makes me want to smile more.
    Thank you for sharing Ty and your family with the world. I'll be praying for the miracle!! Xo
    Emma from Los Angeles

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  6. I'll never stop praying for Ty Cindy & Lou.....he's such a fighter - he makes me a stronger person, a better person. So happy to hear he got a kick out of Mommy and Gavin being silly. I really want nothing but happiness to surround your house all the time. I know that's not realistic and in my heart I know that Ty is in pain - I wish I could take it all from him. I'm glad you and Lou have been able to help his sore - praying that it heals quickly for him. Such a nice picture of you - it's easy to see were Ty gets his great looks and that amazing hair - with you and Lou as parents how could your kids be anything but beautiful. Wishing you all a good night's sleep. Sweet dreams Campbell family.

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  7. It is wonderful to hear that Ty had another moment today where he was able to smile, that is some thing we all want to hear and it is a big relief when we read that he was able to do that. Words can not express how much Ty means to so many of us and I just wanted to remind you of that tonight. God Bless Ty and the Campbell family!!!!!!!

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  8. Always praying for you and Ty, and for Ty's miraculous recovery. Thank you for sharing your beautiful baby to us. He really made a difference in my life, made me cherish my own son so much more, and believe me I already thought I cherished him so much before I even knew of Ty. I admire your bravery Cindy :) Ty is so lucky to have you, and of course you, him. Just know that people are becoming more compassionate, kind, and loving because of your sweet little boy. May God always be with your family

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  9. Praying for all of you.. thinking of Ty all day and holding out hope for a miracle
    God bless you guys
    Michelle

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  10. Sleep well little guy! Hope you all get a comfortable night and well rested...so happy to hear the sores are getting better, hope to see some big smiles tomorrow. As always praying for comfort and a miracle. Much love from Myrtle Beach <3

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  11. IN CONSTANT PRAYER FOR A MIRACLE MOMMA!!


    ~Michelle, North Ga.

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  12. I love you,Ty! Praying everyday for your miracle!
    Marcia, CA

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  13. Praying for you sweet Ty. Have a restful sleep and get well soon! God bless you!

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  14. Sweet Ty -

    I am so glad you had a restful day yesterday, and a fun evening. I hope last night was quiet and calm, too. I think of you every second and hope that you are not in pain or scared. I hope that you feel surrounded and protected by the love of the thousands of strangers who carry you in their hearts, now and forever.

    I was struck yesterday by the beautiful symbolism of TLC's release. While I wish every day for your healing and health, I also know that is challenging some days to be bound to your perfectly beautiful, but burdened little body. I found myself imagining that, if the miracle of earthly healing doesn't come, the miracle of being released like TLC will - that your spirit would fly up on the wind and soar above the Earth, looking down at all of us who love you. It was comforting somehow to think of you like a mighty red-tailed hawk, gliding along the Hudson...

    Whatever may come, I hope you and your family know the world is such a better place for your being in it.

    Love and peace, always.

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    1. "Those who wait for the Lord will gain new strength; they will mount up with wings like eagles, they will run and not get tired, they will walk and not become weary." Isaiah 40:31
      Xoxoxo

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  15. So great to hear you & Lou had a nice day with Ty and that Gavin had a nice day too. Will never stop praying for a miracle and for peace and strength for everyone! God Bless you all! Deb <3

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  16. I have only just learned of Ty's fight a few days ago through the Australian press. I have to say that I am already in love with Ty. I am so sad to hear how sick your little boy is but I am joining the thousands of others and praying for a miracle, because if anyone deserves one it is Ty. He is such a beautiful little sole and such a gorgeous boy, life is just not fair. I cannot even imagine how you can function as you deal with this. You must all be so strong.
    I would love to know what Ty likes and I would love to send him something from Australia; is there a postal address you can publish?
    Many thanks. Prayers and love for you Ty.

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  17. A beautiful sleeping picture of Ty. Melts my heart that he was laughing yesterday - that's what little boys should be doing, laughing and having fun. Cherish these moments, as I know you will. In constant prayer for Ty, and hope he has another good day with more smiles!

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  18. Exactly 5 years ago today I was diagnosed with Multiple Sclerosis... I was horrified with the diagnosis and what it would do to me and my 2 boys. After hearing about Ty and his struggles I have completely changed my outlook about everything. I pray everyday and night for God to show himself through a Full Blown Miracle for Beautiful Ty. I offer up any and all suffering I endure from my MS for Ty's cure ! I have never seen such strength as Ty's and your Family's before. May God Bless you, your beautiful family and your precious Ty !

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  19. So happy to hear he had a good day and his sores are improving. And so happy he had some more of those beautiful big smiles. It melts my heart to know he has his happy moments still. Will keep praying for a full recovery and you all have peaceful sleep. God bless you all.xx

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  20. The Vecchione FamilyOctober 15, 2012 at 7:34 AM

    Keep smiling Ty. Praying always for you all. God Bless.

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  21. Gavin seems so full of energy...perhaps he's playing twice as hard so that at least half of his fun will rub off on Ty! I'm so glad to hear all of you had a playful day. I pray you will have many more...all of them with Ty joining in on the fun. Best wishes for another day full of blessings for the Campbell family.

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  22. Cindy we will always be praying for you and your family! I was so happy Ty had a smile it made my morning. I can’t stop thinking and praying for a miracle for Ty. Thank you for sharing him with us and by sharing your story you are changing people’s lives. I wrote to you once before, my son will be 3 and he was diagnosed with a rare cancer a few months ago. You are so brave, compassionate and a wonderful mother and human being. You are helping us with your strength. We are sharing Ty’s story with everyone. May God bless you and your family!
    Lisa – Long Island

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  23. Hi there Cindy. I came across your blog and website via my email news. I am in Australia. The internet and global village certainly opens up the world for us to see. Thank you so much for sharing your life and images - your ups and downs and the journey with Ty and your family. I am sending good energy to you all. I do pray for a miracle too for Ty. You are such a wonderful Mum to Ty and Gavin. Please stay strong and give them all a hug from me from Australia. If you have a postal address I would like to send something for Ty. Do you think Ty would like a kangaroo, a koala, a platypus or a crocodile? Best wishes from Heather in Darwin, Australia xoxo

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  24. I started sharing this journey with you 2 days ago and now I'm in, I can't stop wondering how Ty is doing through the day and night. I'm Hoping that you are getting rest and that there are so many more happy moments with brilliant smiles and that your husband and youngest baby are coping ok. I will pray especially for a peaceful nights rest for all of you with no complications and always for a miracle for Ty, blessings and love from Jas, Australia

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  25. Cindy, you are such a beautiful person inside and out. Please know that you have touched the hearts of so many that not a moment goes by without prayers for you and your family from around the world.

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  26. Awww sooo glad he had a great day! Thinking and praying about Ty and your family daily! Keep fighting you precious, sweet adorable boy! Lori, Yonkers

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  27. Hi Cindy, Just wanted to let you know me and a friend of mine went to the bird release Saturday. What a lovely day. I know how you have said Ty loves Halloween and Christmas. I got two books, Halloween Hide and Seek and a Christmas book. Both are short stories and the Halloween Hide and Seek book makes fun sounds. It's been a favorite of my kids I couldn't resist getting one for yours. I saw Gavin saturday (knowing that picture from the blog) and handed the books to Lou. I hope the Halloween book makes Ty smile. It never fails to make my kids laugh.

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  28. Morning,

    My continued & constant thoughts & prayers are with Ty & all of the members of his family.

    Thank you for sharing your family's courageous & heartbreaking journey. Ty, is my hero & will always have a very special place in my heart. Ty is a wonderful & very courageous boy.

    God Bless.

    - Swannee

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  29. Continuing to pray and having the Super Boy in our hearts. Also glad to hear that Gavin had some fun with his Nsna and you were able to have quiet time with Ty! Hope you all had a peaceful evening!

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  30. What a beautiful picture of Ty sleeping... Could he be anymore perfect! What a strong, courageous yet simply sweet and awesome little guy you have. God gave you one of his best gifts the day Ty was born...he must have known what amazing parents you would be to the best good boy in the world ❤ Always thinking & praying for your family!!!

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  31. Hoping you all had an easy night. Prayers go without saying! Love that you are still able to make Ty smile! Little boys....they are wonderful aren't they?!

    Jennifer, Illinois

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  32. keep kissing those beautiful lips cindy!!! And I LOVE this picture of you kissing him after his bath from your last post... I have a few great pics of me kissing Tanner like that and when I look at them I feel like it takes me back there, to that wonderful time when I could breath in his breath.

    Praying for rest, comfort and a million blessings always...

    and ps - I still have my babycenter subscription for Tanner too... I get emails (sometimes it is painful) saying "your 4 year old this month"... sometimes I read them, sometimes I don't... but I keep subscribed... b/c I always want to be reminded of my baby. I like to think these milestones they mention are all the things he is doing in heaven. And since he couldn't do them here, that gives me comfort.

    you are always, always, always in our thoughts and prayers. xo

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    1. So sorry for you loss Melissa - may your beautiful boy Tanner be resting in peace.

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  33. Ty does have wonderful hipster hair! I'm so glad you and Gavin got a smile out of Ty today. I hope he had a restful and peaceful night. Prayers are without saying, especially for the miracle you all deserve.

    Allie

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  34. I keep praying every night for a miracle for Ty....and I pray for you, your husband and son Gavin.

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  35. Sending prayers and healing thoughts to the most beautiful and courageous little fighter in the world and his wonderful family.

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  36. Ty's courageous & heartbreaking journey has inspired me to become an active voice & advocate for increasing the general public's awareness of pediatric cancer & for increasing the funding for state-of-the-art children's cancer research.

    Ty will always have a very special place in my heart.

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  37. Hi Cindy,
    Here is some love from Singapore.
    Thanks for this site, I'm really touched by the strength and the willpower of Ty and the Campbell family. Ty, continue to stay strong, I will hold you in my prayers. Your smile, really reminds us, to really cherish what we have, to really cherish the people around us. To continue to smile amidst the obstacles we face in our lives. I'm so encouraged to be as optimistic as Ty. Cindy, your strength in going through this tumultaneous times with Ty, together with Lou, is commendable, I believe God has his plan for the Campbell family! And I look forth to the miracle befalling your family ! God bless you.

    Rebekah

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  38. These posts that you share your heart and soul with us are the saddest and most beautiful words I have ever read. Your words and your son have captured more than my heart. I talk about Ty whereever I go...tears flowing down my face as I share what you have shared with us. Work, family, parties, the salon....you and Ty are always on my mind and I feel the need to share his story with everyone. Thank you for helping me realize (when my patience is wearing thin) that my own four and six year olds are the most precious gifts I have. I pray for your perfect little Ty so hard, like so many others. Please God...please...just one more miracle.

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  39. Dear Cindy .Will pray for a Miracle and that TY will have a good day and night .Glad his sores seem a little better. Tell him he's some fighter and all are praying for TY and your family ((((((((()))))))) s n xxxxxxxxxxxxxxxsto you sweet TY love Gail

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  40. So glad you are ALL still hangin in there.I'm so glad you got to play with Gavin and Ty got to enjoy it as well. He is such a love. I am still praying you get you miracle and will never give up on Super Ty.Praying you had a peaceful uneventful night and got some much needed rest.God bless you and keep you all in his loving arms....Jean <3

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  41. Pictures of Ty sleeping, awake, smiling, not smiling - they are all purely magical. He has the face of an angel and no matter how you catch him in photos he exudes such purity. I don't believe there can ever be a bad photo of your little boy! It's wonderful that he was able to enjoy the play time you had with Gavin. I know as a mother you want to do everything you can to make sure your kids are happy. Cindy, you truly are a Super Mom in my book! You inspire me with every word you post and with every action you take. If I can be half the mother you are, I will have accomplished something! I pray your night was restful and Ty was able to sleep well. It makes my heart break when he hasn't been able to rest. I continue to hold you all in my heart and pray for each of you daily. Super Ty is fighting the fight and he WILL win! Much love to the Campbell family! xoxo

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  42. You are truly truly amazing parents .. I can never read your posts without tears falling down my face. I admire your strength and your courage, Ty is so loved and that is so evident, many kids never experience the true love you are giving to Ty. I pray for a miracle for little Ty, he has big things to do in this world, he has touched so many people and he is only 5 years old. I have a little girl who is almost 5 and it just breaks my heart that any parent has to go through what you are going through.

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  43. Ty is in my thoughts day and night as all of you. I truly want this miricle to happen for all of you. With all the love you have In your family you should never be apart. Love and prayers all the time

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  44. Dear Ty,
    I think of you and pray for you constantly. Today I collected as many red leaves as I could today for the kids I nanny to play with. I told them about how strong and brave you are. You're the strongest little man and I hope you are free of pain and nausea soon!

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  45. Cindy I am so excited about all the articles that Ty is in! I was just on your facebook page and read all of the articles and bawled at your video. It makes it more real and heartbreaking to see Ty like that. And you and Lou are just so wonderful with him. He couldn't have asked for better parents or a brother! The word is getting out there..I just pray that Ty can enjoy the day that this horrible thing is curable....he certainly deserves it!
    Jennifer in NC

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  46. I am a new reader (as of a few weeks ago, when a friend posted your blog link on her Facebook page). I have a son the same age as your beautiful Ty, and my heart breaks at your story. You capture his humanity in every word. His joyful spirit, his courage, his awesome hair and kissable mouth. I don't know your family, but I am growing to love Ty, as odd as that may seem coming from s stranger. You are a courageous warrior yourself, and I believe you and Ty are important messengers, reminding us to live and love fully and messily. I am praying for all of you to have the strength to endure. His life is a blessing.

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  47. It is not often that I read the comments, but lately I am finding myself here after reading the posts. What I want to say is how proud we are of you, Cindy and Lou, that you set out on a mission of awareness - to let the world know of how this hellacious disease is ravaging children. I have been following you here for the 2 years you have been writing and even the number of comments has grown wildly! In reading the comments lately, my heart bounds with pride for you in your accomplishments thus far of getting this issue to the forefront. What a task and yet, with your grace, persistent and consistent blogging, I now see that you have crossed seas and spanned to so many other countries! Prayers and love for Ty are coming from Japan, Germany, France, Australia, England and many other far away places! Just wanted to say how proud you should be. And thank you for giving us the most beautiful story about a most beautiful family to share with others. Change is some of the most difficult to inspire, but to actually create change and a shift such as you have is a wonderful gift to all of us. I just hope it offers some comfort to know that you have done that for all of us, strangers and known, amongst your loyal readers.

    On a side note, I was at lunch yesterday with a girlfriend who lost her niece almost a year ago to this horrifically formidable disease and she mentioned that your blog entry about Ty and his angels really struck her(yes, she is now an avid reader, as well) because her niece had similar experiences and our skin pricked up into goosebumps. How amazing that young, open hearts can see these things and know so much at such a young age? We realized then that there is something intangible about these young warriors that makes them even more beyond special and that could be the reason that so many strangers gravitate towards them and want to help, to stand beside your family and fight and pray and send positivity. Regardless, we all know that no matter how much the disease taints their bodies, it can never touch their souls or spirit.

    Glad there were smiles today. Wishing for many millions more smiles to come.

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    1. It comforts me when I hear stories of children of seeing angels or relatives, I know it's easy for an adult to make such claims, but for children to make claims like this, you know it is REAL. it comforts me to know there are beatiful spirits waiting to take them to heaven where they'll be happy and we'll be able to see them again. Thank God!
      - Rita

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  48. I've just recently become aware of you and your blog. I just have to tell you that you are an amazing person. You are going through an unthinkable experience, and yet you manage to find a positive in each day. I admire your strength, and I pray for your beautiful Super Ty!!!

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  49. How do you still manage to look so beautiful after the last two years of pure stress?

    Love you guys. Prayers, as always.

    Jamie

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  50. tout les jours je viens ici dans l'espoir de voir une nouvelle photo de tyler....le voir sourir, dormir,de prendre de ses nouvelles me fait du bien....j'ai tellement le coeur lourd et j'ai peur de lire une chose horrible! . le combat que vous livrer meme si il est triste,et terrible, ...il est aussi magique... toutes mes prieres vous accompagne...

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  51. You are such an inspiration & Ty is so lucky to have such a beautiful & strong family! All our love, thoughts & prayers are with ALL of you ~

    Love & Best Wishes ~
    Suzanne & family

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  52. Cindy, you are an amazing mother, your whole family is inspiring. I watched the video from The Journal News and the tenderness in which you hold Ty is so incredibly touching. I pray for his healing, for him to not suffer. He is an angel on earth and deserves none of this. my little girl and I pray for Ty every day. All of our love, thoughts and prayers.

    Lisa & Family

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  53. Such a beautiful boy. Thank you Ty & Cindy for inspiring me to be a better person and mom. I think about you often and am sending my love and prayers for all of you.

    Best,

    Nancy
    Los Angeles

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  54. I pray for Ty every day along with your family. The strength you all show is endless and when you recieve one of those precious smiles it makes it all worth it. Hugs and blessings to you all from Arkansas

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  55. We said our prayers at bedtime last night and will do it again and again and again. We are praying for your health and peacefulness Ty!

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  56. I only wish that Ty is not suffering, that he is not in pain, being as limited as he is. I hope he is calm and pray that we get a full recovery because thats the only thing that will make everyone's life complete.I watched video and rewatched video and his tiny fragile body and his difficutly breathing just kills me. its not possible for this bigger than life child to belong to this broken body and still smile. Oh please G-D I wont ever stop asking to heal him completely and to stop his suffering. noone would appreciate it more than Ty being able to run to his mama and to jump in puddles and play sports with his dad and to dress up in super hero costumes with Gavin. noone will appreciate it more and will do more for the world than Ty. We need this miracle for him so he will grow up and keep spreading the good around him and help find cure for cancer.

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  57. We just recently heard of your story, Ty is amazing, a Super Fighter and quite the inspiration. We are thinking only positive thoughts and praying so much for a miracle.

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  58. Cindy,
    Would any of these pillows work for Ty:
    SleepRight Side Sleeping Pillow - http://www.amazon.com/SleepRight-Sleeping-Pillow-24-Inch-4-Inch/dp/B000J1ZPJG
    (People seem to like it for the body relief it provides, but there're complaints of heat retention)

    As Seen on TV Side Sleeper Pro Pillow - http://www.walmart.com/ip/As-Seen-on-TV-Side-Sleeper-Pro-Pillow/15706091
    (I have this one. It has a little indentation for the ear, but I'm not sure whether it would accommodate the shunt as well. It takes a bit of adjustment to position just right, but overall it's comfortable).

    Orthoposture D-Core Standard Bed Pillow - http://www.qvc.com/Orthoposture-D-Core-Standard-Bed-Pillow.product.H179384.html?refType=IOFFER&refNumber=H174534&sc=H179384-DTLR&cm_sp=UPSELL-_-IOFFER-_-3&relType=IOFFER&refLocation=3
    (Only one review. Not a side pillow, but it seems to have some indentation in the middle).

    There're probably others you can find online, but I thought I'd save you some time to start with.

    Hope this helps. Lots of love, hope, and prayers.
    Irina

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  59. we pray every day for your family and that special little boy. Hoping you all have a good night.

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  60. Hello baby boy.. hope you are having a good day today along with your parents and brother. You are continuously in my prayers. My little boy, 8 yrs. old, also prays for you every night. I wait every night for your mom's updates on how your day went and we are very happy when we see that you are peaceful and had a good day. You and your family are such an inspiration to everyone around you, and I can safely say you have changed my life so much. I know I am a better person because of you. The small things really dont matter any more as they used to. Have a beautiful day ahead of you. All our love..

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  61. I heard this song today and had to fight back tears (was in a public place). Forever by Kenny Loggins:

    Now, while we're here alone
    And all is said and done
    Now I can let you know
    Because of all you've shown
    I've grown enough to tell you
    You'll always be inside of me

    How many roads have gone by
    So many words left unspoken
    I needed to be by your side
    If only to hold you

    Forever in my heart
    Forever we will be
    And even when I'm gone
    You'll be here in me
    Forever


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  62. Cindy, you are an incredible mother and a gifted writer. Thank you for sharing. There is beauty in the most unexpected places and you are finding it and living it so fully. In awe of your grace, a mother from Maine.

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  63. Keep stealing those sweet kisses..and soak up that beautiful breath....and know that people in Southern California are praying for you all. He is a cutie pie with some rockin hair. May Peace be with you.

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  64. Beautifully said Tatiana

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  65. I hope you all have a restful night. Sweet Dreams, little man, sweet, happy, puddle jumping dreams! <3 Lauren

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  66. Praying...always....

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  67. Cindy,
    I am in total agreement with you, Ty's hair is totally awesome!!! He is so perfect to look at. I can see why you just stare at him all day and eat him up. I am glad you had some quiet time with him and Lou. I can just see Gavin coming running through the door full of energy. He has such a pure spirit also. And the fact that Ty loved seeing you playing with Gavin just says so much about your family. I know you think that you haven't been around for Gavin as much because Ty needed so much care over the past two years, but just look at how much those two love each other. Through it all, you have kept your family together and strong. Here is hoping that you have lots more kisses on those sweet perfect lips of Ty's tonight and that he sleeps peacefully.
    As always, thank you for sharing your innermost thoughts, fears and hopes.
    Lynne--Massachusetts

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  68. I'm glad you had a good day today...may you have hundreds more! You all deserve it.

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  69. I have been observing a moment of silence & prayer on a daily basis for Ty & for his family, for his parents, Lou & Cindy, at daily Mass. God Bless.

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  70. Cindy:
    Ty is perfect! And we are praying very hard for a miracle!
    I love how you use those gloves to kick some ... Use them to knock out anything that come to hurt Super Ty. If it takes huge green hands then go for it!!
    On the other hand, a house in peace is important for someone who is fighting for his dear life, at least for some time of the day. Gavin also brings love and energy that is so important for you all. All in balance is awsome, cheer for you decisions.

    Christian and I have a song that would play, over and over on those nights that he would wake up for feeding.
    It is AEROSMITH - I DON'T WANNA MISS A THING here are the lyrics:

    I could lie awake just to hear you breathing
    Watch you smile while you are sleeping
    Well you're far away dreaming
    I could spend my life in this sweet surrender
    And just stay here lost in this moment forever
    Well, every moment spent with you
    Is a moment I treasure

    [Chorus]
    I don't wanna close my eyes
    I don't wanna fall asleep
    'Cause I'd miss you, babe
    And I don't wanna miss a thing
    'Cause even when I dream of you
    The sweetest dream will never do
    I'd still miss you, babe
    And I don't wanna miss a thing

    Lying close to you
    Feeling your heart beating
    And I'm wondering what you're dreaming
    Wondering if it's me you're seeing
    Then I kiss your eyes and thank God we're together
    And I just wanna stay with you
    Just stay in this moment forever, forever and ever

    [Chorus]

    I don't wanna miss one smile
    I don't wanna miss one kiss
    Well, I just wanna be with you
    Right here with you, just like this
    I just wanna hold you close
    Feel your heart so close to mine
    And stay here in this moment
    For all the rest of time

    [Chorus: x2]

    Don't wanna close my eyes
    Don't wanna fall asleep, yeah
    I don't wanna miss a thing

    Nothing like a mother's love. Tomorrow, Tuesday at 7:30 pm we will have a rosary at home for Ty. I hope all the good vibes and love are felt there.

    LOVE YOUR WAY FROM PR ------>>>>>>>
    Sleep tight!

    Remember:
    Love is composed of a single soul inhabiting two bodies. - Aristotle

    Love begins at home, and it is not how much we do... but how much love we put in that action. - Mother Teresa

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  71. God Bless the Campbell family! I think about you often and pray that everyday is a good one.

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  72. We love you SuperTy! Wishing you the best dreams and most peaceful of nights for you and your family. Praying for your miracle, please God hear us all.

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  73. There is so much love being sent to you and your precious boy and family. I hope you feel how much of an impact you are having. As a fellow cancer mommy, I wish I could come there and hug you tightly. Please feel the love and hope for peace that we all wish for you.

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  74. God bless your family always, you are an inspiration and an example of true love. Kiss and hold Ty the sweetest kindest precious little angel from above. Never let go of his hand and those beautiful lips. Cherish each and every moment - Every day is a gift. I lost my mom to cancer earlier this year and if I could have one more day just to hold her hand and tell her I love her one more time I'd give my right arm. I love you beautiful TY

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  75. My 9 yr old daughter believes her 4 yr old fish passed away yesterday, so that her fish can work a miracle for Ty. Lets hope she is right.

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  76. Always thinking about and praying for that sweet baby boy of yours. He has stolen my heart and I pray everyday for his recovery. Xoxo Heather

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  77. Your story is a TRUE LOVE STORY between a mommy & her baby boy..I look forward to reading your blogs everyday not only to see how Ty is feeling but to read about the love you have for that beautiful child of yours..Every mother shoud only love & adore their children the way you do? How lucky you both are to have each other..Even if only for 5 short years, that love will never die..I pray for a miracle everyday for Ty..I don't have the answers on why such a perfect little boy should have to suffer through such a horrific disease but what I do know is how lucky he is to have you and your husband fighting along side him..Please don't ever give up on your miracle! <3 Marni a mommy who wishes she could take away your pain!

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  78. Sweet Dreams Ty! There isn't a day that goes by that I don't think about you and your family. I was showing pictures of Ty to my 2.5 year old daughter and told her that tonight and every night we have to pray for him before bed...so just like we do everynight...she starts off "Father God..bless mommy daddy mr. mowgli ( our doggy ) and Ty..in Jesus name Amen!" Matthew 21:16 ("Do you hear what these children are saying?" they asked him. "Yes," replied Jesus, "have you never read, "'From the lips of children and infants you have ordained praise'?") You are a wonderful mother and you truly are an inspiration to all of us! God Bless! <3

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  79. Love your family and Ty! Prayers coming your way for the most restful and wonderful night yet!!

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  80. I'm so glad you had some wonderful moments today. Praying for a comfortable night tonight. Sweet Gavin, I'm thankful that his boundless energy can help Ty to smile. God bless the Campbell family.
    Trish

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  81. God Bless you all. Still praying for a Miracle.

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  82. Sweet dreams Ty!!!! Praying for comfort, a peaceful nights sleep and most importantly your miracle. You have touched and changed so many lives little man. I know I look at life differently everyday because of you. Spend a little more time to stop and do the small things hat I never thought mattered. You are constantly on my mind and in my prayers. Hope everyone has a peaceful nights sleep and another awesome day tomorrow.

    Teri from Nebraska

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  83. I pray every night for a miracle. I just want to let you know there is another person who has heard your life story and will do my best to bring awareness. I will pray every night for peace for your family and no pain for beautiful Ty

    Tristina Senter

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