Monday, October 22, 2012

SuperTy will do amazing things

I said in the last post that Ty's story is far from over.  I will continue to write about him indefinitely, and I hope you will all continue to share his story and invite others to follow his journey, even now.  Ty's courageous battle and unbreakable smile has made a powerful impact on so many people around the world, and I truly believe that this is only the beginning.  I will never get tired of hearing people tell me how much my little boy means to them.  How much his story has given them perspective. 

There have been so many beautiful, wonderful comments over the past week.  They bring me to tears in a very good way.  I have so much catching up to do, but I promise I do read them and I thank you all for sharing.  

I used to spend the nights lying in bed next to Ty, listening to his breathing with a mind so consumed with worry that I would eventually have to get out of bed and start typing.  Maintaining this blog has always been therapeutic for me.  I thought after he died that I would just fall into a deep depression and sleep for days on end.  I am finding that instead I lay in bed missing his warmth so much, that I barely sleep at all.  I can't tell you what it is like to go to bed at night.  The quiet has always been the worst for me.  It's when my mind is the most frantic. 

Tonight I can't stop reliving everything about the day Ty died.  How his body changed over the 18 hours that he stayed with us afterward. What it was like to spend the night with him in our bed one last time.  How cold he was when I kissed his cheeks and his lips the next morning.  The visions are so vivid and I hope I remember them always. Ty was in the bedroom with us the entire time.  I watched him die so peacefully in my arms, but I promise you I never felt him leave.  He was watching us as we bathed and dressed him.  I do believe he heard me when I read him some of his favorite books in the middle of the night.  When the coroner came with his casket the next morning, Daddy made Ty "all comfy in his bed" which is what he would have wanted because he always said daddy does it best.  We didn't put shoes on him, instead we sprinkled salt water over his toes and covered his feet in sand from Long Beach so he could always feel the sand between his toes.  That was his favorite place to be before he got so sick.  We placed pictures of his favorite people all around him and we made sure he brought some of his most favorite things with him, including candy, captain america, Max & Ruby DVDs, his seashell and a toy catalog.  Lou and I also wrote him a letter each and placed them with Ty so he could carry our words with him. 

I recently read a book, Snow Flower and the Secret Fan, where the women in 19th century China would traditionally burn one's lifetime collection of letters that were exchanged among their closest of friends, essentially letters that tell the story of their life, during a funeral.  The belief is so that the deceased can share his or her story in the afterworld.  Ty, of course, didn't write anything in his five short years, so Lou and I decided to each write him a letter instead and we included those letters to be cremated with Ty.  I hope he carries my words with him in his heart.

A LETTER TO MY SON:

Ty,
To say that I love you is inadequate.  I am enamored with you.  I had no idea how incomplete my life was without you in it, until I saw you for the first time.  Even during your sickest days, every minute with you filled me with love and purpose. 
You made me see sheer beauty in all that is silly and ridiculous.  That will never go away.
I think I love you more than I love God Himself.  I loved God all my life, but never felt love like the way I love you until I held you in my arms.  I love my parents, I love your daddy, I love my sister and brother.  But the way I love you and Gavin, a mother’s love, is something that can’t be put into words. 
I can’t believe it’s been two years since we have started on this journey.  Two years that felt like a lifetime.  Two years that felt like the blink of an eye, too.  I can’t think straight, I suffer headaches, my back hurts and I cry all the time.  But that is nothing compared to what you have endured every single day.  And you are only five years old.  It’s so unfair, and so cruel.  I hope someday it won’t be like this for other children.  I pray for a cure and I believe your story will help us come closer to making that a reality.  You are amazing in every way. 
Cancer took away your ability to run and jump, then to walk, then to sit, then to eat.  But it never, ever took away your ability to be a kid.  To laugh and be happy and have fun.  You had a love for life that no one can understand unless they knew you.  It hurts me to think that someone so pure, sweet and innocent as you can have all the joys of life taken from him, when there are so many others who don’t appreciate their own lives, their families, the healthy bodies they live in.  But then I realize that maybe you found so much joy in your five years with us, despite your suffering, because you always knew your life would be short. 
We have been praying for a miracle all of this time.  Now, as I write you this letter watching over your still body, I realize that you alone were already a miracle. 
I can’t kiss you enough.  I can’t hear your laugh enough.  I am going to miss you beyond comprehension.  Thank you so much for letting me be your Mommy.  I am the luckiest person in the world because you were mine.  I love you super, duper, big, HUGE much. 
My broken heart will never stop bleeding for you,
Mommy
 
Lou and I were able to help bring the casket out to the car, ride with Ty all the way to the cemetery, roll his casket into the machine and Lou was given permission to turn the switch.  It took so much restraint not to try and climb in there with him.  Lou and I both would have been more than happy to go with Ty.  Instead we waited and watched as the various lights had to warm up and turn on. I imagined Ty's casket starting to burn, then flames invading his body that was laying in there in his perfect white suit. As horrific as those thoughts were, I also felt deep inside of me that this was the last step in Ty becoming truly free from his body.  I found comfort imagining his cancerous tumors dying in the flames. 

We took his ashes home and he is  back in our bedroom with us, but I don't think there is a connection between his spirit and his remains.  I will have jewelry made so I can always carry some of him with me close to my heart, but I believe that it is more for me... not for him.  He is soaring so high!  He is in and out of this house.  I talk to him all day long and I feel like sometimes he hears me and sometimes he doesn't.  I don't know.  This is all so new to me I'm not quite sure what I'm feeling other than the easily recognizable emotions like sad, lonely and stressed.  I miss him so much.  I pray that he comes to me in my dreams and one of my biggest fears is that he won't!  I need to see him.  I need him to come to me in my dreams.  I guess I have to learn to sleep again, first, before getting all worked up over this!  :)

I have to cut this short because it is so late, but I have so much to share from the events over the past couple of days.  Hopefully I will be able to get a holf of some pictures to post, too.  There are still amazing things taking place in honor of Ty and we feel so blessed! Thank you to all those involved. 

Ty and Gavin July 2010 (one month before diagnosis)



230 comments:

  1. I've been worried sick .. :( not reading about Ty .. not reading on how you all were handling everything .. my heart is still broken .. so to ease a tad, I strted reading ronans mamas posts all ovr again .. && I'm reminded of why I do Wht I do ..

    to share a funny story
    today my oldest son Aiden was writing on our white wall with a red crayon,
    I walked in his room && he jumped .. he sais I sawwy mommy
    so I walked out ..
    && got back in his room with a box full of crayons
    he looked at me like wht are u doing ??
    So I sat on his bed && drew a great big Spiderman .. he smiled .. && all day we colored on those white walls

    he even wrote a t for Ty ..
    Right in the middle of a captain America shield
    which broke my heart more

    I hope together we can together, all of us mane this bullshit of a monster go away

    because no mother, no child. no sister or brother .. NO ONE DESERVES THIS BULLSHIT !! it enrages me to kno wht you've lost .. it breaks me

    so because this is a late night

    && my boys are sound asleep in bed

    I'm going to come up with something .. maybe to get a hint of attention to these ignorant people who play hush hush with this monster



    we all love y'all

    love && prayers sent your way

    Aiden ((3)), Jr ((1)) && Sofii

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    1. "I'm going to come up with something .. maybe to get a hint of attention to these ignorant people who play hush hush with this monster"


      Amen!
      ~Michelle Hughes, North Ga.

      Cindy, My heart breaks at the mere thought of you and then I break down and pray again. God love you and comfort you.

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  2. I still to this day open and refresh your blog hoping to read more about Super Ty. I continue to pray for you and Lou to get through this the best that you can! Ty and you guy will forever remain in my heart!
    Valerie Tepedino Kaufmann

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  3. Thoughts are with you and your family. You are all so brave.

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  4. Oh and I forget to mention that my daughter was the one that drew the sketch of the mother and sons hand intertwined that I sent to your facebook and email. I have followed your entire journey and we love you guys and pray for all good health love and happiness with Gavin for the rest of your lives..more hugs from me and my family.
    Valerie Tepedino Kaufmann
    Xoxo

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  5. I'm so happy to hear from you! I continue to think about you and wonder how and what you are doing. I love everything about the events that took place after Ty passed. It is so very beautiful that you got to stay with him, bath him, read him books and love him up until the very end. I do believe that this is actually the beginning. A new beginning. I hope you learn how to sleep again. How to sleep soundly. Ty will come to you in all sorts if ways, while you're awake or asleep. You'll know it when it's happening. Recently I was at a stop light, and out of the blue came a hummingbird. It hovered outside my drivers window, at eye level with me. The light seemed extra long. Then the bird flew to the front window, again at eye level, just over my steering wheel. At this point I looked around wondering if anyone else was seeing this. Tears filled my eyes, and at that moment I knew it was my first visit from my grandma since her passing. It was beautiful. I was overjoyed. The light finally turned green, and the bird was gone. I wish you many experiences of your own in that nature. I can't wait to read about them. Please continue to write. The world wants to know how you're doing. Whether on a good day or bad, you are so great at expressing your thoughts. You will always be an inspiration to me, as a mother and as a beautiful human being. Thank you for that. Sending you so much love from Los Angeles. Sleep tight.
    Emma

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  6. Ty will never be forgotten. He will always have a special place in my heart. Thank you so much for sharing him with us. You are truely inspiring as a mother and as a person! What did you expect from the mother of a real life superheroe, right? :)

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  7. je suis tellement contente d'avoir de vos nouvelles, j'ai tellement mal pour vous votre famille et pour ty.je vais cherir son souvenir comme si il etait de ma famille, je l'aime tellement vous savez, (je ne sais si je peux me permettre de vous dire cela ne m'en voulez pas s'il vous plait), merci de nous avoir fait partager tout cela, maintenant c'est a notre tour de faire connaitre son histoire et de sensibiliser tout le monde pour ces "putain de cancers pediatriques". votre ange ty peut etre tre fier de ses parents, et je sais que de lahaut il veillera sur vous tous. i wub you, que dieu vous protege. nathalie de france

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  8. Unfortunately I only came to know about Ty after your little hero had flown up into the sky. Now there is a brighter star in the heavens to keep you company and guide your way at night...a stronger ray of sunlight at dawn to give you energy to face the day... The world in general is a better place because of you, your family, and of course, Ty. The intensity of your love has insipired so many of us. Ty's courage and bravery leaves us in awe. I am breathless when I think of your pain, but thank you eternally for sharing your journey with us. God bless you all. Wishing Ty endless rainbows and puddles, and you and your family the serenity and strenght to carry on. You are amazing...

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  9. Please be strong Cindy. I know you can do this. <3

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  10. I have not stopped thinking about you in these last couple days. My heart breaks for you and Lou and I pray that you will, and I know you will, find the strength to carry on with life. I'm not sure I would be as strong as you have been but I know that they reading your blog you have changed me as a mother. My son is my life, my breathe, my thoughts, my actions. I cherish every single moment, even more so now because of you and Ty. The impact that you already have had on so many people is indescribable. You have brought so much attention to this disgusting monster that I know amazing changes are going to happen. I have shared Ty's story with everyone I know and I'm going to try my best to help in any I can. I pray for your family and I know Ty will forever am ever be with you. Don't worry he will come to you in your dreams. I know it. Prayers and loveyou. you.

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  11. Oh Cindy, I think of you constantly. I will always check Ty's blog. YOU also have been such a gift to so many. I send you strength to get through the darkest hours. I think I read a beautiful post earlier - "May light always find you when your heart is in darkest place." This is my greatest wish now - to lift you up and give you comfort, and to know that Ty is with you always. He's in your heart and he WILL find ways to let you know he is okay. You will know them when they happen and I can't wait for you to feel that comfort of knowing he is looking out for YOU now, and that he is surrounded by immense love and peace. Your words are full of inspiration, even now and I honor and admire you beyond my ability to articulate it. Stay strong.
    Chris - a Mom from Niskayuna

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  12. Cindy,
    TY will come to you in many ways you will see and you will know. He will let you know he visits you all the time. I know you hurt real bad and grieving is hell but I wish you and your family peace and healing. Give yourself time and be gentle with yourself .Don't forget you have been on automatic pilot for soo long with Ty's illness. You have needs too please take care special lady and keep blogging.. its theraputic and healing and we love hearing from you. You have bunches of friends from all around the world now and I hope as you move forward life will make sense again and your family will feel joy as you continue your journey as we continue to celebrate ty's life.

    You all fought long and hard so you must feel exhausted. Now you can rest and get back a sense of normalacy.. TY would want that for you. I wish you continued love, peace ,healing. TY will always be with you. No more pain , no more cancer, just a happy lil warrior angel. I know God will wrap his loving arms around your family. I wish I could just give you a hug too.
    Thank you for sharing your precious lil boys with us. I pray for you and your family Debbie from Hawaii

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  13. Dear Cindy, its ok to feel sad and stress. And we understand that you couldn't write for the past few days. We were all worry about you but we understand that you have to take care of yourself and your family. I'm up every night feeding my baby, and I found myself checking your blog, after Ty decided to leave, I told myself that you will probably stop writing, that you had enough on your plate and that you wouldn't want to relive and share your feelings, memories and thought. But you are a strong mother and you kept up posted, I don't know how you do it, but I just wanted to let yoi know that it wad ok to take a step back if you wanted to. We love you and feel pain with you but we can't replace Ty's presence, so we once again understand.
    When my cousin past away from cancer I cried for days, until i imagined him looking at us through the moon. Now everytime I look at the moon I close my eyes and still see him, I still remember his face even though he past more than 15yrs ago. I don't have any pictures of him but the image of him is forever carved in my memory. Though it does help that his nefew looks like him. Ty will always be part of you. Cindy close you eyes and you will see him. He will appear to you in many forms but when you close you eyes he will return to you as the healthy Ty. Just close you eyes. Don't worry about us and take care of yourself.
    Love

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  14. Dear Cindy, I read your words through my tears, I have not been able to stop thinking about you, your family and of course darling Ty over these past few days and wondering how you were doing and coping. I have been so worried about you and hoping that you are finding strength from the people around you and the people out there in the world who care so much about you and Ty (like me!)
    I believe, just as you said, he was stronger in his 5 years on this earth than some men are in a lifetime. To keep smiling as he did, throughout everything he went through, he is my superhero and always will be. I hope he is flying around up there with all the other children taken far too soon, laughing, playing, swooping back down to be around you and the rest of his family again and then back up near the angels and God. I know nothing we can say will help ease the pain of not having him with you but please know that he has made such a huge impact on people all over the world. Now, because I am 'aware' because of Ty and the pain of what he had to go through. I will sign every petition I hear of and donate always first and foremost to finding a cure for children's cancer. Children should not have to go through such cruel treatments developed so long ago just because we have not progressed far enough with finding a cure, because cancer in children has not had enough funding, that HAS to change and it will, because of your amazing son Ty. Your words are so graceful and you write so beautifully, I am comforted to know that Ty stayed with you right up until the end but my heart hurts again for you, because I have a 6 month old son who I love beyond words and I just can't imagine....I am going to cry again, so Cindy thank you again for sharing your story in what must be such a terrifying and unknown time right now for you in your life, please know you are my super heroine like Ty is my superhero and I will shout out and make my voice heard in the world, to my friends, to the public, to everyone I talk to and meet that we MUST find a cure for cancer and in a more humane way for all the children, they should not have to suffer as Ty did.
    Sending my love and hugs for you and all your family,
    Lisa and baby Charlie in Frankfurt xox

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  15. How is Gavin coping ? Much love to the 3 of you.

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  16. He has done so many amazing things already. ..

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  17. My prayers that used to focus on Ty and his pain, are now focused on YOU, Cindy and your pain. We all can feel what a wonderful and caring mother you are. We know your heart is broken into a zillion pieces. It's my wish that soon you can sleep better and see Ty in all the beautiful things that you can do with Gavin. I hope that you are hanging in there, as much as that seems impossible. We are all pulling for you to be able to smile again, and laugh, and gain where there has only been loss. I hope you can feel the love from all of us mothers that wish we could somehow give you one big hug. Please know that we are spreading Ty's story and that we have all joined the fight along with you for all the kids like Ty. As Ty was (and is) an inspiration to so many, so are you. Thank you so much for helping us see more beauty in the world, and for helping us be better mothers ourselves. I am eternally grateful.
    With Love from a Mom in NJ <3

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  18. As always, your words bring me to tears. I have mourned for people I've never known but never as strongly as I mourn for Ty. As I've said before, your family does not mourn alone. I am glad to hear from you, and I am glad you are going to continue to write; it can only serve to help right? How is Having through all of this? I imagine he is confused? Give him special hugs and kisses from my family; losing a brothers is not easy, I myself have lost 2 brothers.
    I do not blame you for wanting to go right into the fire; I know I would have had the same struggle. You and Lou are incredibly strong parents you know that? Everything you've done from Ty's passing to now; it speaks volumes of your undying love....never let that go. Lots of love, hugs, prayers, and special thoughts for you and yours, and Ty now knows that I think of him as well. One day Cindy, one day cancer will be eradicated and all children will have the chance to be the fun loving carefree little kids they have every right to be. I have to believe that.
    Love, Sally

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  19. So relieved to see you are still writing. I missed reading your updates. I miss Ty's smile of the day but truly believe his smiles are endless now. Thank you for bein such an inspiration.
    Julie Witherow, New York

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  20. Up until now, we were all following your family's heartbreaking story in the hope that Ty would kick the c#@p out of that terrible disease....and we were all devastated when we learned it wasn't to be.
    Now we will follow this story to watch you, through Ty's legacy, kick the c#@p out of cancer.

    We've all fallen in love with Ty (and your family) and I'm certain not a single person who has read your story will ever forget him, and that will keep SuperTy alive forever.

    Melbourne mum xxx

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  21. Oh Cindy I am so glad you have come today to write another blog. I was so worried about you Lou and Gavin. I only came accross your blog a few weeks before Ty's passing.
    I have always said that in life you get one big wish. I don't know where this has come from but I always thought it. Anyway I have never used my one big wish but I decided to use my wish for Ty. I wanted so badly for Ty to live and be what Ty could be. He was so beautiful that anyone who just looked at his photo just fell completely in love with him. My son who is 9 and my first born, is so deep inside my heart that at times it almost hurts and my daughter that is so loving and kind and smart and funny is just my absolute idle. I love them so. I cannot ever imagine my life with out them so when I saw this beautiful little boy who had the world of love, purity and smiles in his heart I fell so in love. I will always follow you, talk about Ty, love my children, jump in puddles and generally love life and my family just a little bit more because you and Ty taught me that. I thank you so much for sharing Ty's story and I feel he is loving you all so much and probably laughing at the attention he has caused. Please keep us all posted as to what is going on in your lives and give Gavin the biggest hug from the Heartfield's.
    Love Alison, Glen, Valentino & Sunny. xxxx

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  22. You don't know me, as you don't know many that are following your family but I have never felt so much love for someone that I never met. I remember a few years ago when my son started playing football, watching one of the moms chase around a little boy on the field. Laughing and having a great time...we had only just started so I had no clue who they were. Then I heard someone saying that she was his aunt and that his brother was diagnosed with cancer. My heart stopped. Not only about the fact that another child was diagnosed with cancer, but that this woman who was obviously so in love with the little boy she was chasing, calling him Gavin, was his aunt. Wow, I thought...this family is gonna be ok. Just look at the love between them, surely it will all work out. I have followed the blog everyday since I heard about it & still continue to come on first thing in the morning. The strength that your family has is what kept Ty going. Sure he is Super Ty, and even though he was so young he had to have learned it from you all. I am constantly amazed by what I read and I hope you continue to let us follow your family...I know good things will come from you all. Thank you for allowing us to Love Ty and Gavin. I look forward to watching Gavin grow on here and seeing all the great things that will be done to beat childhood cancers....

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  23. You make us all better mommy's and our kids happier kids. I love you and pray for you all.

    Ty will continue to make a difference in the lives of adults, kids and a HUGE difference in the battle against pediatric cancer- he will always be the face of love and strenght.

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  24. You write such beautiful words and as usual, this leaves me with tears streaming down my face. It makes me so sad that cancer had to take the life of your wonderful Ty. I will continue to pray for comfort and peace for you and your family. There are just no words to describe a mother's love - I know, I have two boys. You and Lou are the most loving, courageous parents I have ever seen. Thank you for sharing Ty's battle with us, as painful as it was for you to write, it has made a DIFFERENCE to those of us who read it. I hope to God that they find a cure for this beast in our lifetime. Children are our future - how can this be happening in this day and age?? I hope that you will be able to get some rest in the coming days and that you will continue to feel Ty's presence. Cancer may have took his body but it will NEVER take his spirit or the love that you shared. My thoughts and prayers to you.

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  25. It was so good to hear from you, Cindy. I've been thinking about you, Lou and sweet Gavin since your last post. I can't imagine what it's been like for all of you since Ty's passing. Once again, I'm in awe of your strength! Thank you for sharing your most intimate thoughts with us. I so hope you always find some outlet to express yourself in order to, deal with all of the emotions you have inside of you. You have been an amazing mommy to Ty and Gavin and a role model for ALL mothers in this world. What a beautiful person you are. Kudos to your mom and dad! My heart breaks for them as well as your entire family. Ty will always be in my heart and prayers and I will fight in his honor for a cure for this dreadful disease. Much love and respect for the Campbells. Superty Forever and Ever <3

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  26. Sending love to you and your family from Australia. You are so brave and so was Ty. xxxx

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  27. my thoughts and prayers are with you all, and forever will we remember Tys story... that picture of the two of them in 2010 is beyond adorable, I am so dumbfounded that things like this can happen to such young children,it needs to be the top priority of awareness of this cancer,and help fight it ever existing in a baby.......again.

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  28. You are so amazing and strong Cindy to be able to function as you go through this traumatic time. I am in awe of you and your husband for the strength you have shown and the passion you have for Ty. Thank you so much for your blog. Like many others I mostly cry as I read it because you are dealing with such pain, but I am compelled to come back every day and see how you are, and share your journey. You have certainly opened my eyes to cancer, and I thank you for that. Ty was a beautiful boy and I am so sorry that you have had to go through this with your little boy. I am sure words cannot describe your pain and heartache at your loss. I loved the words you posted about the 'Little Ship'. I thought that was beautiful and made me smile to think Ty was being welcomed into Heaven with such excitement. Thanks again Cyndi. You are an amazing person, your family deserves great things. Tania

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  29. You are such a beautiful and inspirational writer, and I will always continue to follow Ty's blog. You and Lou have such strength that it blows me away. I don't know how I would have handled such a situation and quite honestly hope and pray I never have to endure such pain. I too would have jumped in there with Ty.

    Not only is your focus on Ty's memory and providing awareness but also Gavin. I often think of him and wonder what his little mind is thinking and processing. I am certain beyond a doubt that Ty's spirit is in your home and your heart. He will never leave you. He truly was such a beautiful little boy. I have spoken of him at work and told several people to go on his blog and they all said it sounded too painful. I told them it was life-changing at least for me. It has put my life into perspective. I don't get mad over the little things and my kids get away with more. My father passed away unexpectedly last year and I have been very upset that God chose to take him out of our lives and leave such a void. In reading about Ty daily it has made me accept it more because now I realize he got to live 64 years and little Ty only got to live 5 which seems so unfair to me.

    I will continue to read your blogs and anxiously await hearing about Ty's spirit and pray you see him in your dreams. I will continue to pray for you and Lou, Gavin and all of the grandparents, aunts, uncles, etc. You guys are a ray of sunshine in my life and I will continue to follow you on your journey :)

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  30. Your strength is absolutely amazing. You're always on my mind, all of you!
    Love, Angela from Carmel

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  31. So happy to see you post.. You are truly one amazing family! How is Gavin doing? You are all in my thoughts and prayers.

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  32. Cindy & Lou,

    Your strength is truly amazing! You and Lou and of course Ty are going to change the world, this I know.

    I will admit, cremation has always scared me. But reading how all of Ty's cancerous cells are now destroyed made complete sense to me, and it was something I had never thought of before. Not too sure why. I sat here crying like "duh (slap to the forehead).

    I still can't believe your beautiful little boy is gone, but maybe, just maybe he is not. His story will live on, forever. I promise you one thing, I will NEVER forget Ty. The impact your little boy has had on my life was one that was not only amazing, but very drastic too. I love him. I love your family.

    I learned of another little boy who died Saturday from Cancer from a fellow blogger. He was 3 years old. I just sat at my computer screaming how this is unacceptable! I think many of us do. However, instead of shouting to ourselves, we all need to get up and do something! Things can change when people do something about it. You have become the leader on this war against cancer and I am more then happy to be a follower. I will do whatever is in my power to spread the word and make people do something about it. With Ty though, he doesn't make people want to do something, he makes people want to do something about this disgusting disease.

    I have enjoyed reading your blog for almost 2 years and I will continue to read as long as you continue to write. Ty's journey has just begun and I will be here for the long haul.

    I was in the kitchen yesterday and I heard, "Max and Ruby" theme song, and I just smiled and thought of Ty. You said about that you love Ty Super Duper Big Huge Much! Alex tells me I love you super, duper, big much! Everytime I hear him say that now, I will think of Ty. Every super-hero, gingerbread house blue loli-pop, I will think of that little boy of yours!

    Ty = Amazing. . .

    Thinking of you guys always

    Joy Marielle
    Baltimore, MD

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  33. Hello Cindy, this is Isabel from Spain.
    I barely cannot hold on tears while writing this. I am so sorry for your loss, this is so awful that I do not find the proper words to express the pain I feel inside for Ty. He was an amazing cute little boy, his photos and videos brought me lots of smiles, what a warm and beautiful boy he was.
    I am 25 years old and still far from being a mum but I can tell you that reading your blog has inspired me. The way Lou and you have coped with Ty's cancer, your dedication, how you restrained your pain and what a happy life you always tried to give Ty and Gavin made tears roll over my face constantly. Cindy, I just want to be such a good mother to my kids too.
    Ty will always look after you from Heaven and will always be Superty!
    Lots of Love and praying for Ty and Campbell family.

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  34. Sending love and prayers... And a promise to help spread childhood cancer awareness. Ty has made a huge difference in so many lives already.

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  35. you never cease to amaze me...you are the strongest person I "know" and am so inspired by you and Lou.
    Super Ty definitely made his mark on this Earth in his short 5 years, he may be gone..but rest assured, he will NEVER be forgotten.

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  36. Cindy I wish I could take some of the pain and grief away from you...

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  37. I am so relieved to hear from you. I've been frantically checking in multiple times a day and was so worried you descended in a terrible place. I was praying for you and your family. I wanted so desperately to hear more about Ty's journey. All day Thursday I was sick to my stomach. I knew what was happening that day as I tried to dry my tears. They would erupt spontaneously. Oh, I can't imagine how hard it must have been, but I too took comfort in imagining Ty's body being finally cleansed of the disease.

    I look forward to hearing from you. You and your family have become my true north, helping me to remember not to sweat the small stuff. I'm forever changed by your little angel. I know he is flying around, soaring like a beautiful bird, free of pain. I hope you will soon know the sweetness of peace and rest. Gavin is going to have a beautiful life with you as his mama. Just like Ty did.

    Christina, from Hoboken

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  38. I am so glad to hear from you. I have been so worried. I am still at a loss for words but I just want you to know that I am out here.. thinking of you all throughout the day. It is so hard to explain to people how you are mourning this little boy that people say I didn't even know. Ty was part of my family, over the last couple of years I thought of him all the time.. I checked that blog every day. I miss him, I miss hearing how he is laughing,wanting his candy and dreaming of a cure for him but on the other hand I am relieved that he is not suffering. I am so torn.. Please don't forget all of us because as much as I care for that little boy I also care for you. You have also become part of my family.. I feel for you like a sister and I'm so worried and just want to keep hearing how you are doing. I hope Galvin and Lou are doing okay. I did see one of your family members post something about Galvin that he seemed to be okay. You are in my prayers. Unfortunately from experience I know that the people who pass will definitely come to you in your dreams but it takes a little time. I think they are busy getting settled but when he comes and he will come you will know he was there.
    Hope to hear from you soon
    Michelle
    XOXO

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  39. Oh Cindy - I am so happy you wrote to us. Your letter to Ty was magical. He was such an inspiration and has changed my life forever. I hope you and Lou find some peace. Ty will be with us forever. love to you xoxo

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  40. Ty was only five but he packed the courage of a superhero into his beautiful and brave life.
    I never had the chance to meet Ty in person but even though I am on the other side of the world, Ty reached me. I had been reading your blog for a while and I looked forward to his smile every day - his beautiful golden smile.
    I miss him so much too.

    Cindy, if you could see how far Ty has reached you would feel that Ty is everywhere now. In your hearts, in ours. Just like what you told him about Heaven.

    Please write about Ty and your family indefinitely. We are so privileged that you have shared your beautiful Superboy with us.

    May Ty shine his love on you, Lou and amazing Gavin always. SuperTy will continue you to bring you miracles.
    xoxJudy

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  41. Wow...every post of yours amazes me!! I have been checking daily for a post wondering how you all are doing! Following your story for a yr or so and you a complete stranger has touched me more than any women in my life.. you are truly as amazing as Ty!! Must be where he gets it :) Trying to understand why god lets this happen to kids its been very hard for me...how do u keep such a strong faith??

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  42. I wasn't expecting Ty to pass when he did. I was floored when I heard the news. In that instant I NEEDED to hold my daughter and tell her how much I love her. After we got home that evening, she wanted to go outside to play. I had already changed into my pajamas and it was a little chilly outside, so I told her no. She began to cry. Ty's sweet face immediately flashed into my mind. So I grabbed her shoes and coat and we played outside until dinner time. The neighbors probably thought I was crazy, outside in my sock feet, no jacket, and flowered pajama pants. But I didn't care. It was for Ty.

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  43. I have been thinking of you all non stop, so glad you have written to us. Me-a perfect stranger is still heartbroken over Ty's passing, I cry every night thinking about him, you, Lou, your whole family. He has truly made an impact on all of us. You and your husband have taught us all so much! I pray that he visits you in your dreams and sends you signs that he is with you always.

    How's Gavin? He is just soo cute! Looks just like you! xoxo to him!

    ~Yonkers, NY

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  44. Cindy my heart goes out to you an your family. i never meet ty. but i feel in love with him. his story touched my heart. i weep for this earths loss of a angel. no parent should ever see there child suffer. He will always visit you in your dreams if you remember them or not.
    Ive been holding my lil boy close and giving him extra hugs an kisses. please do the same to Gavin.
    Megan

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  45. Your strength is amazing to me. You are by far one the most remarkable woman. I truly admire you, and the way you share Ty's Story with your blog is just amazing. Ty's story has inspired me and changed my life. This beautiful boy with the most beautiful smile will not be forgotten!!!!!!!
    Debra, from Somers, NY

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  46. Cindy, I only learned of your family and Ty's journey in the Poughkeepsie journal last weekend. I have been reading your blog every day since, and thinking of you often. I am so sorry for what you and your family have had to endure. What a beautiful baby Ty is, and always will be. As the mother of two grown children I can not even begin to imagine your pain. Please know that the entire community (and from reading your blog the entire world) is holding you up with thoughts and prayers. Ty will make a difference and so will you. Because you are his Mom he will never be forgotten, Love and prayers from Hopewell Junction Mary Ponesse

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  47. Morning,

    Thank you for sharing your family's courageous & heartbreaking journey. " SuperTy " is my hero. Ty will always have a very special place in my heart.

    I am going to become an active voice - in honor of Ty - in increasing the awareness of & for increased funding for finding a cure from pediatric cancer.

    My thoughts & prayers are with Ty & all of the members of his family, his parents, Lou & Cindy, his brother, Gavin.

    God Bless.

    - Rob Swan

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  48. Your strength amazes me. Since hearing of Ty on Facebook nearly 3 weeks ago I have carried your family in my heart. I am so sorry for everything you all have gone through , and have not stopped thinking of you, or crying for you. I am so glad your son is free from pain, even though this is not the freedom you have hoped for. I know in my heart he is in a better place and having a grand time~ and you will be with him again one day. I believe everyone should be reading your blog. It teaches us all how precious life is. I know for me, I have been especially more patient with my children, and have given them many more kisses. You just never know... I hope to be half the mother you are to your children! I will never forget Ty, and will always come back to your blog to see how your lovely family is doing!~ Amy from OH

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  49. I hve read your blog post everyday for months and I'm so upset tht Ty is gone. I knw I never knew him, but I prayed for yall every single day, praying for a miracle. My heart hurts for you, Lou, and gavin. I hve an 8 month old baby boy and I can't imagine ever ever losing him. He has become my reason to live. I can't imagine what you're goin thru and I can't say I knw how you feel bc I don't. I will continue to read your blogs and pray for yall every day. I will keep Ty n a special place n my heart as well. He was a precious special lil boy and has had an impact on my life. Sending love and prayers frm Mississippi.

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  50. We will miss Ty so much but he will never be forgotten. Thanks for sharing his story and I will faithfully continue reading your blog because as you said Ty's story is far from over! I've been thinking of your family these days and at night my kids and I have been praying for you and Ty.

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  51. My husband and I truly believe in angels and that whenever you see an orb in a picture, one is present. It truly comforts me to see the orb in between your two sons. I believe strongly, that it is Ty's angel (the one he has seen before) looking after him. I know he is flying high and that one day, you will see him again. He definitely hears you when you speak to him and is always by your side. Thank you for sharing your beautiful family with ours. It is a precious gift.

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  52. Cindy, I think about Ty, you and your family constantly. Ty has been forever engraved in my heart. He truly is the miracle. Your eloquent words and love for your best big boy are amazing. I will never forget him. His legacy will live on forever.
    Kathy, South Philadelphia

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  53. Cindy, i am so happy that you wrote to us. I was worried you were goinh into a dark place, where i did. I didnt want to see, hear or talk to anyone for a long time. Just laid in bed and cried. Glad you are keeping up with the posts of Ty and always check to see you latest post. The description of Tys passing was beautifully written and we all got a glimps of your most touching and loving time. Thank you for sharing it with us. We all will make a difference for Ty, i share his story to everyone and tell them how amazing ty and his mommy are. I dont know if i should write this next bit, but i drempt of Ty on Saturday. I saw his sweet face, and there was light shining in his face and he said " go away light" and turned his head away, but then he said " but why?" and turned back to the light. I them woke up and tried to comprehend what just happened. I didnt want to go back to sleep, i felt as if that dream should be for you. People will probably think i am crazy, but i wanted to tell you this because maybe it means something to you. I have dreams of my twin alot and maybe this was to let me know she knows of Ty?? Maybe theyve met in heaven? I dont know, but i told my daughter about this dream and she said i should at least tell you. I hope that you and your family are doing as well as to be expected. Still praying for strength for you all.

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  54. Dearest Family,
    Thank you for sharing your precious memories, as well as the one's in your heart. I can say, without a doubt, that Ty is so taken care of, in a way that is far beyond our human comprehension. I can say, Ty will visit you in your dreams...continue to ask, seek, knock,...God knows the desires of our heart, he gives us what we need in his timing.

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  55. Cindy, thank you for continuing to share Ty's story and for including us in your most private, heartbreaking moments. It does make a difference and Ty's impact on this world will not diminish. So many of us are better parents for having read your blog and gone through this experience with you - that will live on. So many of us will join the fight against pediatric cancer - and that will also live on. Thank you, thank you for sharing this story. I hope it gains even more momementum and gets shared with the whole world - because the world will be a better place for it. You are an amazing woman and a role model for me and many others I'm sure. I'll be following Ty's story without pause. My prayers are with you and Lou and Gavin as you grieve your beautiful boy. - Becki, Charleston SC

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  56. Thank you for continuing to share Ty's inspiring story with all of us. I have been praying for comfort and peace for your family and I will continue to do so.

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  57. I've been thinking of you and praying for your continued strength. On Friday it poured rain here in this part of New York and I thought of Ty constantly. When I picked up my son he wanted to play in the rain and I thought surely it's a sign. We raced up and down the driveway splashing in every muddy puddle until it was empty. We played for Ty. I will always let my kids dance in the rain, splash in puddles and live life bigger than we did before. We are forever changed because of Ty and your inspirational story. You'll continue to change lives forever. It doesn't give you solace now, but I hope one day it might, in little bits.

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  58. Thank you for sharing your family with all of us. Ty is my superhero. Actually, you all are. You are so brave and so strong, and I admire the way that you stayed with Ty through it all...before, during and after. That boy is LOVED. The way you described Heaven to Ty before his passing was so selfless, so inspiring, so beautiful. Ty knew that he was going to an amazing place and that there was nothing to fear. I truly believe that. Ty is in a beautiful place where there is no pain, there is no grieving. Pain and grieving is what we all feel here on Earth, but in Heaven there is only love. Love can bridge any distance. It is stronger than death and it keeps you and Ty together always.

    My niece passed away in 2008 from a rare congenital cancer. Giving the eulogy at her funeral was the single hardest thing I have ever had to do in my life. There are no right words that seem adequate to honor such a beautiful, innocent life or to sum up the emotions felt by those left grieving on this Earth....anger, sadness, loneliness, fear hope.... I watched my sister and her husband suffer in a way that no parent should have to and I spent many sleepless nights wondering if I would ever see my sister again...

    The point is, I have been thinking of you and your little boy nonstop. While I cannot nor will I pretend to know what you are feeling, I can only extend my sympathy and tell you that Ty has some truly awesome kids to slide down those rainbows with...my niece Peyton, my cousin's daughter Faithy, his buddy Ronan. And, so help me, I will do everything in my power to spread the message thay Ty taught me...to enjoy every minute, to never take anything for granted, to hug my kids tighter and to raise awareness for pediatric cancer research.

    The road has been a long one. My sister, like you has focused on sharing her daughter Peyton Elizabeth Binder's story to raise awareness and help others through Doing Good in Her Name and on her Once a Mother blog.

    Just know our prayers are with you and your little boy will never be forgotten. He has, and will continue to, make a huge impact on this world. We love Ty and we love all of you!

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  59. Thank you so much for keeping us updated and sharing Ty's story and your story. I can't tell you how often I think about you and your family...you are in my thoughts nonstop. I have never felt such a connection to anyone that I have never met. Ty is the miracle, he is a gift to all of us....please know that he has made such a difference ALREADY and will continue to do so!

    Please take care of yourself and thank you for sharing how you are feeling with all of us...I have been so worried since your last post. We all love you and are here for you. The pictures from the bridge lighting were beautiful, gorgeous...such an awesome thing to do. Hugs to all of you and little Gavin. I hope he is doing ok.

    With love & prayers,
    Lisa & family

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  60. Cindy,
    Your family's journey has changed me. Reminded me of how short our journey's are and also how important human connection and our relationsips with our communities are. I wish I could help you. Ty is free. He is well. He is complete. You...my heart just aches for. When I find myself thinking of you, I cry. Because its you who suffers in a way only another mother can understand which I am. I find myself wanting to help relieve your pain. But I dont know how and I know I cant. I hoep the connection here to us and to your community helps your find some peace...some understanding that we are with you and you arent alone.

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  61. Cindy,
    I lost it when reading the article on Brewster-Patch website. Gavin was asked where Ty was and he said, "God and Ty are in here" pointing to his chest. Cindy and Lou taught him that.
    Another example of Ty's amazing parents!

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  62. Cindy, I cannot even imagine what the past few days have been like for all of you. I have been checking your blog every single minute since Ty left us, just wanting to know how you guys were doing. I am glad you wrote to us. Thank you for sharing these heart breaking, painful but real experiences with us. I cannot stop looking at the pics you shared in your blog, and I cannot stop admiring Ty's adorable smile, and immense courage. I love you all so much, and will continue to pray for you always!!! God Bless you and your wonderful family for ever. Oh, and Ty, don't know if you realized this already but, now you can fly higher than Captain America!!! :) Our Super Ty!!!

    Love,
    Monica in New Rochelle, NY

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  63. Ty (Thank you). What an amazing name you gave to your miracle. He has helped so many people including myself to appreciate life to the fullest. Thank you Ty. You will always be in our prayers.

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  64. I'm so glad that you will continue this blog. I still make it my first stop in the morning, and will continue reading. Haven't stopped thinking about Ty and your family. I think his little life impacted mine for a lifetime.

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  65. I kept logging on to check if you had written but I do understand and respect you needed that privacy. I love how you express yourself about everything that has happened. It makes me sad but it does comfort me as well knowing you and Lou were there til the very end. Ty was a beautiful boy and I do tell you everytime I see my 5 year old son I think about Ty. May he rest in peace in heaven with God and all his angels. He will come to you Cindy I know it and I will continue to pray for your family. May God Almighty bring you comfort.

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  66. cindy, i dont think i ever wrote a comment that was adressed directly to you. before, i wrote for Ty and to Ty thru you. i am sorry about that. but today, i want to tell you that you and of course lou, are the reason that i opened and read the blog and will continue to do so daily, hourly if needed. you are amazing and you made ty so happy even when you couldnt smile you made sure he did. i dont know how you did that, how you remained calmed and positive and maintained happy surrounding in your home when death was knocking at the door. i know that ty is superTy because you are superMom, superfamily. everything about you and your family is magical pure and perfect. Ty was happy because thru tears and cry in your heart you showed him only positivity even about dying. he was happy to leave the pain and he knew it was time because you allowed him to go guilt free. im jewish. and in our religion our life here is really like death, our bodies are like boxes that keep our souls locked in, we only live to eternity when we die, and thats why when someone dies, we sit shiva, we mourn for 7 days and we really cry for ourself because the person who is not here is actually more alive than we are. i never thought deep about it until Ty was gone. but i know that he is alive and free and happy. cindy, you continue to amaze me, because Ty was created so perfect in your image and of Lou's. I made myself watch St.Jude patient cancer stories, I cried, I never want to stop reminding myself that there is cancer that kills our innocent babies, and we need to do more. I know I am really trying, and I continue to talk about you and Ty.I miss your boy so very much. I tried to rewatch every video of Ty, but that I couldnt do. My emotional connection to him is just to unreal and it hurts so much.
    As a mom of two boys 5yo and 4yo, i cant imagine what it feels like to let one go, to see him suffer and not be able to take away his pain. I cant comprehend how is it possible to lay down in a bed next to a dead cold body of your precious baby unless you were there dying yourself. but you cant, and you know that. you have Gavin, your precious amazing perfect baby, who will go on and do big things for Ty. Thank you Cindy for being you, for writing to us, for being so perfect and for creating a perfect Ty. Take credit for everything, because you deserve that much and more. Sending love your way. I pray Ty will visit your in your dreams.

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  67. Cindy you are the bravest mother I know. Your words to Ty were absolutely beautiful. You were both blessed to have each other and I do believe he will be with you always.

    I felt exactly the same comfort when my grandson was cremated as well. To kill the cancer once and for all gave me some relief from the pain in my heart. I remember saying "it's gone now baby, it's gone" but sadly so was he.

    You have a beautiful gift and I believe you will make a big difference to childhood cancer. You and Maya Thompson both will make a huge difference. Two amazingly strong woman sharing so very much in common. You both have the world following your journey's and I believe that is going to have a huge impact on childhood cancer. But please don't take on too much until you have had your time to grieve for your baby. You need it. You deserve it. God bless you and your family. xx

    Love you Super Ty xxx

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  68. Love to you all.....Ty will always be with you. Dreams give you a physical reassurance because you see him, but his spiritual presence is far more stronger. There is no such thing as a coincidence. You will see signs to reassure you he is there daily. Cherish them. Your Son is your Gaurdian Angel. When Gavin speaks of TY it's because he see's and is conncected to him. The messages will come soon. God Bless you. Leslie

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  69. You are an amazing person! It is no wonder why Ty is so special, he got all his courage and strength from you! Your family is amazing! I think of you and Ty every single day and I have become a much better person because of you. I admire your strength, and I admire the love that I feel when you write your blogs, you allow the readers to really feel a mother's love and it touches our souls. I never met Ty, but I have fallen in love with him! He was a very special boy, it shows in his eyes and in his smile! He truly makes me be a better mom to my two boys... it's so easy to get caught up in the rat race we all live in and since I've been reading your blogs, SuperTy has taught me to take a step back and breath and enjoy the gifts of life. When my boys ask me to read them another book instead of saying not now, I say okay, when they are playing and laughing and getting rowdy, I allow them to instead of yelling at them, when they see a puddle and want to jump in it, instead of getting mad, I will join in... Ty has changed my life, your strength has inspired me! Ty will visit you in your dreams, I totally believe that! He will be looking down on you and will be your special angel forever!

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  70. Anything I write just cannot express the way I feel about you and your beautiful Ty. You are an amazing mom and person with so much love in your heart. Thank you for sharing it with us. We spent the entire weekend playing and spending precoius time with our 4 and 6 year olds. We had no other committments but to have fun all in the honor of Ty. You and Ty have made such a difference in so many lives. I wish there was something we could give back to you.

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  71. We love you all. So happy to hear from you this morning. Thinking of your beautiful family all weekend.

    Tell us what to do now, Cindy! I feel like I want to move a mountain for Ty. How can we help?

    Long Island, New York

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  72. Hi Cindy. Once again I find myself sneaking onto your blog at work and crying at my desk. Thank you for being so open with your grief and the details of your last 18 hours with Ty. Not enough people talk about the horrors of this whole experience and I really appreciate you opening my eyes to what you went through the last two years. I had no clue how underfunded pediatric cancer research was and I truly believe that with the press Ty and Ronan Thompson have received, the coming years will see a big change and more awareness for this cruel cancer. I have checked all weekend for updates on how you, Lou and Gavin are managing. Ty has been in my thoughts for over a month now and I will continue to think of you and your family as you try and move on. I wish you strength and courage to get through the next few months. You are an inspiration to us all and a reminder to live life to the fullest. Sincerely, Shelton May Murry

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  73. You are by far the most remarkable mother I have ever known, even not knowing you at all, only through the story of your journey. I have to say I have been truly touched by your son, again, only knowing him through story, perhaps because I have a 5 year old son of my own whom I see so much of in the beautiful spirit of your Ty. That being said, as I was getting frustrated and short with him (and my 3 and 1 year old) this weekend over meaningless nonsense, I had a flash of your son and his awesome smile, took a deep breath and stopped. We spent the next hour or so outside collecting leaves and twigs off the ground and just talking about our day. I am so so sorry for your loss, but I hope it gives you comfort to know that your child has given me perspective and thoughtfulness which in turn makes me a better mom. Thank you Ty, and God Bless you and your family.

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  74. Cindy, Lou & Gavin-Thank you for sharing your little boy and your story with us. It's heartbreaking to read your blog, but it has also made me stop in my tracks before I yell at my son about something, because I know that his dirty room/fighting about bed time etc is nothing close to a second of what your last few years have been like. I also wanted to say that my Dad passed suddenly a few years ago and I have a necklace with his ashes in it, some people think its odd, but to me it gives me peace knowing my Dad is always with me. I will continue to pray for you and your family, and SUPER TY, and as long as you keep writing, I will keep reading! TLT-Pawling

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  75. I took my kids pumpkin picking on Long Island yesterday. At the entrance there were young girls collecting money for pediatric cancer. Immediately I thought of Ty and didn't hesitate to donate money to this worthy cause. I have become so enlightened to the underfunding of research for pediatric cancer because of Ty and because of your blog. I now will do everything I can to spread awareness. My cousin died of cancer 28 years ago at age 9 (he got cancer first at age 5) and I have always thought if it was now he prob would have had a cure, not actually knowing how many children it actually still takes. His mom(my aunt)died with him that day, her life after that was barely survival and she died last year at 63 years old. She had two other children, but her heart died with Ian. I hope Ty and God gives you the strength my aunt didn't have. You will now have time with Gavin, and Ty will always be there watching over you. Keeping you, Lou, Gavin and your family in my prayers. Your little boy Ty has achieved more in his short, but full little life than most people do in a long lifetime.

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  76. Cindy
    I also began following Ty's story recently. After he passed I too cried as if I knew him, almost non-stop for a whole day. It was very unusual for me to cry and be so emotional over a little boy and his family that I did not even know. My boys and husband thought i was losing it. Your writing is so eloquent, it has made us all feel like we did know all of you. I too have my own little boys & I have hugged them and loved them over these past days with you & Ty in my thoughts. Of how lucky I am to have them and their health, of all that I have taken for granted & will try not to in the future, of the worries over things that seem trivial compared to your worries for Ty. I too had a dream of a smiling, running, little blonde boy this past weekend. I knew he was not mine, but did not know who he was. I woke up thinking of him. After reading someone else mention the same, it prompted me to post this comment as well. To let you know your Ty lives on and he will come to you in your dreams. To say that I am so sorry and I too will share his story and already have. To let you know I have been praying for your Ty and you, and Lou and Gavin. God bless you and may he surround you with the love and support of family, friends and us, your unknown followers, to carry you through this time.

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  77. Still praying for you. Still remembering Ty. Still saving up my money for Ty's charity at Christmas.

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  78. I just wanted to let you know that even though I have not been following your blog for very long, the courage and love that you post is incredible. Thank you for being so open and honest, sharing something so hard and imaginable to most of us. Being a mom myself I would agree a mothers love is something so indescribable and amazing. I hope that we can all be motivated to help from Ty's story and continue to find cures for these sweet children, I know you will do great things as you continue the fight against cancer. Also, I believe Ty is having a great time in heaven being the 5 year old he couldn't be here, missing you like crazy, but always watching over you.

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  79. The picture of Ty looking at the sea you posted on FB reminds me of a picture of the little prince from the book 'The Little Prince' by Anthony De Saint Exupery. Have you ever read it? A short and lovely story of a boy who inspires and touches hearts of adults and other creatures he meets during His short mission. And then he's gone.... And I always cry although I have read it so many times and know the ending. Ty reminds me of him.

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  80. Thank you for sharing this very personal experience with all of us. The way you and your family, especially Ty, have dealt with all of these horrible things has made a difference, and I hope to be able to pay tribute to all of you by making a difference in my community. I will not forget what I have learned from you--to cherish every day I have with my children, even until they aren't children anymore because to me, they always will be my children. I will not forget the children and their families who are going through horrific illnesses, and I will remember your account of going to the store with a sick child who whined and cried before I judge a whining, crying child. I will do my best to remember you before I complain about something simple while forgetting how privileged I am to have healthy children at home. You have made a real difference, and Ty will live on for so many of us who never had the honor of meeting your family. I will continue to pray for you all.

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  81. I know you don't know me at all - like many of the people who leave comments for you. But I will say this, I feel like I know you and want you to know that your story has moved me. Your family, your beautiful children, and your truly super Ty and his spirit, magnetic personality, and zest for life! I am so grateful for the way you have helped put life in perspective, so much so that I am actually slowing down....taking time to be silly and just read books to my kids at night. I have always known what was more important, but you sharing this story has put it in my forefront - enough wasting time on petty and insignificant things. But for the grace of God should anything happen to myself or my children, I feel I am now on the right track to things in life:) So from the bottom of my heart, I thank you. I will continue to follow and support you and pray for the dream of a cancer-free world for our kiddos! I posted Ty's blog on my facebook page last week when I saw he had passed....I just felt it was the least I could do - to share his story with that many more. You have no idea the immense amount of tears that have been shed for you from complete strangers, but it is a good sign in my opinion. The way you are affecting people drives passion and passion drives results. Thank you for the perspective and I vow my continued support for you and the cause you are passionate about - bringing the horrific nature of childhood cancer to light. Stay strong and be SUPER! XOXO

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  82. I recently got a very challenging new job - one that enables me to work from home, so I can be near my 14-month-old all day. Despite this, I have had a hard time balancing time with my son and work time. I feel pressured to work all the time, so I am able to keep this job that keeps me close to my son. The result is, even though I'm home, my attention is rarely with him. Reading Ty's story has helped me snap out of the work mode I have been in lately and focus most of my attention back on my son. This requires that I trust that God will continue to keep the door of my job open to me... even if I am not putting ALL of my energy there; my son needs some of it! It may not sound like much, but I think you and Ty have helped steer me away from a road where I became a work-obsessed woman who couldn't relax and enjoy my family. I feel like I have broken that pattern over the last week, all because your writing let me know that I have no choice but to ENJOY my life, stop stressing, and enjoy my beautiful son. THANK YOU.

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  83. I know it's strange b/c I don't actually know you, but I've missed you. I am so relieved to read that you will continue your blogging. I can not even begin to imagine what you and Lou are going through. I hope little Gavin is giving you lots of extra hugs and smiles to help you remember how very special a mommy/daddy you are!

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  84. Cindy, reading your blog has helped me so much with the pain of losing my mom. I too held her in my arms as she was slipping away and in my bleakest moments, I return to your blog and read some of your posts and every time it gives me strength to carry on and start living again. Yes, nights are the worst and I can barely sleep as well but then I think about Ty and mom in heaven and realize they are free from disease and happy now. Thank you for sharing your incredible story. Ty will always be my hero.

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  85. Cindy,
    Thank you for coming back to us.I have checked every day for a post from you, I was so worried for you and Lou.And I seem like my day is not the same without some word from you about Ty.I know how much you are missing him and I do hope writing here will keep him alive in your heart and mind as it does for me.I am sure Ty is with you and Lou and Gavin(watch him to see proof)everyday and will never leave. he will come to you in your dreams when he learns how,I have been told that it actually takes the spirit some time to learn this!I do believe it is real too, I have had visits from loved ones and friends we have lost, with special messages that you WILL remember when you wake.Please be patient and he will come to you when you are BOTH ready to handle it.God is preping you , just like he gave you time to prepare for his leaving, as painful as it was, it would have neen so much harder without all the time you had to get ready.God bless you,Lou,Gavin,and the family. Please keep us in your life as you have become a part of ours.....Jean <3

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  86. Cindy,

    Since reading Ty's blog a few days ago I've been in tears. I have an almost 3 year old little boy and it breaks my heart for what you all have had to go through. I'm so happy for Ty that his spirit and life is finally free and I'm so sad for his loved one who are left behind. I've been thinking about you for days and I hope that Ty comes to visit you soon.

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  87. Cindy,
    Your blog has changed everything about me as a person. I will never again be able to fret about the little things, I will always thank my lucky stars for my own and my son's good health and I will never again be able to take for granted the time we have together. Thank you for sharing your pain and your amazing and lovely Super Ty!! My three year old son shares his love of super heroes and from now on every year we will donate to pediatric cancer research in the hopes that one day there will be a cure. I am so deeply sorry for your loss and as a mother, can't comprehend the pain. I can't think of you guys without shedding a tear and remembering that lovely smile that you so graciously shared with us. Thank you and I know Ty will always be with you.
    All boys love their mommies and you are an amazing one :)

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  88. Cindy. As most people here I have followed your blog and have fallen so madly in love with Ty, with you, with your strength,your courage, your family, your husband and your Gavin. Ty has touched people as you, most espcially, know in ways that are amazing and beautiful. The world has simply fallen in love with your beautiful child. We can never know what Gods plan is but of this I'm sure, Ty was chosen because he is special. They say that God only gives us what he knows we can bear. I often struggle with this but when I read your words I know that you too have been chosen because you are so very very special. The world has fallen head over heels, cried with you, prayed with you, smiled with you, prayed for you and now cries all over again. There is nothing that can be said, other than this. You are certainly not alone, though you may not know us personally you have touched us all so very deeply and I think most people are in awe of that strength that you possess. Know that you and your beautiful son will be together again one day and all this will hopefully make sense. For now it does not and it can not, not for you, for Lou, for Gavin and the rest of the entire world that is grieving with you and for you. Please keep the faith and know that you are loved, admired and remembered in daily prayers of thousands of people that have never met you but have become your family. Ty is safe, he is no longer in pain, he is running and jumping and playing and watching you from above. God Bless you and keep you.

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  89. I am saddened for your loss. Still, despite all that he went through, I want to honor your son by hopefully seeing the "beauty in all that is silly and ridiculous." That you can still do so is testimony to your strength but maybe more importantly to the love and grace that Ty blessed you with.

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  90. You had such a beautiful tribute to your son and raising awareness to Pediatric Cancer, last night. I KNOW Ty was there watching those lights brighten up Mid Hudson's Bridge!
    Thank you for letting me share that special moment. I am humbled by your honesty, dedication, strength, and beauty. I known you said you'd have a half smile after Ty passed. But last night, I saw the your smile that everyone has described as radiant. It was FULL of beauty. It still is there. Maybe you feel that it is half missing. Perhaps, the other half of the smile is completed with Ty's! Your letter to Ty was perfect. I'm sure as you placed every memory next to him, he was watching, giggling, and knowing that the memories you are going to make will be shared by him as well. He will always be with you. XOXO
    Kelli

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  91. I was so glad to see a new post this morning. I have been so worried about how you guys were doing. It say you are going through a tough time is such an understatement. But that you still writing and sharing such intimate emotions with us all is amazing. Thank you so much Cindy. Even though I never met your wonderful boy, I love him and he will forever be in my heart.

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  92. Hi Cindy and Lou! I've been checking the blog daily and I'm so happy to hear that you were able to be with Ty all the way to the end. But remember, this isn't exactly "the end." It is only the beginning of a new chapter for everyone, including Ty's soul. Ty's spirit is so completely still here, working miracles on Earth for your family and other children who share his condition. He is an angel, literally bridging the amazing realm between this plane and the great beyond. Please remember that!! Much love!!

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  93. "His favorite color is green mommy, I think that is mine too". My daughter said after hearing the eloquently spoken words of Cindy Campbell at the soccer field yesterday. We bought our tee shirts, but hardly felt like we are doing enough. I wanted so badly to speak with Lou and Cindy Campbell but knew I would burst into tears! I watched Gavin play on the side a few times I was in awe of the Campbell strength and happy to see that Ty's fight will bring great things.
    You are truly amazing people with so much to do in this world! Ty has the perfect team here making a difference while he guides your hearts with his spirit.

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  94. Cindy, I am glad to hear from you (which is somewhat selfish of me--with all your going through). Please take some time out for you!!! I read your blog and it made me sooo tired knowing what you have been through the last two years. I can't imagine doing it any other way but he is pain free now. Please please please take Gavin and go to the beach.. rest your body and your mind so you can continue fighting.. Enjoy Gavin he needs you now.. and he will help you since he is also part of Ty... be well.. Kerry

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  95. Dear Cindy,

    First of all I would like to send you my deeper condollences, I´m so sorry for your lost...but I wanted to tell you so many things...First i m gonna introduce myself..I m from far away, Europe, Spain..and I just found about Ty and your story 4 days ago. I was reading an article from Allison Tate, ( beatiful article about mothers) and I got to your blog somehow.

    Sorry If i make spelling mistakes...Your story, Ty´s story is about grief and about love just equal ways. He had such a angel face and look...amazing. All kids are angels, but this kids are heaven angels..too good for this world. Although Ty died I want to tell you he won...he won in somany ways...I would like to tell you a story about a surviver..and you will understand why you and your son have won. I m 31 years old, and since we were kids me and my sister were always together with my 2 cousins. Jose the oldest is two years younger than me...23 years ago, when he was 6 his whole life changed ..he dind´t have cancer but he had a brain haemorrhage ( i have looked it up in the dictionary). His mum wakep up and heard him making strange noises..he went to his bed..and couldn´t wake him up..she took him to hospital..he went through surgery..twice the first week, and he was with no brain activity for a while. When he woke up, his head was like Ty´s he couldn´t move his left side and talk with difficulties. He learned everything again..went through more surgeries, cateterism, embolias (i don´t know how it is called in english)..Before all this happen he was the little cute blond baby everyone stared at..Now 23 years later....his life is very difficult, half of his brain is damaged, his bone is bend because all the surgeries he is gone through, and because of that he has epilepsia crissis nearly everyday...he falls his eyes go white and he looses his capacity to talk while the crissis. He has had so many injuries because the falls.

    He thinks too much, and doesn´t talk a lot. Sometimes he starts crying...without a know reason..but of course there is a huge one: he has no live..he has headache everyday, he always dizzy ...he would go to the end of the world to have surgery done that make him feel better. he often gets mad at his parents, and tell them they haven´t done enough..he stops talking to them may be for 3 days, fo no reason.He is so frustated..and he knows is not going to get better, it is not. Once he was talking to my grandad, his best friend, and he told him " grandad, I know one of this days I will be gone..." my grandad couldn´t stop crying.

    So I think Ty has won, he has won because he has gone late enough to have had a big battle, but early enough to not loose his inocence.

    Sometimes, we ask ourselves If this wouldn´t have been better for him, this is might be better for us, because we haven´t had to go through your last experience...but for him..? it breaks our hearts when he falls so strongly and hurts himself so bad..........this is the better he is going to be.

    I have a six months baby ..a girl..I was told twice while pregnancy she could be sick..she is the best, and Jose loves her so much...


    Ty is on heaven, and I hadn´t ever readen a biggest act of love, as when you thought about giving him your hand. You are the best mom, all parents should be like you.

    Ty is now playing with another kids like Elena Desserich, whose father also wrote a book about her story, just the same as Ty´s. She died when she was 6. I suppouse you know her story.

    This kids are incredible...and now they are having the time of their lives......

    Best wishes!!!!!!!!!!!!!! you and brave people like you are the best, thank you for sharing your testimony..and your little angel´s smile. dienas21@hotmail.com


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  96. Thank you for sharing your beautiful story with us. I have been praying for you feverishly, for strength, for guidance and for peace. I know you will never heal from this, how can you when your child is taken from you in such a way? Please continue to tell us all about Ty, Gavin and your life. We will never tire of hearing it. Like everyone else here, I feel so close to your family and so much pain. I wish there was something magical we could do to help you all get through this. Love to you all is the best I can do.

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  97. I ask God for signs that Ty is ok and happy and let me tell you they are everywhere!!. I saw a grown man with a tiny superhero umbrella in the rain the other day and also as I was opening up my cabinet to reach for a cup it just so happens I have a cup with the word super right across the top! I am sharing Ty's story with everyone I meet. Thank you for making me a better mother. Thinking of you always...Lisa..Rockland county

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  98. You have been truly inspirational. I started out reading Ronan's mama's blog and then I found out about Ty. I have been compelled to help fund pediatric research and want to tell everyone I know and will know how much is needed. Your family is much loved by strangers, such as myself. Please remember in the days to come, that friends are only a mouse click away. Ty will always be here, not only on this plateau, but on all the others above it. He will be at your altar.

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  99. Already, there is an "orb" in this picture on Ty, between he and Gavin... His Angel was already with him to see him through his fight.. He was never alone, and never will be!

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  100. Mark and Lisa SanfilippoOctober 22, 2012 at 11:43 AM

    Cindy & Lou,

    We think of Ty,you,your family everyday. Your blog has allowed us to feel like we know you, know Ty, like so many others. We are actually neighbors just over the hill, living in the Village of Fishkill. For the past week, every night, and every morning sunrise, I walk outside in my backyard and look east, and think about you all. I look up to the heavens, trying to, in someway, imagine what Ty is experiencing. Our feeble minds just cannot truly grasp the awesomeness of what Ty is experiencing right now. But I know he is there, and yes, we too, do believe he is still near you, with you, and yet, with the heavenly host, alive and well.

    The world is so saddened by your loss, yet we cannot even begin to fathom the depths of your sorrows, your pain and grief. But we care, for you, your family and for Ty. We will remain with you throughout the journey.

    May God rain upon you, His love, grace and blessings. May He sustain you with a peace that surpasses all understanding.

    Mark & Lisa, Fishkill, NY

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  101. Cindy and Lou,

    I was so glad to see another post. I have been thinking about you and your family since your sweet boy passed. I know you take comfort in knowing that Ty is in a better place. At the same time, the void is enormous (which I'm sure is an understatement). Let me tell you a brief story about when my dad passed-- I was very young and I was devastated. I couldn't sleep for weeks and I prayed to God for comfort. One night, dad came to me in my dreams. He told me he was ok and at peace. He told me to live my life the best way I could. I woke up crying hysterically. I'm not much of a believer in "visits from beyond," but after that, the peace that I felt was unlike anything I had felt for a very long time. Maybe it was my subconscious giving me something I needed--you know, kind of like a defense to prevent me from falling apart completely. I don't know, but I was grateful to God for what happened. I know there's no comparison to losing a child-- especially one as sweet and brave as your SuperTy. Just know that I believe he will come to you and when he does, the peace you feel will be unlike anything you've experienced. In the meantime, stay strong. Your and Ty's story is an inspiration to so many. Thank you for sharing your journey and your wonderful, sweet, brave boy with us. I pray for you and your family every day. I am forever changed.

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  102. thank you for your beautiful post, i was waiting and hoping for one soon. by telling Ty's story from the beginning you have changed the world. i never knew a family could be so invoved in the cremation process...you are all so strong. I am hoping you (all)get some good sleep/rest soon. I think of Ty often.

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  103. Cindy,
    I wanted you to hear a story about my children and I hope it brings you some comfort. We've been praying for Ty every night since I first learned of Mister Amaizing Ty and the day he passed on, when Gavin started praying for Ty, I had explained that now Ty is in heaven, but we will still keep praying for Ty's family. We had a nice, complicated discussion about that of course :) The following day, my daughter was playing dress up with wings and I asked her what she was dressed as. I said, "a butterfly, a fairy, an angel, let's see, what else has wings?" Her response, at age 4, was "What's an angel?" Gavin, my 5 year old, pipes up into the conversation from the other end of the room, "Oh, I know, SuperTy. SuperTy's an angel. Right, Mommy?" It brought tears to my eyes. Sad tears that Ty was taken so soon and so unfairly, but happy tears that there is just no doubt that he's an angel.

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  104. Thank you so much for continuing to share Ty's story. Your strength, faith, and pure love for Ty has touched me like nothing else. Each day I pray for you and your family and each day I take a minute more appreciate my children. I am blessed to have known Ty through your blog and I know that he is so very proud of him Mommy and Daddy. I keep Ty in my heart.
    Elisabeth

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  105. Cindy - when I have experienced the death of loved ones I try not to think of them as lost but as gone ahead of me. Death awaits us all. Ty has only gone ahead of you. You will meet him again somewhere down the road. He will visit you in your dreams and in your waking life. The people and even the pets I have lost have come to me to let me know that they are ok. It isn't something that you can order up though. You just need to relax and be patient and still. Some yoga and meditiation might help you through this terrible place. I just find stillness and silence help me cope.

    You are simply the strongest most amazing mother! You listen to your own inner voice and do what seems right to you. Keep hearing that voice and you will make it through this, changed of course, and never the same, but you will make it through.

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  106. Cindy, Your Strength is amazing. Your family inspires me. I am always caught up in work and cleaning the house and things that dont really matter, I started reading your blog over a month ago after seeing a post from one of my friends from Wantagh High School and I saw a part of your post The Girl that always had a smile and I knew it was you and then I went into the blog and read about Ty and it changed me for the better. The kids now are calling me fun mom. My daughter Gianna now tells my son Anthony she is fun Mom now. Life is too short and your blog has helped me change and I cant Thank You enough. We pray for Ty every night now and light a candle for him and the kids wish him good thoughts and hope that he is having fun and playing and eating lots of candy. I am so sorry for your family's loss. Thinking of you always

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  107. I still would have chosen you,

    If before you were born, I could have gone to heaven and saw all the beautiful souls, I still would have chosen you

    If God had told me, "This soul would one day need extra care and needs". I still would have chosen you.

    If He had told me, "This soul may make your heart bleed". I still would have chosen you

    If He had told me, "This soul would make you question the depth of your faith". I still would have chosen you.

    If He had told me. "This soul would make tears flow from your eyes that could fill a river". I still would have chosen you.

    If He told me. "This soul may one day make you witness overbearing suffering". I still would have chosen you.

    If He told me "All that you know to be normal would drastically change". I still would have chosen you.

    Of course, even though I would have chosen you. I know it was God who chose me for you.

    Author Uknown

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    1. Oh my, how touching and true of this beautiful Campbell Family.

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    2. Absolutely beautiful!

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  108. I'm so glad to see your post, Cindy... As much as we've all worried about Ty for so long, now we know that he is more than ok - he is flying high with the angels! So now our concern is for you, that you are ok, and taking care of yourself.
    I am so glad to hear that you can still sense him with you. The fact that you said sometimes you feel like he hears you, other times, not - makes it all the more valid. If you are open to feeling his presence, you will truly feel it when he is with you. When he's not, you know that he is simply visiting others who have loved him so, and rejoicing with so many who have been waiting for him in Heaven.

    Not an hour of the day goes by that I don't think about Ty, and all of you. There's not a beautiful or happy thing that doesn't make me think of Ty... of course, you can't go anywhere these days without seeing Captain America...of course that conjures Ty.... My son watches Max and Ruby every morning...Ty again. I promise you I'm not making this up - whenever I'm outside and thinking of Ty, a butterfly flutters by me, and there have been so many butterflies lately!
    The last few days, I've been looking at one "sympathy" greeting card after another, to send... but none of them do Ty any justice. They all fall short. That boy's smile is a million points of light...his spirit, powerful enough to move a mountain. The love shared among you, so strong that it leaps off of our computer screens, and into our hearts, so that all of us who read your posts have very physical reactions to it. There is no greeting card to describe both the love and the pain we all feel.

    It amazes me that your perspective on all of this can be so clear, while it is still so fresh and raw. My sister and I agree that the only word that comes close to describing you is: GRACE.

    Please know that you continue to be in my thoughts and prayers, and we will all carry Ty's story and mission with us forever.

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  109. Sorry the email address is dineas21@hotmail.com

    just in case you ever contact to people.

    I have seen one of the videos and cried ...it´s so unfair all this kids have to go through..

    Only Gods Knows.. Best,

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  110. I miss Ty's gorgeous green eyes, beautiful smile & angelic face! I have been heart broken and sad since his passing. I can't imagine the sadness your family is feeling. I will pray for your strength to get through this horrible time. I look forward to your upcoming posts & all the wonderful things you are going to do to fight childhood cancer in Ty's memory. Your family is loved by thousands. Cry, scream, sleep, have a glass of wine & try to sleep so Ty can visit you in your dreams. Xoxo

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  111. Dear Cindy -

    I recently learned of Ty a few weeks ago. I have been following this story ever since. My heart breaks for him and you and your family. I think I cry at my desk almost every time I read your blog. It is a bit strange for me, this is not the first time I have heard about an unfair disease that strikes a child but something about this one - Ty specifically - I can not shake. This is a first for me.

    It must be the way you have captured his little life, your beautiful words, pictures, videos I feel like I know you guys. I have two little ones as well at home and just seeing Ty in the smiley happy photos and then in the more sickly ones just gets me each time. His sweet face reminds me of my kids - I just want to grab him and hug him so tight. What a brave warrior - so unfair.

    The outpouring love and support from your community and all over the world has been amazing and I hope that brings you some sort of comfort.

    Thinking of you, your family and Your little Ty, I can promise I will never forget his story.

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    1. I feel the same way....could not have said it better myself.

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    2. Yes, I, too, feel the same way. Ty's heartbreaking journey captured my heart & soul in a very profound way. Ty is my hero & will always have a very special place in my heart.

      Thank you for sharing Ty's courageous & heartbreaking journey.

      My continued thoughts & prayers are with Ty & his family.

      God Bless.

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  112. For me, the dreams didn't come for a long time and they don't come often enough. Yoga helps but I did spend a lot of time practicing yoga and crying and still do at times. It will be two years next Monday since Tyler died and I suppose it's a bit easier but no less sad or horrible. Someone used the word dreadful which I think is appropriate. I find I have very little to say to anyone, I can make idle conversation but am also okay not making the effort. Life has become about effort and not living; joy is hard to find.

    I am glad you feel your son's presence which must be comforting. I hope you find ways to see him healthy and happy as he was before.

    Diane

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  113. Hi Cindy,

    I am so glad to hear from you. I was hoping you were okay, and that the quiet meant that you were busy taking care of yourself.

    I think about you often, and you are in my prayers.

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  114. praying for you...

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  115. Cindy, Lou and Gavin,

    What can I say.. I am truly sorry for the loss of your baby boy Ty. He has touched our hearts in every way possible. I am thankful for you taking the time and sharing his story with us. You have no idea how much you and Ty have done all over the world. I spend more time with my kids and let them get away with things more now than ever. We have kept TY and your whole family in our prayers and thoughts for months on end. We are extremely blessed with everything you and Ty have taught us. He will always live in our hearts mind soul thoughts and prayers. I hope to continue his story with everyone I know as well as you continue with all the entries in his blog. Once again Cindy thank you and I am so sorry. If there is anything that you may need from us PLEASE let us know. We are willing to help with anything. Sending lots of prayer comfort all the way from MIAMI FL..

    Love, Alex 6, Michael 2 and Yancy Quintanilla

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  116. Cindy, thank you for sharing your beautiful story. It's really weird and feels horrible to describe a little boy's death as beautiful but Ty's whole life including his death was beautiful. Your story is filled with such love and raw emotion-it is powerful. We've gotta get this country hooked on gold as much as pink. If anyone can do it, it's Ty. He's already inspired so many people.

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  117. Thank you for continuing to post, hard as it might be. You have done so much for so many people and will continue to do. Thank you for allowing us to share pieces of Ty with you, and I hope he is looking down on you now and sharing his strength in the days to come.

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  118. I feel so selfish saying that I am so glad you updated. You and Lou and Gavin are on so many minds so much of the time. And Ty. Oh, Ty, he's more than just on folks' minds. He's influencing the way they are, the way they want to be. Someone asked me recently what one person has most influenced how I parent, how my family functions. The only answer: Ty Louis Campbell. Your family, Cindy. Thank you for opening up so many eyes to gratitude, faith and the reality of cancer. Thank you so, so much. SO much. You are a true mother, a real nurturer. Your words are so beautiful. I am so glad Ty had you all the way until his beautiful send off to the next world. You are mommy personified, embodied in the most beautiful way, the way it's supposed to be. I pray to God each day that I can take a page out of your book. Please, please, please keep writing--for some of it's instruction on living. Thank you, teacher.

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  119. It is good to hear from you. When I read your blog I always cry. My 2.5 yr old would ask, "Why are you sad." I told him Ty was sick. Today, he saw me crying and asked, "Is that boy... Ty, still sick?" "No" I told him. "Yay" was his response. It felt good to tell that Ty was no longer sick. That is good and worthy of a yay. It is not good that he had to be so sick and the only way to heal was to die. I think of you all often throughout my day and will keep you close to my heart always. I have never shed so many tears for someone I have never met. Hugs from NC.

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  120. Trina Redtfeldt/Boise, IDOctober 22, 2012 at 12:52 PM

    Thank you for sharing your incredibley painful journey. Ty was so fortunate to have such AMAZING parents. Love, prayers and peace to yourself, Lou, Gavin and all the other family members and friends that have been touched by SUPERTY! Godspeed young man...

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  121. dear Cindy and Lou, I've tried countless times to write to you and the words never seems worthy for you to read. Like the many other people who have followed Ty on this journey, I check in daily. It is sort of strange that we don't know know each other, but I feel like I do. So many of us do, because you let us in to the most private, difficult, and beautiful days of your lives over the last few years. Do you know what a privilege it is for us? We are strangers, but we are all very connected to you, Ty, Lou and Gavin. I fell in love withTy. Absolutely everything about him. As a mother, I simply cannot fathom what you have endured, simply cannot. But each night, I hang onto every word you write. You have allowed us all to Go through this with you by sharing your days and nights, and all of the little details in between. To know these things, Ty's good days and bad, his last day on earth, and what it was like for you, is something that no child or parent should ever have to face. But you do, it's a reality for so many people. Ty's journey has given so many of us understanding, clarity, anguish, but hope. Ty has fueled the fire within so many people to be different, do something to make a change so that other children and their families do not have to face the same reality. I think about you and Ty, Gavin and Lou every day. Ty is in my thoughts throughout the day and he has changed me as a person, and a mother. Please know that as much as these posts may bring yu some small amount of comfort, they bring us so much more. Please, please stay in touch as long as you feel you can. We need you, we love you and we want to continue on this journey with you andlou and Gavin.. We light a candle for Ty every night. Our love and positive thoughts to you. The snider family in NJ.

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  122. He most certainly will come to you in your dreams. I know it. It has happened to me many time with my grandpa. It is wonderful. It is so real!!!! He will come when you least expect it.

    Lisa Asimake

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  123. God Bless Ty and your family. Ty's story has had an impact on so many lives and made us all re-think what is important and what matters most in life. Thank you for sharing. So sorry for your loss.

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  124. Thank you for continuing to share about Ty, He has changed so many lives! He is one very special little boy and i dont doubt at all that he can hear and see you, keep talking to him because he is right there beside you and will always be. I can't imagine the grief you're going through but Ty will help you get through it cause he is always there beside you, And you will always carry him in your heart. RIP sweet little angel boy.

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  125. Cindy,

    Thank you, again, for sharing with us. I have six children ranging form 26 to 8. This weekend, we picked up our son at college and drove to see our daughter who is in her first year teaching 1st graders in Kansas. I spent part of the trip tagging lollipops that I left with her to have passed out at her school. The tag has a picture of your beautiful son Ty along with his website asking people to help "lick" childhood cancer by praying,spreading the word & raising awareness and donating. My son took some to pass out at his college Bible study. We are passing them out at our childrens high school and elementary school. All told...we will pass out approx. 800 lollipops with Ty's website on them. (I will share pictures on Ty's facebook) Your family has inspired so many to become aware and share the mission to defeat childhood cancer. Thank you for that. This is only the beginning.

    As I spent the weekend with my family, I caught myself thinking about Ty and all of you and praying you are managing. May the Lord continue to give you strength in the days ahead. Ty will come to visit...I know it.

    Much love to the Campbell family.

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    1. I LOVE that! Very cute idea, and an awesome way to get the word out.

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  126. Hi Cindy,
    It is nice to know that although you are experiencing the most cruel pain a human being can ever suffer - the loss of a child,you still find strength to continue sharing Ty's life with hopes of one day ending pediatric cancer. I immensely admire you and Lou for that.
    Thank you for being such wonderful people.
    Much Love,
    Taciani

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  127. Thank you so much for sharing Ty and his life with us. I, too, have been checking constantly to see how you're doing and I pray he comes to visit in your dreams soon. I think of him and you all so much. My 17 month old baby boy is going to be Captain America for Halloween & I will think of Ty that day and every day. He will live on forever. I am a better mother because of your bravery and never-ending love for Ty.

    Love, Sarah from Laredo, Tx

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  128. Thank you for sharing, dear Cindy and Lou.
    Thank you Ty! You are an example and role model for me. You are making me love my daughter even more.
    We pray for you and your family.
    Thank you Super Ty!!!

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  129. Hello - I've always wanted to write but never knew exactly what to say. As a mother, I can't even imagine what you are going through -I know I cried so much for you and I wanted to hug Ty reading throughout the last year. I tell everyone about him and how you have been such an inspiration to me and my family. I would love nothing more than to help you end suffering for children - cancer is horrible and there is no reason any child should have to suffer. I think you are an awesome mommy and I think Ty was beyond lucky to have you and Lou as parents. Thank you for sharing your story and helping me be a better person, mother, wife and friend. I will continue to tell everyone I know about Ty and how very special he is.

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  130. I totally agree. In sharing Ty's story you have made so many people re-think a lot of things. I know it to be true for me. In the middle of the chaos, I think to my self- "be thankful the for noise of healthy children".
    Thank you and continued prayers for you all.
    Jennifer, Illinois

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  131. Cindy, Lou & Gavin ~

    I am so sorry for your loss. I, too, like many others have been reading your blog on a daily basis and it has had such an impact on my life. Thank you for continuing to share it with us through this unbelievable time. I used to work at Riley Hospital for Children in Indianapolis, IN several years ago and also hope that one day soon a cure for Cancer will be found as so many wonderful kids are losing their beautiful lives to it!

    I think of Ty often and will never forget his story. God bless you and your family.

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  132. Give Gavin a thousand hugs today and everyday!!! I bet you he misses his best buddy!!

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  133. Cindy, I, along with so many others here, have not stopped thinking about you and praying for you. I cried reading about Ty's passing, and cried some more reading your current post. I can only imagine the suffering that you are going through right now, and how your heart is broken into a million pieces. What I do know is how incredibly strong you are, to share the moments of Ty's passing with all of us. I am amazed, and thank you so much for letting us share this journey with you. Ty touched my heart so profoundly and I know that I will never forget him, or the impact he has had on me. My husband and I took Ty's Captain America hat with us to the Great Jack o' Lantern Blaze in the Hudson Valley last night, in honor of Ty. How I know that Ty would have loved all of the amazing carved pumpkin displays, and it breaks my heart that he couldn't experience it. I posted a pic on the FB page, please know that Ty is thought of often, and the prayers for your family and a cure for this horrible disease continues. May God grant you strength and peace. xo, Marietta

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  134. Thank you so much for sharing your beautiful Ty with us. Indeed he is a super hero and inspiration beyond words. We had some high school kids collecting money for kids with cancer over the weekend, and I had to hold in my tears because I thought of you and Ty. Ever since I started reading your blog, I kiss my children and give bigger hugs than usual. Your pain and sorrow must run so deep, and I am so sorry for that. There will never be a reason a mom has to go what you have been through. Gavin is a lucky boy to have a Mom like you. Be brave for your little boy Gavin, and for the one in heaven. I'm sure Ty will forever smile knowing his Mommy is taking care of his little brother. God Bless you and your family.

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  135. There's an "orb" in the photo that you posted of Gavin and Ty together...spirit guide?! :)

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    1. There are two actually, one big one between the boys and another small one floating behind Ty's head.

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  136. i think of ty everyday it breaks my heart you are an amazing family

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  137. Cindy---I am beyond amazed at the end of life care that you and Lou provided for Ty. It is nothing short of perfection. I hate with every ounce of my body that I even have to compliment you on this because no parent of a 5 year old should provide end of life care. You are in my continued thoughts and prayers, SuperTy is going to change the world, I know it!

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  138. I have been thinking about you almost every moment of every day since Ty's passing. I think you truly changed the way I view life. I look forward to reading more about your super Ty. I wish for you to find peace and calm in your days to come. Sending you all my love.

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  139. Still thinking of Ty everyday and praying for all of you. Such an inspiration...such a legacy...

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  140. Cindy, words can't even begin to express how
    my heart breaks for you and your family. Your beautiful boy has changed my life. It's amazing to me how a boy that I never met, touched me so deeply. I can't even imagine how those fortunate to know and love Ty, feel during this difficult time.

    I learned of Ty and your blog, a few days before his fifth birthday. Since that day, my thoughts are consumed with you, Lou, Gavin and Super Ty. Your writing is so beautiful and so raw. You have shared with the world, something so special- your boy, your feelings, your loss and his truly amazing character. As a mother, I can't fathom how hard this journey has been for you. I have shared with anyone and everyone, Ty's story and they all fell in love with him, as I did. Ty has made me a better, more appreciative person and a better mom to my 20 month old. Thank you for that.

    You were blessed with your amazing boys and they were blessed with wonderful, loving parents. Ty is flying with the angels now, looking at his mommy with such pride. Your strength in unbelieveable. I look forward to seeing all of the strides that will be made in raising an awareness and one day finding a cure for pediatric cancer, all because of your beautiful, special boy, who was too good for this earth. God Bless you, Lou and Gavin always.

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  141. Cindy, you are a beautifully talented writer and the vivid images with your words break my heart. I never even knew ty but I have sobbed over the unfairness of him having cancer and the anger I feel with his passing. He is such a beautiful little man and I have dreamed of him since he left this world. I know he is an angel now but I'm so angry with God for taking him. I hope gavin is doing well. I can't imagine all that you are going through as a family. I just hope you know how incredible you all are and how amazing ty is. I will never forget you all and I will continue to support your cause in any way possible. It hurts to read your words but somehow brings comfort at the same time. Maybe because I know ty isn't in pain anymore. You are in my prayers and I love you. You are one of the best moms I've ever seen! I hope you get some rest. Love always...

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  142. Don't worry Cindy. Ty will visit you whether you know it or not. we all want some type of undeniable billboard moment that says, "HEY IM HERE! I SEE YOU, I LOVE YOU, IM OKAY." In a perfect world it would be that way, but never the less, he is around you. Keep your eyes and your heart open, and Ty will absolutely find a way to show himself. Also keep an eye on Gavin to see what he notices. They say kids and animals pick up on more things than us adults do. :) i love you guys & i pray and think of you all everyday. <3 xo J

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  143. Cindy and Family: I am so glad you posted. I have been checking your site several times a day hoping you would let everyone know how you are doing. I have been reading your blog since almost the beginning. I don't even know how I found your site other than I read many CarePages and CaringBridge sites. Even on my vacation, which lasted 6 weeks, I checked your site on my iPhone. It feels so weird not getting an update about Ty. I feel robbed not getting to see that sweet, warm smile of his. I never know what to say and whenever I do write, it never comes out eloguently or beautifully written. But, know in my heart, that I love that little boy of yours. I miss him so much already. You are a wonderful mother and Lou is a great daddy. I hope Gavin never forgets his brother. I, for one, would love updates and photos of Gavin. I would love to see how he grows throughout the years. He is quite a handsome little guy. I still pray for peace for you, Cindy. I know everyone says he is in a better place, but a better place would be with you and his family. I am just heartbroken.

    Laura in Texas

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  144. Cindy--my husband tells me I need to stoP looking at this because I havent slept well since hearing about Ty's passing. I'm so heartbroken for you. I pray for yOu and you family to find peace. Much love.

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  145. I read this post this morning and it's taken me all day to try to find the words to reply. But of course, they fail me, as they always do. There is nothing I can say to make this better or to take your pain away. Ty's strength and courage have always impressed me - but it's easy to see where he got it. As hard as I prayed for Ty's miracle, I now pray for you, Lou and Gavin - that you can take some solace in the # of lives Ty has changed and by how many people love him dearly. I will never forget your beautiful boy and I will do all I can in the fight against Pediatric Cancers.

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  146. PS - your letter to Ty is one of the most beautiful things I've ever read.

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  147. Your story has touched me more than you know. I don't know any of you but I was reading your blog the day Ty left this world. Your strength and faith is inspiring. I hope they both continue to work together to get your through this. I also hope that Ty's story helps to bring more awareness and money to child cancer research.

    May God bless you, Lou and Gavin.

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  148. Please sign the petition requesting NIKE and the NFL wear gold in honor of pediatric cancer awareness:

    http://www.change.org/petitions/the-nfl-and-nike-wear-gold-in-september-for-pediatric-cancer-awareness-month?share_id=gwwaKBGcwG&utm_campaign=petition_creator_email&utm_medium=email&utm_source=share_petition

    Lets raise awareness and hopefully, funding

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  149. Cindy- I only started reading your blog on Friday and I decided to read from beginning to end rather. Firstly I just want to thank you for sharing your life with us and I think you,your family and Ty have touched our lives in so many ways. I have giggled,I have frowned and I have cried.... what a truly inspiring account of the fight you put up. I have a 2 year old son and I havn't been able to stop cuddling him since I started reading your blog because you just defined what a special priveldge it is to do so. May you and Lou and Gavin find a way to grieve Ty's passing and continue to celebrate his life because all of you are truly inspirational.

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  150. Hi Cindy,

    I read an article about your story on Huffington Post this morning while settling in for my day at work. It led me to your page and I felt compelled to read your story from the beginning which I did, and just finished up with your last post. My heart is truly broken for you and your family, as well as all the other people dealing with pediatric cancer. I am so sorry for your loss and I will keep your family in my prayers. I pray that you continue on your road to recovery as family; never forgetting Tyler and always finding peace of mind that he is finally feeling "bedda".

    Reading in such detail about your ordeal was very eye opening for me and I feel like I've come away from it with so much knowledge and so much sadness. Your writing is poignant and full of soul, but also full of pain that no mother should ever have to know. I wish there was something that could be said that would take that away. I really do. You are so blessed to be surrounded by good people, an amazing husband and another beautiful boy, never forget you are loved.

    Thank you for sharing this. Thank you for sharing the pictures of your sons, I feel like by looking at the pictures of Tyler I got to know him a little bit and that was so special for me. He is such a precious boy, and I know he is in heaven and he is so grateful to you and your husband for being by his side, you two truly are his guardian angels. I hope he comes to you in dreams, I hope you find peace and comfort in the coming days. Know that there are many people thinking of you. Even when grief threatens to take that peace from you, hold tight. God Bless You.

    Best Wishes from Boston,
    Boston

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  151. Words cannot express how much your little boy Ty has touched my life, I will be a better mother because of him. I am at work sitting at my desk, crying, I wish there was something I could do to ease your pain! Someday I hope to meet you, and hug you real tight. Your an amazing woman. Come January, I will be cutting back my hours to be home more to be with my 2 children. That is because of Ty. Praying for you and your family
    Love Kristi Conroy-Garcia westhampton beach NY

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  152. Our thought and prayers are with you and your family always. I cannot stop thinking about Ty, and your family. I have been so worried how you all were doing. …. I called my husband the other day and I asked him what was wrong and he said “I am telling everyone about Ty”. I was so upset yet so happy he is spreading Ty’s story to others as well. Our hearts are broken over the loss of your beautiful boy but he will never be forgotten. Thank you for sharing Ty’s story with us and continuing to do so. You, Lou and Gavin are doing so much for people around the world. You are an inspiration to all of us. We will continue to raise awareness for this horrible disease until we see as many gold ribbons as we do pink. I know I posted this before to you but I have to say it again…Cindy you are such an inspiration to all of us moms who have a child with cancer. Your courage, strength, compassion ---I could go on and on :o)--- have helped me so much. May God bless you all!
    Lisa – Long Island

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  153. Cindy,
    The grace with which you have shared your beautiful son's journey with us is one of the most courageous things I have ever witnessed in my life. SuperTy has changed my life since I first started following his heroic journey and my heart aches for the beautiful Campbell family as they grieve for the magic of their little boy. I just cannot begin to imagine your deep pain but I am simply awestruck as I watch his magic touch the hearts of many people around the world and witness their words and promises turning into the biggest fight for pediatric cancer this world will ever see. This is just the beginning. Ty could not have asked for better parents who taught us how to truly nurture these magnificent little souls. God bless you and keep Ty's spirit near you always xxx

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  154. Jennifer Russo, Lake Grove, NYOctober 22, 2012 at 5:38 PM

    As long as you continue to write, we will continue to read about Ty and whatever else you want to write about. Hope you will give us an update on how Gavin is doing. Can't stop thinking of Ty and all of you. You are so amazingly strong. Thank you for sharing your beautiful letter to Ty. He was such a lucky little boy to have you and Lou.

    Sending hugs to all of you.

    Jennifer Russo

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  155. To say I have not thought about the Campbell family a thousand times a day would be saying I do not need air to breath. I keep hoping subliminally that all the tears I have cried for your family will somehow minimize the indescribable pain you all feel. My guess my tears minimize your pain about as much as they could fill an ocean. But know the thought is there and is no less still my wish. Cindy, you are a praying kind, you are a believer, you are a Christian, give Ty time and he will come to you. It is like what your Mom told you about wondering if Ty would be afraid and comparing it to taking Gavin to school. After tearfully watching my 3 year old run off to preschool ready to take on the world, I get it. Ty is having fun. He is running, laughing, sliding down rainbows, most certainly eating candy, meeting angels, riding ponies, jumping in puddles, certainly there has to be roller coasters and carnival rides, meeting all our loved ones who have gone before us, exploring, petting puppies and the list goes on and on. He is busy, busy, busy. It’s like asking Gavin to come in off the playground when there is so much more to play with and do – they just are not ready. But he will be – just give him time and keep talking to him. As you work through the pain he will pop in and you will be so over overflowing, he will be there, this I know. I promise, this I know. There is so much I wish I could share with you that could give you some assurance on this journey of pain and grief but each of our journeys are ours alone to take. Remember the promises you made to Ty, to laugh, love, have fun. When you are able to quite your mind and settle your heart, grab a blue sucker, sit in the sun, jump in a puddle – just you alone – Ty will be there. Lou needs to do the same, Ty will be there. He has not left you.

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  156. Cindy, Ty, Lou, Gavin,
    My life is forever changed because of you,
    Ty.
    Cindy-
    Your words give me strength.

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  157. Cindy,
    On Wednesday, I was driving home to Long Beach on the loop parkway when I had to pull over. I could not focus on the road as my eyes keep staring at the sky. I had never in my entire life seen a sunset so extraordinary, it was simply jaw dropping. Living on the beach my whole life I have seen my fair share of stunning sunsets, but NEVER had I seen anything quite like this. It wasn't until Thursday that I read of Ty's passing and I instantly thought of the immense beauty I had seen the night before. I believe with all my heart that this was Ty showing us a small piece of the extraordinary beauty, peace, and happiness he was experiencing in heaven. I thought that maybe it was just me who thought this was one special sunset and began asking everyone I saw for the next few days. And Cindy, the response was unanimous. Everyone I spoke to said that, they too, had never seen such a spectacular sunset. I hope this brings you a sliver of peace at an impossible time. You, Lou, Gavin and the rest of your family are in my thoughts constantly. I want you to know that all your hopes for Ty are coming true. He has changed my life. He has made a difference. He has made me live harder. Thank you for continuing to share his story.

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  158. It sounds so beautiful yet so sad how you describe your last moments with your beautiful Ty I am ever so sure he is with you following you running skipping things that he couldn't do . Super ty will even more great things from heaven he will bring your family so many great opportunities to help make sure no other child like him has to suffer. It is a shame that children like Ty and ronan have to die to make people realize the truth about childhood cancer! I just bout a FUCK YOU CANCER shirt 10 dollars of it went toward pediatric cancer research and yet bet I'm going to rock that shirt all the time and wear it proudly for Ty!!! :) I also bought a candle yesterday. It has the picture of the guardian angel protecting and guiding the children safely across the bridge I am lighting it every night to help protect children suffering from cancer and I say a prayer for Ty and children who have passed from cancer for god to protect them and to help us to find a cure for cancer soon!! I pray for you guys every night I pray for strength for your family to help you guys get through this.. I can't wait to hear the amazing thing Ty is going to help do for you :) god bless you

    Love
    Sabrina Maldonado

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  159. Every time I read your blog- you bring me back to earth. You bring every mom back to where "it" matters. You fill our hearts because you have the deepest, strongest love, that no one could ever imagine until they become a mom. You speak about your son in ways people could only dream and the reality of it is that you seriously just LOVE your baby- if we all could just take a moment in our hectic days and just remember you, and Ty, nothing would matter. Nothing. Thank God for people like you who keep their faith when the darkest of hours approach and surpass them. If it weren't for people like you, so many would lose hope- even after hope has failed. There will be a day that Ty will be in your arms, and because you believe, the rest of the world does too. Do not give up on that love, he will never ever truly leave you. Your sweet, precious, little boy has brought more awareness to this horrific experience in his magnifying five years than some could in a 100 years of life. Thank you for what you do, what Ty continues to do, and for keeping everyone "grounded". I hope your pain eases with time and that your memories stay stronger than all of the concrete in the world. Keep loving your little men- and keep doing the amazing job you do each and every day.

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  160. Dear Cindy and Lou,
    My tears are streaming as I write this. I first found out about Ty nearly two years ago when your story was featured on AOL. I thought about Ty constantly and cried so many tears over his and your suffering! I had never felt so much heartache for a family I did not know! I found out about Ty's passing on Friday after seeing the flash of his story on AOL once again. I have been overwhelmingly saddened and my heart aches constantly for all of you! I believe the reason I feel so strongly is because it hits close to home with me. My youngest child is my little Konnor who is the same age as Ty, only a few months older. I have given him so many extra kisses and hugs since first hearing about you. This world is full of so much ugliness and heartache, no parent should ever have to see their child suffer and die!! God NEVER intended that from the beginning! Just like you I have a strong faith and trust in the Bible's hope. There are many scriptures that I have reflected on since Friday and I have some favorites I hope will bring some hope to you if you can take a moment to read them. Acts 24:15 talks about the ressurection hope. Psalms 37:11 talks about the meek inheriting the earth in peace and verse 29 says it will be forever. Revelation 21:3,4 tells us that we SOON will be without pain, death or mourning. My do we need these things to happen!
    I know you have heard this a million times and it can't even come close to bringing relief to your heartache, but your family is so strong and such an inspiration!!! I will continue to pray for you every night as I have!!

    With Love,
    April Montgomery (Mom of 4 in AZ)

    April Montgomery

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  161. I have been following your blog for a long time, and one of my closest friends passed away last night at age 30 after a battle with pancreatic cancer. She was not able to have children of her own, and I believe that she has "adopted" Ty in Heaven to keep him safe until you are able to be with him again. She is wonderful, sweet and loved children so much. I believe she will be a mommy to all the kids in Heaven.
    In 2005 I lost my mom to cancer as well, and I also wished and wanted to dream about her. What I have found in the last 7 years is that I dream about her when I least expect it and she comes to me when she needs to. He is with you, and Ty will make himself present in your dreams but it may not come until you least expect it to. Ty wants to look down from Heaven and see his mom, dad and brother happy. Live the life that you would want him watching from above.
    My thoughts and prayers are with you,
    Nikki Devaux (from Massachusetts)

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  162. Dear Cindy & Lou,
    Every morning since Ty has become an Angel, I think about him and for some reason or another I end up talking out loud and say my prayers to him. I feel all at the same time hurt and peace....hurt because I hate the pain your going through and will continue to go throughbut then atpeace because I know he is watching down on you, guiding you to be stronger than you have been thus far and allowing you to pour out more love for him and your family. Ty is a remarkable boy whom belonged to the most beautiful, truly the greatest parents I've ever met and I now live wanting to be just like you Cindy and Lou. God Bless Ty whom will live in our hearts forever and God bless your family whom will continue to spread his story and help others.
    Love you guys tremendously.
    Grace Baldassarra

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  163. Hi Cindy,
    I'm a mother to 4 little girls and my heart aches and breaks for you & Ty. I came across your blog when Chris Evan's retweeted it one night and to be honest, I did not sleep. I read almost every post you ever wrote from 11pm - 5am. I was crying, I was hopeful but knowing that he had passed was just overwhelmingly sad. That was 5 days ago and I am still feeling the pain of your loss. Thank you for sharing your story about Super Ty. You are right, he is changing the world over whether he is here or not. I lit a candle for him yesterday during the Mid Hudson Bridge Goes Gold for Ty, all the way here in New Zealand. But I am sure more people around the world did exactly the same thing.
    I have to thank your story about Super Ty for reminding me that nothing is more important than the love and care we share our children. And as a mother of 4, it is easily over looked as a given, however, since I read about Ty, I have been more patient, more loving and never taking a moment for granted.
    I'm actually writing this through tears as I have just finished reading this latest blog, I couldn't believe how easily the tears came.
    You and your family will always be in my thoughts, you've brought a very significant and important reminder to my family and I's lives that would've been forgotten along the way. My thoughts, prayers and love to you and your family.

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  164. I too first found your blog through the story on AOL and for years have followed Ty's story. It breaks my heart to know Ty is not on this earth any longer but I know he is with you always. I'm praying and thinking of you and your family always. I hope to hear more of yor story and how Ty will continue to change the world.

    Allie

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  165. Cindy,

    You have been gifted with the beauty of the written word. Thank you for sharing your gift with us. You and your family have been in my daily prayers since I began reading your blog about 2 months ago. Your deep faith is admirable--a true example to those of us who have never experienced the depth of your pain and loss. Super Ty will never be forgotten--his contagious smile and commendable strength is a testament to the love and joy he felt being your son. May God keep you all in the palm of his hand, and bring peace, serenity and love to you each day.

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  166. Your family has been on my mind so much. Ty has touched our lives and we don't even know each other. I took a nap with my toddler today instead of worrying about cleaning the house and loved watching him fall asleep. The love you have for your son is inspiring to us all.

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  167. Our deepest sympathies for your loss, please find some comfort in knowing that your son’s life has transformed me and has giving me a renewed sense of perspective. Even in the life of a total stranger, your son has without question touched me and he will have a very special place in my heart and mind. Most people can live an entire lifetime without leavening behind a footprint on this world as big as the one Ty has left behind. Please know that Ty will live on in our thoughts and continuously teach us to cherish each passing moment and enjoy those around us to the fullest extent.
    After learning of Ty’s story for the first time last week I have not been able to stop thinking of him as well as you and your entire family. With that I wanted to share a quick story with you as I hope you find some comfort in it.
    I help coach a Little League baseball team in Orlando Florida. During a game on Saturday morning as the players lined up for the opening pledge, a butterfly flew out to the pitcher mound were the teams captains’ were standing. The Butterfly danced around the pitcher mound among the players as if it were part of the moment and part of each team. I could not help to think this was Ty getting in on the action to finally be among his peer group enjoying a Little league baseball game. As the pledge ended and the game started the butterfly flew up to a limb of a tree branch hanging over home plate. He perched there for I couldn’t tell you how long but it was as if it was actually watching the game. Again I could not help to think this was Ty getting a chance to witness all the things he didn’t have the opportunity to enjoy in his short life.
    After that game the other coaches and I decided to make Ty an honorary team captain. (I hope he is a Yankees Fan) We’ll be drawing Ty’s name in the dirt on the pitcher mound for the rest of the season in honor of his memory. We hope he’ll decide to keep joining us for the games and can continue on in spirit being a kid.
    Thank you for sharing Ty with all of us and I am so grateful to have learned of him. Our thoughts and prayers are with you and your family. Keep sharing the stories and miracles that I’m sure will continue on in the future. Another chapter might be over but the story is far from complete.

    The Scott Family

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    1. Beautifully stated. I concur completely.

      Ty, has left a big foot-print & will always have a very special place in my heart. Ty is my hero.

      I am going to become an active voice in increasing the awareness of & for increased funding for pediatric cancer research.




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  168. I have been checking your site everyday hoping to hear how you and your family are doing. I found your blog after Ty passed through another prayer site on Facebook. That night I sat there for hours reading your entries and weeping. Your family has touched my life and although it probably sounds crazy, I just wish I could give you all a huge hug. I will always pray for comfort and strength for you. I promise to help fight this terrible disease in Tys honor. I will hug my children tighter and not tell them "later" when they want me to play with them. I will continue to follow your journey to healing and can't wait to hear all about your little mans visit into your dreams. God bless you all!

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  169. How's Gavin? Does he know what happened? I'm sure a few of us here are curious as to how you explained Ty's passing to Gavin?

    My heart breaks for you, Lou.....ask God for a lot of strength! He gives us what we can handle. {hugs}

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  170. My heart beaks for all of you. I admire your ability to share all of this with us. My youngest Copper, who is 5 woke at 4am screaming for his brother. He settled down but I didn't. I was devestated for Ty and Gavin. I was so very sad. My kids have seen a lot of your pictures on here. Tonight Cooper asked if Ty went to heaven. I told him yes. He said he was glad Ty was in heaven cause Rider (Cooper's dog who passed away laet September) wouldn't be alone :( much peace and love sent to you all.

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  171. God Bless You All. I fell head over heels in love with your beautiful little boy Ty the minute I set eyes on him. I have 2 boys the same age as Ty & Gavin so you really put my life in perspective. Cindy - You are such an AMAZING Mommy and Ty loved you with all of his being. He was so blessed to have such wonderful parents. My heart is so deeply saddened for you and I wish you didn't have to endure such pain. Please know that I tell everyone I can aboout Ty Campbell. I will do my best to share his story and make sure his leagcy lives on. He fought so hard that it's now our time to fight for him and for those suffering the pain he had to go through. I will always love your little boy. Thank you for sharing him with the world. I will continue to pray for you, Lou, Gavin and the many others mourning your beautiful little boy Ty. XOXOX

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  172. Cindy, Lou and Gavin:

    Where there is love there is NO distance. I want you to know we love you and we pray you find the peace needed to continue. I pray for Ty and his happiness in heaven.

    If you find you need help, get it, cry as much as you feel like, this tough road you have been through is like no other. You will see after this life WILL be lighter.

    Between you and me, I Secretly started to pray to Ty and God to send you another baby. Not that he/she will replace Ty, but because you are the greatest of parents.

    Cindy, now it is the time to heal, To take care of yourself, Lou and Gavin. Maybe take some time together in peace. Ty will want you to have it. He loves you all from above and from within.

    REMEMBER:
    It is not length of life, but depth of life. -
    Ralph Waldo Emerson

    We must let go of the life we have planned, so as to accept the one that is waiting for us. - Joseph Campbell

    To live a pure unselfish life, one must count nothing as one's own in the midst of abundance.
    Buddha

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  173. How is gavin? Was he home thru all this?

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  174. How did u tell gavin?

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  175. Part of the blog was posted on a Bulgarian website by a journalist who was following Ty's story. I came across her article on Facebook. I sat down and started reading. And I started crying. That was at 1 pm today. Then a link took me to the original blog posted here. Now it's 9.17 pm and I haven't been able to read every day of every year this little hero fought so hard. I read enough to realize how strong this little buddy was. And while I was reading and crying, I was ignoring my little 2 1/2 year boy because today's day I dedicated to Ty, to get to know him a little bit - him and his brave parents and family, too. And as I was crying, my little boy was jumping all over me trying to get my attention. We are potty training right now, so as I was crying he'd come and put the potty in front of me, do the pee-pee part every half hour and clap with hands, waiting for his reward - putting one more sticker on the board. He'd come and sit in my lap trying to stay between me and my laptop, get my attention and dry out my tears with paper towel. Today I was haunted by Ty's story. And I was holding my boy, hugging and kissing him, being scared that he might be taken away. And as he peed on the floor, pooped on the carpet, I smiled and thought: Not a big deal, I'll clean it, I can buy a new carpet, my boy is here...
    Cindy, I don't know how you found peace with God after he took your most precious thing in life. I don't think I'd be able to. This story broke my heart so many times today, with every smile of Ty in smaller and smaller pieces. He is absolutely handsome, brave and one of the cutest little boys I've ever seen. I'll be looking for a hat and try to bid on one if they become available. I'll carry Ty forever in our hearts if not on our heads... I'm unemployed most of the year but I'll do my best to donate money every month. Cancer is not fair in general but why children? I'm asking God often about it, seeking for a decent answer. Still haven't got it... I'm so very sorry for your loss, dear Campbell family. I believe Ty is with you every day, in the trees, in the stars, in the sun, in the moon, in the flowers, looking above you. Loving you even after his last breath... because death can't do you part! Love, Annie

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  176. Please sign this petition and forward to anyone you know that cares about pediatric cancer awareness. This cause is urgent. We are trying to convince the NFL to wear gold ribbons on equipment in September for pediatric cancer awareness the way they currently do for breast cancer awareness in October.
    Please join this campaign: https://www.change.org/petitions/the-nfl-and-nike-wear-gold-in-september-for-pediatric-cancer-awareness-month?share_id=kwBrZynNEu&utm_campaign=mailto_link&utm_medium=email&utm_source=share_petition

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    1. I already did and re-posted on Facebook for all my friends to do as well...

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  177. So glad to hear from you. You are amazing, you are real! I wonder how Gavin is handling everything. Was your nanny still here til the end? Crazy all the questions, but we pay attention and we care about you! Ty was a true miracle, but you and Lou, created that miracle and we pray just as much for you. If not for your wonderful ways and sense of humor, people would not know what there is to appreciate in this crazy life. Even in the worst of times you never asked for pity, your positive attitude is what keeps us hanging on! I lost a little boy at 4 months old, I was not doing too well, and my husband said I had to carry on for my other boys and I know you will too, you are strong! Love and Prayers Terri I feel Ty in the wind in Illinois!!

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  178. That photobis veautiful
    ..

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  179. We love you Ty and we Miss you so much!.

    It should have never happened this way but I
    hope you are alright up there and safe.

    Cindy! I know how it feel when you mentioned that you miss tht warmth and breathing sound of child as I look for the same every night for my child.

    May God give you all courage to go through this painful time. We are always with you.

    Love you Ty!!!!

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  180. Dear Cindy,
    You don't know me but ever since I have heard of Ty's passing I have been almost obsessively reading your blog. I am also a mother of 2 little boys, one is just 3 months younger than your beautiful Ty. I cannot imagine what a horrific journey the past 2 years have been, yet you and Lou were stri g enough to extract joy and beauty from a place of darkness. To me that is such an important life lesson- your story has touched my heart and Made me into a better mother for my 2 boys. My heart bleeds for you- please stay strong and know you are in my prayers.
    Allyson from NYC

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  181. I cant help but think of Ty everyday. i keep checking your blog for updates to make sure that you all are well.

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  182. Dear Cindy. I have told my kids about Ty and tonight my 5 year old asked me if I remembered Ty. I said yes and he asked me if I could show him pictures. I have shed so many tears.....be strong, we ar thinking about you

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  183. I have not written before - I thought you were too busy to read what I might write. You have said that it gives you some solace so I felt it might be time. I have been following your blog for about a year and am amazed by your journey and the way you have taken all of us with you. Your generosity of spirit is unbelievable and with parents like you and Lou, it is not surprising that Ty is such a special person. Reading your blog has made me a better parent. I am not the most patient mother and you have given me perspective. My youngest child is 5 and sometimes, I can't help but think of Ty when I look at her. He should be in kindergarten but there was another plan for him- unfair and cruel as it was. Please publish a book from your blog and donate the proceeds- you will touch so many. I believe that you should run another fundraiser for Captain America hats and we should all walk around this winter inspired by your amazing family and that special angel you were generous enough to share. Thank you for your words and inspirations. Love and positivity to Gavin, also.

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  184. Cindy....you are amazing.

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  185. A song for your sweet boy:
    http://ladyantebellum.com/media/videos/never-alone-music-video

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  186. I live in Mexico, and Ive been following your blog, and also sharing Tys story to all my friends. Ive been praying for you and your family, and also thinking that Ty is a happy, free and enjoying heaven. Thankyou so much for sharing your story, Youve changed so many mothers and fathers, just by appreciating every moment. May God give you strengh, courage, and resignation, Ill be praying for you to dream with your sweet baby.

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  187. Cindy, I am sure that you have been told this before, but I hope you realize the affect your words have on your readers. It is amazing how many strangers feels as though we have known your family for years. It is all because of your amazing son Ty and your amazing ability to share the story.

    I keep thinking of ways that Ty's story can be shared on a larger scale and how money can be raised for research. My mind keeps bringing me back to YOU! I believe with all of my heart that you can write a book about your journey with the facts of pediatric cancer included. I think you would honestly have a best-seller!! It would be an amazing way to share Ty's story and the funds it would generate could help fund research. I will pray about it and I hope that at some point in the future, that you will consider it. You have a style of writing that grabs our attention and pulls on our hearts to the point that we check back constantly to see if you have updated your blog. Thank you for that connection and for inspiring us to be better!

    Your family remains in our prayers. God Bless!

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  188. I asked for an answer to have some understanding of why this beautiful boy not only had to die, but why he had to suffer for two years the way he did. The next morning I awoke with a song in my head "Vincent" aka "starry night". I was not familiar with this song so I knew it was my answer and went online to look it up and listen, doing so gave me chills and it all makes more sense to me now! Beautiful Ty, you truly are a miracle with a purpose. Xox R

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  189. Prayers to you and your family.

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