Ty's Story

On October 4, 2007, Ty Louis Campbell came into this world, and our lives changed forever. We never knew love like that before. Then, on August 11, 2010, our lives changed forever again. A mass was found at the base of his skull and Ty was later diagnosed with an extra renal rhabdoid tumor; a very rare and aggressive cancer. Since the diagnosis, we have been flooded with an outpouring of love and prayers. We created this page to keep our friends and family up to date on his progress, and to share our experience with our loved ones. Ty passed away on October 17, 2012, but his legacy lives on. Thank you all for your tremendous support.

Wednesday, October 10, 2012

Simply unfair

Tonight I am overwhelmed by cancer and the unfairness of it all.  Not just for my family, but for all of us.  I don't think there is a person out there who hasn't been affected by this putrid disease.  Kelly should still have her mother to share her children with and ask questions.  My dad should still have his sister Mary to share his memories with.  Marshall and his three small children should still have his wife/their mommy, Stefanie. Chase should be able to play with his big brother Tanner.  Maya and Woody should have Ronan.  I could go on and on and on and on. 

My friend Meghan is on my mind.  I want to call her so badly, but I can't risk waking up Ty (he is sleeping well).  During one of her visits with me and Ty at Sloan Kettering (we were roommates in Manhattan for a long time, and she still lives there), we went for coffee and she told me that her friend, Elizabeth Walker, was just diagnosed with Non-Hodgkin's Lymphoma.  She was so worried, and I promised her, with complete confidence, that Elizabeth would be fine.  I was 100% sure of it.  After a year and a half in treatment, she died just two weeks ago at 33 years old.  My heart is bleeding for her family and friends.  She was beautiful and I know how much Meghan loves her which means she had to be funny, kind and magnetic.


I am sitting in Ty's Captain America room, as I usually do late at night, and I'm amused by the occasional interference I am hearing from Ty's monitor.  Someone emailed me recently about how a hospice nurse told her the interference is from angels who are flowing in and out of the room.  I am comforted by that even though I have to hold back the silly protective mom in me from running into the room to scare them off.  There is this funny feeling of "I am his MOTHER!  He is MINE!  I will keep him safe and I will take care of him!"  It's only natural, I think.  Like I said, I want to hold his hand, walk him into heaven and never let go.  It's very hard to imagine anyone else "taking care of him" and frankly, for as much peace as the image of his guardian angel brings me, it doesn't take away my instinctual need to be the one and only who is there for him. 

It was suggested that maybe I should give Ty a lock of my hair at the time of his passing (probably since my previous idea of cutting off my hand is impractical).  As much as it is horrifying to think about these details, I decided that yes, I will do that.  I want Ty to be cremated with part of me (other than the fact that my heart will always belong to him).  It is symbolic and I like to think that part of our physical beings will always be together. 

I cried a pretty big cry today.  Twice.  I think I needed it.  This evening I overheard Lou with Ty, who was wide awake and listening so intently.  Lou took Ty's hand and shook it like a handshake.  He said "always look 'em in the eye when you shake hands.  Be confident, don't be shy.  But you already know that.  You have been more of a man at five years old than some men are at 50 and you figured it all out on your own.  I'm so proud of you."  Lou was trying to hold back his tears and I had to leave the room so I could hide mine from Ty. 

Then, when I was putting Gavin to bed I laid there and had a very overwhelming sense of calm rush over me.  I felt that all of these prayers were working.  I thought about how we should bring Ty back to Sloan Kettering for another MRI - maybe they were wrong?  Maybe this is all just chronic hydrocephalus or something else fixable!!!  I went from Gavin's bed back to bed with Ty (who had started whining) and when I saw the sweat, heard the rumble in his chest, saw how his body is just skin and bones I remembered the truth.  Oh yeah.  He really is dying, isn't he.  I told him "I love you" a million times.  He didn't respond.  I wanted to hear it soooo badly.  His adorable voice saying "I wub you too," but it didn't happen.  Instead, I put his limp arms around my neck, rested my forehead on his, and soaked his pillow with my tears as I prayed for his healing miracle.  I will never ever stop.  Hope is never false and it is always empowering. 

We had a reporter and a photographer from the Journal News come to our house today.  I was asked a lot of tough questions.  When the photographer asked me to reflect on what it was like to plan for Ty's passing, I spoke so matter-of-fact about it with almost no emotion.  I was so taken back by how easily I spoke about it, it was almost embarrassing.  Later I realized that it was because all of this feels so incredibly wrong and foreign to me.  Like we are doing these things (talking about the suit, the casket, the lock of hair, the "celebration" gathering) but it is as if it's about someone else.  Not us.  Not my family.  It just doesn't seem real.  Something this horrific can't really be happening to my family.  Not to THIS kid :)

Ty Louis Campbell, October 2010
Overall, you should know that today was terrific.  Ty slept well last night without any vomiting and he doesn't have too much pain.  He was content during the day.  We listened to music, read books, and talked a lot about Christmas (because what kid doesn't love Christmas).  When I asked if he remembered the name of his "Elf on the Shelf" I was so impressed when he meekly whispered "Georgie Bell" (Ty and Gavin had a yelling match because Ty wanted to name him George and Gavin wanted to name him Bell).  We had SO MANY SMILES and I'm sorry to say I couldn't capture one of them on camera!!  Lou even got him to laugh!  All smiles were compliments of sheer silliness.  We joked around and teased one another and Ty just ate it all up.  This photo wasn't taken today, but I don't think I shared it yet so I thought I could use it as a substitute :)  His face was a bit swollen on this day, but his smile is still as beautiful as can be.


136 comments:

  1. In constant prayer of a complete healing for Ty...We so love you Campbell Family! <3 <3 <3 <3


    ~Michelle, North Ga.

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  2. You have an amazingly beautiful boy who I pray for every day- no child should have to suffer and no parent should have to watch- I do not know you but I feel for you and Ty as if you were part of my family- I think about your special boy numerous times a day and each time with tears in my eyes -Ty is so blessed to have you and your family - you are truly an amazing mom- I pray your miracles and wishes come true. Hugs & Prayers to Ty!

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    1. My feelings exactly. I feel sick to my stomach about this whole situation and think about Ty many hours a day. And of course of you, Lou, and Gavin. I have two beautiful children, a caring husband, and we have a great life, yet I feel so sad every day because of your precious Ty.

      Always sending prayers your way.

      Amy

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  3. Sending prayers, love, strength, hope, peace, hugs to your beautiful Ty. I think of him and your family so much. I wish I knew some magic words to ease everything you all are going through, but so many people love you all and are here for you. Love always <3 Sarah from Laredo, Tx

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  4. I am not sure if I have ever been more heartbroken for a family. I cant even write to you without crying. This is so unfair it isn't funny. Just know that ty has truly changed my family forever. My children have learner true empathy and I have learned that playdoh comes before windex!! Still praying for a miracle!!!!

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  5. My thoughts and prayers go out to Ty and his amazing family...you are all so strong and you can see in his eyes he knows you are there for him...always. Hugs n blessings to you all!!!

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  6. Your willingness to share your journey with all of us is amazing. I have shared Ty's story with my 4 daughters who range in age from 8 to 18 and they now ask me about him constantly and are praying for him daily. Ty is certainly doing God's work here on earth....the immediate hold he has on everyone's heart and his ability to inspire change in us as individuals is a gift from above. God Bless you and your family. Prayers are with all of you!

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  7. As I am getting ready to get into bed I found myself thinking of Ty as i often do. I only started reading about Ty a few weeks ago and it is amazing how much he has touched my heart. You are an amazing person. Since I have been reading about Ty I have learned to be a bit more patient with my own kids. I try not to say, "let's wait until tomorrow" and I live more in the moment. The laundry and the dishes can wait until tomorrow. Tonight I am cuddling with my 2 wonderful kids and will listen to them read me a book before bed. And I don't sigh anymore when my younger daughter wants to crawl in bed with us in the middle of the night, simply because she wants to.
    We have never met and I am truly thankful that you are sharing your story. Ty has clearly touched many, many lives, it is incredible. You made that happen, and i am grateful. I have been praying for you all since I heard and will not stop. I pray that for now he is comfortable, I pray for a miracle so you can see him get better and jump in those muddy puddles again. I am sending you hugs and many more prayers for Ty. Stay strong!

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  8. Thank you for updating us! Praying for Ty's miracle every day! I love you beautiful baby boy! Marcia,Ca

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  9. There isn't one person I don't kno who hasn't. lost someone to this beast .. my aunt, a good friend, for my husband, he lost his grandfather .. etc .. its not fair, its just not fair .. it nvr will be fair ..
    last night//mid-morning , I did something tht most find crazy, most find stupid, && most find just unnormal ..
    I recently discovered tht my dad .. the man who raised me, the man who pushed me thru college, the man who's never let me give up, the man who loves my sons more than I have evr seen love given to little boys, .. has skin cancer, && apparently he's had it for a long enough time, tht they won't remove it .. due to his health ..
    moving on , last night, I went outside while my boys were sound asleep in their bed .. && screamed at the top of my lungs, I screamed at God, && cried .. && aftr 45 mins of kneeling on the ground, I finally realized .. nothing in my life .. nothing in anyone's life will evr be as expected .. I can't tell everyone tht I kno how my kids lives will b .. I can't say tht they will always be healthy .. tht nothing will evr be wrong with them .. I wish I could say tht for every kid, for every adult, every mother child aunt uncle father brother sister uncle grandparents, && great grandparents .. damn I wish I could say tht && make it happen for every one out there .. but I can't .. I wish tht this disease was as well known as breast cancer .. && I wish tht people could help out more .. its like wishing tht child abuse, && suicide just stopped ..

    but an unfair life equals unfair diseases && situations .. ((sorry for rambling)) I have a.lot to say for a 21 almost 22 year old .. I enjoy my children more than ever because of Ty, Ronan, && Tay .. I live every day more && more because of all of you .. I take more pictures, smile && laugh more .. && explain things to my kids more because of y'all .. so .. thank u ..
    if it were any othr day .. I wouldn't had let Aiden cook with me today .. if it were any other day I wouldn't had let Jr paint on our white walls && not cared .. but it made me laugh .. seeing my kids smile as much as they did today because they had like Aiden said "a lotttttttaaaaa fun wif mommy && bubba "

    I love my kids .. && I look up to ur family because of ur daily challenges, ur daily hope, && daily love :)

    my son is calling for me .. so I will get off for now

    plz give Ty plenty of love from all of us ..

    love && prayers sent from us,
    Aiden ((3)), Jr ((1)) && Sofii <33

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  10. Cindy, I watched my stepdad die from lung cancer last year. It was heartbreaking. He was only 62 but at least he lived long enough to do most of the things he wanted to in his life, except retire which he was so looking forward to. So unfair. I can't imagine how anyone can watch their 5 year old child slip away from them day after day to this terrible disease CANCER! It's so much more than unfair, it just shouldn't be. I pray that Ty gets his miracle he so deserves. I will continue to pray for Ty and your family.

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  11. Ty you are the strongest person i know.I am sorry that you are going thru this and i can't hold back my tears.
    I hope i can be half the man that you are already at 5 years old.

    Keep fighting your fight you are my SUPER HERO TY.

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  12. Cindy, I have to share this with you. We were in church tonight for my niece's wedding rehearsal and my son asked me for some money. I gave him a dollar and he takes me by the hand and walks me over to the candles. He wants to light a candle for Ty and say a prayer, so we did. He said God will hear our prayers in here Mom! He was convinced that this was the best place to pray. From his lips to God's ears! We will continue to pray for Ty, you, Lou and Gavin. May Ty be blessed with a miracle! Deb <3

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  13. I've been reading your updates for the past couple of weeks but have never posted before. I am so glad to hear that Ty has slept well the past two nights and I hope you have as well. You and Lou are such amazing parents - so strong for your SuperTy. And that little boy of yours is amazing, too. Seeing his smile of the day just melts my heart. I think of him often throughout the day and pray constantly for the miracle he so deserves. I have shared Ty's story with all my friends on Facebook as well as several churches in FL and CT and they are praying for him as well. Sending lots of love, hugs and prayers to all of you!

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  14. Hi Cindy,
    I'm a mom of three ages 4 and under. I cannot begin to understand cancer, cancer for a child like yours or anyones, how a Mama Bear like you has to watch this all happen, how strong of a woman you are, how connected we all feel to you and your story. I cry at night thinking about your boy. We went to a pumpkin patch today and my 4 year old picked a pumpkin out for the little boy in NY named Ty. I hope that your miracle comes, I hope that your little cute boy stops suffering from this mean disease. I wish I knew you and Ty more than reading your blog. God bless you all and know there are many people like me praying for your miracle. Love, KT and her family in CA.

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  15. My heart greaves for you..my heart hurts..I have prayed non stop, O God We need a MIRACLE PLEASE!! I've been asking myself, why does it heart, as your words @ Pictures, run threw me, as tow some how WE ARE CONNECTED, New York to Calif..that's some distance lol...I was having a chat with God, today, and of course my 1st thought is for Ty, as I always do..I asked him, why God, does my heart hurt so badly, Why when I go to bed at night, the last memory I have is YOUR Angel and he's smile, and again when I wake up, the same thoughts run threw me..so I asked him..why?? And with that still small voice, the one that comforts me, at my weakest moments, he said this" Your heart aches because WE ALL OUR FAMILY, INTER TWIND WITH 1 BOAND,TY,and the unconditional LOVE of Your Family, that you SHARE with us Here..We are Family". Thank you. When I go to bed at night, I come here 1st, same for the morning..and I have Ty's FB page on the rest of the day, waiting for that miracle..but at the same time, I have Fear, wondering what I might read..I will leave you with this tonight
    I am his MOTHER @ HE IS YOUR SON! He is MINE, and NO ONE CAN TAKE THAT AWAY FROM YOU! I will keep him safe and I will take care of him!" A MOTHERS HEART NEVER STOPS BEATING..And O did I say, threw all the tears we all share..I LOVE your Family!

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  16. No words I say could ever take away this unbearable journey you are on... As a mother of four boys you remind me of how precious each day is and how a smile can take away all of a days worries... I always cry as I read your words hoping just for a second I can cry for you to take away some of your pain. Praying for a miracle for your precious Ty and praying for peace for your beautiful family! Fuck you Cancer!!!

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  17. I think about Ty and your family everyday. Sending my love and prayers to you.

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  18. I'm sorry about Meghan's friend, Elizabeth. She looked so beautiful, young and vibrant. How can this be?

    The moment I try to wrap my head around this question and Ty, the reality slips completely away and I am left feeling (like you) as if it is not happening to us, to you. It is so strange.

    Thrilled the day was a good one again and praying for nothing less! I'll see you Friday :)


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  19. Dear Ty,
    Hopefully your mommy and daddy read this to you so that you can hear how much your strength has impacted people who you haven't even met! What a brave little boy you are! Its hard to believe that at five years old you are stronger and more courageous than most of us will ever be! I want you to know that I check your blog every day to see how you are doing and pray for you and your amazing family every night. You are so loved little one...
    Sending thoughts of faith and hope and LOVE to Ty and the entire Campbell family.
    Xoxo,
    Lots of love from Oregon

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  20. Dear Cindy,
    I SEND YOU MY LOVE ALL THE WAY FROM FRANCE. I am telling your story to so many people around here. I think about your amazingly beautiful family every minute.
    You are SO SO loved TY. I pray your miracle come true..
    LOts of love from France.
    Muriel

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  21. Hi Cindy, of course I'm up at 3am and can't sleep, this is usually when I am able to catch up on my boy. I find myself constantly thinking of my mom's favorite words... "Where there is hope, there is life".
    Please give a big kiss to my lovey. Love, Sue
    P.S. I let my 12yr old Liam dye his hair las night, temporary dye of course!!

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  22. Strength Cindy and Lou,so much positive energy and prayers being sent from Ireland,no parent should have to go thru this,me and my family will light a candle every night for Ty,my children already know about Ty and ask me how he is

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  23. I'm sending you and your family extra love and hugs tonight. I'm so happy you found some inkling of comfort at the thought of placing a lock of your hair in Ty's hands, but I pray it never comes to that. Sweet, beautiful Ty, we love you so.

    Christina from Hoboken, NJ

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  24. From the day I heard about you,Ty! I am just thinking we could not save Ronan and other kids, how can we save Ty?. What can we do to save YOU?. So many questions come and desperation to see you healed. We can't even imgone you not being around us. You are not the fighter, no child deserves this. You are the best child in the world you know and your smile is so beautiful.

    We all hoping for miracle and praying that you gets better. LOVE TO TY.
    To Ty Family! Please do not loose hope. He is alive. HUG, Hold,Love & Kiss him as much as you can. May be all our prayers be answered.

    Why there is so much silence over pediatric cancer. There is awareness but not much funding or work done in finding ways to save children. No child is strong to bear this pain. Children are fragile angels and they deserve to be loved and lived.

    LOVE YOU TY, Sleep well and tight in your mom's arms.

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  25. I used to be so scared. Sometimes when I see children in public, and they don't look "normal"(This is unfair, but I don't know how to describe it), I'm scared. I'm only 12, but I have come to understand the pains and terrors of cancer. I was here because of Ronan. Please stay strong,Ty,

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  26. Oh Cindy,
    I do not know you, but I have been following your story since I read of it on Ronan's page. I too, share your tears. I want to hug you and give you strength and let you know that you I have never known of a more selfless and inspirational mother. You are doing everything you could possibly do to make Ty's time here happy and comforting. I love the sillyness. They say when a child suffers that God weeps right along with you. We all do. I pray endlessly for a miracle you all so deserve and follow your blog day and night. Most of all I pray for strength to endure for each of you. Your times of calm are our prayers and love wrapping around you.
    A mom in prayer and respect

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  27. The love, strength, and courage you show is magnimous. Life is truly unfair. Ty sounds like a remarkable little boy who deserves his miracle. Sending all good thoughts your way.

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  28. Every night when I put my three year old daughter to bed, we say our Ty prayer. We pray that God sends our guardian angels to your house for the night to watch over Ty and wrap your family in a giant hug. I pray for your family throughout the day whenever I think about you, which by the way is very often. I feel as though the Campbells are apart of my extended family. Sending love, prayers and support. xoxo

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  29. Like so many others, I pray everyday for Ty and I STILL believe and hope that God will completely heal him! Your testimony of love and courage in this battle inspires us all.

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  30. Ty can't go. He simply musn't.

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  31. When my sister died they asked my mom if she wanted to keep anything of hers. She decided at that second that she wanted a lock of her hair to hold onto. Of course she still has that hair in a very special place. It's comforting for her to know that a physical part of my sister is still with us. So I think it makes sense that you would want Ty to have some of your hair.
    When you say that talking about the details of Ty's passing seems so unreal, I totally agree. How could it not seem unreal? I think the only way you can function and get through each day is to feel like this is not really happening to you. I think it's a coping mechanism, because if you truly think too much about what is really happening you couldn't survive. Even after he is gone it will still probably feel unreal.
    With my sister it was different because we hadn't lived in the same state for several years. That made it easier because we weren't used to seeing her every day. So it still feels like she is just away. If I concentrate too much on the fact that we'll never see her again (at least in this lifetime), I couldn't bear it. The pain would be unimagineable, and I couldn't function from day to day.
    We will be running hard on Sat. and praying for SuperTy. Thank you for sharing your journey with all of us. You have done an amazing thing for so many people. xoxo

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  32. While singing a little song last night to wish Ty well my 5 year old asked a lot of questions. He remembered his name from the night before when I suggested that we send him some well wishes because he needs a miracle. When he was satisfied he said, "Wow. I asked a lot of questions" Then he gave me a huge hug. I didn't want to let him go. We love you Ty and we wish you well all through the day.

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  33. I can't say it enough....I LOVE YOU TY LOUIS CAMPBELL!!!!! Please NEGU <3

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  34. I try to read your updates every day before I go to work, and while this is all so hard to understand why something so horrible like this could happen, it makes me happy to read about your terrific days with lots of smiles and even a laugh. I think we could all learn something from Ty's strength, its truly unbelievable. And he's five! I think about him constantly and wish your family strength and many smiles ahead.

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  35. Cindy, You and Lou (&Gavin) are simply amazing, just like your Super Ty. I am not the most religious crayon in the box but your story has changed that and has also changed the way I look at my own 2 girls. You have done that for a lot of people. Ty's life has done that for a lot of people, and that itself is a miracle. I am sorry to hear that cancer has taken yet another person that you know of. It is just such a horrible disease. I will never completely understand why God allows children to have to suffer like this when they should be out jumping around and eating candy, planning birthday parties and circling toys in a catalog for christmas. My 9 year old daughter brought up Ty's name for a fundraiser idea at school yesterday. She has really been touched by him, especially since we live in Pawling. She was the one who came to your door to deliver a small bag of candy. I wanted to leave it in the mailbox like others have done but she (surprisingly because she NEVER does anything like that by herself) wanted to go to your door. I told her she was not going to get to meet Ty and that he was probably resting and that I really didn't want to disturb you guys so if she did it she was doing it alone. And she did, and Lou gracefully yelled down to me and my other daughter in the car "Thank You". But the thanks is ALL TO YOU GUYS because you really have touched so many lives with Ty's story and the way you have handled the good, the bad and the ugly. I look forward to seeing Ty's smiling face every day online and hearing your words of wisdom. You really are one of a kind Cindy, you and Lou both. Please don't lose your smile ever, Ty will always be with you and you with him. Still praying for his miracle, the one he so deserves and then some. xoxoxooxoxooxooxoxoo

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  36. again, my daughter (not the 9 year old) apparently did not sign off of the computer, and I forgot to tell her to change that screen name. How embarrassing. Sorry about that, I wanted to post as anonymous above, so much for that.

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  37. Cindy, I am so glad Ty had another peaceful night and you had a terrific day, but you post just breaks my heart. I am just so sad I can't stop cyring. I'm praying for super Ty every day.. It is SO unfair, I can't even grasp it.

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  38. Jennifer SylvesterOctober 11, 2012 at 8:01 AM

    Prayers for Ty and your family. I can't even imagine the pain you all are enduring. May God bring peace to your heart. I am in awe of your strength and courage to share your story with us. God bless. Praying for a miracle.

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  39. I was debating with my 5 year old this morning about brushing his teeth, he was really pushing the buttons. You and Ty popped into my thoughts...instead of scolding him, I scooped him up and had a tickling match. Oh, the laughter and all I could do was think of Ty. Praying for a miracle ...praying for you. Xoxo

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  40. Ty, My continued & constant thoughts & prayers are with you & your family. I have been deeply touched by your courageous & heartbreaking journey - you will always have a very special place in my heart. God Bless.

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  41. Saying many prayers for the Campbell family. Hugs to all of you.
    Trish

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  42. Still praying all the time!! You guys are in my thoughts a million times a day. I am constantly wondering if Ty is sleeping or looking at his catalogs or just being loved by you and Lou. I pray today is a smooth pain free day filled with a smile. Sending love, hugs, prayers and positive energy to you guys :)

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  43. God Bless you and your family, most especially Ty. God is with him every minute. Just know that you have a huge support system. Ty is a lucky guy to have you for a Mommy, you are the epitome of that title. My prayers are with Ty, you and your family. God bless you all
    XO - NS

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  44. i pray every day for you Ty and your family. I pray that you no longer feel pain and that your mom, dad and brother can play outside with you. I'm sorry for everything you have gone through in 5 short years - you make me appreciate my family more every day.
    i wish i had a wand and one wish - it would be to make you feel better.
    For now i can just pray.

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  45. Hugs to you and your family. Keep smiling Ty. Thank you for your beautiful writing during these rough days. You are so strong.

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  46. Cindy- I am crying reading your post this morning at my desk at work. You and Lou are so amazing. I can see the love that Ty has for you in his face and you are being incredible parents taking such good care of your beautiful boy. I don't understand why you have to go through this. I'm not sure what lesson is supposed to be learned but I do believe that what Lou told Ty about his strength and character is so true. He has taught all of us how to live. Thank you so much for sharing him with all of us. I'm continuing to pray for a miracle and for your family's peace.

    Ann from Buffalo

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  47. Dear Ty, you are such a brave little man. I love your beautiful smile and looking forward to seeing many more.
    Cindy my prayers are with you all the time. I admire your strength at this very hard time. We have been in your position and it is the hardest thing a parent has to face. Never give up hope as I do believe miracles happen. God bless you all.xx

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  48. So glad to hear Ty had a great day and a good nights sleep. I still believe a change is coming for the best.I won't stop praying for it and pleading to give you the miracle you ask for.I have to tell you again what Super Parents Super Ty has. I love everything you and Lou do to help Ty prepare for the future without putting any fear into his mind.God knew you guys were the best in the world to handle this job, even if it's one you would never choose for yourselves!God has blessed you with the care of his very special angel and you are doing a wonderful job. I have faith you will be rewarded greatly and I pray it is with the return of your sons health and a long, happy,healthy life.God Bless You all....Jean <3

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  49. I'm not a religious person. I was growing up, believed everything I was taught in church and all that. But after seeing the horrors that innocent children go through, I don't know what I believe anymore. I don't consider myself an atheist, but more agnostic. I just don't understand what kind of God could allow this type of pain to be inflicted on a child.

    My point isn't to waive you from your belief in God and his miracles, so I hope that isn't how it comes across. I just want to let you know that I've spent the last few days praying to God that if he heals Ty, I'll never, ever question him again. That I'll believe in him forever.

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  50. Prayers from Nebraska Ty....keep up the smiles buddy!! Lou and Cindy you are doing the hardest
    yet the most amazing job.....God Bless

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  51. I am overwhelmed just reading this. I can't imagine how you must feel. I love how Ty's guardian angel is watching over him. It reinforces my belief that God sends his angels to watch over all of us. You, Lou and Gavin have angels too. THey will be there to carry you through the difficult times and to celebrate with you in the joyful times. I am still praying for a miracle for Ty. You are so blessed to have been given these 5 years to be his Mommy and no child could ask for a better one. Both Gavin and Ty are blessed. I have added all of you to a prayer chain and continue to pray for each one of you as you continue down this path, wherever it may lead. God bless you and Super Ty! <3

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  52. It was in the middle of your post where i read about Lou's conversation I broke down.He was teaching his boy to be a man and I just tried to picture all those conversations you have with your precious baby and I just cant believe your strengh. Than of course your description of Ty's body "skin and bones" just shook me, because its impossible to believe that such a bigger than life soul could be inside just that broken little body that he doesnt deserve to be in. How can he look so perfect and yet be so broken and eaten alive and still be the most beautiful boy in the world?! Cindy, Lou, Gavin you are amazing, and Ty you are everything thats beautiful and innocent in this Universe. I cry I pray I hope I believe! Lets all come together and find a cure and a gentle treatment in the name of Ty Louis Cambell!!!

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  53. I'm so sorry. For Meghan. For Elizabeth. For Ty. For you. It breaks my heart. I pray for Ty and your family every single day. I may have never met you in person but Ty has touched my soul. That smile and strength is remarkable. I want you to receive your miracle so badly. Please god bless this family and provide them with healing and strength.

    Allie

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  54. Cindy and Lou, I just cant imagine. I've been crying for days. As a mom, I cant imagine what you are going through. My kids (4 and 6) love Ty and like to look at his picture. I told my daughter that he is a neighbor (we live in Brewster) and that we go to church for Ty to pray he gets better. I dont know if you thought about this but you may get some comfort seeing a medium (a good one, like the Long Island Medium or John Edward). Knowing your story they may see you sooner. It may bring you some comfort. I sure hope so.

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  55. Prayers for Elizabeth and her family - may she rest in peace. I hope Meghan is able to find comfort in the many years of friendship she had with Elizabeth.

    Like always I can't resist reading your blog once I see a new post is up - doesn't matter where I am although by now I should know better. As I sat on the train this a.m. I was holding it together until I got to the part about Lou talking to Ty - tears welled up and my seat mate, who knows all about Ty, asked what was up and I couldn't even tell her at first, I had to swallow hard and fight back tears. Everyone keeps saying it but it really is true, the way you write it's like I was there standing next to you witnessing the exchange myself. My heart breaks thinking of the difficult situations you guys are finding yourselves in - no parent can fathom what you are going through unless they've been there too. I pray every day all day for Ty's miracle - I've never prayed so hard in my life. Nothing else has ever felt this important. I promise to keep telling Ty's story and fighting to raise awareness and funding!!

    I wish every day I could take away some of the hurt that you guys have - I would gladly take it on to ease your pain. I wish I could heal Ty. I wish, I wish...I wish so many things for the Campbell family.

    I sure hope there are many more days of smiles and silliness in your house as long as Ty is not suffering. Wouldn't it be amazing if Ty's miracle came at Christmas and he could start 2013 healthy and whole - anything is possible right?? One of my son's favorite movies is The Polar Express...the young boy in the movie questions his belief in Santa - at the end of the movie he finally realizes he believes - as he holds a bell whose sound he could not hear, he says "I believe, I believe" and finally he hears the beautiful sound of the bell and Santa appears at his side - later he tells the boy that the true meaning of Christmas resides in our hearts. Well, maybe it's the same way with God and Faith - the true meaning resides in our hearts and my heart believes in a miracle for Ty!! I believe, I believe.......SuperTy always and forever.

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  56. I am in love with SuperTy! That beautiful, angelic face always smiling and touching the lives of countless people everywhere! Will continue praying and believing in miracles just for Super Ty!

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  57. You are an amazing mom! In case ya didn't know.... :o)
    Captain America is awesome especially since Ty is a big fan, but you need a supermom tee shirt and cape. I think about you every day, and I don't think I'd be as strong as you and your husband. Scratch that, I KNOW I am not as strong as you. I pray for your sweet little man every day and hope he is comfortable and safe. <3 Lauren

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  58. I am so heartbroken for youre family. I feel like ty is a part of mine and i constantly think about him and cry for his suffering. I have 4 children from 15 to 2. and every single one of them has been touched by your amazing, wonderful boy. My 15 year old son texts me everyday at 1:30 before his football practice to see if "Ty was better today", my 8 year old draws pictures for him all the time, my 3 year old wants to "go see ty to make him feel better" and my 2 1/2 year old says "my friend" when we look at pictures of Ty. I wont pretend to imagine what you are going through, but to say the least, your little man has made my family so much closer. I am a better mother, friend and overall person because of him. We love your whole family and are still praying for all of you everyday. Please give superty a huge kiss and hug from all of us. we love him. <3

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    1. that's beautiful - so touching to see how even kids know how special Ty is!! I love that your 15 yr old texts you every day - that warmed my heart.

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  59. Walking home from school today my son--out of the blue--said "I don't want Ty to die. I love Ty." Your little boy has touched so many people--both young and old. Every time I want to yell at my kids to get out of the mud or not get their new shoes dirty I think of you and Ty and bite my tongue. I have learned to be a better mother because of you and your blog.
    Jennifer in NC

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  60. Your willingness to share Ty with the world is amazing Cindy. Always in my thoughts and prayers. Xoxo

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  61. Like so many of the comments already written, what can one write or say. Your son is absolutely gorgeous and such a brave little fighter. You are an amazing family, your strength fails me. I am a mom to two little boys, I hug them tighter each day and say I love you more because of you. I cannot comprehend what you are going through, we pray for Ty and we pray for your family. We pray for a miracle. Kim, Max and Gabriel, Johannesburg, South Africa

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  62. Thinking of you and praying for you, Ty and your family. (((HUGS)))

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  63. i think the power effect you have had is seen in the comments-one person let her 12 year old dye his hair, and another one has a tickling match with her 5 year old instead of being upset when he won't brush his teeth. My suspicion is that both of those tales would have been different without your postings reminding us what really is important.

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  64. You are a STRONG Mommy and I am heartbroken to even think that any child has to go through this. It's so not fair!!!!! :(

    Wendy

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  65. So heartbroken! Praying so hard for you, your family and sweet Ty! Also, Saying a prayer for your dear friend Meghan. Thank you so much for sharing your story with us, Ty has touched my life in so many ways!God Bless you and your family!

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  66. Cindy you are so right, this shouldn't be happening..to anyone, but especially to children. I am a woman of faith, but I find myself asking God "why these children?!" all the time. They are so young, innocent, beautiful..yet they suffer at the hands of one of mankinds most deadliest diseases. We have come so far in our human race; we have walked on the moon, made the computer something that can be held in the palm of ones hand, discovered how to clone animals and human body parts...yet we are unable to figure out WHY humans get cancer and HOW we can completely eradicate without killing the patients?! My mind is boggled. Completely.
    I read your blog and Maya's blog every day; I need to know how Ty is doing, I need to know how Maya is coping. I show pictures of Ty to my 2 year old son and explain to him that Ty is sick and we need to include him and his family in our prayers and that we need to pray for people everywhere who are suffering or have suffered this disease. He says, "okay mommy." I speak about Ronan to my friends and family and they are flabbergasted at how much he (and Ty) have impacted my life; what if that were someone we know?! Wouldn't we want to shout it from the rooftops that we wont stop fighting?

    I'm going on a wild tangent now, I will end with saying thank you for the update on Ty and I am very sorry for your friends loss.
    Love and Prayers ALWAYS ,
    Sally

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    1. ditto Sally - I have friends tell me I should take a break from Ty's blog, it's affecting me too much.....but I can't stop and I won't stop. It's so important for those of us touched by these kids to just keep talking about them and finding other people that will be as affected as we are. Then together we can work to make a difference in this fight - whether raising $$, spreading awareness, volunteering. My 2 yr old has also learned about Ty - I want to make sure he grows up compassionate for others and appreciative of all he has.

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  67. Dear Cindy ,Here praying for you all and that miracle for Ty .Never give up hope
    ((((((())))))s n xxxxxxxxxxxxs to your beautiful boys Gail

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  68. Hi Ty... I want you to know that I always think of you. And I admire you for being so strong and brave. I run the Chicago Marathon last Sunday and I thought of you! You are an amazing little boy and I pray for a miracle. You are so beautiful and your smile...oh my, what a gorgeous smile you have. Keep smiling please. And to your mom and dad... I wish you I could give them the biggest hug...lots of love from Indiana.

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  69. Your Precious Ty is a constant in my life now. I think of him every day, several times a day. And at the moment I wonder what he's doing and how he's feeling. I pray for him constantly. And I pray for you, Lou, and Gavin too. You are absolutely right! No family should bear witness to the nightmare that cancer brings. I know it all to intimately as well since I lost my mother to cancer when I was 12. I am still praying for a miracle. I will never stop. Thinking of you all with much love. xoxo

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  70. What can I say that others have not already said? I have followed your story for a long time from NJ. A very dear friend and I have both followed you and cried and used extreme profanity several times. I would gladly, without hesitation, no questions asked, cut off my arm to save Ty. Your writing is so real and so beautiful. When I find myself getting annoyed at silly things my 2 kids do, I stop. I think of you. I think of Ty. When I get an email notification that you posted, I stop what I am doing and read it from my phone. It's like a sick addiction! :) I am addicted to Super Ty! I bid on the Captain America hat this morning and I talk about him to anybody that will listen. You have touched the world with your courage and your beautiful family. Thank you for inviting us in and opening our minds, hearts and eyes. God Bless.

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  71. I am praying for you Ty and thinking of you often.

    Cindy, have you seen these thumbprint necklace charms? (There are lots of similiar pieces on etsy).

    http://www.etsy.com/listing/83289830/round-fingerprint-charms-silver

    I had one made of my son's thumbprint when he was 5 months old and I wear it everyday. I like to think I always have him with me.

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  72. I have been following your story thanks to a friend in NY. I read your posts with saddness and hope. I wanted to share this with you: It rained last night in our area of Northern California for the first time since February. The sky went from blue to a vibrant red to a lush pink in a matter of minutes and we could see lightening strikes beyond the trees. The kids were so excited because they hadn't seen rain in months. We opened all the doors and windows and let them run around the backyard as the rain drops turned the colored chalk dust to water colors on the pavement. I thought of your beautiful son as the rain tickled our cheeks. Sending love and prayers from Walnut Creek, CA.

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  73. I read your blog constantly and am inspired by Ty's courage and bravery (as well as you and your husband's). I cry sometimes in sadness but other times in joy. I am so happy that you and Lou had some great moments with Ty and that he loved every minute.

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  74. I think of Ty and your family daily (in fact many times per day). Many of us feel as though we are part of your family and wish we could help somehow. The only way I can help you right now is to share your story w/ others to bring awareness. Sending love and prayers to you!!!

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  75. I saw a beautiful sunset last night, hardly ever see them anymore - just happen to look at the sky at the perfect moment. Instantly I thought of Ty, and if God can create a sunset like that he can certainly heal Ty! I hope he is having a good day. I know Ty feels the love that is coming from EVERYWHERE....

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  76. I am just another voice of many who are heartbroken by all that you are facing. Despite my heart aching & burning hot, I know it is just sliver of the depth of your pain.

    Rejoicing that yesterday was a wonderful day! Praying for many more!

    Reading about your decision to cut off a lock of hair reminded me of the most touching update that I read on another family's blog. I wanted to share with you in hopes that it touches your heart as much as it did mine!

    ***

    I’d like to tell everyone about something that really touched my heart recently. I was listening to a radiolab podcast that was talking about some research that they’re starting to uncover about mothers and how special they are. They used to think that the baby developed in the mother completely separated from her, that the placenta served as the gatekeeper, and that nutrients came in to the fetus but nothing came out. But research has shown that in fact the mother and the baby are exchanging cells. They know this because they can take a sample of the mother’s blood and see a bunch of cells that are the babies’. They can even accurately predict how many of them there’s going to be.

    And it gets better, it turns out that those cells don’t get cycled out, they actually stick around for years, even DECADES, most likely for the mother’s whole life! How awesome is that? What it means is that Julie is literally still carrying around pieces of Dax, spiritually and physically. That choked me up a little. And each child that the mother has will contribute it’s cells, so Madeline and Dax are together in a real way…

    But here’s the best part, since they’re fetal cells, they’re very dynamic (think stem cells), so they’re able to fulfill many roles. If the mother gets sick, or injured, these cells are the first ones to go to problem area and fight back. Imagine that…

    I’ve never heard anything in my life that is so right with the universe as that. Julie helped Dax fight for his life battling cancer and one day Dax will be doing the same for her…

    So, mothers, you’re always carrying every one of your children with you, every day of your life, even the ones that you may not get to love and kiss anymore, and they’re fighting for you, just like you did for them…

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    1. that is incredible - thank you for sharing!

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  77. I wanted to email you but couldn't find a place to do that. I just wanted to say my heart breaks for you. Your boy is so precious. I have a two and half year old nephew and I don't know what in the world I would do if I was in your place. I will pray for you and your family. I will pray for Ty. I will pray for a miracle. But if you should not get your miracle I will pray that you will find peace. God bless you and your sweet boy. ~Lindsey

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  78. I've been thinking all day about Lou's beautiful moment with Ty. I can't imagine how difficult it was for Lou, or for you to overhear, but how wonderful for Ty to have that father-son moment with his dad. As we've said many times, you and Lou are truly amazing parents, and it will never cease to amaze me how both of you give him so many awe-inspiring experiences.
    Trish

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  79. Praying for you Campbell family. stay strong super ty you are an amazing little boy! xo

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  80. I am blessed to "know" you and your family, even if only through these blogs. I've been praying for Ty and your entire family. I've been thinking, crying and praying all day for you...praying for the peace that surpasses all understanding, praying for God's strength to show itself in Ty--and in you, praying for a miracle. Be blessed this day...rest in His presence and know that you have a faithful prayer warrior in me.

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  81. Hi, beautiful Ty! It's Laura from Texas checking in. I haven't written in a day or two, however I'm still checking your site daily to see how you are doing. I love you and pray for you daily. You couldn't ask for a better family than the one that you were blessed with. I hope you are having a wonderful day today.

    Laura in Texas

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  82. A few months ago your site was sent to me, it was on the day I lost my dearest friend to Cancer, I hadn't known anyone personally up to that point who ever had it, and learned just how quickly it can take someone you love away.. I felt like she sent it to me becasue she wanted me to focus on Ty and not her passing. Since,I read your blogs daily, follow the new events and share and PRAY! I moved from Pawling 5 years ago to relocate in Carmel when my son got sick.
    I have thought so many times to write a note of encouragement, tell you that my family is praying for you all...to take strength in all the love that surrounds you.. but today with your story about taking a lock of your hair just not only brought me back but made me want to share a little with you, because I so understood with all my heart your reason for doing it!

    My son 5 years ago had an enormous tumor in the back of his brain,(it turned out not to be cancer, however,the damage was great) He underwent 3 difficult and life changing brain surgeries, in which during 2 of them, he died and was brought back. In the 125 days in ICU, he was in a coma, and it was touch and go alot! I never could leave the room because the fear was so great that if I did in that moment it would be his last and I wouldnt be there, and what kind of mom would I be if I wasn't? It was a horrific feeling. I would tell him stories, and talk about all the things he needed to do, I told him how I couldnt live without him.. I too talked about heaven, and God and how if he needed to go I would understand. I just couldnt let go of his hand! Everyone tried to convince me to just walk around, take a shower, breathe, spend a few moments alone with my other children, I couldnt do it, I sat vigal 24/7 holding his hand and wispering to him to please come back to us. One morning one of the priests that came regularly told me that if they sense your there they won't leave, so I taped my self singing "you are my sunshine" on a recorder to play so I could atleast shower, put a shirt that I didnt wash so it smelled like me next to his pillow and than I cut a chunk of my hair and laid it in his hand and closed it so he would think I was there that he was holding my hair.. he always loved to hold my hair and put his fingers through it as a young boy.. so when I read what you wrote not only did I cry so very hard for you all, I just so knew in my soul what you meant.
    I pray all the time for Ty as well as your family, I pray that god gives you an abundance of strength and watches over you too! Your strength and love is a powerful gift to Ty, your family and those you do not even know!

    My son is blind and has neurological and physical disabilities because of the damage from the tumor and than the surgeries. His life and what it takes to make it work utterly overwhlems me, but when I read your blogs and see Ty's beautiful face, I see that my life and my son's is a blessing and a gift no matter how hard it may be.
    I believe in miracles, I consider Tim mine. As every moment of everyday goes by, I pray that one can be bestowed on Ty and your family!! No child should experience pain or illness!
    Thank you for sharing Ty with us, and letting us love him too!!
    Always in our thoughts & prayers!!

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    1. Your story touches my heart - I can only imagine how you must have felt while your son was in the hospital. I'm so sorry about the ongoing medical conditions he faces and I'm sure his care takes a lot of strength and courage. I hope that you have a strong support system to help you. Take care of yourself and sending thoughts and prayers your way.

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    2. So sorry to hear your story you are amazing and strong and so positive appreciating every moment with your son. Blessings to you as well.

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  83. Ty, My continued & constant thoughts & prayers are with you & your family.

    I have been deeply touched by Ty's courageous & heartbreaking journey. Ty will always have a special place in my heart.

    God Bless.

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  84. You are so right. Cancer is not fair. Today I went to a salon that is offering pink strands for $10, all money going to breast cancer research. I did it for my friend Margie who passed away form b.c. 9 months ago. I think about her daily, I pray for her husband and young children daily. Now, I add Ty to my daily prayers. You and the rest of the family as well. I do believe in miracles!
    Jennifer, Illinois

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  85. I wake up thinking about Ty, and go to bed every night with him on my mind and in my heart! I am a mother too- I have two young daughters (2 yrs and 7 mos). I cannot fathom what you and Lou are experiencing as parents right now but I can feel every bit of love in your words. You are an incredibly loving mother and I'm certain that your precious Ty knows that he will always be safe in his mommy's heart. Just wanted you to know that your sweet little family is never far from my thoughts. Wishing you peace and healing!
    -Lisa from AZ

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  86. Sending hugs and positive thoughts to you and your family. Your story touches my heart daily. You have made me a better mom by stopping and living in the moment with my children. Sending lots of love and prayers your way.

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  87. Hi Ty!
    I'm glad your having a good day. I'm sorry your mommy was sad today. All of our hearts are breaking for Ty and his family. My 2 1/2 yr old son saw Ty's picture as I was reading his blog this morning. He said "that is a cute little boy" without me telling him anything regarding Ty's situation my son the told me Ty needed medicine. I said yes he does need medicine, do you think he is going to get better? My son said very confidently, "yes he is going to get better". From a baby's lips to god's ears! Much lov for another good day!

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  88. You are such incredible parents, Cindy and Lou. What a little man you have in Ty. So precious. I hope from all these posts you know how much love and prayer goes to your family every minute of every day.

    My 6 year old son wanted to play on the playground after school today. Instead of rushing back to take care of things around the house, we stayed for an hour. He had a blast...and he has Ty to thank for that!

    I am praying for a miracle for Super Ty. He so deserves it, as do you.

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  89. Ty is beautiful. Sending positive thoughts your way for this little fighter.

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  90. Sending thoughts of peace and calm in the storm. I saw how Lane Goodwin's mom had a casting made of her hand holding his and thought about you and your Ty.

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  91. The strength you have is simply amazing! I'm new to your blog and you're story is heart breaking! I saw a prayer for your sweet boy everynight! My your prayers be answered..God's Blessing to you and your amazing family!

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  92. No parent should have to face the loss of a child. You don't know me, but I am praying for peace for all of you. Your courage in caring for Ty and your love are awesome. God bless you all.

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  93. Your son is truly one of the most beautiful children I have ever seen. I am so sorry he has had to go through this and you have had to watch him suffer..I cant imagine your pain. I do know I most likely would not have the courage,grace and faith that you and your husband have shown Ty and everyone else. You are truly an inspirational family, Ty is an inspirational little boy and my heart aches for all of you. You are loved from people you have never met and we are all saying prayers for you. Stay strong..Your son is blessed to have such an amazing family to carry him through this gutwrenching journey. Love to all of you.

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  94. Ty Louis Campbell,
    You have proved the fact that love conquers all. Even that putrid cancer won't ultimately win, even if it thinks it will. Because , Ty's goodness is stronger. He has not let that ugly disease overshadow all that is noble,sacred and pure-
    Ty- your a special soul put on this earth and you have outshined and risen above cancer.

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  95. keep fighting the good fight. We must all go home someday. You were given an old spirit in the body of an angel.He came to bring, teach and give so much. Faith begins when all you have left is HOPE. We continue to pray feverently for TY. We want him healed as much as you and your family do.May you find peace,comfort and rest during all of his care. You need to rember to take care of yourselves and eachother. When was the last time you and your spouse just had an hour alone, hair combed and cleaned to tell eachother what you mean to one another. NO talk of TY.It's not selfish or unkind.I know you are a strong prayerful woman. I want you to know that God has placed it on my heart to tell you to spend a little alone time together just you and your spouse. If you are afraid to leave the house then set up a room for you both. Take Gavin to a friends house.And just thank eachother and hold eachother. God has made a wonderful team in you and your spouse.

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  96. I must admit, I could never really read a whole blog about your beautiful son. I was afraid, of what, I do not know, maybe to feel your pain as a mom. I am amazed by you and your family. Then I read tonites blog about the hospice nurse saying the angels and the intercom system, that touched me. Then I read some more about how you talked to Ty about Christmas and you asked him if he remembered the name of his elf. when i saw the name Georgie Bell, I completely lost it, tears crying. I had a brother George and we called him Georgie and believe or not our last is Bell. He died in 1989 at the age of 29. I always knew if he was still around he would have been the best uncle to my children. I can say that my brother is in heaven looking down on you and Ty and your lovely family and giving you strength through this most difficult time. I'm still trying to maintain my composure, but please know your mostly definately in my prayers and how sorry I am for all you are all going through and miracles do happen. I got mine tonite, knowing my brother is doing what he was meant to do and that is putting a little smile on Ty's face, and thinking about his elf or angel???

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    1. That is simply amazing...

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  97. You are so right. This should NOT be happening to your sweet, gorgeous boy. He should be well and healthy and happy and here, with his wonderful loving family. You and your family and your little boy who has become a hero, survivor and an angel to so many, are surrounded by love, warmth, prayers and positive thought. Every moment of every day.

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  98. I will never understand the evils of cancer, never ever. You are not alone in this fight. We are all fighting together for our loved ones. God Bless Ty and all those suffering from such a nasty disease. XO

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  99. My heart goes out to you and your family. I could not even imagine what you are going through. Ty is a beautiful little boy and he will be in my thoughts and prayers. Ty has touched so many and fought so hard. There are no words...

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  100. Please listen to this. God can do amazingly abundantly more than we could ask think or imagine through His power at work in us. God wants Ty well!!
    http://www.awmi.net/extra/audio/1036

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  101. Please listen to this. God can do amazingly abundantly more than we could ask think or imagine through His power at work in us. God wants Ty well!!
    http://www.awmi.net/extra/audio/1036

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  102. It is so so unfair what's happening to your little boy and your whole family. I've been thinking about Ty for days now every chance I get and I tear up every time. I'm so sorry for what he's been through and what's going on now. It hurts to think about it and I'm sure I'm only feeling one billionths of the pain you and your husband must be going through. None of you should have to be in this situation. I've been praying for days for his recovery from cancer and the side effects of the treatments. So that he can get off the couch and be in school this time next year. I so hope your miracle comes soon.
    You and your boy have made a major impact on me. I spend more time with my boy, I'm more patient with him, he gets to get messy like I wouldn't let him before. Once he starts walking we will find the biggest puddle and jump in it and think of Ty. I am thankful for that, but my heart breaks for you and Ty. There're no words...
    Lots of love, and hope, and prayers,
    Irina

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  103. I pray for Ty and his loving family every single day since I heard about him through Ronan's blog. There is not a day that goes by that I cannot stop to think of him and how much he deserves a miracle. I pray for that miracle and now my kids ask me when they see me to tears if I am reading about Ty. I say yes and I say you have to say your prayers as this tiny little boy deserves to be heard by God and I believe that miracles do happen so please say your prayers. Please God give this child a beautiful life here with his mommy, daddy and baby brother. Please

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  104. I have been following your story since I heard about sweet Ty 2 years ago. I probably check it everyday well now couple times a day. I love that little boy!!!! Cindy Ty, Lou, words can not express how much I care for your family and how much I think about you. God Bless

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  105. You can't leave us, Ty. Keep fighting. We are praying desperately for a miracle For you. My family prays a rosary every day. I believe You will get better soon, sweetheart. Have another peaceful night and many, many, many more.

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  106. You're so right. This is all SO unfair. I hate it. No child should have to go through a single part of what Ty has so bravely gone through.... We all continue to pray for a miracle for Ty.. Either way, all of Heaven must be all abuzz about this Super Ty fella! I have never felt so connected to so many people united in love and prayer and positive energy, than I have through this heartbreaking journey you've taken us on

    We are all so grateful to you, Cindy, and of course to Ty, and to Lou and Gavin, for being so generous, sharing your beautiful family with us. Just know that the prayers for you will never stop...

    btw, I think the lock of hair is a great idea.. it's a comforting thought to know you'll be with him (and much more practical than cutting off your hand (lol).. although i have no doubt that any one of us readers would gladly cut off our hands to save Ty.. in a heartbeat.

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  107. What a sweet boy I love looking at his face in these beautiful pictures :)

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  108. Lucy wrote "Please listen to this. God can do amazingly abundantly more than we could ask think or imagine " I love the scripture! I believe it completely and whole heartedly! I pray for Ty and your family everyday and I have to thank you soo much! Sometimes we get so busy in our day to day life that we miss the little things..like giving our child the extra lollipop that they don't really need but want...or giving them another throw in the air when they say "again" and "again" but you're tired...we should all treat and love our children the way you love yours. You are a wonderful mother and I am sure that Ty knows it and appreciates every wonderful thing you do for him! God Bless you!! <3

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  109. Desiree, your comments just took my heart away!

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  110. God Bless You Beautiful Ty

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  111. My family and I have been following your blogs for a while now and my boys have both said prayers int heir classes (gardes 8 and 3) for your familky and especially little TY. Today, after it rained, both boys ran out the door, jumped into a pubble, and my 9 year old Daniel said, "This is for TY". I didn;t get a picture fast enough,k but the biys said when it rains again soon, they will jump again for Ty, and I can get a pic to send to you. I wanted you to know how much he has touched all of us. I never go to bed without checking for one of your posts, and then share it with the boys the next day. We might not know you personally, but your family is loved and thougth of every day in our house.

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  112. http://www.lohud.com/apps/pbcs.dll/article?AID=2012310110119


    GOD PLEASE HEAL "Ty" IN JESUS CHRIST NAME I PRAY. Amen

    God Bless You Campbell Family..WE LOVE YOU SO MUCH!!!
    ~Michelle, North Ga.

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  113. Love and prayers for you and your family everyday. I love your plan to give Ty a lock of your hair and you should also keep some of his in a gold locket to forever carry him around your neck just as you carry him now and put his loving arms there. God Bless you Cindy and Lou and Little Ty and Gavin too. Still praying for a Miracle.

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  114. I am on this site 20 times a day checking up on Ty. I freaking love him! I don't know how this can be. He is such a precious little thing. I dont always have the words to comment but I always have the tears and love xxxxx

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  115. Your blog has truly touched my heart and soul in more ways than I think I realize. Your family and Ty are always on my mind and in my prayers. It is amazing the awareness that pediatric cancer is getting, I think your idea about the NFL wearing gold in September is a very good idea. I think you are truly a gift from god and so is your son. Many many prayers.

    Teri

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  116. My heart goes out to you your family and especially Ty I am a new follower I read about you from Maya's blog. I signed up for Ronan's run like a rock star marathon and I will now be running for Ronan and your son :) I am going to make a shirt and I will put his name on it :) I will send you pictures of my run. I will have your baby boy in my prayer. God bless you

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  117. Cindy & Lou,

    I am so sorry to hear about your friend. Cancer is disgusting and ruins lives.

    Ty is amazing. I must say that I felt the same way too. I often wonder if maybe he was getting "bedda" and they were wrong again. Ty is amazing and I still hold out so much hope. I can't help it. Reading about Lou and the handshake, my tears are running down my face. Alex and his daddy do that too. "Tight handshake" This is so not fair.

    Going to pray or scream at god right now. Probably scream.

    Thinking of you always. . .

    Joy Marielle
    Baltimore, MD

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  118. Dear Cindy & Lou,
    What an amazing human spirit you both have. As you said so many of us have been touched by cancer and it is unfair in every case. You are an inspiration not only to mum's all over but as an amazing, strong people. I'm reading your blog for the first time and am crying my way from post to post. What a journey, what a family, what a boy! I hope you feel some comfort from the millions of prayers being whispered on your behalf.

    Godd Bless you all.
    K Blake
    Australia

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  119. I must confess that I cannot possibly imagine the pain you are feeling at this time.

    My prayers are with you all

    James McLaughlin (Sydney)

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  120. I teared up when i saw this I pray that your son will get better and live the life all little boys should. My heart goes out to your and your family

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  121. On behalf of all Western Australian's, our thoughts and prayers go out to you and your family. Regards, Andrew.

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  122. Hugs from Perth, Western Australia xxxxxxxxxxx

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  123. My heart breaks for you. I lost my adult son to brain cancer 2 years ago. He left behind two young children. The difficulties of this disease cannot be described. The journey is as painful as the destination.
    I pray for your entire family, that you find strength and peace.

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  124. Cindy, our hearts ache for you and there are no words to express the feelings. You and your family are amazing and I understand your anger and frustration. He is an amazing little boy, who is so loved so much by people who have never met him but suffers from this God awful disease that NO child should ever have to bear. I write this with the upmost compassion and love to you, I know you mentioned Ty seeing angels, he is - they are around him they are waiting for him, as we all pray for a miracle for Ty have you told him if he is tired it is ok for him to go to the angels? Its ok for him to leave, that you and Lou and Gavin will miss him but will be ok? and hold and carry him in your hearts forever...I only write this as I have experienced it myself and sometimes they hold on to this life for us...We continue to pray for your entire family and especially for that amazing little boy, your amazing, special, beautiful son 'Super-Ty' much love and peace

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  125. I cannot begin to understand your pain or feel your grief for your son's passing.Although It may sound cliche' I am deeply sorry for your loss.I know because of the way you handled this,Ty will live on in the hearts and minds of people for years.I don't have any children Ty's age but I have grandchildren nearing his age and I can't imagine life without them.Keep fighting the good fight.It's people like you who get the job done.

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  126. It is such a travisty that a life has been taken at such a young age.I will never understand the reasons why.This kid never even got a chance to live,to grow,to experience anything that life had to offer.I wonder if he even got the chance to understand why he had to go so soon.I didn't know this kid nor do I know any of his family and yet I am crushed by his death.I sit here,crying,thankfull to someone for letting me have the opurtunity to be greatfull for my own life.

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  127. God bless you. My name is Joe.
    When my first son was 1 year year old he had a febrile siezure. He was laying next to me because he had a fever and I wanted to keep an eye on him. In the middle of the night I felt him move and it woke me. I remember him saying daddy and them he started to shake. I jumped up and yelled for my wife to call 911. I didn't know what was happening or what to do.I just held him and prayed harder than ever. All of sudden he stopped shaking. That scared me even more. I felt a pain like never before. It was from the inside. From everywhere all at the same time. He went limp in my arms. I held him so tight. I could hear my wife screams somewhere in the background but like they were coming from somewhere else. When the paramedics arrived they had to take him from me. I didn't cry. I couldn't. I didn't know how to anymore. I had to be calm. Keep my wife calm. I hadn't cried since I was 8 years old.
    Ty's story of you holding him his last moments made me cry. My wife and kids all went to sleep. I came across your story just reading the news on the net. and that night came back to me. I did not have to hold back or be strong. It all came back to me. It hurt everywhere all at once. I have 3 boys now ages 7,8 and 11. Sometimes they look at me like I'm wierd because I hug and kiss them so much and so long. My God bless Ty's soul and give you strength.

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