Monday, October 8, 2012

Holding you is heavenly

 
Ty was back in my arms today and I still relish the feeling of having him there, holding him out to kiss his warm, soft neck over and over as we slowly walked around the house.  It's been a week since he wanted me to carry him around in any way.  Then today, when I told him I had to get something from the kitchen, he said "I want to come."  It was so hard for me to understand him, but when I finally figured out what he was saying I was overcome with excitement. It was a short walk, but so sweet.  It was just what I needed to lift my spirits.  After all, I have been carrying him on my hip since the day he was born - even more so since he became disabled - so I feel naked and incomplete when my arms are empty during the day.  It breaks my heart to see him just laying on the couch day in and day out.   

We had a very quiet day, which is just what he needed to relax and find some zen.  He was awake the entire day, which is rare, and his head pain was well under control.  Gavin was out having fun with Nana and Papa and I had several hours of peaceful alone time with my best good boy.  After a rough night (last night he threw up several times), he woke up looking beautiful.  His color is great.  His face isn't as swollen.  His lungs are clear.  I can't say he is getting better - he is still very, very, very sick - but today he was clearly feeling "bedda" and I am grateful for this day.  Ty is too.


 
This may sound totally crazy, but I recently remembered some little things that happened when Ty was a baby.  Just one year old.  I didn't think much of it then, but now it has me wondering.  First, there were several occasions where he would be playing in his bedroom and then run out to me to tell me there was a ghost in his room.  He could only utter the word "Go-oo-oh!" because he was so young, but he would say it hunched over, with his shoulders up, and using an inflection in his voice that sounded like a spooky Halloween sound (I hope that description helps).  I would ask him if there was a ghost in his room and he would get all excited to bring me in and show me.  Of course I would pretend to see the ghost too and it would make him laugh, but I never thought twice about it.

Then there was the time that he woke up in my bed one morning and he was laughing out loud at the instant he woke up.  He was looking at something on the bed with him (but nothing was there) and he started saying with excitement "Mi-Mi!  Mi-Mi!"  That is how he used to say "Minnie" who was his Nana's dog.  Please don't think I'm a crazy lady, but later that day my mother-in-law shared the news with us that Minnie had died.  That's a very strange coincidence!  Maybe we really are all connected in this universe.  Maybe Ty's "Go-oo-oh" was really his guardian angel that he was seeing.  He was never afraid, I just thought he had a wild imagination, but now I find comfort in the idea that maybe the spiritual force involved in all of this has been helping Ty more than I realize. 

I'm sharing this with you because Ty has been staring off into space a lot.  I know much of this can probably be attributed to the pain and anti-anxiety medicine.  But, I am so curious about what he sees, or thinks he sees.  I try to talk to him about it sometimes, but his speech is so incredibly compromised that he often gets frustrated.  Today he answered a bunch of my nagging questions, though, and it was comforting for me.  He kept saying to me "Mommy, look.  What's that over there?"  I would go through the list of all the things I could see that were out in front of him:
Your balloons?
Your candy house?
Your candy shield?
Your pumpkins?
Your lego guys?
Your super heroes?

I rattled off everything that was within his eyesight, but he answered no to everything.  He kept repeating, "What's that?  Over there?"  Then I asked him:
Ty, do you see an angel?
Yes
Have you seen this angel before?
Yes
Does he or she talk to you?
No

That was as far as he allowed me to go with it.  He started getting annoyed with my questions and wanted to look in his toy catalog again, but I do think he is becoming more enlightened.  It comforts me and terrifies me at the same time.  I want him to find peace, but I want that peace to be delivered in the form of a full, miraculous healing!  I am in a panic as this progression is feeling more and more real to Lou and I.  I am surviving by living in the day and only in the day, but that is getting harder to do as I see Ty changing. 

Then, in the midst of my panic, we capture a fabulous "smile of the day" and I remember that Ty is still here.  The real Ty is in there, it's just harder to get his attention.  I will just have to continue surviving and living in the moment.  Moments like these remind us that every day is a blessing.  Every smile is pure magic.  Thank you, God, for letting me be his Mama.

108 comments:

  1. He is an angel here on earth! Love and prayers to you all!

    Lisa

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    1. Oh Ty .. sweet baby Ty .. how I wish I had the honor to hug u as ur mother does on a daily basis .. there's nvr a day I don't read ur posts or cry because of them .. because of u Ty, because of Tay, ((#livefortay)), && because of little Ronan .. I kno wht I want to do with my life .. I kno wht I'm going to do with my life .. thank u .. I don't waste one minute with my boys && step kids now because of u little Ty .. my oldest son also loves Spiderman && captain America .. I'm making shirts with ur name on them Ty .. letting people kno of this horrible disease going on .. && I won't stop until childhood cancer is as well && wide known as the "pink ribbon" .. I would gladly .. GLADLY && w//no questions asked give my life for this horrible disease to be taken out of u, && evry other child out there .. plz plz Ty, don't give up .. turn tht frown upside down .. because laughing evry day keeps the Dr away .. we all love u Ty .. && forevr u will b in our hearts .. well never stop praying.for u .. && well sure as h**l, NEVER give up hope

      <3 always && forevr ,
      Work, Aiden ((3)), && little Chris Jr ((1))

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    2. Oh Ty .. sweet baby Ty .. how I wish I had the honor to hug u as ur mother does on a daily basis .. there's nvr a day I don't read ur posts or cry because of them .. because of u Ty, because of Tay, ((#livefortay)), && because of little Ronan .. I kno wht I want to do with my life .. I kno wht I'm going to do with my life .. thank u .. I don't waste one minute with my boys && step kids now because of u little Ty .. my oldest son also loves Spiderman && captain America .. I'm making shirts with ur name on them Ty .. letting people kno of this horrible disease going on .. && I won't stop until childhood cancer is as well && wide known as the "pink ribbon" .. I would gladly .. GLADLY && w//no questions asked give my life for this horrible disease to be taken out of u, && evry other child out there .. plz plz Ty, don't give up .. turn tht frown upside down .. because laughing evry day keeps the Dr away .. we all love u Ty .. && forevr u will b in our hearts .. well never stop praying.for u .. && well sure as h**l, NEVER give up hope

      <3 always && forevr ,
      Work, Aiden ((3)), && little Chris Jr ((1))

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    3. What a wonderful beautiful momma and daddy you are to your angel boy and I just know he knows it too. Keep being you, and the world will keep praying for all of you.

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  2. Cindy, thank you so much for having the time to keep us updated on Ty! I'm so happy you got to have your beautiful boy back in your arms today! He looks like a perfect angel in your pictures from today, as always. I truly believe children are so much more likely to communicate with people who have passed. My sister was 6 months pregnant with her first child when her mother in law passed unexpectedly. My nephew was just about 2, my sister heard him laughing and giggling in middle of the night, she went into his room, he was standing in his crib staring at his rocking chair laughing up a storm. She asked him what was so funny and he said "Nanny R is singing to me, she sings all the time to me" my sister was shocked, they never spoke of her to my nephew, he never met her. The next day she took out her wedding album and was going thru it with Vince on her lap, they came to a photo of his grandparents and he said " there's Nanny" and kissed the book!! It was so painful for my brother in law so they didn't have any pictures or photo albums out, no one can explain how he knew who she was, but almost every night after, he would be laughing and very content! Don't mean to ramble on but my point is I'm sure angels are all over your home looking out for you and your family, and comforting beautiful Ty. Maybe they're there to heal and grant that miracle everyone is looking for. Will never stop believing and praying for Ty and your amazing family! God bless and love to you all xoxo

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    1. Maybe they're there to heal and grant that miracle everyone is looking for. Will never stop believing and praying for Ty and your amazing family! God bless and love to you all xoxo


      In agreeance , I pray that it shall be thy will Lord...in Jesus Christ Holy Name.


      In constant prayer for Ty,
      ~Michelle, North Ga.

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    2. Oh Cindy, what a beautiful story! My cousin had visions when she was young also. She loved the Virgin Mary. My aunt and she would pray the rosary together and when she was very ill (leukemia), she had visions of Mary as well. So don't discount what Ty sees. He is again teaching us about the power of faith and prayer, that he is being watched over and will continue to be watched over (as are all of you as well) Take comfort in that, as I do. Stay strong!

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  3. Glory To God! O God, you will keep in perfect peace those whose minds are
    fixed on you; for in returning and rest we shall be saved; in
    quietness and trust shall be our strength. Isaiah 26:3; 30:15

    This makes me shout out blessings to our Father above, I am so "i don't know what I am" I am beside myself...It's just so good "to know" all the things you wrote..I'm soo happy and thankful that you had a good day Momma, so grateful unto our Lord that you were able to hold him so close again. Grateful for all of it, from the biggest to the smallest blessing..I Praise His Worthy Name! Thank You Jesus...God Bless you beautiful woman and God Bless Your Son.


    ~Michelle, North Ga.

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  4. You have a guardian angel too. Your angel will comfort you tonight. Go to sleep and be comforted.

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    1. Amen. :)

      ~Michelle, North Ga.

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  5. He's just so beautiful..What an impact Ty has made on my life! What an impact YOU have made on me! One that will last forever! Thank you gracious lady..



    ~Michelle, North Ga.

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  6. Hi, sweet baby boy, Ty. It's Laura in Texas. Yesterday I didn't get to post because I never logged on to my computer. But, I still read your update on my iPhone. I will not go to bed until I read about your day! You looked so beautiful today. I'm glad you had a wonderful day with your mama. You are a lucky boy with such a great family. I pray for you each and every day. My friend called me from Miami and I told her about you. It's very hard to talk about what you are going through without bursting into tears. In fact, I'm crying once again as I am typing this. I love you.

    Laura in Texas

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  7. Many times after reading your blog I'm just speechless. But I'm so happy Ty had a good day today. I pray they will only get better and I pray that it's very very VERY soon. My heart hurts when I think how much pain he's been through. Please dear God heal his entire body. And give him strength in Jesus name I ask. Amen!!! Ty Ty you are beautiful and these pics you posted just made my night. Thank you Cindy for keeping us posted. Can't wait to hear more great news:) xoxo

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  8. My family and I will pray for you to find peace with this journey as well as for Ty. The strength you are showing to be able to blog about this so openly is inspirational. I can't imagine what you are enduring but I can see that this blog allows you to vent and therefore be able to just be strength and love for Ty.

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  9. Ty, I am so glad to hear you wanted to go with your sweet mama to the kitchen today!!! Your picture is so beautiful, you look great with the nice color your mom describes. Please dear God heal this amazing child! I love you Ty and I think about you so often. Have a peaceful night and week ahead.

    I love you all and the universe is praying for you!!!

    Peace and healing-

    Christine
    Phoenix, AZ

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  10. hello ty and family:)

    this is Beatrice dropping off a comment for all of you to stay strong and to let you know that you guys are always in my prayers even from this side of the world. May God bless all of you with new strength every morning and lots of blessings and healing xx

    with much love and prayer always,
    Beatrice, Singapore.

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  11. You can feel the warmth between you and Ty in that picture right through the computer!!! I am so glad you both had that feeling... Your journey is mesmerizing to me, the daily events are so meaningful.

    Thank you for including us all, I know I take a step back in my day and smile now with my kids a little more? Get frustrated by the small things a little less .. You are showing me and all who read your blog what it means to be a self-less, loving, incredible Super Mom !!!!

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  12. I am reading your post and this is amazing but last night I was in a deep sleep and let me tell you I read ty's update everytime you post them. I had a dream of Ty and I woke myself up wondering if he is ok. I know that sounds weird but it happened and I have never dreamt of him before so I was kind of taken aback that I did and we were conversing. I don't know why I made myself wake up but I did and sat up for awhile to just get peaceful again. I can't remember what we were talking about but I keep him ever so close in my heart and prayers and your beautiful family too. Ty is divinely protected. I know he has his special angels. Kids are so pure in heart that is why they can be so close to the spiritual side of things.
    He is so adorable as is Gavin and I wish your day is guided in peaceful easy feelings guide you throughout your day. Ty is super alright!!. God bless you all and hold you in his loving arms. Always, Healing and loving wishes your way Debbie from Hawaii Aloha my friends. I think I shared with you I lost a little cousin to brain cancer and she also shared with us her visiters and she would laugh and we would not have a clue to what she was doing or who she was having such a good time with..... kids are amazing little people.

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  13. No one deserves a guardian angel more than Ty. Praying today is another good day for your sweet boy.

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  14. Absolutely beautiful photo of you and Ty! All of the photos are wonderful! Certainly heart warming to say the least. Wishing his guardian angel could bring the miracle that you all so deserve. But if nothing else, bring him exactly what he needs to get him through this journey in the most comforting and peaceful way possible. Much love for such an amazing little man.

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  15. Thanking God today for Ty's Guardian Angel. Peace and comfort to you and hoping for many more days to carry your beautiful boy in your arms. There is no greater picture that expresses love.

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  16. Your faith and grace are amazing as you continue on this heartbreaking journey. I pray for a miracle everyday and hug my daughter a little tighter at night.

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  17. Your recent post gave me the chills when I got the part when you were questioning what Ty saw....although In my heart I felt like I knew the answer already...angels. My God;if he is not the most precious boy-and I love how you equate it with him becoming more "enlightened". You are eloquent at a time where I can't imagine I'd have a single word left in me; strong when I think I would be bone tired weary. Your smile in the picture with Ty at your hip is a genuine one; not something fake you mustered up for the sake of smiling - you can see the pure joy you have from having him in your arms. And the title is beautiful, because heaven must feel like that; having love enveloped in our arms:) I can only reiterate what d many others have said before me; you are a warrior mom, a beautiful example of how I want to be as a mom. Your family has an incredible place in my heart. God bless you , Lou, Ty, and Gavin. Always in my prayers. Xoxo

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  18. oh, this post is wonderful! For so many reasons! I'm so happy you were able to hold him. I still love carrying my 7 year old to bed, and I don't have to tell anybody how good it feels when I hold my 18 month old, and he puts his head on my shoulder, and tickles my back and neck with his delicious little fingers. It makes me smile SO big and feel SO good to know you were able to hold the best good boy in the whole wide world!

    The other part that makes me so happy - is that your eyes and heart are so open to the very real spiritual world that is around us at all times. I was raised VERY Catholic, but as an adult, have struggled with organized religion - but I do NOT struggle with my faith in God and the fact that we ALL pass on to the next level spiritually, merely leaving our physical bodies behind. I too, have had 2 different kids in my family who as toddlers, were clearly being visited by their grandfathers who had passed - one of them, years before he was born, and the other was an infant while my grandfather was in a coma before passing. In both instances, the child was able to describe in detail - things about their grandfathers that they never could have known. It's extremely comforting.
    The Minnie story is clearly no coincidence - and have no doubt that if it is Ty's time to pass, Minnie will be there ready to play with him!
    I truly believe that signs are around us all the time that our angels are among us - we just have to keep our "eyes" open to see them. Angels are obviously all around your whole family, and this makes me so happy to know that your family is being tended to closely :)

    The pictures are beautiful. Ty looks beautiful, and so do you! As always, Ty's candle remains lit in our house, and we continue to pray for a healing miracle. God Bless you all.

    p.s. When my dog, Penny, died last year, I told my daughter about "pennies from Heaven"...wouldn't you know, the very next day, when I opened her car door at Shoprite, a nice little pile of change was right there where she stepped out! She was finding pennies all over the place for a good while after that, and still does :)

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  19. I am so glad that you had a chance to be alone and hold your little man. Angels are around us and one is watching over Ty. I personally have had a couple encounters that one might say I am crazy. You are not. There are things around us that we can not see. God has sent someone to Ty to comfort him. I have not lost faith that a miracle can happen. Love and prayers to Super Ty, Gavin, and the rest of the Campbells. Still praying and listening.

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  20. What a nice way to start the day, hearing that Ty had a good day. I pray that maybe these spirits are around to grant that miracle that everyone is praying for. If that miracle doesn't come maybe they are here to help you. Maybe they are here to give you strength to be able to take this journey with Ty.
    Thinking of you guys constantly and praying for that miracle
    Michelle

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  21. I cannot believe how much a complete stranger has impacted my life. I started reading your blog because I saw the title a letter to Ty. It caught my eye because I too have a Ty so naturally I wanted to read about this letter. ( not having a clue about anything more then the fact that his name is Ty) we have yet to meet another Ty. Our boy is called Tiny Ty or Tiger Ty. Well I could not STOP reading and now check constantly for updates. I cannot get Ty out of my mind for a second. I walk around Brooklyn crying and praying for him all the time now. He has completely changed my life forever. I was trying to get my boys out of my bed and into there own. Now I'm keeping them there. I hold them each in an arm and think of you and your strength. You are amazing and Ty was right in choosing you and Lou as parents. I truly believe he is an angel sent from god to teach us all something.

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  22. In the name of Jesus, and Jesus alone, this boy will be healed. Thank you Lord for the little changes you have started. You are an AWESOME FATHER!!
    Thank you thank you thank you thank you!!!!!!!!!!!

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  23. Hello from Nebraska Ty....what a beautiful smile from yesterday!! We are praying and thinking of you always, you have the bestest parents in the whole wide world taking care of you!! I'm praying for another awesome day....and more of those amazing gifts!!

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  24. cindy, I am certain Ty sees angels. I have seen Theresa the LI medium twice among some other mediums and Tanner always comes through so strong... she tells us things no one could ever know, and it is so comforting, like we are having a conversation with our baby boy. It is never ever ever the same, but there is another dimension out there... and if he doesn't get his miracle, Ty's soul will forever be with you. Theresa, the LI medium, told us once that Tanner is there to help children cross over, that he meets them. I have no doubt in my mind that if the time comes, Tanner will be there for Ty. I hope that brings peace and comfort and not hurt.

    I am so glad you got to hold Ty yesterday.... breathe him in, love those moments... sending you so many hugs. My heart aches with you. xoxo

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    1. What a kind and loving message. I'm happy for you that you are able to hear from your Tanner, and how generous of you to share this. God bless you, and Tanner, and your family.

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  25. Cindy, what a beautiful picture of you and Ty!! He looks so very happy and peaceful having his Mama holding him. I'm so happy to hear that you were able to hold Ty for a little while yesterday. Whatever Ty is seeing, seems like it's bringing him peace by the way he's smiling. God Bless you all! Still praying for that miracle! Deb <3

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  26. Thank you dear Lord, for a happy peaceful day for Ty and his family. I was so happy to read your post, Cindy. Hoping and praying for an even better day, today. Praying like crazy for his miracle healing. Ty looks so good!! Give him a kiss for me! Love you Ty Louis Campbell <3 Thank you Jesus <3 Super Ty FOREVER <3

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  27. What a great way for me to start my day seeing such wonderful pictures of you and Ty!! The one of you together made my heart soar. My son is almost three and carrying him like that is one of my favorite things. Last night he had a nightmare and i brought him in to my room and as he snuggled up next to me I said a little prayer for you guys. My son says a prayer at night - the first night he repeated it after me - now he says it on his own...dear God, please make Ty all better, amen. We say another prayer too, a "standard" prayer - and although I know he knows it he's never said it all by himself. But he does for Ty - even my little one knows how special your is.
    I want Ty to be healed and made healthy more then anything I have ever wanted - your precious boy, your unwavering courage, your family's love - I' be gotten so much from you, more then I could ever repay. But I promise to pay it forward by spreading the word about Ty and making sure people know the truth about childhood cancer. SuperTy always and forever!!!

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    1. Yes, wonderful pictures of you and Ty! Thanks so much for sharing.

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  28. Cindy, you are such a wonderful momma. Do you know how many mother's I see treating their healthy children like they are a burden? Yet you carry your precious boy lovingly around the house without hesitation. I have been reading every day and praying for a miracle for Ty and your family. His pictures bring a smile to my face. I believe children can see/hear things from Heaven because their pure innocence allows them and there is no doubt in my mind that Ty has the wings of one of Gods mightiest angels wrapped right around him. Always thinking of Ty and your family. ~Sally

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  29. I am so happy you had a great day with Ty. Sending love and prayers always! xoxo

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  30. Ty looks really good today! i feel your strength and peace in tonights post. tonight was the first time in awhile i didnt cry. keep it up Ty! xo xo
    bridget

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  31. What wonderful news and a beautiful picture. Super Ty has the best smile. Always praying for more easy breezy, peaceful days ahead. So much love, hugs and praying for you all, like each and every day.
    Lisa A

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  32. I started reading your blog when I became aware of Ty's fight through Maya Thompson's blog. I just wanted to let you know how Ty has captured my heart, just as Ronan did. He is so special. I'm hoping and praying for Ty to be healed. Much love to all of you!

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  33. Have you tried acupuncture? I have seen amazing results with it giving children and adults such a wonderful quality of life while fighting such a beast.

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  34. I'm so grateful Ty has you and Lou in his life, Cindy. You're both amazing parents and he could not have better ones. Praying for you all day long, every day.

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  35. My eyes are filled with tears, knowing that God is hearing all our prayers!! So glad Ty had a better day! B E L I E V E

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  36. Thank you, again, for sharing your heartwarming story & the beautiful pictures. Ty has captured my heart & soul & I pray for Ty daily. My continued thoughts & prayers are with Ty & his family. God Bless.

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  37. I LOVE the picture of you and TY! You can just feel the warmth and love between you two. A little slice of heaven. There is no better feeling than holding your baby and cuddling..smelling their little heads. That is what i miss most as the boys have grown. Thank God Dillon will still sit on my lap & put his arms around me...or lay next to me on the couch. It is one of the best things about being a mom, and I'm soooo happy you were able to carry your little man around and have such special time with him.
    The pictures of Ty are beautiful...you can see in his eyes he is feeling better. And that makes me feel better...what a great way to start the day.

    Ty's angel(s) are definitely with him...think that is one reason he seems to have a peace around him. But that doesn't mean a miracle is not coming...they may just be telling him it's not his time yet. I will never stop believing! Just keep doing what you're doing..being the best good mom...hugging, loving and holding tight to your best good boy.
    Sending you, Lou & Gavin more love than you'll ever know....

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  38. What a beautiful smile!!! What a handsome little boy!!! Ty has a gift, Ty is a gift to all of us! I am so glad that you guys were able to have such a great day. It warms my heart to see that smile. I think about Ty every day and I am so glad that he came into my life. Even though I have never met Ty personally, he has touched my life in so many ways. Yesterday I was busy cleaning and my 16 year old son said to me mommy, give me a kiss in his goofy voice. At first I said give me a minute I am busy here and then I immediately thought of Ty and I stopped what I was doing and gave him a big kiss. I don't want to ever take anything for granted, Ty has taught me that. It makes sense to me that Ty would see angels because he is an angel borrowed on loan from heaven. I am so glad that Ty has the angels around him to help him through all of this, to keep him strong. I believe that is why he is so resilient because the angels are always there to lift him up, a gift from God to help Ty. Well, I am sure you have many of other posts to read so I will sign off. Give Ty big hugs and kisses from all of us too. God Bless all of you!!! Give Gavin a big hug and kiss too!!!

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  39. What an amazing post and I feel what a coincidence because only yestarday in my post i wrote that i wonder what he feels laying down what he thinks and today you suddenly talked about it. its like my prayer was answered to know that at least I know Ty is calm and at peace. I also was dreaming about the perfect comment i wanted to write about and it hit me that today everything just seems to connect to your blog and Ty's super powers. I wanted to tell you about his eyes because I was finally able to realize what is it that connected me to Ty 2 years ago. I am a sensitive person and I am easy to cry and get attached to some sad story and feel horrible over it but nothing like that attachment I have for Ty ever happened to me before. I am inlove, in awe, I cant explain what I feel for your child but its strong feelings that so far I was only able to experience with my two boys. Finally I realize that its his eyes Cindy, they are so deep they draw you in and dont let you go. I have never until today understood the expression the eyes are the window to the soul. He is pure and there is so much depth, he knows everything and he understands and its so scary but so heavenly at the same time, its like G-D is inside his soul its so magical and pure. I am sorry I cant have the right words to describe it otherwise, but his eyes captivate me. Please Ty if its in your super power, could you please stay here with mom and dad and Gavin. We learned so much from you, and we will fight and contribute and talk about cancer and if cure is found its because of you. You dont need to go anymore for us to understand that, we got it. Come back to your real body, and become a normal boy again. Love you to eternity.

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  40. Praying for Ty and you all ....He is a fighter and whatever way the fight ends ,he will win and be happy...believe that. Would love to sqeeeze and give TY a big kiss ,Please do it for me .....Love and peace to you all

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  41. Love and prayers for Ty. His smile is contagious and amazing.

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  42. What a sweet little boy with an amazing family. Heard about your story through Ronan Thomson's page and have been following and praying ever since. My friend has a three year old little boy battling a stage IV glioblastoma. For Ty, for Ronan, for my friend's little Joey, I'm determined to make a difference in fighting this terrible disease. It has also made me so aware of the present, for taking in every second with my two kids and letting them be messy, be fun, and remembering what is important. Thinking of you every day.

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  43. Cindy ~ so grateful Ty had a better day yesterday. It is good to hear you are living in the moment. You only need to live in today, tomorrow will take care of itself. You continue to teach me this valuable lesson. Ty is a beautiful boy with a wonderful soul, just like his Mama. Thank you for sharing your family with me.

    Praying that the angles continue to surround your Ty and your family and bring him the miracle of total healing we all pray for.

    Blessings on your day today...may it bring more peace and smiles.

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  44. I wish I could give you Ty and your mama a huge hug! THank you God for allowing her to hold you today. I read your story every day and because of you and little Ronan, I want to be a better person. I want to be a better mommy..I want to help children like you who have had to deal with so much. I hope today brings more special moments for you and your mommy.

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  45. Thank you for sharing your story with us. Ty's smile continues to amaze me every single day. He is a strong little boy, and im glad he has an angle to watch over him.

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  46. How we all take so much for granted! It's sometimes so frustrating to see how we all are so lucky to have the people and things in our life. Then there's you who would give your life for that special boy who deserves it all !! Any mother would sacrifice anything and everything for their children! I truly believe he is an angel on earth so beautiful beyond words! My boy was and I truly hope he is watching over Ty!! No mother should ever have to go through what you and I went through!! Big hugs and kisses to you and Ty !!!

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  47. To Super Ty - each day I check in on you and each day I am more grateful and inspired than the day before. I will forever know that you are here for all of us and you symbolize all that we should be and all that is needed in the world these days. I am grateful for the angels that are keeping you company and giving you strength and healing for all who "know" you. Finding you has been one of my life's greatest gifts - you keep me humble and I will be forever grateful for you. I pray for you everyday and feel that your work here is far from done. Stay strong, little Ty, you have much time ahead and many lives to touch and we all need you! Blessings and love surround you and your family.

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  48. I read your blog every morning, I have my "Ty cry" then I go into my 3 year old twins rooms and I thank God for every miraculous piece of them. I pray for Ty constantly. My heart is heavy with grief for the pain you are all enduring. Your post today actually gave me a little peace. I am a true believer in angels and I have constantly wondered if Ty would have someone to receive him at the end of his journey here on earth. I am glad that Minnie is with him in spirit and whoever the angel is, God bless them for being with Ty through this journey. Thank you for sharing your story, and your precious boys with us. I share your link on FB constantly and hope one day pediatric cancer will be the forefront of all cancer research.
    God Bless you.
    Julie Veres- Witherow

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  49. What a big, beautiful, smile! It has made my day. I'm so happy you got to hold him today. I couldn't imagine not being able to comfort and hold my son if he was in pain and hurting. What an amazing thing to hear your baby boy see's his angel and he or she is there to comfort and protect him. As another poster said I'm sure there are more angels watching over you, your husband and your other son right now.

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  50. I have more prayers for his healing Er as I do everyday! Much love!

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  51. It warms my heart to see you both - Cindy and Ty- smiling. Simply beautiful. Thank you.
    Much Love,
    Taciani

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  52. Cindy, Angels are there, I have heard this from the relatives of several friends who have passed that they too saw the angels. There will be one more angel to greet him in heaven, my wonderful mother passed away early this morning. She had suffered many years from Alzheimers and is now at peace with my dad.
    Love to Ty. Maura Skiba (Indianapolis, IN)

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    Replies
    1. May the love of God comfort you during this time of sorrow.

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  53. Your post makes me think of these lyrics... Sending love to you all and most of all Ty!

    Calling All Angels...

    Santa Maria, Santa Teresa, Santa Anna, Santa Susannah, Santa Cecilia, Santa Copelia, Santa Domenica, Mary Angelica, Frater Achad, Frater Pietro, Julianus, Petronilla, Santa, Santos, Miroslaw, Vladimir and all the rest

    a man is placed upon the steps, a baby cries
    and high above the church bells start to ring
    and as the heaviness the body oh the heaviness settles in
    somewhere you can hear a mother sing

    then it's one foot then the other as you step out onto the road
    how much weight? how much weight?
    then it's how long? and how far?
    and how many times before it's too late?

    calling all angels
    calling all angels
    walk me through this one
    don't leave me alone
    calling all angels
    calling all angels
    we're cryin' and we're hurtin'
    and we're not sure why...

    and every day you gaze upon the sunset
    with such love and intensity
    it's almost...it's almost as if
    if you could only crack the code
    then you'd finally understand what this all means

    but if you could...do you think you would
    trade in all the pain and suffering?
    ah, but then you'd miss
    the beauty of the light upon this earth
    and the sweetness of the leaving

    calling all angels
    calling all angels
    walk me through this one
    don't leave me alone
    callin' all angels
    callin' all angels
    we're tryin', we're hopin, we're hurtin'
    we're lovin', we're cryin',we're callin'
    'cause we're not sure how this goes

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  54. I'm not sure how I came across this page but I'm grateful that I did. Ty is absolutely beautiful and his story touches my heart in a way I can't begin to understand. Thank you for spreading his story. I will pray for your family and for that sweet boy... What an amazing, precious child.. A gift from God.

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  55. Thank you for sharing all of your beautiful moments with Ty and your cherished memories. You are a brave, beautiful person!
    Ty is just so beautiful-he is an angel from God-truly. In the midst of all this ugliness and grief you are able to find the beauty and love in it! You and Lou and Ty are ALWAYS in my prayers. May all of the angels wrap their loving arms around you all at this time.

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  56. I believe angels are all around us. Cindy, I hope you and Lou can find some comfort in knowing there is a special guardian angel watching over your beautiful little Ty. Even if you can't see it, he can. If we are not granted a miracle of a full physical recovery, I know Ty will have no fear when he crosses over to the other side. He will have his guardian angel by his side every step of the way. I believe there is a greater plan for each of us. It's clear there has always been a greater plan for Ty.

    I lost my mother to cancer when I was 12 years old. I am now 37. I have always feared death after witnessing what my mother went through. We saw her deteriorate for one long year before succumbing to the disease. It was a frightening time in my life. But a few years after she passed, I experienced a "dream" in which she came back to me and showed me a glimpse of what is in store. I haven't shared this with many people, but I am compelled to share this with you. In my "dream" I remember seeing The Light. I remember feeling such calm and love from it. In my "dream" my mother and I were walking up a set of stairs towards this Light. I so badly wanted to go with her, but I remember stopping half way to tell her I was not yet ready to leave. I knew in my heart, I still had so much left to do in this life. I remember her looking at me and saying that when it's my time, she will return and take me with her. I watched as she continued up those steps and into The Light. I remember crying seeing her go, but at the same time feeling more alive and no longer afraid. I felt such comfort in knowing that she and I will certainly be reunited once again on the other side. Since then I have not feared passing on. I feel sadness for those I will leave behind - my husband, my two children, my other family members and dear friends. But I am so comforted in knowing that I will be greeted with such love on the other side.

    I know nothing we say can take away any of the pain you and your family are feeling. I just hope it gives you a little bit of comfort knowing that we share in your pain. Since I have been following Ty's story, I have cried many tears for your little boy and for you. It is so unfair that your family has to go through this. I am STILL praying for a miracle. But I also know it has been a miracle just by how your Ty has touched so many lives and has changed us for the better. There has always been a plan for your little boy. And that is that Ty is a miracle for this world. The way he has brought all of us, complete strangers from all corners of this world, together to unite in our love for him has been truly miraculous. He is definitely not done yet - even if his work continues from above.

    I have come to love Super Ty as if he was my own. And I have come to love you, Lou, and Gavin as if you were a part of my family. I will continue to pray for each and everyone of you.

    With Much love,
    Santi
    NY, NY

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  57. oh my God I just love lil Ty.....he is so precious. I am praying sooo hard for a miracle. I ask God to please bless lil Ty and your family please please please on my knees!!!

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  58. Sarah Ferranto BrennickOctober 8, 2012 at 1:17 PM

    Love to you, Lou, Gavin and especially Ty. I have asked my husband how can god do this to a child and he responded by telling me that Ty has a higher purpose. He has touched all around him and I can honestly say, has made me a better mother to my two year old son. I am learning to cherish every moment and not waste a minute on the small stuff. Jack has had a lollipop every day this week to celebrate Ty's birthday and we pray for Ty every night.
    Thank you for sharing these precious moments with us and letting us into your life.

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  59. This just absolutely breaks my heart. I cry as soon as I open your emails. I have to close it and open again because I can't keep reading. Im so sorry no mother should have to go through this I wish I could take your pain away. He is such a beautiful baby. The world will be a sad place without him. Again I am so sorry. We love you super Ty.

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  60. What a beautiful story and thank you for sharing it with us! It is absolutely unimaginable to me what you are going through as a mother right now. That angel that Ty is seeing is a bit of comfort--and who knows--maybe sometimes he is seeing your guardian angel and it is peaceful for him to know that someone is watching over you, too! I am hoping that the miracle we are all praying for happens, but in the meantime, enjoy every precious moment as I know you are. Your blogs have made me a much better mother--we are thinking of you and praying for you constantly! Love to you all!

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  61. I stumbled across your blog and immediately fell in love with your little guy. He is beautiful and perfect. My heart is heavy as I read what you all have suffered through and how you continue to fight for each and every precious moment. I am adding my prayers to the many, many others whispered on Ty's behalf. Sending you all virtual hugs from Utah. <3

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  62. Praying that everyday gets bedda from here on! All babys can see through the veil and see angels... We lose the ability as we become more worldly. Ty is so pure and can still see. Many people who have had near death expierences say they saw their own gaurdian angels sitting with them when they were very ill. God allows this comfort to his priecious souls. Ty is very special. Not many people can touch masses of people like Ty has in so few years. Cherish every moment now. He is Love
    Praying for that miracle
    Love to you all

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  63. I don't even know you all. But I have you all in my heart. Super TY you are my source of strength every time I read your story

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  64. I am a firm believer that Ty was put on this earth to deliver a powerful message. That life is precious and should not be taken advantage of. That it's the little things like smiles, laughter and Jumping in puddles that make the world turn. Yesterday I took my son to the movies. As we were leaving he begged me to play in the arcade area, something I wouldn't normally do. I was about to say no to him and then I thought of you. I thought, Cindy would be dissappointed if she knew I wasn't totally taking advantage of this time to play with my son. For what? So I could get home ten minutes earlier? We ended up staying and we had so much fun. Thank you for making me a a better mother. If it weren't for Ty, I don't know that I'd cherish the little things.

    There is a place better than here, the other side. If and when that time comes, there will be an angel waiting. Each and every one of us has a guardian angel.We are all connected, as you suggested. This I know. The otherside has no pain, no suffering and only happiness. Evidently, we all reunite in the end on the otherside. XO

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  65. Ty's, courage & his family's courage have provided me with a renewed sense of the things that are important in life. Ty's courageous ( and very heartbreaking ) journey has touched me very deeply. Ty, has captured my heart & soul in a very meaningful & wonderful way. My continued thoughts & prayers are with Ty & all of the members of his family. God Bless.

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  66. I really believe God is listening to all of our prayers. I envision Jesus and the angels replacing Ty's disease with healing light. Let's believe!

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  67. I have been praying for Ty every night since i came across this blog a couple weeks ago. I believe God can do Miracles. If he can make the blind see, the deaf hear and the lame walk then i firmly believe he can heal Ty. And i'll say a little prayer right now, I pray that God will just heal this sick little Boy and restore him to optimal health. That satan will have no say in Ty's health and life In Jesus name i pray, Amen. Keep faith mama, I will continue to pray for Ty.

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  68. Ty is an angel Cindy! How else can you explain this amount of courage in a 5 yr old boy. He has endured so much, and yet,he manages to smile. For anyone who doubts, Ty is proof that God exists.This last blog gave me chills! We love you Ty and we pray for you and your beautiful family!

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  69. What a beautiful face!!! I do believe in angels and whatever Ty sees must be his guardian angel comforting him and your family. I still can't believe how strong you are through this but I do understand how sad you also feel. I believe in miracles and Ty is in God's hands like I've said before. Stay strong and all your friends following Ty's story are with you and will continue praying. Keep smiling Ty!!! That just makes my day to see you smile.

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  70. What a beautiful picture! Ty looks so peaceful in your arms. We were away this weekend and were not able to check your blog. What a calming post to come home to. By the way Nick was splashing in muddy puddles this morning upstate and we said....this is for you Ty!

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  71. Cindy I just found your blog this weekend and I have not been able to stop thinking about Ty since. I am praying for your family and for sweet beautiful Ty. Kisses, hugs and positive thoughts from California. xo

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  72. What a beautiful smile! I am confident that there are angels looking after Ty all the time. Each night before bed my kids and I send well wishes out into the world and I'm always thinking of Ty and your family. Hugs from NC.

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  73. What a beautiful picture, I'm so glad you both had a special moment together today. Thank you for making me a better mommy, I treasure every moment I can with my children...every chance I get I spread Ty's story and hope to bring awareness to this horrible childhood cancer. As always I am praying for a miracle and thinking about you all. <3

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  74. God bless you little man- you are the angel baby boy. We are praying for you and think about you each and every day! <3

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  75. So glad you got cuddles! And I'm convinced Ty has a guardian angel. Absolutely. Praying still for you all.

    Allie

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  76. That kid really is Super Ty, isn't he? This story has allowed me to believe in God all over again. I completely believe Ty's 'ghost' is his guardian angel. They are watching over him, helping him through this. Angel has got to be helping him get better. Praying for all of you, and may God bless you and your family. I cannot thank you enough for sharing this beautiful moment.

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  77. Beautiful picture of the two of you- the love is bursting from the pic. You and your family have changed my life. Praying for a miracle. Love and hugs always. Xoxo

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  78. I'm sooo happy you were able to snuggle with your best good boy today! What an amazing gift for both of you. I discovered your blog two weeks ago and check in on you all every night after I put my two boys (3 & 6) to bed. I pray for you all to find peace:) you are such and incredibly strong and inspirational mother. Tonight, in honor of Ty, I let my boys have hot chocolate with extra marshmallows....just because they asked. My 6 year old kept saying ," Mom, you are the best mom ever...I love you!" I find myself letting them stay up a little longer lately, play outside for 10 extra minutes and as a busy working mom....I have magically found myself to have more patience. I know these things are all because of Ty and the amazing journey he is on...the journey all of you are on with him.

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  79. Your strength and courage are incredible, your love is endless and you are an incredible Mom. I am a mother of two boys and your story has so touched my soul and my heart. I am praying every moment of every day for you, your family and your beautiful angel of a boy Ty, you are so blessed. Your post today touched me as they all do, I do believe we all have angels around us and I do believe that Ty can see them, it is surely his gaurdian angel and she is comforting and helping Ty. May God bless you and your family. With much love and prayers...

    Guardian Angel
    You have a Guardian Angel
    Who watches over you -
    Everywhere you go
    And everything you do.

    This gentle, silent helper
    Is there to be your guide
    To shelter and protect you,
    And for you to walk beside.

    Your Angel will always help you
    Whenever things go wrong,
    They'll be the wings beneath your feet
    As Life's path you walk along.

    Feel this calming presence -
    Be enfolded by its love
    And let your life be guided
    By a power from above.


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  80. Everyone is so in love with Ty. How could we not be? He is perfect and AMAZING. We are all just begging and pleading with God to let us keep him. Sending all my love from Costa Rica!

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  81. I do believe that we all have a guardian angel. Due to everything that Ty has been through the angel is even more present. I know the feeling of finally holding your little one when thats all you want to do but can't...I had a stomach surgery and I was in the hospital for a week and then home in pain i use to get Jealous when i saw my husband carrying around my daughter when i could not. I know its not the same but when i was finally able to pick her up it made my day..I am sure it was one of the best days you had in a while. I am am so happy to hear that today was a better day for Ty he deserves every day to be better then the last--maybe just maybe with all the praying from so many we will see this miracle-I would give up all my birthday wishes for the rest of my life for this to happen.Ty has so many peoples attention what a way for God to show us that he is present and here by giving Ty a miracle. Cindy you are all in my heart and prayers daily you are an amazing mother to Ty and Lou is an amazing father..Ty is your angle but you and Lou are his. Love and prayers from Long Island hoping tomorrow is even a better day for Ty.

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  82. Cindy & Lou,

    I read your post early in the morning and I have to admit it gave me the chills. I do not want to accept that Ty will not be with you guys, although I know that is a possibility. Ahhh, look at him, he is simply amazing. A true angel on earth! He is so loved and has touched so many lives. I continue to pray that he will just walk right of of that couch and be the amazing kid and man we all know he would be!

    Thinking of you always!
    Praying for you constantly!
    Love you Campbell Family
    Joy Marielle
    Baltimore, MD

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  83. Ty.. Wow You are something so Very Special!!! I think about you all the time!!!!! I wish I could speak about how I understand all those special feelings in seeing angels ... I have had friends say it..

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  84. Magic indeed! So happy Ty (and you) had a good day! He certainly is beautiful! Wishing you more days like this.
    Jennifer, Illinois

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  85. ABSOLUTELY LOVE the TY smile photo of the day today!!!! It's funny that your blog today was about spirits because I watched the Katie show today and the Long Island Medium was on as were a couple of guests who passed for brief moments in time (one was actually for 15 minutes) and came back to describe Heaven. The one woman wrote a book about it. I think it was To Heaven And Back. She is a ortho doctor. Anyway, she went on to say that even though she was happily married and had 4 children, she didn't want to return from this place "Heaven" but it wasn't her time so she did. And that part of the reason why she had to return was that she had to inform people about this place and that she had to be on earth because her own son was going to pass when he was 18 (he ended up passing at 19 from an accident). It was an incredible show. I must say, I do believe in Heaven, I just cannot imagine a place being so amazing that I wouldn't want to come back to my 2 girls though, but that is how this woman felt. I thought of you, Lou, Gavin and Ty during the show. And while like everyone I am praying for another miracle for him, I did feel extremely comforted by the people on that show today. That there will be a place where he can JUMP IN PUDDLES and EAT A TREMENDOUS AMOUNT OF CANDY and not be sad that he isn't with you guys because he will feel sooooooo much love around him, until you are reunited again. Continue to hope and pray for his miracle Cindy, as we all do. He is just such an amazing boy who has inspired so many of us, just as you have for being the awesome Mom that you are. Thinking of you today and every day! So happy you got to hold your special super Ty today!!!! xoxooxoxooxoxooxoxo

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  86. My dad always old me that there was no such thing as coincidences, "They are only God's little miracles". I think your stiry about the ghost and Minne the dog was some kind of mrcle message that God was sending. It s a miracle that a beautiful little boy can see angles. Ty is special and God is watching ove him. God's Blessings be with all of you.

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  87. Pure magic baby! THAT IS WHAT YOU ARE!! (Caps erupped all of a sudden)

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  88. I wish I could take my heart out and give it to you. Ty will be a name that I relate to a brave and honest set of parents. It's refreshing to read you speak your mind from truth. I am angry that this little boy has lived an ounce of pain and as a parent the pain is 10 fold. I am sending "happy thoughts" your way. I wish you calm and peacefulness in the coming weeks and days to your whole family.

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  89. God in His immeasurable goodness and love has provided this guardian angel for your sweet, beautiful boy. My son also was visited by my uncle who had passed before he was born .... my son was about a year and a half old and was sitting in his crib talking and talking and laughing; when I asked who he was talking to he said, "Unca Jim!" I had chills. I asked what he llooked like and he turned to the corner of his crib as if studying him and then shrugged and said, "like Googie". Googie is what he calls my dad, my Uncle Jim's younger brother. I told him to say "Hi!" to Uncle Jim for me and he busted out laughing and pointed and said, "YOU tel, him, Momma!" I said "Hi, Uncle Jim." and suddenly just felt so good knowing he was there visiting my boy. I have no doubt Ty saw Minnie and no doubt he is seeing his guardian angel too. God provides what is needed.
    You are so beautiful in your love for your sweet little man and your faith in God.
    Our family continues to pray for complete healing and for your family.

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  90. I was so happy to see that Ty had a good day yesterday. I hope it continued today too. So glad you got to hold him and enjoy time with him. You both deserve it. I continue to pray for that sweet little boy. He is always in my thoughts.
    -Jennifer R.

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  91. Goosebumps...when my dad passed, the day of his funeral was cloudy and yucky, the second we went to bury him, which was when I was upset the most, the sun suddenly came out. Our priest looked at me and said, "Well, if that isn't a message from heaven, I don't know what is." About three days later it was still cloudy and yucky (January in Iowa) and my dad hated that time of year. I went to a place that is where I go to think, by the river, and as soon as I sat down on the bunch, the sun came out, shined on me and was there for the 30 minutes I was there. As soon as I stood up, I said, "Thanks Dad" and the sun went away. Praying for a miracle, I will never understand why this happens.

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  92. Cindy-,I love that picture. Love. I Also want you to know, and Ty to know, how he has changed my life. I hug my daughters longer. Yell less. Let them take longer bubble baths. Allow ramen for breakfast. I cherish every single second. Thank you. Thank you for being his mama and thank Ty for just being Ty.

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  93. Everyday I come to check on our TY. We ALL want nothing less then a supernatural healing from God. You have all suffered a great deal but one thing is clear- LOVE. Love is the strength behind this family. I have wept for your son of whom I have never met. I can't imagine your struggles TY, Mom, Dad and Gavin.So many of us are really learning to take it one day at a time and relish every moment we have on earth. None of us know when we will have our last moment.God has already used your son to be his outstretched hands and feet. My entire family feverently pray that TY will be healed.God choose the perfect woman to be Ty's mom. In blessings and love

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  94. I just wanted to share an amazing experience I had a few years ago when my Son was 2. It was my 40th Birthday and I was down missing my Brother who had passed away. The last Big Party we were together was my 30th Birthday. I had no party because it just would not be the same without him. My 40th Birthday turned out to be my Happiest ever. No, You are not a crazy lady. Children see things we don't. My Son as I was undressing him that night; mind you out of a shirt my Son was wearing because it reminded me of my Brother. Nobody knew this. I said. "oh Jo Jo you look sooooo cute in this shirt." He said, "Oh this one Mommy is Uncle A.J.'s Favorite." As I started to cry; my Son Proceeded to stand on the Pillows on the bed and put one hand up in the air an says....HAPPY BIRTHDAY!!. I was crying tears of Joy! My Brother had come through to see me through my Son. My husband thought I was crazy, but 2 hours later we were all going to bed. My Son screams in the kitchen; "Good Night Uncle AJ." I said where is Uncle A.J.? Jo Jo says "oh right there Mommy by the Microwave." My Husband believed me! The most amazing Birthday ever! Why is this so moving......My Son did not know Uncle A.J was dead! Just so Amazing. Children see and feel what we can't! I truly know I have the greatest Guardian Angel ever. My Borther always finds ways to make me smile when he see's me in heart breaking pain. He just came and spent the day with us on September 3rd. It was his 12th Anniversary in Heaven. My Son insisted we go the pool instead of the Ocean in Mrtyle Beach. There was a band playing. I said "Wow AJ if you are with me today show me a sign. My 1st request was please show me 3 Dolphins. I waited no sighting. My Cousin called me 20 minutes later as I was laying down because I was sad. I went on the Balcony and there they were; my 3 Dolphins swimming in front of the hotel we use to stay at when we were younger. Unreal! My Next request was the Band at the pool. AJ if you are here today have the band play a song that will confirm this. 3 Doors Down- Superman comes on.....Really??? My Husband just smiled at me because that was the only song that could solidify his presence. A.J. was my Superman; who sadly ate Krypotonite!! Just unreal! I am soooo sorry you must feel such pain. I love my Son dearly as if it's our last day every day because you just never know. You knowing is just so bitter sweet because as exhausted as you are; you want tomorrow to come for all eternity..... I am so sad for you. Your Son will forever be with you when he is not here physically. It just never gets easy... you just learn to go on crying every day. A Child is your heart! My Brother was my heart. 12 years later....you live for those signs of their presence. They are real!!! We will keep praying for a Miracle and I will tell A.J to stay with him. We were from Carmel and Pawling is very familiar to A.J. God Bless you all. You are an amazing Mom for 2 amazing Sons. TY has the strength to keep fighting for you! He is Our Hero.....But You are his! Angel Hugs to your family. Angels are real! Good Night.

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  95. God Bless Super Ty, he truly is a super hero!!!!

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