|Lou and Gavin at the launch|
|Gavin in the truck :)|
|On their way to heaven with a very important message|
|Watch out! Gavin has the ball!|
|Super kids for Super Ty|
One neighbor even dropped off a video from the event and watching Gavin play in his first football "game" with all the other kids made me so proud. I should probably be a little sad that I couldn't witness it in person - like so many things Gavin has experienced since Ty got sick - but instead I find so much relief in knowing that Gavin is having fun and enjoying his childhood in a very normal way despite this far from normal household he lives in. I love him so much.
Lou is watching Monday night football. I wish they would have worn gold in September, even if just for one game. The pink shoes for breast cancer awareness is pretty cool. Maybe next year. Next September I would like to see gold shoelaces for sports teams in elementary schools, middle schools and high schools, actually. That would be amazing.
I don't have a photo of today's "smile of the day" but I did get one big smile from our very special boy. It even included a hoarse giggle. Ty was amused when I was making voices while reading a book "There's a bird on your head!" by Mo Willems.
Otherwise today was a quiet one. Ty had a terrible night last night. He was vomiting every 30 minutes or so, leaving all of us very tired today. He didn't nap at all, but he was very low energy and he went to bed very early. His nurse was here, we mapped out a plan to try and better medicate his increasing nausea, and we'll see how it goes.
The nausea, we assume, is from all of the neurological changes going on within his central nervous system - causing increased pressure - but his doctors and nurses do not feel he is otherwise progressing. His vitals are very strong. That's wonderful news, but it leaves all of us living in a painful limbo. Living day by day like this is so horrible because we watch Ty suffer and we have such a hard time communicating with him. We continue to pray for improvement, or at least movement in one direction or another so we can put all of this suffering behind us. I know it sounds strange to hear me essentially say that I wish the dying process would speed up, but if you could feel how much it hurts my heart to watch Ty like this, you would understand. I don't want to put this difficult life behind me. All I want is to keep Ty here with me always and forever. But this poor baby has already suffered two years too much, and the only justification I can come up with if his suffering continues at this standstill would be a healing miracle. Please, God, hear our prayers. Save our beautiful boy.
I came across a document that I used to keep while I was working. It is called "Funny things my boys say and do." I forgot all about this. I didn't write about much, but there was the time that Ty put a poop in my shoe when he was potty training (not out of spite, I swear, he was just trying to be funny); the time Gavin was in his bouncer and Ty covered his head with an entire tub of vaseline while I was doing dishes; the time I told Ty I needed privacy to go to the bathroom and he brought me wipes and a diaper. Cute stuff! The last entry before cancer destroyed our world was this:
Today, Ty was running in the house and took a spill on the hardwood floor. He was terribly upset, but not terribly hurt whatsoever. I asked him "Where does it hurt?"… "my kneeeee!"… "can I kiss it and make it better?"…. "NOOOOOO!"… "Oh baby, I'll rub it, does it still hurt?" … "YES!!! WEEAL BAD!"…. "Awww. Do you think an icepop would make it better?"… "NOOOO!... <sad face instantly disappears> Umm. What kind?"
I love being a mommy.