Friday, October 5, 2012

Birthdays shouldn't be like this

Today was a rough day for Ty, which is so unfair.  Lou and I woke up so sure it was going to be the best birthday ever!  It had to be, right?  We couldn't wait to see his face when he saw his gifts, his Grandma and Pop-pop, Nana and Papa.  All of his favorite people.  We wanted nothing but the greatest day for him. 

On a positive note, there were so many beautiful things that happened today.  Let me just begin by saying how grateful Lou and I are for all of the generous donations to Ty's foundation and the upcoming 10K, the Ty shout-out on Good Day New York this morning!! (that was so special), the powerful prayer chain, the amazing gifts that were delivered to our doorstep, the fun filled packages and the heartfelt birthday wishes. The birthday wishes started at sunrise and my phone continues to beep non-stop with new messages.  Amazing.  Thank you. 

It's after 1AM and I'm just settling down, but of course I can't sleep.  I want to catch up on all of the amazing comments and messages that have been sent our way via the blog, email and facebook so I'm trying to keep this post short.  We are so touched and your stories keep us strong.  Plus, all of those countless photos of your kids being kids are a true testament to the happiness Ty is bringing to this world... thank you, thank you, thank you.  Unless requested otherwise, I will be collecting them and displaying them in a fun way for everyone to enjoy, so please keep them coming! 

Other highlights of the day included countless balloons, ridiculous cakes, non-stop candy and a MAGICIAN!

Ty was completely spoiled with the most amazing balloons today and he loved it.  We collected all the balloons he's received over the past week or so and we keep them all at a distance where he can see them and it makes him happy.  He also has a totally awesome collection of pumpkins that have been decorated all different ways and they make him smile.  They are also on display where he can see them at all times.  Then there's the candy... I can't even begin to tell you how much candy this kid has and how cute he is about it.  If he is called, he will certainly be going to heaven with a blue lollipop in his pocket.  Have you ever seen a gummy bear this big?  Neither did we.  Ty thought it was terrific.  This was the closest I could get to a "smile of the day."


One of the greatest surprises was his cake.  I had no idea this was coming, but our friends Charlie and Rachel arranged to have a cake for Ty that had all of his favorite things.  Max and Ruby, Captain America and a Carnival.  I want to give credit to the creator, I believe she said it was "Patty Cakes?" a local friend who makes amazing cakes.  Then we received a delivery of the coolest and most delicious cupcakes we've ever seen.  They are already half gone.  Thank you!

 
 

Before Ty knew that Ty had relapsed, we were planning a huge carnival party for Ty.  We had boxes and boxes of carnival decorations and prizes delivered, and Papa was going to make a bunch of real carnival games.  It was going to be a huge party and I even created the invitations.  We were so close to making it happen for him.  Ty even wanted to have a dunk tank and Lou and I were actually considering it.  Of course, now Ty is way to sick for anything like that whatsoever, but we hoped to bring out some of the smaller games we purchased to show him while we had family over today.  He never felt well enough, but we will hold onto them just in case. 

This disgusting beast he is battling showed little mercy today.  Ty was tired, he was sick, he was swollen, he was sweating profusely and he was uncomfortable.  Even the magician act was cut a bit short because Ty started throwing up and it was really bad.  I just knew something was wrong during the whole magic show because he didn't look right.  Poor kid, I didn't realize how strong he was being... just trying so hard not to get sick.  He made it just until the very end and he couldn't hold it back any longer.  It broke my heart. 

I do worry that Ty is taking a turn for the worse because today he was so different.  But then I think about how we all held hands at 7PM tonight, our whole family gathered together in a beautiful circle of love and prayer around Ty, and it felt so powerful knowing that thousands of others were doing the same for Ty.  I imagined that when he got sick this afternoon he was getting all the evil out, and that he would begin improving.  Then, tonight, I gave him his midnight medicine and he got so sick again.  I was worried that he might be dehydrated so I flushed the medicine with three teaspoons of water in his belly tube.  Just three teaspoons!  He threw it all up ten minutes later.  We have seen this kind of reaction before and it's not good.  Hopefully we can find a way to get it under control with increased anti-nausea medication starting tomorrow.  His hospice nurse will be here tomorrow so I'll be sure to keep you posted on what she thinks about all of this. 

My mom and dad are here and staying the night.  When she was going to bed I gave my mom the biggest hug and just sobbed and sobbed.  I'm so glad she's here.  We talked a lot about Ty, all he's been through, how much we love him, and how even my dad cries at night over how unfair it is that he may never get to ride a bike or jump on a trampoline.  I confessed that I feel like I will be failing Ty if I let him go, because he relies on me to always be there.  He's been so sick for so long and Lou and I have always been at his side, every single step of the way.  Even when he went to preschool for five months, I was allowed to be in the classroom with him because of his disabilities (those were my favorite days).  We have never been apart and he has been a permanent fixture in my arms for so long.  How can I imagine him moving on somewhere without me by his side?  I worry that he will be looking for me.  What if he gets scared??

My mom told me to remember what it was like when I dropped off Gavin at preschool for the first time.  How disappointed I was when he let go of my hand to run off with his friends with barely so much as a "goodbye."  She told me to imagine all of the children that will be there to meet Ty.  How excited he will be to run off and play with them.   He is going to be so happy to walk, run, jump and fly!!  Whatever it's like, it's going to be wonderful for Ty because it simply has to be.  I am so scared for how I am going to handle it all, but I do believe that if we don't get our big miracle, the miracle will be his accomplishments in five short years, and how he has touched the lives of so many.

My mom has several friends who have lost children.  Some of whom have never recovered and who continue to blame God decades later.  I told my mom not to worry about me.  Of course, I know I will get angry as I grieve, but that the real anger has left me a long time ago.  Even if I look back on this blog, I see the periods of time where I was bitter and angry.  I believe that watching Ty suffer for two years has helped me let go and let God in a peaceful way.  I hope I can remember that in the darkest of days that likely await me.  God help me. 

144 comments:

  1. Sweet Ty: I am thinking about you today as I have for the past two and half years. I pray that you are feeling better than you did yesterday. Your parents threw you such a wonderful birthday party. I love you.

    Laura in Texas

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  2. I was reading your post and just can not even imagine what you are going through right now. My heart just hurts for your family and especially for precious little Ty. I can't stop thinking about you all. This little boy has been through so much and he just keeps fighting this horrible cancer. I don't think very many people young or old could be near as strong as Ty is. He is truly amazing. I am praying for you all every day. Just know that Jesus Loves you all so very much. You have a special place in my heart and I have never even met you so I know He loves you sooooooo very much...........I am so sorry for all that you have had to endure. God Bless You....Lord please give Ty the total earthly healing he so desperately needs.

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  3. Cindy, you are doing great. I read a book recently about a woman's near death experience. In a nutshell, while she was in a coma, she crossed to "the other side"... In that "state", she felt free. She was no longer bound to her wheelchair. Her pain was gone (from Cancer). But she could see her mom and husband leaning over her body on the ER bed, sobbing and so worried. She wanted to shout out to them "hey guys, I feel so good. Why aren't you happy for me? I feel so free and wonderful. Please don't cry or be sad, be happy for me!!" But, she couldn't talk, and they couldn't hear. It sounded like a wonderful state to be in. I look forward for Ty to experience that freedom again if the time comes. I hope that didn't come out wrong. I hope the time doesn't come!!

    I look forward to your posts every night. You have opened my eyes to new experiences. I have a 5 year old boy named Charlie. I look at him differently now since ive been reading your blog. I watch him and know that you'd give anything to be able to see Ty doing some of the things Charlie does. I think about you guys throughout the day, wondering how everything is going. I pray for you throughout the day, too. And I tell people about you and what you have taught me. Charlie ran through a mud puddle in his new soccer shoes, and it actually made me smile.

    I hope Ty has a better day tomorrow than he did today. I think you are so great. Keep up the strength and good work. Give your boy a kiss from me.

    Emma from Los Angeles

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  4. I am so sorry that Ty's birthday wasn't everything you wanted it to be, I hope he has a better day tomorrow. My son had his first "big boy" haircut at the barber shop today and his first lollipop and I thought of beautiful Ty. Would love to send you a picture but not sure where. Stay strong. WE ALL LOVE YOU SO MUCH!!

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    1. you can go to Ty's facebook page to post pics... Ty Louis Campbell.. :)

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  5. Prayers for a better tomorrow! My heart breaks for you and your family! You are the strongest and bravest woman I know (even though I don't know you), I can feel it from mom to another! We can all understand your anger and bitterness and it is so completly just to feel that way! No one can make you feel better, but God is there for you to lean on! Thank you for posting to us and keeping us informed, we all love Ty and want to see him better, but if not, there are mud puddles in Heaven for him!

    Lisa

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  6. I have lit a candle today for Ty & prayed as well ; as I have been everynight since I started reading your story. Every night I pray that you will be woken up in the morning to ty jumping on the bed yelling wakee upp mommy. Their are so many miracles that have happened; that I truely believe their will be a miracle your way. Ty is too strong to go anywhere . He shows more strength at just 5 years old than I've ever seen in my entire life. He just doesn't give up. And that shows that inless he chooses to go ; hell stay here with you. I have shared Tys story with as many people as I know . And I have so many people praying for you and your family.
    I have a son whose going to be 2 soon . I am a very young mother, so I take a lot of advice from my mother and mother in law on raising a baby. And after reading your story; you inspired me to change the way I live. He now sleeps with me everynight. (Yes this can be a bad habbit) but I like him close to me always . Just laying in bed at night hearing him breathing gives me a sigh of relief. I also let him get as messy as he wantss . He plays in dirt and mud and jumps in puddles. With school; work and raising a baby at my age I am sometimes overwhelmed and stressed; but after reading of all the stress you been thru; my stress no longer seems acceptable. My problems are absolutely nothing compared to yours. And anytime I'm ready to pull my hair out of stress; I thinkk of you and how strong you and Ty are and realize wat I'm going thru isn't that bad. I've been a lot happier lately because of that_ realizing small stuff doesn't matter.
    - I always say a happy child is a healthy child. As long as you see that sweet warm smile on Tys face; you know he's going to be alright.
    And as much as I believe Tys going to be okay; my heart still aches for you and your family. I have cryed so many nights over reading what your going thru and I don't even know you so I can't even imagine what you feel inside. It makes me sick to my stomach how this can happen to someone so small . I literally can't even kill a bug lately. Theirs a little ant crawling up my wall and I went to kill it and I didn't have the heart to do it.

    Ill always keep you in my prayers every single day. Never give up hope. Xoxox

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    1. Beautiful words. You sound like a great Mom <3

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    2. I agree, that was beautiful.

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  7. No birthday's shouldn't be like this. I am so sad that Ty had a bad day today of all days. I felt so hopeful seeing all the love that was being shown for Ty - I was wishing that it would give him the lift he needed to be able to enjoy this special day with all his special people.

    My heart aches so much for all that you guys are going through - nothing I say can make it better, nothing will make it better. Well of course that perfect miracle that restores Ty to full health - and I will continue to pray for that as long as Ty is fighting this fight.

    I send virtual hugs to you and Lou - you guys are wonderful parents that have taught us so much about love and sacrifice.

    My mother in law gave me a necklace when I had my son, it's inscribed with the saying - A mother hold's her children's hand for a short while, but their hearts forever. Ty will always be with you - if he has to leave this earth, I really believe the part of him that stays in your heart will keep him safe and he won't be scared because you'll always be there for each other. And Ty, and Remy, will always be in my heart - helping guide me to be a better mother, wife and friend.

    SuperTy always and forever. May you get some rest tonite Campbell family.

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  8. Cindy, I have been reading your blog every night since discovering it about 2 months ago. In fact I check it periodically throughout the day for good news. I feel like I am going trough a mini version of your emotions with you: first utter sadness and despair. I was barely able to function at work the first few days. Then disgust and just recently so much anger and frustration. Why? WHY is this happening to you? It's not fair. I am back to feeling inspiration as of late bc you and your family have given something incredible to all of us while something beautiful is being ripped from your arms. I wish I could help you lock hands forever with Ty and keep him here to enjoy all the things his beautiful little body and soul should grow up to achieve. It's not fair to be in this state of constant giving and letting go. I wish some of it could be given to you instead through a miracle.

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  9. You won't be failing Ty, because he won't be going on his journey alone. A huge piece of your heart (and Lou's, Grandmom's, Pop-Pop's, Nana's, Papa's and many, many of ours) will always be with him.

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  10. His heart will be filled with so much of your love it will last till the moment you meet again, which to him will feel like an instant. Time won't work the same way it does for us on earth. Have you ever had a dream thr felt it went on and in like an epic saga but in reality was just a few seconds long? We cannot come close to comprehending infinity, so the amount of time you and Ty will be separated will be so brief in comparison he won't even notice till your next to him once again enveloping him

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    1. Cindy...please remember what this person wrote. Time to God is like a blink of an eye to us. Ty will not be afraid. His love will always be with you as you and Lou will always be with him.

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  11. So sad to hear that Ty was having a bad day - of all days, his birthday!! It's just not fair. I hope today will be better and that you can pull out those carnival games for him to see and his birthday can continue!! You have filled him with so much love and happiness and that will stay with him always.
    -Jennifer R

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  12. So unfair! This sweet boy deserved to have the best birthday. All day I wondered how Ty was doing. I'm so sad to hear it was a rough day.

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  13. I'm just so sad and filled with love for your little guy. It isn't fair. I believe that if love & tears could heal him he would be healed right now. When I read your posts & the comments it makes me realize just how many good and loving people are out there. In this world today that is a miracle! And that miracle is all because of Ty and you. No one would blame you if you were bitter or angry. I don't hear that in you your words there is only love for your little one. Your words are so beautiful, so full of tenderness & faith. It really is an inspiration. Last night at 7 while praying for Ty I imagined all the people praying for him too. That is so beautiful to think thousands were all sending prayers and love for Ty. We are praying for you too & all of your family for comfort, strength and healing. We are lifting you up in spirit. There is no love as precious, perfect and true as the unconditional love between a parent and their child. Time and distance cannot take that away. Much love- God bless little Ty's heart, soul & body. Christine, OH

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  14. Today I told my husband the story of Ty. I read your latest post and explained to my husband how your story and the stories of parents everyehere who have to watch their children suffer lime this, is changing my way of thinking and helping me to be a better mom to my son. I lit a candle and said a prayer for ty and your family; it was the least I could do. God bless.

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  15. Oh Cindy,
    My heart just aches for you and your family. I am someone who definitely believes that there is a reason behind everything that happens, a purpose, a lesson. Trying to find the lesson in this is extremely hard for me. And that saying that God doesn't give us more than we can handle.....well you & Lou must also be super heroes because I do not think parents should have to see their child suffer like this. And like you I would be wondering how he will survive without your arms and your neck that he loves to hold on to, but I believe that your arms and your neck will be replaced by God and the many children that he will be with. Part of you, Lou and Gavin will always remain with Ty, just as part of Ty will always remain with you Cindy, in everything that you do. Ty will be jumping in a never ending supply of puddles and be eating candy non stop forever, until you guys can be reunited again. Gavin will now need you and that will be your reason to wake up each morning and survive each day. Right now just keep focusing on both beautiful boys you have and being the amazing MOM that YOU ARE CINDY!!!! You have made this journey a very peaceful one for Ty. You have made the past 5 years doable for him. He is an amazement to us all, but so are you and Lou. God Bless all of you right now, especially Ty. xoxooxooxoxooxoxooxo

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  16. Oh Cindy, I'm so sorry to hear Ty had a bad day. We love your boy so much and pray every day for his healing. Please dear God, take this little boys pain and suffering away! I hope Ty has a much better day today so he could enjoy some of his birthday loot. Actually, what I hope and pray is that Ty wakes up today fully healed from all of the birthday prayers that were being said from people all over the world at 7 pm. The power of prayer can do amazing things. I went to church to pray for Ty's miracle healing and prayed to the Blessed Mother for her to intercede. She knows all too well....Hang in there Cindy and Lou. You are both doing everything right so don't ever doubt yourself. It is your love that has kept Ty here and fighting. I wish I could hug you and cry with you, my heart is aching with you. Sending so much love and good wishes, yesterday, tomorrow and ALWAYS. SUPER TY FOREVER <3

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  17. Thursday my family gathered on our bed at 7pm exactly. We all picked a prayer that we wanted to say for Super Ty. My oldest son chose the Our Father, my husband chose the Hail Mary, and I chose Glory Be. My youngest son doesn't know any prayers so he was just going to say a few words. At the last second he got all excited because he thought of a prayer he could say for Ty. He said Grace! I know it is meant for meals, but it still works since it thanks God for our gifts.
    I wish for you the greatest gift. I wish for you and your family healing and peace.
    I wish for strength for you all as you go down this difficult road.
    On the morning that I held my fathers hand as he took his last breath I realized something. As I saw him touch the Mary medal he constantly wore around his neck and slip away I realized that our bodies are merely a shell. Little Ty's body may not be working, but his soul is perfect and will always be that way.
    He has taught so many people to appreciate their gifts. He is truly an inspiration and we will continue praying for you all. God Bless.

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  18. Dearest Ty, Cindy and Lou,
    I posted yesterday but the posts were up to 240 and I am not sure it got through so I am writing you a brief note again to share thoughts with you.
    What a triumph indeed! Ty is so miraculous and bold to have the presence of mind even to just try to participate ,with all of the discomfort, in his birthday festivities I think he epitomizes the word "gratitude". he knows and feels grateful to you and Lou.
    I spent much of yesterday thinking about Ty and watching the Coldplay video that you did with the breathtaking images of Ty in each and every frame of it. He is truly beautiful!!
    Also,as a tribute to him yesterday, Ty was the main topic of the class that I teach over at CW Post. I teach international students in a language transition program (ESL). Next week the students will be doing short presentations on an event tha changed their lives. As an example, of course, I shared the by chance (or not by chance) encounter with the story I read on AOLabout Ty two years ago. I began by showing them the video of Ty's 365 days with cancer, then with childhood cancer awareness, and then finished with a discussion of the impact Ty has had on my life, how his bravery and goodness has taught me so much, and what it means to be selfless parents . We then read the excerpt that you posted about listening "earnestly" to the small stuff, and discussed how all feelings are big stuff to the people who feel them. We finished with birthday wishes from China, Japan, Vietnam.
    The students were riveted to the video, and when asked to describe a feeling in one word, one student quickly consulted his dictionary and called out "poignant".
    Clealy, Ty's power of love, courage and bravery has no language barriers.
    Hope today is a better day, and that evil cancer gives him a reprieve.
    Love , kisses, and hugs
    Susan

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  19. Cindy, I am sorry that Ty's birthday wasn't as expected, but your picture of him showed his expression of happiness. I am trying to muster the strength to tell you my story of how I "let go and "let God" take control of my twin sister Cindy. We were inseparable from birth. We did everything together (like you and Ty). we even had a double wedding. Then one day, she complained about pain in her back, so after several appointments, and misdiagnosis, she was diagnosed with cancer. I just knew that by being her twin, I could give her anything she needed, like blood, kidney or anything she could use. I was going to do anything I could to help her, as she helped me when my own daughter was diagnosed with cancer at 5. But I soon realized that what Cindy had was so wide spread that I also heard news that there was nothing doctors could do but make her comfortable. The agony I felt and total helplessness that her fate was sealed. She knew I would never leave her and I moved into her house and took care of her medical needs, pain meds, flushing ports and just being there for her, gave her a sense of peace, even though I felt like I was dying with her. She had accepted her fate and still she smiled and talked to me, so strong she was. She wanted me to promise I would take care of her daughter and told me I couldn't give up on the people who needed me, just because she wouldn't be there anymore. Then, the day came and I was folding her when God decided to end her pain. As I looked at my twin, she whispered I love you and then started her journey to heaven. Shock took over and time seemed to pass unknowingly, quietly, but she had a look of peace on her face, no more pain, no more seeing people around her sad. I went outside to a garden she planted and named cins island, and there as I was crying, a butterfly (which she loved) came up to my cheek, like giving me a kiss. This to me was her way of telling me she was okay. And ever since, people can't believe how butterflies are always around me and get so close to me, they think its weird. I went home that day, and laid in bed not wanting to get out of it for days and days, but I knew er daughter and my daughter needed me to get up. It was hard, because a whole half of myself being a twin was gone, and I was so wrapped up in her care, that's all I've done since she was ill, yet I didn't know what to do with the time I usually spent taking care of her. But something kicks in and you do get up and you take care of the others that need you and soon the tears turn into laughter and memories, and making more. I used to think she should be here for this to see her daughter graduate, but I think whatever I or her daughter's eyes see, she sees. So I keep making memories with her daughter, and yet I feel Cindy is near us all the time, and when I think she's not...here comes that butterfly! I pray Ty gets his.miracle, but God compelled me to tell you my story to help (I hope) you incase you both have to take different journeys. Ipray for you and your family daily, and carry swollen eyes for you as I know the pain you feel. May God Bless You All.

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    1. You have such a beautiful soul.

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    2. That was beautifully written .

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    3. so beautiful...and just the other day, I posted how I took my sion son outside too early on a chilly, wet morning, bc he wanted to, and I did it in honor of Ty. and wouldn't you know, a butterfly came right up and put on a little show for us! signs are everywhere, if you look for them :)

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    4. Thank you all, I just hope this helped the Campbell family and yes signs are everywhere. Missy Bowler Gleason

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  20. Cindy,

    Ty knows how much you love him, he sees it in all the plans you and your family made for yesterday and in all you do for him each and every minute of the day. Two years out, I still feel that there was more I should have done or said but I know that it's longing for more, not lack of effort. The saying you posted is beautiful. My heart is filled with my Tyler and yours.

    Diane

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  21. I wish Ty could have seen the soccer players at the high school yesterday, it would have brought big smiles to his face. The high school kids and the middle school players all too running starts to slide down the hill into huge puddles, natures own slip and slide. The smiles through all the muddy wetness, was priceless. A few parents did not want kids getting into cars, but I just handed my son a towel and said, get in.
    I think God gave us a rainy day for all the puddles for Ty's birthday. I think you guys should still do the carnival, to celebrate Ty's birthday for years to come. All our love to you.

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    1. amazing! he has touched us all! god bless!

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  22. Cindy:
    Just as Ty trusts you, trust you mom. I believe she is right. I believe when it is our time to go there is no fear, there is just unimaginable peach and glory. None of what you, Lou, Gavin or Ty have gone through are going through is beautiful or fair and I am so mad, so angry that this happens to any child. It is wrong and I can't control my emotions. But I know this as sure as there is breath in my lungs right now, that Ty will not completely leave you, he will be with you and he will be able to peak in an out as he chooses and you will find signs of him. I have lost many babies through my journey of getting them into my arms, I live knowing that there will be a day I will hold them and then I will hear their laugh. Hold on to your mom and believe her.

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  23. Ty will not be scared, he will have all those children and loved ones before him, as well as God to keep him. He will also be with you. He has no need to be frightened. I am so sorry he had such a sick day. You still had the chance to celebrate his birthday and every year, you can have a carnival to celebrate this monumentus day. Gavin can help and you will see Ty through him as well. I am sorry your family has to endure what mine has. Prayers, hugs, and plenty of candy wishes to Ty. Love to you all.

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  24. Life just is NOT fair sometimes. I'm so glad Ty was surrounded by his family and spoiled with lots of his favorite things on his special day. After reading one of your previous blogs where you stated Ty's love of balloons I thought of an idea for you. My mom past away in February from lung cancer leaving behind 10 heartbroken grandchildren. I spoke to a friend who is a social worker and asked her for some advice on how to speak to children about death. She recommended this idea that made me immediately think of Ty. She said to get helium filled balloons, have the children write a message to grandma on them and then release them up to her in heaven. I thought of Ty's love of balloons and thought you might like this idea too. Hopefully, you won't need to ever use it. My family and I continue to pray for Ty's recovery. God Bless

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  25. I have been thinking about your fears of Ty being scared if the unspeakable happens. I am SURE that everyone who cares and loves Ty has one SPECIAL person in heaven that we can think of - that one SPECIAL person that we loved with all our heart. Mine is my dad - the greatest man I ever knew. If we ALL say a prayer to that one SPECIAL person to watch over Ty while he is away from you until you meet again, he will be loved and protected and they will hold his hand for you. There will be just as many people in heaven as there is on earth who love him.
    -Jennifer R

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  26. I have been following your story for 2 years now and have been hoping and praying that Ty gets better! I have a 5 and 6 year old, my sons name is Ty (Tyler) also! You and Ty have made me stop and realize how short life is. I am not so quick to tell my kids no, I read them a book before bed even if I am to tired (with out skipping pages), stop what I'm doing to have a baseball catch w/ my son. My heart goes out to you and you family and I will continue to pray for you all!

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  27. Cindy,
    I'm so sorry you, Ty, and your whole family are going through this. We're all praying for a miraculous recovery for Ty. This is probably going to be cold comfort for you, but we lost my grandmother to diabetes a little while back. She loved kids in the biggest way possible. I know that whenever/wherever Ty goes; she’ll take care of him until you get there.
    Much love,
    Richard

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  28. 23 years ago, I lost my father to cancer... I was 12 at the time and so angry, sad and confused. I couldn't understand why God would give me this amazing, wonderful, loving, good man for a father and then take him away from me when I NEEDED him most! It was so unfair! It still is. At my worst, my mother sat me down and told me that "sometimes God places an angel on Earth to be something special to someone... to love and teach that person (or people) something that they wouldn't learn anywhere else. And when that angel has fulfilled his or her purpose, God takes them back into his loving arms and prepares them for their next journey. For as much as we may need them in our lives and hearts, God needs them more and so he calls them home."

    I don't know if this will help you, Lou, Gavin and all of the wonderful grandparents that Ty has, but it took an angry and devastated 12 year old and gave her back her sense of purpose. It's never been easy without my father and I have missed him every moment of my life but I know that he is busy fulfilling God's every wish and helping others when they need an angel.

    Five years may not seem like a lot but knowing your life has been touched by an angel and that your little angel will be with you ALWAYS in your heart after he's been called home, I hope will help make your journey less bitter and more sweet.

    My family and I will continue to pray for little Ty, for a miracle, for no more pain and millions more of his and your contagious smiles and for peace and strength to be restored to your hearts and family. So much love pouring from our hearts to yours! GOD BLESS!!!

    -Kristin M and family
    XOXOXO

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  29. Ty has made an impact on me, not just on his birthday but forever. My two kids were getting crazy yesterday (just really being kids!) and when I went to yell at them I thought of Ty and how you and Lou would trade places with me in a heartbeat. For Ty to act completely silly and crazy with Gavin. Ty, you will always be in my heart and that little angel that sits upon my shoulder that says "Let them have fun and be silly!!!". Thank you for the gift that every parent should recieve. I will always talk about you and your journey and let all the moms and dads know to enjoy every moment like everyone always says to.. Thank you Superty, your a true superhero. I picture you flying through the sky as the greatest superhero there ever was and your powers are spreading happiness, joy and pure silliness and blue lollipops of course!!!! :) Love, Kathleen Ryan from Smithtown

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  30. God bless you all. I pray for Ty all the time, he is always in my thoughts. I wish I could take the pain for him.

    Denise

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  31. Your mom's words are so insightful, and so spot-on. How blessed you are, to have such an amazing family. Ty will know no-fear (first of all, he's a super hero, so there's that...) All that sweet, perfect soul has ever known, is unconditional, unrivaled love and support.
    Despite to egregiously unfair card he's been dealt - the positive side of his life - is that he was born into such an amazing family. God couldn't possibly have granted him a better set of parents, little brother, or grandparents (let alone the thousands of fans out here, pulling for him, and praying for him constantly) Our prayers have been so loud and constant, that no doubt a hero's welcome will be awaiting him on the other side :) He's going to be a celebrity up there! :) (of course, I still pray that we get that miracle, and his welcome to Heaven can wait another hundred years)

    The first time my son was hospitalized, our roommate was a severely disabled little boy. Our stay was a full week - this little boy was there for 3 or 4 days, and the entire time, he didn't have a single visitor. No mom, no dad, no nobody. Not during the day, not overnight. And it KILLED me. It outraged me. This poor baby, with no one there to rock him and love him. Ty has never had to be alone. While his body has taken this beating so valiantly, his heart and soul have been nourished with incredibly strong, constant love. Let that be a comfort to you.
    So much love and prayers,
    Melanie

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  32. Cancer is so limited
    Yet in all these things
    It cannot cripple love, it cannot alter hope
    We are more than conquerors through Him who loved us.
    It cannot corrode faith, it cannot destroy peace
    For I am persuaded that neither death nor life...
    It cannot kill friendship, it cannot suppress memories
    Nor principalities, nor powers, nor things present, nor things to come, nor height or depth
    It cannot silence courage, it cannot invade the soul
    Nor any created thing shall be able to separate us from the love of God,
    It cannot steal eternal life, it cannot conquer the spirit
    Which is in Christ Jesus our Lord. - Romans 8:37-39

    I lit two candles last night for Ty, and will continue to pray that God will work a miracle.

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  33. Did you ever come across The poem footsteps in the sand? when you see just one set of footprints, it's when God carries you... He is with Ty and all of you. I don't understand why He lets Ty suffer so much, But I know He's there with him. I just hope one day soon God will let Ty get up and play with other kids. I pray for it so so hard. Cindy, you and your husband are wonderful!!! Love you.

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  34. Ty was born a super hero, he is stronger than we know. You are always there and Ty will never leave you he will be in all things around you and when you look up and see those white puffy clouds Ty will be sitting on one looking down on you. I think watching some one in such pain is so much harder than saying goodbye. You will meet again. I pray for Ty but I also pray that you and your family will have peace. Cathy Trifiletti

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  35. I think God new exactly what he was doing when he gave Ty to you and Lou. You are the most amazing parents. You have taught thousands about unconditional love. We lit a candle last night and prayed for a miracle for your family. We have a white Germany Shepard who is 2 and dying from pancreatic cancer. He sleeps between my husband and myself. I asked him last night when he gets to heaven if he would watch over and run and jump in puddles with the most amazing little boy named Super Ty.
    God bless and know thousands are thinking of you today.
    Stephanie

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  36. Cindy, Lou, Ty and Gavin,
    I want to write something that will ease your pain but I don't know anything that would. Please just remember that you have changed so many lives. Ty has. He has certainly opened so many peoples eyes about this horrible disease. He has had so many crying their eyes out for someone they have never met. He has made so many parents (me included) hug their kids a little tighter, loosen up when they make a mess and has taught us to enjoy our time with our kids.
    I would gladly give that to you. I feel your pain when you can't take away Ty's. I can't imagine how you do it but you do. Ty is blessed that he was given to you and Lou. You have handled this illness with grace and strength. You could not have done anything better.
    This is a hard time. But please remember how many people--from all over the world--you and your family have touched. I pray for Ty every day, every minute. He is such a fighter but so is your whole family.
    Jennifer Charlotte, NC

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  37. Good morning from Nebraska....I'm so sorry his Birthday wasn't better but at least he was here!!

    Not just any child could walk this up hill road
    these children walk it everyday
    carrying the load
    They Show us heights of courage
    that we may never reach
    they show us what it is to fight
    a fight you cannot teach
    We stand beside them knowing
    there is no guarantee
    except the one we started with
    to love them endlessly
    They are the special chosen ones
    God knew it from the start
    he picked each child for cancer
    by measuring their heart
    The ones that measured the biggest
    would someday face a test
    the challenge is to understand
    God loves them more not less
    He's using them to move our hearts
    closer to his own
    teaching us to trust his plan
    and fear Not the unknown
    For God can move a mountain
    and part a raging sea
    we wants our struggles offered up
    and given forth to thee
    He smiles upon the chosen ones
    before their even born
    and blesses them with courage
    to walk through any storm
    His love for them surpasses ours
    and cannot be denied
    for in the dark of suffering
    his light will not subside
    No matter what the outcome
    There is no greater peace
    In knowing deep inside their hearts
    his love will never cease!!

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    1. Beautiful poem. Thanks for sharing!

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  38. Cindy & Lou, this blog has allowed your son & yourselves to share with the world throughout his battle. Know that whatever happens to Ty,your family will always be in the prayers of all your friends from around the world. I pray that you will be able to share pictures and stories of Ty and Gavin as they grow up together. If this is not the case...please continue to share with us all. We want to continue to pray for and support you and Lou always. Just know that your little boy, and your wonderful family have blessed so very many around the world. Please continue to allow us to bless you in return.

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  39. I resently had surgery and was on morphine. It made vomit , sleep and out if it. New on the market is tylenol thru IV/ injection. It took away all the pain without the side effects of narcotic, try it!!! U might have more interaction with him and he'll feel better.

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  40. I am so sad Ty was sick on his special day! It sounds so magical...with all his favorite things. Typical Ty though...he stayed strong and held out as long as he could. Such an amazing little boy. Like you, I'm hoping he was just getting all that evil out of his body. Praying he wakes up today feeling bedda, with the hint of a smile...wanting to continue where he left off. I am a fan of birthday weeks!

    I'm so glad your mom and family are there for you Cindy...& for Lou, Ty and Gavin. There is nothing like having your moms arms around you...no matter how old you are, it is such a comfort. Such a safe place to be. That is how Ty feels when he is with you (and Lou). I am not scared for Ty. I know if and when the time comes, he will go straight from the safety and comfort of your loving arms, onto the wings of his guardian angels...who will take him straight into the arms of God. You know am a firm believer in angels... I can actually visualize his cherub face with the biggest smile...laughing and giggling as he flies on their wings...the start of a grand adventure. To a heavenly place where he will be whole, healthy and happy...forever!

    I keep praying for a miracle. But so many miracles have already occurred. I look on FB and at this blog. I think of the prayer chain last night. Thousands of people, total strangers, from all over the world,
    coming together to love and support this amazing little boy SuperTy.
    And to support & comfort you, Lou,Gavin and all the other children suffering from this horrible disease. That is just one of the true miracles of Ty Louis Campbell...and I'm sure there are many more to come.
    We love you...sending a big hug from our family to yours. Always in our prayers! xxxxxxxxooooooooo








    I

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  41. There is little or even perhaps nothing I can wrote that will take away your pain, as the path you are on is ridiculously difficult. I know this after having lost two of my own boys to undiagnosed illnesses, one at three days of age and one at 5yrs of age. I would like to send you big hugs and many, many compliments on how you are helping Ty and your entire family live life to the fullest.

    Prayers and hugs to you all,
    Christine

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  42. You and your beautiful family are in my constant prayers and thoughts. Last night as I was walking home from work I started to cry because I realized that I cannot even begin to imagine the unspeakable pain, heartbreak, anger, faith and strength you and your husband have shown and continue to go through. Your Super Ty is precious beyond words and has and will always be an inspiration to all.
    My sister sent this YouTube "I Was Here" by Beyonce link to me and when I heard this powerfully moving song, I couldn't help but think of your Ty and how much his 5 year old life is gracing and blessing all of our lives for the better.
    http://www.youtube.com/watch?v=i41qWJ6QjPI

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  43. You are an amazing mom. Ty and Gavin are as lucky to have you as you are to have them. Praying for you all.

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  44. In the past few days since I learned of Ty I have turned into a crazed Ty fan. I think about him many times throughout my day and most of all when I spend time with my four year old son. I'm cheering for Ty. Praying for a miracle. My son, Nathan, wears a Ronan Thompson bracelet and yesterday he made a new friend in Ty. Nathan thinks Ty is super awesome and we have been including Ty in our bedtime prayers.

    I want you to know that I haven’t just been praying for Ty. I have been shouting out loud to the God of universe saying “HE’S STILL HERE!!! IT’S NOT TOO LATE TO SAVE HIM!!! HE’S STILL HERE!!!!” I don’t know what is to come but I do pray that you know in your heart how loved you are. How loved Ty is. Not just by your family and friends but by complete strangers who study your pictures with tears in their eyes and pain in their hearts.

    Hanging on to every word of your blog and anticipating every post. Go SUPERTY!

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  45. I am so sorry. I am so glad your mom is there with you. You are an amazingly strong woman. Inspirational.

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  46. Cindy - I live near you in Brewster. My daughter is 6 and my son is 4. They took a long bubble bath and my son, who is developmentally disabled, said "mommy, piggy back ride". He has never said that before. We did it for Ty. If there is anything I can do to help you, please reach out. Prayers for you and your family.

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  47. cindy
    please don't think for one minute that Ty will be scared when he is called "home"We all are the ones that will be left scared,our hearts will ache our souls torn,but Ty will be with God and feel whole again, Ty will look down on you and pray for you to get through this hell on earth.one day you will reunite and as if no time has passed you will hold your baby again.
    always praying for a miracle..
    Olimpio family

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  48. Amazing how people can feel the same way, not even knowing this precious child! You took the words right out of my mouth/head. Praying without ceasing for a miracle...WITH GOD ALL THINGS ARE POSSIBLE!

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  49. My heart is breaking for you. I can't imagine what you must be going through, after following Ty's story for almost a year now. My son is only 2 months older than Ty and I sit here and cry tears of sadness for you and your family. But then, I realize Ty has given me and my boys something special and that is realizing every day is a gift, that it's ok to get dirty and to enjoy each moment and cherish them. I pray God's mercy on Ty, you and your family. We don't want you to die, Ty and we love you. We are continuing to pray for you.

    Diane

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  50. I am so deeply touched by your story and by your SuperTy. Words have failed me. I am so sorry that you have to go through this. I don't know you but I wanted to let you know that I am thinking about you and your family and sending you thoughts of love and calm.

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  51. So sad to hear that Ty is doing poorly. Prayers that today is better and that Ty can get some comfort. Glad to hear that you have more family with you. God bless you all.
    Jennifer, Illinois

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  52. I don't know you personally, but feel like you are a member of my family. Your story is now part of me and I think about you and Ty all of the time. Please know that Ty and Ronan's story has touched so many people and have awakened us to life....

    Demetria-

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  53. I haven't prayed for years, I lost my faith a long time ago due to some losses that occured in my life. But, I read about you on Maya's blog, and I fell in love with Ty and your whole family immediately. Yesterday, I prayed for the first time in so long I can't remember. I am so deeply touched by that sweet precious boy of yours, it seriously changed something inside of me. He looks like an angel, maybe he is one. I don't know, but I'm praying hard for you guys, if a miracle happens, I will throw a party and rejoice!

    Also, I let my son stay in the bubble bath FOREVER last night and let him stay up until 10PM just because he wanted to, even though I was dog tired. Thank you for reminding me what is really important.

    Thanks for reading this. Please give Ty and Gavin a hug for me. And Lou too. :)

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  54. “If ever there is tomorrow when we're not together... there is something you must always remember. You are braver than you believe, stronger than you seem, and smarter than you think. But the most important thing is, even if we're apart... I'll always be with you.”
    ― A.A. Milne

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  55. I saw your blog for the first time yesterday through a link on facebook. Happy birthday Ty - you are an incredible little guy who has been through more than any child should ever have to even think of. Cindy and Lou, you must be incredible people to have such happy little boys. Since reading your story, I cannot think of anything other than Ty and all you have been through these past 2 years. I was just graduating from medical school across the street from Sloan when your journey began with Ty's illness. I now have a 17 month old daughter and definitely see the world in a new light now that I am a mother. However, there are still the days of juggling work as a new physician and life as a new mom, let alone a wife (who has time for that?!), when I feel overwhelmed and frustrated.

    Learning about Ty and his journey has truly impacted me. And I can honestly say I hugged my daughter harder today than I ever have. You are an incredible family. I am so sorry for everything you have been through. You have clearly brought your children so much joy. I am praying my loudest, strongest prayers for you. Thank you Ty for reminding me what is truly important in life. My little girl probably has a better mommy now because of what I've learned from you and your mom.

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  56. Happy 5th Birthday Super Ty you will win this battle i promise we are all praying for you and we all love you Love Always Ashley

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  57. Praying for your beautiful boy and your family...always.

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  58. I cry for every night. I cried my heart out last night and i swear i have no more tears left. Please God , give them a miracle.

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  59. Cindy:

    How many surprises for Ty! Sooo much LOVE! This stage is hard, is like going uphill the highest mountain of all.

    I pray God keeps you all close to His heart. We LOVE you all. I can't even imagine how frustrating this is.

    Reading some posts I know that Ty has made a difference in life. A friend told me that some kids come to show us that there is something MUCH powerful than life itself, and that is LOVE!

    It is not fair to feel sick on your birthday :(
    Ty and all of you deserve better. You all are GREAT people. Through this and each moment, there has to be an angel by your side. Look around you. God is next to you, actually He is within you. I believe in a miracle, because either way he will be fine.

    Peace be with you always. I believe in miracles.

    REMEMBER:
    Have faith in God; God has faith in you. - Edwin Louis Cole

    I have not lost faith in God. I have moments of anger and protest. Sometimes I've been closer to him for that reason. - Elie Wiesel


    Faith and prayer are the vitamins of the soul; man cannot live in health without them. -Mahalia Jackson

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  60. One thing is for sure - I'll hold Ty and your family in my heart always...and I'll never look at mud puddles the same way.

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  61. I'm sorry Ty had such a rough day on his birthday. I'm praying extra hard for him and your family today. Happy birthday Ty. So many people love you and pray for you even if we never met you.

    Allie

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  62. As I went to sleep last night I thought about Ty and his birthday -- hoping it went well -- I'm so sad to hear it didn't...but I'm glad that you all were able to do what you did do.
    Only recently have I begun following your story (From Rockstar Ronan) and it has touched my heart so much. Ty is an amazing kid, a beautiful kid...I'm glad to know him as I do. Thanks for sharing him with all of us.

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  63. I can never find the right words myself so I look for things in my readings. Here's the latest from Lottery by Patricia Wood: "Remembering is different that not forgetting. It is the opposite of. Remembering is like a little movie that comes back to you. It is something special and unexpected...Not forgetting is business. Like you have to not forget that your laundry is in the dryer or not forget to pay your bills. Remembering is fun. Not forgetting is hard"
    Always remember; it's easier than not forgetting.
    Karen in RI

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  64. I dont know how I can feel so much pain, heartache and love for someone I have never met. I just know that I do feel this for lil Ty and for your family. I am at work and literally crying my eyes out. I pray so hard all day every day and I will continue because I beleive in miracles. I will continue to pray for God to be with him and your family. Thank you for sharing your precious precious lil Ty with all of us. Tons of love, hugs, and kisses for lil Ty!!!

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  65. Cindy, last night when I got home, like everyday I was greated by my Grand-daughter and her wanting nothing more than to be hugged and held by me. Normally I reach down, pick her up, give her a quick hug and kiss and then go on with my daily routine. But yesterday was different. I remembered your birthday wishes for Ty and so I held her like it had been days since I had seen her. May our Lord hold you tight Ty. May our Lord hold you Cindy, Lou & Gavin just as tight. God Bless

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  66. Let not your heart be troubled, neither let it be afraid. Praying for your family.

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  67. I know there is no way to prove these things, but I truly believe that the fact that Ty can muster a smile is a sign that he is not laiden with fear.And if he must go to another dimension , I honestly think that Ty will not be scared. Just as he was not scared in your womb, I don't G-d will impose any fear in this innocent angel. I truly feel that fear is just an emotion that we concoct on earth.
    Think about the 9 months you carried him Cindy. You loved him and were connected to him , and he to you. Ty will always remain as close to you as the days you began together; when you carried him inside and were physically connected. That bond is yours forever.

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  68. I just found your blog yesterday and you are truly amazing. My heart aches for you and your family, I cry as though Ty is my own child. I cannot imagine your fears, hurt and pain. I will keep your family in my prayers.

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  69. I'm sorry Ty's birthday didn't turn out how you planned. I'm sure you're grateful that God let you hold Ty for his 5th Birthday.
    I hope Super Ty is doing much better today. {hugs} God bless!

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  70. Cindy,
    Just wanted to say that I am here everyday. I read all of your posts. I cannot express enough how beautiful and inspirational your posts are.
    I am very sorry to hear that Ty's birthday wasn't quite like the way you wanted it to be. However, there was birthday. He made it. Made it so bravely to another birthday and that is beautiful.
    Much Love,
    Taciani

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  71. I was introduced to Ty's story on Facebook yesterday - I can't stop thinking of him and your family. My 2-year-old daughter and I prayed for Ty on the way home yesterday and I let her play in the wet, muddy grass yesterday and she was so happy. A little dirt never hurt anyone! I am praying that God will watch over sweet, innocent little Ty and hold him in his arms. Wishing you much love and strength.

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  72. I am sending well-wishes and prayers for your beautiful son, Ty. If prayers can move mountains, dear God, please move them for this kid. He deserves everything amazing in this world. <3

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  73. When and if that times comes Ty will always have you with him...he WILL feel your hands holding his and your LOVE in his heart....He will feel you with him and not be scared.....Just think how excited he will be to be able to run, jump, fly, laugh and play with all the other children that God has chosen....This is so unfair....I am so sorry..but I do believe in miracles!!!!

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  74. What Cancer CANNOT Do...(anonymous)

    It cannot cripple love
    It cannot shatter hope
    It cannot corrode faith
    It cannot destroy peace
    It cannot kill friendship
    It cannot suppress memories
    It cannot silence courage
    It cannot invade the soul
    It cannot steal eternal life
    It cannot conquer the spirit

    Thinking and praying for you every single day.

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  75. I recently found your blog through my mom, who has been following along for awhile now. Your story, your courage, your love - all of you, your whole family - has been incredibly moving for me. Really life changing. Sadly, I am one of those people who was born with an innate fear of losing those I love most and therefore a strong feeling of cherishing each moment we get with each other as a gift. A cautious child, an even more tenderhearted mother, I cannot send my kids out the door without looking deeply into their eyes when I say goodbye and I love you. On every regular school day I do this. And when I read your story, and your encouragement about why this is so important, I am reminded why I do this. Because life is precious and we never know what the future will hold. So hold onto it while you can. I am so touched by your ability to be present to Ty while also living this parallel life of your own grief. I'm sure expanding the realms of your love in ways you never thought possible, growing wider & deeper than you thought a human being could. Thank you for generously sharing your story and for encouraging all of us to love our babies. Thank you for sharing your whole story - the grace and hope amidst the anger and fear and grief. All of it is true, all of it is there and your willingness to share it with all of us is a true gift and a testament to the beauty that Ty is in this world.
    We are all holding you in love and light...for miracles in any form.

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  76. I dont think you will ever fully comprehend the impact sharing ty's story has had on so many people. I sat here at my job one day reading one of your posts and i cried like a baby just imagining as a mother the heart ache you are going through. I have a 4yr old boy, I cannot wait to go home to him everyday and just hold him as tight as he will let me. I am a different mom because of you, and ty. I dont know him, have never met you guys but I LOVE HIM! I feel connected to you guys through your blog, and I pray so hard for your amazingly perfect little boy. God bless you all. I will of course continue to ask God to heal ty<3.

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  77. Oh Ty, I'm writing it right now hoping and praying that you are feeling better. You are my hero. I used to think before when asked who is my dream person to meet I would say Golda Meir or some famous person from the past but not anymore, you are my hero and your family and that's who I dream to meet and get to know. What a horrible conversation to have with your mom Cindy, I don't think anyone could be gracious and amazing like you and your husband. You are perfection in a real sense of this word. Please Ty, heal and get better for your brother mommy and daddy. Love and kisses. From Tatiana.

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  78. I recently learned about Ty, your beautiful couragous little boy. In reading your posts, I am in awe of your strength. I can't even imagine what you are going through. My heart breaks for your family. There is no stronger love than that of a parent for his/her child. Ty has been so blessed with your love and you with his. I have been praying for Super Ty and will continue to do so. May Glod Bless you all.

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  79. May you have better day today! Always praying for another miracle XO.

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  80. Though my waters may be troubled, my ship is anchored in the Lord and I will not be moved!!!

    Thinking of you all and hoping Ty is feeling better today. Praying for a mircle for SuperTY!!!

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  81. As I read your blog, I hug my own 5 year old son. I let him make messes with glitter and play-doh. I don't rush him out of the tub and let him spray me with water. I also talk with him about Ty and tell him your story. We pray for Ty and your family every night. Thank you for touching our lives and our hearts.

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  82. Cindy,
    I'm so heartbroken and sick for you. Its so unfair. Never feel that you failed Ty in any way you have not. You have loved him and supported him and did everything possible for him. If it is his time.. he will be fine.. it's the ones that are left behind that aren't. I pray for you to find some type of peace.

    I remember when I was younger my boyfriend of 9 years had a sudden heart attack and died. I came home from the gym and there was a police officer at our house. I was destroyed. I spent a lot of time with a really good friend of mine over the weeks following. I remember one night she had this very serious conversation with me how I had to deal with the situation and I couldn't stop living. I had recently opened a business and I had to move on. It was a very serious conversation. At the time I couldn't imagine it. I remember her sitting in silence after she finished telling me this and after about 5 minutes she said "Oh the hell with it, just pretend he is in Alaska and they don't have phones" don't ask me why but we burst out laughing and it was the first time I had done anything but cried in a couple of weeks.
    I know that this is not a remotely comparable situation but thought it might make you laugh..
    There are a lot of people who here for you to support you and try to give you strength. I am still praying for Ty all day every day and all of my children are also. But if that miracle doesn't come I am praying for you. I pray that you are able to find strength to go on and live the life your beautiful son would want you to
    Prayers and strength coming your way
    Michelle

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  83. Just a quick note My children go to catholic school and my daughter just informed me that yesterday she stood up in her 5th grade class and asked everyone to say a prayer for a little boy Ty who was 5 yesterday and is fighting cancer.
    Just so you know St Leo's is praying for Ty

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  84. Hope u r feeling better today Ty. I loved reading about all the goodies u got 4 your birthday. Especially the yummy cake and cupcakes : ) Im thinking about u all the time and pray for u and your family. God Bless. <3

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  85. I found your blog through Rockstar Ronan and couldn't stop reading your posts (even though tears were running down my face). It makes me sick to my stomach that your family has to go through this. You are such a strong woman and wonderful mommy. Yesterday my two year old kept spitting water at me during his bath. He would erupt into uncontrollable giggles as the water hit me. My first instinct was to be angry, but then I thought of you and of Ty and I just relished in the pure delight on his face. Thank you for helping so many people become more aware of the beast that is childhood cancer, while also helping to remind us all to enjoy every precious moment we have with our children.

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  86. My kids got soaking wet in the puddles at Lakeside Park today and I thought of you! You have really changed the lives of so many people. I am always praying for all of you. You are truly amazing.

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  87. Cindy & Lou,

    My heart is broken. I love you Ty. . . Right now I just don't understand God, however, I am praying constantly.

    Joy Marielle
    Baltimore, MD

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  88. Sending my love and prayers as always. You are terrific parents, that can not be send enough. I hope you feel the amazing love and support from the thousands of people you have touch by sharing Ty's story. Cindy and Lou, you are moving people to action...it has become a movement towards change. Change in the way we interact with our children, change in our priorities and change in our lives. None of us will ever forget Ty or the lessons we have learned from your family and we are passing your message to the next generation. I say it every day but I'm going to say it again, thank you for sharing Ty with us. You now have the largest extended family and we all love you deeply. Sending love and prayers. I pray Ty has a good night. xoxo

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  89. The Little Ship

    I stood watching as the little ship sailed out to sea. The setting sun tinted his white sails with a golden light, and as he disappeared from sight a voice at my side whispered, “He is gone”.

    But the sea was a narrow one. On the farther shore a little band of friends had gathered to watch and wait in happy expectation. Suddenly they caught sight of the tiny sail and, at the very moment when my companion had whispered, “He is gone” a glad shout went up in joyous welcome, “Here he comes!”

    If he is called---Ty will be welcomed with loving arms and he will be safe and in the bright light of God--- My prayers are with you!

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    1. this mad eme me cry But it a beautiful poem

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  90. You have documented so beautifully that we all feel a connection. I can't try to imagine your pain and yet, somehow, I feel like I share it by your blogs. Of course, we don't feel even a fraction of what you and Lou do. My son is 4 and and has life threatening food allergies. (No way am I comparing anything!) Lately he is saddened and wishes he didn't have them, I talk about Ty - as an expample of how lucky my son truly is. I tell him all the things Ty can't do that he can, and I hold back tears and I wish and pray that no child ever has be that example, that inspiration, that lesson for us. I beg God to heal him, that even I'm the only one to learn a lesson from Ty - the lesson is learned and please heal Ty! You and Lou, Gavin and Ty have taught us all how fragile life is. How wonderful a child is, even on their worst day.

    I think you said it best, recently - "maybe he is just too good for this world" And what an amazing compliment that is, from God, to you and Lou for having him. Thank you for sharing him with us.
    God Bless, our prayers are always with you

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  91. I am so sorry that TY wasn't feeling well on his birthday. Thursdsy we went to church prayed and lit a candle at 7pm. After leaving it began to rain so hard we could barely see the road. The first thing that came to mind was that TY wanted it to rain on his birthday so all the kids could go outside to jump in the mud puddles. The other day I was leaving football practice with my two boys and all of a sudden they started not just walking in the mud puddle but jumping up and down in it. For the first time in 8 years I watched and patiently waited for them to finish. I thank you for that. I am praying for SuperTY and your family everyday.

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  92. Wherever you are, there he will be!! We continue to pray for a miracle!!!

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  93. Cindy & Lou- We lit a candle in church yesterday for Ty and prayed together as a family for all of you. I cant remember the last time the four of us held hands in a circle and prayed....thank you for opening our minds and hearts. You have touched so many people in so many ways.By the way thoses cupcakes looked yummy!!!!

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  94. I don't know what to say, other than my heart breaks for you and TY. He is so beautiful & has touched so many lives with that contagious smile of his. I can't stop thinking & praying for him (and for all of you). Surely God has special plans for him. I just heard that song, "Temporary Home" by Carrie Underwood as I was thinking of Ty. It is a beautiful song. This life is a "temporary home" for all of us. One day, no matter what happens, I truly believe you & Ty will be reunited. That permanent home will be nothing short of awesome!

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    1. This is beautiful. Cindy, you will never let go of Ty and he will never let go of you. You will be reunited. Have faith in that. I pray every day for Ty and your family.

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  95. I pray for Ty's recovery. Should God have other plans for your angel I pray for you to have the strength to survive your loss and cherish Gavin and help him through this loss. No parent should ever survive their children. No child should endure what Ty has been through. God bless all of you!

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  96. I came across your Blog a few days ago and i have been reading it constantly. I have to say that Ty and your family have touched my soul in a way i never thought anyone ever would.I pray for no pain for your baby boy and of course a miracle if possible.You are truly an inspiration and i wish there were no such thing as this terrible cancer.My heart breaks for u and i hope u can find peace in each other.You and your family will be in my thoughts and prayers and thank you for sharing your story with the world.Take Care, Hugs, MollyAnn

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  97. My heart breaks for you and for Ty and for your entire family. Ty is so loved, even to a new follower, it is so overwhelmingly evident. Sending even more love and prayers your way...especially for that beautiful perfect boy of yours.

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  98. Your little boy and your family are in my prayers. I only recently read your story and as a mom I am so touched by your story. I am thinking of you.

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  99. Ty - you precious beautiful boy...oh how I am praying for you, along with so many others. I think you are amazing...but obviously you get that quality from you mommy and daddy.

    Cindy and Lou (and Gavin! too) - my prayers are with you even more. I can feel your immense pain in your posts. I can not say I know how you feel. No one can, but I hope that you can feel the love from so many surrounding you both, and that it helps hold you up. Damn it....I don't know what to say (and frankly it pisses me off) because I want to say the right thing, and I can't stop crying, and I want to tell you how very sad we all are for your beautiful boy and for your family. You continue to inspire me with your strength and by sharing this amazing boy with us all we are all so very priveledged...and hopefully we as a collective group can offer you some small amount of solice that helps you heal...and continues to give you strength through this very difficult days.

    I will continue to keep you all in my prayers every day. Sending much love - Maria

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  100. Oh how my heart breaks for you..


    ~Michelle, North Ga.

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  101. Your home is filled with Angels
    For your family they are there
    No matter how the day went
    The Angels always pair

    No matter what your name is
    No matter where you live
    Remember every one of us
    Has our own Angel who will give

    That Angel will give you
    Whatever it is you need
    To hold your hand in silence
    Or to listen as you plead

    They have never left us
    From the time that we were born
    And they surround you deeply
    As your heart in pieces is torn

    Remember Ty's big smiles
    That zest for life he displays
    Because your SuperTy Boy
    Has been your Angel every day

    He was sent here from Heaven
    To love and laugh and teach
    His soft cheeks and golden hair
    The soft heart of lips like peach

    What a gift he is to all of us
    No matter where he goes
    Your guardian Angel SuperTy
    Marked with a freckle on his toe

    5 years so far he watches you
    So close and always near
    He smiles now and if he could
    Would whisper in your ear

    Don't worry please, don't cry for me
    I'm here forever you'll see
    When you look up at the changing sky
    And the color of the trees

    A sweet little Angle Boy
    Much Sweeter then the candy he loves
    Your Guardian Angel has always been
    Like a flock of little white doves

    His plan was set years ago
    From his maker from above
    To touch your hearts and the souls
    And to give you that gentle tug

    Like warm arms around your neck
    He will never leave your side
    Right next to you Papa & Momma
    Along for your life's long ride

    Sleep now little Angel
    Whisper one more time in their ears
    God's will and plan is set for you
    Please remember this through your tears

    No matter what the outcome will be
    SuperTy would tell you this
    You will always feel his soft sweet lips
    On your face he will leave his kiss.

    I will always love you
    What miracles come what may
    As both the outcomes you will see
    Are both miracles, on that day!

    M.E.S.
    10/6/12

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    1. Very nice poem in honor of sweet Super Ty! :) God Bless Ty & his family today.

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  102. Dear Cindy,

    your post leaves me sitting here with my sleeping son in my arms, sobbing and crying, my eyes swollen and red. Although I've also lost a child I can't imagine what you and your family are going through. I lost my daughter Julia, she was born prematurly in the year 2008 and she died after 13 days because of an infection but this was "only" a short strike cutting a piece out of my heart and then it took its time to heal. You have the knife in your heart since you know Ty is having cancer and every day this knife is turning and stabbing in your heart again and again and it hurts you every day a little bit more. This is so unimaginable cruel. Your postings are full of love for your cute son I feel like I could touch the screen and little red hearts would burst out of my finger. Especially what you wrote about your conversation with your mother about your fears of letting Ty alone touched my heart. As an orphaned mother I can tell you: When it's time for him to leave he will take your heart or at least a piece of it with him so he won't be alone wherever he goes and sure enough he will be awaiting you when it's your time to meet him there. Imagine him jumping up and down impatiently because he's so full of eager to show you this wonderful place where he was waiting for you to show up.

    You are the best mom for Ty, God chose well when he picked you.

    I'm sending you a big hug from Germany.
    Tanja with Noah in her arms and Julia in her heart

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  103. My wee boy asked me if we could make banana cookies RIGHT NOW.

    So I said YES, even though I had to do the laundry and the house is a tip.

    He asked if we can go out, it's a lovely day.

    So I said YES, even though we had little time as I had to work.

    If we could go to the swimming pool in Killie next week, the big one with the slide.

    So I said YES, even though it is expensive and we don't have a lot of money.


    YES for Ty, I am thinking of him while doing all these things that Ty can't do and even though I am very sad and even more angry about that, I enjoy my boy even more.

    Because of Ty.


    Steffi

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  104. Dear Sweet Ty & Family,

    I'm sooooooooo thankful & happy that you were able to have such a great birthday together as a family!! My prayers are with you. I would so willingly take on your pain and sickness to free your life to health & happiness as a family. Much love to all of you.

    Neva

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  105. Ty, I hope you are having a better day today. I would like for you to have a million more good days! Our family is thinking of yours.

    Kathy from Kansas City

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  106. Cindy and Lou,

    First and foremost - To Ty, happy belated my love! I remember your birthday at clinic last year, you weren't particularly enthused with our singing but you definitely loved your awesome gifts haha.

    Second, I wanted to email you versus comment publicly on your blog, but when my email was hacked over the summer I lost your contact info. So this will just have to do.

    Words cannot express how sorry I am to hear about my little angel, he truly is one of the most inspirational and bravest patients I have ever cared for. I really am blessed to have had the honor of caring for him and meeting your beautiful family. I'm not sure if you will be coming back to clinic (I haven't been there in a few weeks), but please know that you're always in my thoughts and prayers. I love and remember all of my patients, but there are only a handful that have resonated with me as deeply as Ty has.

    Please don't ever hesitate to ask if you need anything.

    Lots of love,
    Ali

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  107. Cindy, I saw a captain America costume in kohls today and I immediately thought of TY. Ty and your family are always in my thoughts and prayers.

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  108. I am hoping and praying that Ty has much better days coming that God sends Ty a miracle--so so many are hoping and praying for that this would be the time for God to show us just how powerful he is and what a blessing for so many to witness it...For sure God has a big audience just praying for it happen...

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  109. I did it... I took time to watch a movie with my older daughter(who's not well right now) and let my little one have a bubble bath and play longer.... One day at a time, every second matters; no more rushing.... We are all praying for you. Ty is an amazing boy-with an amzing smile... :)-love from MD

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  110. Thanks to Ty...a minor miracle happened in the Powell household today!
    We always say "I love you" when the boys leave to go anywhere...to school, down street with friends, to bed...anything. But teenage boys aren't too big on hugging, especially Griffin. He is NOT a hugger. Over the past months, because of Ty, I have been much more patient with the boys...trying to spend more quality time...not just racing around. Today, completely unsolicited, i was rewarded with a hug from Griffin! It was shocking...and pure heaven! When he left, I actually cried and said a prayer to you guys...and thanked God that you are in my life.

    I hope all is okay with Ty. I get nervous when a days go by and we don't hear. Loving you guys and praying for a BIG Miracle! xxxxxxooooooo

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  111. WHEN my sister was dying from cancer at the age of 47 from tongue cancer very slow deathI didnt want her to die. i didnt care I just want her here she could leave us how dare she leave i was my parent goin to go on with out her. My parents have never gotten over her death. I miss her dearly but it took me almost 5 yrs to realize i want her here cause i was selffish , BUT OVER THE PAST 5 YRS shse has let me know that she is still with me . She always leaves me a sign. Someetimes when i miss her soooooo much i can feel her touch on my back and hear her voice. i dont know why Im rambling on But praying for a miracle for tHAT BEAUTIFUL lil bOY.

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  112. I have thought about your beautiful baby boy all day today. He is never far from my mind. I sent so many prayers to God for his healing and just finished lighting a candle for him at church. Lots of love to you all.

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  113. My middle son has to give an informative speech in his high school public speaking class. He is doing it on pediatric cancer all because of Ty & the beautiful, selfless way you have shared his story. We keep Ty & the rest of you close in prayer. God bless that precious son of yours!

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  114. Honey, Ty won't be scared because there is no such thing as scared in heaven. I honestly believe that. We will feel scared and that is okay, but Ty will have no such feeling.

    I love you and I'm glad your mommy is there and you sobbed in her arms.

    xoxoxoxo

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  115. Dear Lou,

    Thank you for being the best husband to my friend and daddy for Ty and Gavin. I'm always thinking of guys.

    C

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  116. You remind me daily to life one day at a time, enjoy the moments in life, play harder, work less, make messes... My son Gage is only 4 days older than Ty and though I am blessed and know so to.have a healthy happy boy I feel torn because of how unfair this is. Why? Ty deserves health peace and happiness! Why was I blessed? Then I realized that God has his plan and though it may be of little comfort to you please know your journey with Ty has and will continue to bring glory to God and wisdom to other mothers. We will celebrate Ty at our sons party today (angry birds) and lift him in prayer, throw a water baloon in his honor, eat an angry bird cupcake for him, and though it makes me feel selfish thoroughly enjoy the moments of the party, messes, loud children, etc because after readinv your blog it is the only way to honor you! I dont know you but THANK YOU! We love you, Ty and your whole family. We will continue to pray for you and Ty and learn from your wisdom..

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  117. i cannot stop thinking about ty and your family. i am praying for you all. this is so unfair and i am so so sorry that this happened to your little boy and your family. no child should ever feel hurt or pain. you are an incredible mother. your love is so evident in your words and the stories of what you do with ty and gavin. ty will always be a happy boy. he has so much love surrounding him. he will always carry that love with him. you will remain in my thoughts and prayers.

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  118. Not sure how far down your little man is at this point but have you tried alkaline water? it needs to be aleast 8.17 if you can get it. I brought mine from a supermarket shelf.

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  119. I am a Natural Health Scientist from Australia and I am willing to help if there is time. I have successfully treated a lot of cancers. email bango.organics@aapt.net.au phone 61 7 49302030 http://patricia-saunderson.blogspot.com.au

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  120. Thoughts and Prayers go out to you and your family, Ty is very special. Do not give up hope for where there is a will there is a way. God does not abandon anyone. I am not sure if you have heard of this amazing clinic but if you haven't and want to give your son the best chance look into http://www.burzynskiclinic.com/
    Don't disregard it, he has cured cancer suffers throughout the United States. The FDA have been trying to remove him from his practice because he is curing people.
    I wish you and your son all the very best. Have faith that Ty will survive this, don't give up. Many Prayers

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  121. My Daughter Grace has just turned 6, my son William will turn 3 in 7 days... I have 4 other beautiful children, Im blessed with their lives and health, my heart goes out to you... If I was going through what you are it would kill me...
    Can I do anything to help... anything at all?
    Marie Staines, Sydney Australia xx

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  122. I am a 12 year old girl from Sydney who is inspired by your touching story - and your will to remain positive. I pray for you and your family. You have made me realise that we have to make the most of our time on this earth - you never know what could happen. You are in my heart and mind. Chelsea K

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  123. My heart goes out to you & your gorgeous, wonderful little boy. I send you all love xxx.

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  124. I'm a mother of 3 children, I only learned about you today. I want you to know what an inspiration you are to me, amongst all the pain how many times you have thanked God in your blog. You are an amazing woman and Ty is nothing but a hero to me. I will light a candle every Sunday and I will pray everyday for Ty and the whole family. I will pray for a miracle but if a cure is not in God's plan for Ty, I'll pray for peace and comfort to all of you. Ty is already doing miracles, he has changed me.

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  125. Hi Ty the superhero,
    I have only learnt of your super fight today here in Australia. I want to say to your mummy daddy and brother , you are amazing and have been such an inspiration to all families fighting this horrible cancer. Super hero Ty, if God takes you with him, WOW it will be filled with such freedom, love, and fun times but I pray that God lets you stay with your Mummy and Daddy and the miracle of so many happens. You are so loved by so many and have touched the hearts of people across the globe. You are amazing little man.

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  126. Please DON'T GIVE UP ...... I just want to try to help, maybe this is useful for you Ty.
    For mum please read this article http://infonewssoftware.blogspot.com.au/2011/02/cancer-treatment-with-soursop-leaf.html
    We'll pray for Ty's...

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  127. Mate,YOu must be some kind of person...for we have read about you all the way down here in Australia...You must have real fine parents .

    My family a I are real delighted to read about you and your courageous self.....

    BIg hug and all our love to you....

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  128. Simply put, you are amazing. You are an inspiration to me and countless others. Super Ty couldn't have had better parents. Stay strong and I pray for peace for your beautiful family.

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  129. Dear Super Ty,
    I read about your story all the way here, Perth Western Australia. i am heartbroken and I cannot express to you how much I wish things could be better. You will always be in my thoughts and prayers little man! Enjoy your birthday celebrations and I pray to God you will celebrate many more! Lots of love

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