Wednesday, July 11, 2012

One year clear

One hundred more to go. 


Ty’s MRI was clean, stable, no evidence of disease.  It was perfect, beautiful and amazing.  It is proof that miracles happen.   I will always believe.  Wherever this life takes us, I find so much comfort knowing that God intervened for Ty and I have so much to be grateful for.  Keep it coming J

Last July, Ty finished his last radiation treatment in an attempt to suppress the weed that was spreading across his brain.  If you asked any one of the doctors involved in his care, or those who discussed his case in tumor board every week, not one would have guessed he would enjoy another year of life.  Let alone a year disease-free.  Today, I am conflicted only with the question of how we should celebrate.  I learned my lesson about shouting from the rooftops (harder than “the hard way”), so I think a quiet take-out dinner and a glass of wine instead of champagne – just to be on the safe side and keep those trolls away. 

I can’t believe he is one year in remission.  I wish I could say it was a blissful year, but there were so many treatment-related issues that I can’t look back fondly.  The brain bleed, the shunt, the lesion that left him paralyzed… what a year indeed.  On that same note, this year Ty went to pre-school, he vacationed in Mexico, he was walking with little support, he went trick or treating and he spent some time up on the “pirate ship” platform of his jungle gym outside.  I cherish those memories because I watched Ty defy all odds and reach milestones his doctor’s never would have imagined.  I look forward to watching similar triumphs in the months and years ahead of us. 

None of this would be true without all of your loving support.  Thank you all so much, for loving Ty.  For your thoughts, prayers and positivity. 

16 comments:

  1. God Bless you all. Thank you Lord for Ty's clean scan. I can't stop the tears from flowing. I prayed all day for Ty and your family. I will continue to pray for more improvements for Ty, for more joyful days ahead and especially for peace for you and Lou who are more deserving than anyone I know. With heartfelt sincerity, Nina

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  2. So glad to hear you got the proof of what you already knew!

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  3. Praying for continued good news and many more instances of Ty defying the odds for many, many years to come.

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  4. I am grateful for the two intelligent, loving and smartly surveillant parents that God has given this magnificent little boy

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  5. Happy, happy, happiest of anniversaries to you all.

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  6. Ty is a doll thank you for sharing his story. I read your updates often and I echo all the comments. You are beyond exceptional parents and you inspire so many to be better. I wish like many readers we could help lessen the stress on you on hard days. But we can pray for God to keep pain away from that precious childs head. Keep trying...you can do it you can do it you can do it ...just like God can heal just like Ty can fight. Please remember you are just as important so please take care of yourself.

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  7. Great news that I already knew was coming. To you and your husband for being Super Mom and Dad! You two are so incredibly strong beyond words. I continue to pray for Suoer Ty and the two of you also!

    Prayers from Texas,
    Robert

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  8. I'm so happy to hear your wonderful news! Continued prayers for ty and your family.

    Ann from Buffalo

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  9. Amazing news!!! Always thinking of Ty and your family! Just as I was falling asleep last night a firefly flew past my window and lit up! I took that as a sign that everything was okay!

    Stephanie, Long Island

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  10. Yay!!!!! Bless you all.

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  11. Way to go Super Ty!!! That is music to my ears. Here's to a even brighter future. God Bless!!!
    Rose

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  12. oh, how wonderful. I am thrilled to hear and thank you for continuing to share this journey with us. We have all fallen in love with Ty, and looking forward to the run next Saturday!
    the Angelous

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  13. I am completely overjoyed to hear everything went perfect for lil Ty. I thank God for hearing our prayers and pray he will continue to do so. Just as lil Ty fights and doesnt give up, neither will we! We will continue to pray for only wonderful things for lil Ty and your family. xoxoxoxoxoxoxo

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  14. PRAISE GOD FROM WHOM ALL BLESSINGS FLOW!!!!!!!! I am so happy for you that I could probably shout from the rooftops for you! That is wonderful news and I hope you had a great time celebrating. God Bless.

    Janet
    COLE'S Prayer Team

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  15. Such great news to read that this little fighter is doing so well. It makes my heart happy.

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  16. This is wonderful news! I am so happy for you and your family. I have been following your blog for over a year. Ty and your family are always in my prayers. May God continue to keep him happy, safe, and cancer free!! With love, Friends from Florida

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