It is soo late, and today has been a long day preparing for tomorrow, so I am just writing a very quick update until I can properly upload Easter pictures and share what's on my mind.
Ty is awesome. We have been very busy, but most importantly, very happy at home. Easter was nothing short of magical. He is feeling better every day and showing some potential for physical recovery. Today, for example, he was able to hold his head up better than ever, and he accidentally pulled his hand up to his face. It was very exciting for him and he bragged about it quite a bit.
"I'm so happy to be home," he says often, which makes me so sad because tomorrow we will be checking him into the Blythesdale Rehabilitation facility. He will be okay, though. He always adjusts well (knock on wood).
We met with the hyperbaric oxygen specialists at Phelps Medical Center today (located just a few miles from Blythesdale) and it looks like they will accept Ty as a patient. I will share more details on how that works soon, I am just so happy that the ball is rolling on this. The doctor was very nice, and I could tell he was very caring. He said we should have zero expectations, of course, but that he has good reason to believe that the oxygen therapy will help to alleviate some of Ty's incessant head pain, and potentially help him regain some of the physical ability he lost as a result of the current radiation necrosis to the brainstem. I believe he is right :)
We need to coordinate a quick outpatient procedure before we can begin (he needs to get tubes in his ears so the pressure in the chamber doesn't cause discomfort) and once that's done we can probably begin early next week. I am anxious.
Other than that, we will know much more tomorrow. We need to meet with his caregivers and Blythesdale, allow for a full evaluation and such, before we will know how long of a stay to expect, and what his daily therapies will look like. Regardless, I am certain he will do very well - reluctant as he may be - and I can't help but have very high hopes. I'm just so relieved that everything seems to be going smoothly right now.
More tomorrow. Goodnight and God Bless.