Ty had a follow-up MRI this morning, which confirmed that there is no evidence of disease in Ty's brain (NED). Amazing news! We were 100% confident that this would be the finding today, which is why we didn't make a big deal about the unexpected imaging that was scheduled for this morning. Ty has been improving day by day so we were sure everything would be okay. Nonetheless, I am going on two hours of sleep last night because no matter how confident I feel, I can't control the anxiety that comes with every scan.
The MRI was ordered to see whether or not the bleed near his brainstem was dissipating, and whether or not the swelling had gone down. We needed to have this done in order to decide whether or not it was safe to start up Ty's Avastin infusions again. Ty's MRI showed some improvement and his bloodwork was extremely strong - like that of a perfectly healthy kid - so we went forward with the infusion. He is doing great. Our biggest concern now is his left arm. While his left leg has improved significantly (his walking is much stronger) his arm is at a standstill. He is able to lift it a couple of inches away from his body, but he has very little control of his hand/fingers and it is still extremely weak overall. Because he is so young and the bleed was an isolated incidence, Dr. Kevin is confident that Ty has the ability to fully recover over a long period of time but is could take months, even up to a year, before we know his full potential. The waiting is certainly the hardest part. We just have to be patient (what else is new).
Ty isn't phased nearly as much as we are. Of course, he gave us hell over getting his "tubies" put in, and then again when we had to remove them later in the day, but he was otherwise a happy boy all day and he was able to "hold still like Yo Gabba Gabba" for his MRI without anesthesia. So proud of him, as always. Here's the happy boy on is way home today. I don't know how his hat became so totally crooked :) LOVE THAT FACE and everything about him.... Love you all, too.
Oh... and we hope you like the new photo on the website. After all of these months, it was time to update his photo. Let us know what you think!