Wednesday, January 18, 2012

Another unexpected bend in the road

I'm getting a little sick and tired of riding down this terribly long, bumpy, windy and dangerous road, but we aren't even close to our final destination.  That destination being Ty's return to his optimal health.  This morning, I will be taking him back to the hospital to seek out answers for yet another issue that arose out of the blue yesterday.

Ty and Gavin were on their very first playdate in Pawling yesterday when - out of no where - Ty wet his pants.  Ty never has accidents, but I tried to brush it off.  This is normal, it happens to all kids once in a while.  After we got home, he went on the potty several times, but then he also proceeded to wet his pants twice over the next four hours.  I asked him why and he said it was because he couldn't feel it.  On top of that, the corners of his eyes were becoming increasingly bloodshot.  I was thinking he may have a UTI and imagined his eyes were just red from being tired. 

This morning he woke with a wet diaper and his eyes are still red.  He doesn't have any pain, thank God.  His doctor at Sloan Kettering wants to see him because the symptoms could mean elevated pressure in his Central Nervous System, or something that may be interrupting his nerves in the spinal cord.  So much for having the rest of the week off!  He has PT this morning and we will be heading into the city afterward.  I will be sure to update you when we return home tonight.  Love to you all.  Thank you for keeping Ty in your thoughts and prayers. 


  1. My prayers and thoughts are with you today, just like every other day:) Hopefully it's just something simple. (Fingers Crossed!) The posts have been so wonderful lately and Ty looks simply amazing! I check for updates frequently, even when I'm not home I check on my cell phone. I wonder what people are thinking when I have this HUGE smile or am giggling while I'm looking at my cell. Ty and your whole family are such a part of our's now. I say Ty did this or Gavin did that. Your posts have become such a part of so many lives. I was reading the comment about how you should write a book. I agreed immediately thinking how wonderful your writing is and how you can make us "feel" what you're saying. Then, I thought no way... I need these posts and if you wrote a book, I wouldn't be able to get this info. until the book came out! I am waiting, as we all are to hear the words Ty is going to be ok and is at his optimal health! It's coming... I know it:)
    Michelle from N.H.

    1. Hi. Omg I would lose my mind without this blog. . . I just thought it would be wonderful to have her collection published one day to hep parents that have children with this terrible disease. Whatva wonderful book Ty's story would make! Little boy diagnosed wth terminal cancer beats all the odds and is cancer free!!!! :) I am looking forward to that!

  2. Cindy & Lou,

    I know that Ty is going to be just fine. . . I will continue to relish in the wonderful news of his MRI yesterday. . . As always praying for your family continuously. . .

    Joy Marielle
    Baltimore, MD

  3. And by the way, loving the new photo :) Team Ty! :)