Monday, October 10, 2011

Wishing every day were Groundhog's Day

Ty is doing great.  We were at the hospital on Friday for a chemo infusion and his bloodwork came back good.  His counts are declining as expected, but still strong enough that he can continue going to preschool and thank goodness because tomorrow he has a field trip to the pumpkin patch that we are all looking forward to.  Gavin is invited, too, and I will try to get some good pictures if they will cooperate.  Here is a recent photo of the two of them sharing a blanket on a chilly Fall morning.  Ty is actually nibbling on a cheese stick - a rare moment :)



He is on his last week of this "cycle" so he is more tired than usual and he has no appetite (nothing new there) but otherwise we can't complain.  He lost two pounds over the past week so I am stressed about calories, but with the help of additional supplements we should be able to get him back on track ASAP. 

We are having such amazing weather here in New York so we made every effort to get outdoors over the weekend and enjoy some family time.  While we were in the car at the end of a long, fun day on Sunday, Lou and I had a serious conversation about how we are both feeling now that Ty is improving.  Ecstatic, obviously, but also scared as hell as you all know.  Lou said that he has this impulsive dream of grabbing me and the kids and running off to live in a cave.  I didn't understand.  Then he explained that he feels like if we hide for the rest of our lives, that the cancer wouldn't find us again. 

He said he is living each day wishing it were Groundhog's Day.  Meaning, that he wishes time could stand still and we could keep living in today because we are so afraid of tomorrow.  I couldn't agree with him more.  For over a year, Lou and I were living in survival mode, and we both think it was easier in a number of ways because we lived in the moment and refused to look ahead.  I can't wait for the days when Ty has been "bedda" for long enough that we can breath easier again.  How long does that take?  Because right now I'm not sure I'll ever breathe like a normal person again. 

I don't mean to sound negative during these most amazing, happy times.  It's just scary, and I have a hard time escaping that fear.  Especially during my quiet time at night when I am sharing my innermost thoughts online.  Please know that Lou and I are so happy and enjoying every minute with this amazing, miraculous, little fighter of ours.  He is such an incredible boy and he amazes us every day.  Look at the determination on that face as he scoots across the floor.  He is getting so strong and really eager to get around on his own.  I love it! 


"Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think." Christopher Robin to Pooh
In case you didn't see Ty's Facebook recently, there was a great article in Huffington Post today.  Please share it with your friends to help us share Ty's story of strength, perserverance and triumph.  Thank you so much for your continued love and support.   All of our love to you all. 

4 comments:

  1. Always glad to hear about the good says Ty is having but also I keep praying for them to continue. God Bless you and your husband for having the strength and faith to tackle everyday. God Bless Ty and his little brother too.

    Prayers from Texas,
    Robert

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  2. Wishing everyday is superty day.

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  3. Cindy & Lou,

    Wow, I just had a lot of catching up to do! Look at that incredible little boy! God, I have tears rolling down my cheek, but they are tears of Joy :). He is simply an amazing little boy!

    I did read the article last night from my cell phone, I saw it posted on Facebook. Incredible. I have said it a million times and I will say it again. . . Your little boy and your family, have changed my life and I am sure the lives of so many others.

    I am just so happy to hear all this news about all the progress Ty is making. And it seems to be that he is doing very well in preschool and already has a fan club of little girls!!! Uh-oh, you better watch out! I think he is going to give you a run for your money when he hits the teenage years!!!

    I am so happy for your family!

    Joy Marielle
    Baltimore, MD

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  4. One more thing. . . I know you are worried and no matter how positive you attempt to stay, that fear will continue to exist. I wish I could tell you something to make you not worry anymore, but. . . I will say this; look at how far he has come, Miracle Ty. I truly believe he will continue to beat the odds.

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