On Monday, a very special girl will finally be leaving the Pediatric ICU at Weill Cornell NYP, after what I think was more than six weeks this time around. We were lucky enough to share a room with her following both of Ty's major surgeries, and she and her family are simply beautiful. Kyra. A beautiful name for a beautiful young girl.
I fully respect her privacy and there's really no need to share details, but I can't help but think of her often because I keep hearing her voice. The last time we shared a room, she was also recovering from a major surgery and remained intubated until just before we were discharged so I don't recall hearing her voice at all. This time around, she was talking up a storm about Justin Bieber to some of the others at the hospital and she sounded so adorable. Pure sweetness. I got to see her sitting up with her hair pulled back and I wish I told her how beautiful I think she is. Life is so f-ing unfair, and like so many of these kids, she is an inspiration. God bless her and her family. May there be medical advances and research that will help all of our children who are afflicted with unfair illnesses.
Ty is doing so well. He is still very apprehensive about being home and it's as if he's afraid is only temporary (and who can blame him considering all he has been through), but he showered us with a lot of jokes and smiles today despite his moments of melancholy. Physically, he is still getting stronger despite the steroids he is on. He ate some pretzels today and drank apple juice. He should be weened from the steroids by the end of the week, which I'm so happy about because I can already see it in his face... and don't get me started about what it does to his mood! Regardless, after all Ty has been through he just continues to prove that he is a superstar. Thank you so much, everyone, for your unwavering love and support. He will beat this cancer up!!!
XOXOXOXOXO, love Ty