Saturday, June 25, 2011

Thinking of you

On Monday, a very special girl will finally be leaving the Pediatric ICU at Weill Cornell NYP, after what I think was more than six weeks this time around.  We were lucky enough to share a room with her following both of Ty's major surgeries, and she and her family are simply beautiful.  Kyra.  A beautiful name for a beautiful young girl. 

I fully respect her privacy and there's really no need to share details, but I can't help but think of her often because I keep hearing her voice.  The last time we shared a room, she was also recovering from a major surgery and remained intubated until just before we were discharged so I don't recall hearing her voice at all.  This time around, she was talking up a storm about Justin Bieber to some of the others at the hospital and she sounded so adorable.  Pure sweetness.  I got to see her sitting up with her hair pulled back and I wish I told her how beautiful I think she is.  Life is so f-ing unfair, and like so many of these kids, she is an inspiration.  God bless her and her family.  May there be medical advances and research that will help all of our children who are afflicted with unfair illnesses. 

Ty is doing so well.  He is still very apprehensive about being home and it's as if he's afraid is only temporary (and who can blame him considering all he has been through), but he showered us with a lot of jokes and smiles today despite his moments of melancholy.  Physically, he is still getting stronger despite the steroids he is on.  He ate some pretzels today and drank apple juice.  He should be weened from the steroids by the end of the week, which I'm so happy about because I can already see it in his face... and don't get me started about what it does to his mood!  Regardless, after all Ty has been through he just continues to prove that he is a superstar.  Thank you so much, everyone, for your unwavering love and support.  He will beat this cancer up!!!


XOXOXOXOXO, love Ty

9 comments:

  1. Love you all!!! Plenty of prayers ad good vibes headed your way!!!

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  2. He looks sooo good!!! He continues to amaze me. Keep beating up that nasty cancer SuperTy. You are doin such a GREAT job.

    All my love,
    Elaine

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  3. Big Boy is looking great!! Truly amazing. Got you all in my prayers

    God Bless from Texas

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  4. I hope your son continues to improve and I would highly recommend you watch this documentary: http://vimeo.com/ 24821365 . Dr. Burzynski has been doing some terrific work and curing cancer (for good) in many of his patients using a method that doesn't have any side effects AT ALL. PLEASE watch the documentary ASAP because I don't know how long it will be online for free (they recently exteneded the free viewed period. I wish you and your family the BEST :)

    Sorry about spaming comments I just hope this messa gets to you.

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  5. Yay! Go Team SuperTy! Lookin Good!! :o ) <3

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  6. He is so beautiful. Keep up the good work Super Ty. Beat that cancer up. Hope you are feeling "bedda". Love and prayers on the way.

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  7. I found you meandering online a few months ago and check daily to see how all of you are doing. I can't imagine what it is like, but wanted you to know how many care. I keep you, Lou, Gavin and esp. Ty in my prayers each day. Trust yourselves in the decisions you make because YOU two must ultimately be able to find peace with them today and years from now. God's blessings on you all- an Episcopal priest in Hershey, PA.

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