Update on Ty - our little fighter
We decided to opt for another major surgery. Some of the doctors here think we are crazy, but our neurosurgeon is the most vested in Ty and he said he wants to do it. If it was his child, he would do it. What more can we ask for than that.
The others don't think we're crazy because of the surgery risks - this time it actually won't be as dangerous and heroic as last time. It's just that when a cancer like Ty's metastasizes, there isn't an oncologist in this hospital who will tell us it can be cured. Point being, if we subject Ty to this surgery, we can only expect for another tumor to appear either at this tumor site or a new one. Lou and I understand that yes, the chances for a cure are slim to none. Like getting hit by lighting. But you know what? People do get hit by lightening. It happens. And if there is a way that we can stay in this fight without hurting Ty much more than he is already suffering, then we are all for it.
I learned today that when a tumor metastasizes, the cancer "seeds" itself throughout the body and additional tumors begin popping up all over. However, these tumors - referred to as "mets" - aren't the same as the original because they are more isolated. So, Ty's original tumor came from his clivis (skull bone) and infiltrated his brain stem. It became part of the bone and part of the brain stem, making removal very risky. The mets are more like large golf balls that are not actually part of his Cerebellum, but they are growing and pushing all of his brain tissue into his brain stem and other critical areas of the brain that are causing him to suffer so many neurological deficits. Because of the nature of these tumors, Ty's neurosurgeon believes he can remove both Cerebellum tumors intact, without much disruption to his brain tissue. Of course, it means another huge, Frankenstein incision at the back of his skull and he will be intubated for a day or two after surgery. And, as with any surgery there are risks. This time, the risks include interruption to a major vein, but Ty's surgeon is very skilled in working around this crucial piece of the anatomy. The other risk, although the chances are minor, is something called mutation to the posterior fossa. This means that Ty could possibly lose his ability to speak and his body would be completely limp for an undetermined period of time. It usually improves gradually, but it could take a long time and Ty's time is way too precious so that is one of the side effects making us very nervous. Luckily, the surgeon and the oncologist feel that the likelihood of this happening is quite low.
For Lou - The best father and husband EVER
Lou, what would we do without you. You are the most loving father and husband, we are so lucky to have you. I only hope that Ty and Gavin grow up to be just like you.
We have been facing something that no Dad should ever have to face, yet you never waver. When you ask Ty for a kiss, no matter how bad he is feeling, he reaches out his arms to grab your face and pull you in. I will always cherish that and it brings tears to my eyes almost every time I see it.
I love that you are always trying to keep us smiling and that you have put a lot of pressure on yourself to do so much for Ty - I don't know how you do it. You have participated in triathalons for Ty, you created his foundation, you often leave the hospital at 5 in the morning to go to work 2 hours away, only to return late that night. You cherish every moment with your children. Everyone who knows you, loves you. You have a wonderful, loving family and great friends which says so much for your character. You are the best father in the world and I love you infinity. We all do. XOXOXOXOXOXOXOXOXO, Happy Father's Day.
I also want to wish Papa and Pop-Pop a Happy Father's Day. We wouldn't be able to do this if you didn't teach us how. Thank you for being the best Dads in the whole world, and for being the greatest grandparents to Ty and Gavin. We love you both so very much and we are so grateful for the lifetime of love you've given us.
Lastly, to all the Dad's who read this blog... thank you and Happy Father's Day.
MY VIDEO TRIBUTE TO LOU