I received great advice tonight. I have to stop worrying about every small thing that Ty does. I had a very emotional day because I am allowing too many negative thoughts into my head. Just because his speech isn't great today, or because he's sleeping so much and a little more shaky, doesn't mean his cancer is spreading. I just need to remind myself that this poor kid is three years old and just finished his fourth round of heavy duty chemotherapy after a rigorous six weeks of radiation therapy. Of course he's tired. I wouldn't be able to talk very well if I was pumped with all of those meds either. And, all of those symptoms are listed as potential side effects to the chemo. They also may indicate tumor destruction, which is what this is all about.
Ty is a special boy with an incredible spirit and he will get through this. Thank you, all of you, for always reminding me of this. You are all so positive, and that is helping our boy heal while it helps to keep me going strong for my family.
As promised, here he is playing with his little brother just this past Saturday. Gavin is getting SO BIG! I have so many visions of the day that they are running around the house together, playing independently as brothers should. I can't wait to see it.
Tonight Ty received his last dose of Temodar and then we are off for the next three weeks. MRI, kidney function tests and hearing tests will be scheduled for the 5th or 6th of July, then his next cycle should begin July 7th or 8th. I can't tell you how strangely refreshing it is to have some sort of plan in place like this. It is the first time since we began this treacherous journey that his medical team sat us down with a calendar in front to begin planning in advance for next steps. Before this, it was nothing but a whirlwind of unpredictable predicaments! Finally, there is some solace in having an idea of what to expect over the next few weeks. Of course, I would prefer to know what lies ahead over the next few months and when, exactly, he will be cured so we can put this all behind us (!)... but I'll take it. Waiting for the next MRI is the worst part of all. I am confident, though, that it will bring positive results.
Have a good night everyone. XOXO love always from Ty.