We had a great day today. Especially tonight. Lou was home and we played together as a family for over an hour. At one point I was running around chasing Gavin like crazy as we both screamed and threw ourselves on the floor over and over again. Ty was loving it, and after a while he wanted to get in on the action. He asked to sit on the floor so he could pretend to push me down. I agreed and couldn't believe how well he sat straight up on the hard floor. He would hold his hand out to my shoulder or head and push me as I pretended to get thrown across the room. The laughs, screeches and bubbling giggles that were erupting from this room were just heavenly. I don't ever want to forget tonight. It was so normal and so fun for all of us. We even let Gavin stay up extra late so we could enjoy it as long as possible. Thank you, God.
Ty will not be starting his chemo tomorrow. Instead he is on the schedule for Thursday. The Cisplatin that will be adminstered can be very harmful to the kidneys, so I had to drop off a 24-hour urine sample for analysis in order for him to be granted clearance. Unfortunately, the results were "borderline". Meaning, Ty's doctor was debating on whether or not he should lower the dosage to be safe in order to avoid any potential kidney damage. Instead of taking a chance at lowering the dose when it may not be necessary (or administering too strong of a dose that could hurt him, for that matter) we agreed that it would be best to delay treatment one more day so that Ty can go through a more detailed kidney function test. Tomorrow we will go to Sloan Kettering so that his blood can be injected with a dye and monitored as the dye travels through his system and is excreted. That will give a more accurate picture of how his kidneys are absorbing the drug and will help his doctors determine the strongest, yet safest, dose. It takes about 3 or 4 hours, plus Ty will have another baseline hearing test (another potential side effect of this particular drug is hearing loss) so it will be a long day for us. He is at the worst age for all of this. Trying to get him to be patient and sit still for all of this testing is difficult, but he really is a good sport about it. Back to the hospital Thursday for his 6-hour infusion, and again on Friday for more bloodwork and fluids. I hope the little fighter tolerates it well. He is feeling so good, I think he will do great.
Build a Bear
When Ty first got sick, he recieved a gift certificate to Build a Bear. It was so nice of our friends, but Ty got so sick and was on such a crazy roller coaster that we never had the chance to visit the store since. Well, when we were on our way back from the hosptial on Friday I promised Ty a toy. We stopped at a mall in Westchester on the way home and there was a Build a Bear there. In true Ty fashion, he picked the most unique and stand-out bear in the bunch. A bright-colored, tie-dyed bear with peace signs all over it. He helped to stuff the bear and he picked out a heart for his bear. He didn't think the bear should have any clothes or anything else, he loved the bear just the way he made him. Ty named the bear Rainbow and he has been sleeping with him ever since :) This is the only stuffed animal he ever, ever slept with. So precious!
|Ty snuggling with Rainbow|