My mom and I are sitting with Ty as his next cycle of chemo begins. It involves a six hour infusion of Cisplatin that will remain in his system for 28 days. We are also adding an oral chemo called Temodar (when I last posted about this I was mistaken when I thought it was going to be Etoposide). The Temodar is intended to add a bit more punch to his regimen. It will help Ty to beat up the cancer :)
Ty tolerated the last round of Cisplatin very well, with the exception of his loss of appetite and altered taste he was really feeling good. I hope he will do just as well this time around, knowing that we can expect the worst reaction over the first 48 hours. Today and tomorrow will be rough, but he should begin to feel better over the weekend. As for the Temodar, the biggest side effect concern is constipation. Certainly no big deal considering all that Ty has been through, otherwise. He can certainly tolerate that, he is plenty experienced because that is also a huge side effect of morphine.
I am disappointed that we couldn't begin yesterday because now Ty won't be able to stop by the Chico's store during the fundraiser today. I am going to pop in and represent the Campbell's, though. I can't wait to see his adorable picture out in front of the store. It's very exciting and his doctor's are all very happy about it knowing that all proceeds will be donated to pediatric brain tumor research here at Sloan Kettering.
In the big toy room here at the day hospital I bumped into another little boy who played Bingo with us weeks ago on the inpatient side. Frankie. He is totally adorable and he looks AMAZING!! It is very helpful to see him looking so good. He is here for a week of radiation intended to wipe out any remaining cancer cells in his abdomen and then he will be free and clear and off to Pre-K in September. YAY! I can't wait to report similar success for Ty. He can do it, too. I just know it. I was so excited for such great news (for a change).
My cell phone has been broken for several days and I am anxiously awaiting a new one in the mail. It's too bad because I wish I could share a picture of Ty right now. He is eating a huge buttered roll and watching Blue's Clues as if it's nothing. I am so proud of him, always. If I don't get a chance to update you all later today, I will be sure to post again tomorrow. Thanks to everyone for thinking of us and praying for Ty.