Lou and I are so anxious to begin treatment, we want to jump out of our skin. Poor Ty is just not doing well, and we are filled with horrifying thoughts of this evil tumor growing back fast and furiously before we even have a chance to treat it. I know things are happening at the tumor site because Ty complained that his tongue felt numb today and his speech is extremely low and getting more slurred with each passing day. It's so frustrating for all of us when he is trying to tell us something and we can't understand. We usually figure it out, but it can take a while and it can be upsetting at times.
Tomorrow we return to Sloan Kettering to discuss radiation therapy as a next step, with a low dose chemotherapy regimen happening simultaneously. Boston will be discussing his case on Thursday, but we don't want to lose any time at Sloan if it turns out that Ty isn't a strong candidate for Proton Beam. If that's the case, we will sooner stay in New York and begin ASAP.
In the meantime, Ty is surrounded with love. He returned from the hospital on Friday to a package that included a beautiful handknitted elephant that Ty named "Humphrey" and he received a bunch of new arts and crafts from friends over the weekend and in another fun care package he today. Here he has a cold pack on his head and is surrounded by just a few of them. Today was a terrible day, he slept most of the time and had a lot of headaches, but when Lou returned home from work and brought in his package full of goodies, he asked to color in one of his crafts... something he hasn't had the energy to do in weeks. That one will definitely be going in Daddy's keepsake box. Iwas very special seeing him with a marker in his hands again and the final product was pretty good, considering. Slowly he will continue to turn around, I know he will.
God bless and good night.