Finally, Ty gets a break. He is going to be discharged tomorrow afternoon (Thursday). He is beyond excited. His doctors say that Ty has bounced back from this surgery in a way that they never ever would have expected. Especially given his previous history. I told them it is because Ty has EARNED this gift.
Throughout this whole incredible, albeit horrific experience, Ty has had setback after setback. Yet, with each setback there was also a blessing in disguise. For example, his MRSA meningitis was such a severe infection that it actually attacked the tumor as well and kept it from growing during those difficult weeks. His hemorrhage in October was devastating, but it also meant that there was drastic tumor necrosis taking place. His shunt removal in November led us to discover the problems he suffered due to hydrocephalus and helped us to explore new options. Our decision to provide palliative radiation therapy led us to find that his disease had NOT metastasized as was suspected in December. His critical state just last week forced us into a very high-risk and "heroic" surgery that resulted in a new chance at life for our baby boy... Amazing.
It really has been a complicated medical case, and Ty's doctor's often shake their head in disbelief or sheer confusion. I love it and hate it at the same time. I love to know that he will have this amazing story of survival to tell, obstacle after obstacle... and I love the fact that he is often the topic of so much debate and discussion at tumor board every week.. but, of course I do wish it was an easier path.
I like to tease his doctors, too, about how I would happily lend them his story of survival someday for a feature in the Memorial Sloan Kettering bulletin or newsletter. :)
Hugs and kisses for Ty's hospital bed. HOME TOMORROW!!!