Wednesday, February 16, 2011

Home a day early - can you believe it???

Finally, Ty gets a break.  He is going to be discharged tomorrow afternoon (Thursday).  He is beyond excited.  His doctors say that Ty has bounced back from this surgery in a way that they never ever would have expected.  Especially given his previous history.  I told them it is because Ty has EARNED this gift.

Throughout this whole incredible, albeit horrific experience, Ty has had setback after setback.  Yet, with each setback there was also a blessing in disguise.  For example, his MRSA meningitis was such a severe infection that it actually attacked the tumor as well and kept it from growing during those difficult weeks.  His hemorrhage in October was devastating, but it also meant that there was drastic tumor necrosis taking place.  His shunt removal in November led us to discover the problems he suffered due to hydrocephalus and helped us to explore new options.  Our decision to provide palliative radiation therapy led us to find that his disease had NOT metastasized as was suspected in December.  His critical state just last week forced us into a very high-risk and "heroic" surgery that resulted in a new chance at life for our baby boy...  Amazing.

It really has been a complicated medical case, and Ty's doctor's often shake their head in disbelief or sheer confusion.  I love it and hate it at the same time.  I love to know that he will have this amazing story of survival to tell, obstacle after obstacle... and I love the fact that he is often the topic of so much debate and discussion at tumor board every week.. but, of course I do wish it was an easier path. 

I like to tease his doctors, too, about how I would happily lend them his story of survival someday for a feature in the Memorial Sloan Kettering bulletin or newsletter.  :)

Hugs and kisses for Ty's hospital bed.  HOME TOMORROW!!!

31 comments:

  1. Cindy, I am smiling from ear to ear. What great news!
    God Bless your little boy and we will continue with our prayers. :)

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  2. This child is amazing!!!! God bless you all!! I look forward to your updates about your precious and amazing lil one! Stay strong!

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  3. Ty was all I thought about as I made my birthday wish tonight. I am so happy he will be going home tomorrow!! All our love to all of you xoxox

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  4. Sweet!!! I am so optimistic. It's true that everything has been a blessing in disguise. That's why we have to keep up the faith even when things seem to be going completely wrong. Just a little faith goes a long way!

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  5. That's great news! So happy for all of you. Keep fighting, Ty!

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  6. Keep beating that cancer up Ty! You in my thoughts :) xoxo

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  7. Wow!! I am just speechless.....It makes my heart leap for joy that he is doing so well!! What an amazing power Ty has to beat this cancer up!! I look forward to reading his updates everyday :) XOXO

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  8. What a truly incredible little boy Ty is! I continue to send many prayers your way and look forward to reading that wonderful story of survival someday. Keep fighting and stay strong!

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  9. I have just heard about you and your little Ty from aol a few days ago but every day since I think of him. I am amazed at what a little tough guy he is and how beautiful your family’s love is. I send lots of my on love to you all and will keep him and you all in my thoughts and prayers. Keep fighting Ty you are one amazing kid and have a wonderful time at home! I am so thrilled he left early

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  10. I'm so happy for Ty and your family! He is amazing and certainly deserves this early release from the hospital. Keep fighting little guy!

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  11. So happy for Ty and your Family! What an inspiration!
    Prayers from RI :)

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  12. What an incredible story of inspiration, hope and the power of prayer! God bless Ty, your family and the many doctors and nurses surrounding you. Angels are truly everywhere, and that little man is precious and dearly loved by God! Keep fighting Ty, you are a super hero!!!!!

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  13. What an amazing little boy and family! I am so happy he gets to go home early!!

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  14. Amazing! I'm so glad to hear that Ty is getting to go home early. He deserves some rest and time at home. He's just such an inspiration!

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  15. I am so happy to hear that! Your little boy is an inspiration, as is your family! I read your story a few days ago, and have been constantly checking your blog for updates! He has made me realize how precious life is and how you must cherish every moment, complain less, and smile more! Your family is an inspiration to so many people! Continue your fight and never give up! Miracles do happen, as you have seen!

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  16. Fantastic, God-smiling and loving on you and your family news!

    Continuing to pray for your AMAZING boy!

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  17. AMAZINGNESS TIMES TEN!!!!! So sad I missed your called yesterday..when you settle in at HOME, give me a call! XOXOXO, Juliet

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  18. HI CINDY.. WAS SO HAPPY TO READ YOUR POST.......GOD BLESS TY. IVE BEEN READING YOUR BLOG EVERY DAY AND IVE BEEN PRAYING FOR YOU. HE IS A FIGHTER.........IF I CAN DO ANYTING FOR YOU OR YOUR FAMILY... I WORK RIGHT NEXT DOOR FROM NY PRES. TAKE THAT LITTLE BOY HOME AND WE WILL KEEP HIM IN OUR PRAYERS.

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  19. WOOHOO!!! Congrats to you all.. The prayers and positive thoughts are hard at work! God Bless Ty and both of you for staying so strong and fighting with all your might. Glad he's almost home! Xoxoxo

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  20. That is such awesome news! Glad you get to take our boy home tomorrow!

    xoxoxoxo,
    Maria

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  21. Wonderful -- so so SO wonderful!!!

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  22. Cindy, I haven't posted here yet, but have been following your beautiful angels story with so much hope for him. If I ever showed you a photo of my 3yr old boy, you would think him and Ty were twins. They look identical. I've been praying for him every night and I'm so glad of your news!!! He deserves every bit of it!!! Hold him close and don't let go!!! God be with him!!!
    Devon
    Bear, Delaware

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  23. PRAISE GOD!!!! I AM SO SO HAPPY JUST TO HEAR THAT HES DOING WELL....... YEA!!!!!!!! KATHY BRUNELLLE

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  24. Wonderful news! I am so happy for you...my son Amare and I pray for Ty every night. Sending lots of good wishes your way!
    Aimee & Amare

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  25. i am so very thrilled right now!!! ty has become such a part of us and we are storming heaven with tons of prayers. he is truly amazing and such a sweet soul! thank you for these updates. much love your way!!!

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  26. I am so happy for Ty and for you all! Continue to stay strong Cindy, you are always in my thoughts and prayers... Betta

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  27. WOW WOW WOW WOW
    YOU SEE! Prayer, hope, faith and LOVE!

    We could see him healthy, we could see the miracle, never doubted. You all are our heroes!
    God loves you soooooo very much and I am sure your story of never giving up and following your inner voice.
    Hey, Doctors are so special, but their confusion proves only that they are human; GOD was working with Ty, from within.
    Time was needed to get to the root.

    We hope, once home, the continuation of stories of his progress to helth are the true testimony of LOVE!

    Now, everyone that has followed you and with you will join in a special mass of grace, when you tell us. So from different places around the world we can give thanks and praise for TY OUR SUPERHERO!

    Remember:
    Dear Lord:
    I would thank you from the bottom of my heart, but for you my heart has no bottom. ~Author Unknown

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  28. This news is the best news ever... I am so happy for u, ur family and especially for Ty!
    Ty... Keep fighting hard, I'm rooting for you :]

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  29. YES! I CAN BELIEVE IT! I can believe it because I believe in your love for your little boy and because of that love, ANYTHING IS POSSIBLE! He's been through so much, and like you said, he deserves this and so much more. I'm still praying for Ty. And sending you continued strength and courage. YEAH TY!!!

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