...can someone stop the roller coaster? I'm nauseous, I'm tired, my back hurts and I'm dizzy with anxiety.
We are home. Ty's shunt replacement was successful and it is believed to be working properly (although, we've been told that before). We hope to see vast improvements over the next several days as far as pain and nausea goes, but as of right now Ty remains pretty weak and very sleepy. I have been thinking ahead of all the wonderful things I want him to enjoy when he feels better, but in the back of my mind I have a tremendous fear... What if he doesn't improve? If he has lepto-meningial disease - and many of the doctors on tumor board still believe he does despite the improved scans - then the hydrocephalus may be a side effect that will never improve. I am scared and excited at the same time which pretty much equates to a constant feeling of anxiety. Then again, that's nothing new :)
Tomorrow I will take him back to Cornell for a quick CT scan so the neurosurgery team can compare with his pre and post op scans from two days ago. Again, I beg of you to think of us, send us your positivity and keep Ty in your prayers. Thank you so much!
I have so many adorable new pictures to share. Hopefully I will find time to post over the next couple of days. In the meantime, enjoy these hugs and kisses from Ty...
XOXOXO and a big "m-wah!"
P.S. It was brought to my attention that I need to clarify something. When we received the good news about Ty's MRI and I published a post entitled "the gloves are coming off," I didn't mean the fight was over by any means. Ty still has cancer and his original tumor remains a major threat. I meant that the gloves are coming off because it's time to fight dirty... To go bare-knuckled... To switch over to street fighting mode because that's how tough my little fighter is :). That's not to say that the news about his MRI is anything short of miraculous, I just didn't mean for it to sound as though the fight was over. It was a huge victory, but we have several more rounds ahead.