Wednesday, August 25, 2010

Ty has a serious CFS leak - more surgery tomorrow

Sorry for the delays in posting our updates.  The wireless connection at the hospital is not accessible from the ICU, which is where we have been spending the majority of our time.  We are trying to keep up with the posts when we return to the Ronald McDonald house in the evenings where we spend the night -- we really like it here and will post some pictures when we have a chance :)  Home cooked meals every night, but believe it or not there is no McDonald's food - much to Lou's dismay.

After a series of tests this morning, our doctors confirmed that Monday's surgery resulted in a leak of cerebral spinal fluid (CSF) which can be very dangerous and needs to be taken care of right away. 

Ty will undergo another surgery tomorrow, where the surgeon will involve the placement of a shunt to manage drainage of additional CSF fluid to relieve pressure while repairing the "patch" that the surgeons created in attempt to avoid such a leak during Monday's surgery.  Tomorrow's operation will not be as involved, but it is still expected to last about 3 or 4 hours, and it means more painful recovery time for our poor baby in the ICU. 

We are taking this one step at a time, and Ty has been so strong.  In fact, today he asked to get out of bed several times (although we really need to avoid that) and he wanted chocolate, lollipops and an ice pop. 

1 comment:

  1. You are right! Take each step, one at a time. Prayers for Ty are pouring.

    Good works are links that form a chain of love.
    Mother Teresa
    In Ty's case Prayers are links!