I wrote my first blog about childhood cancer awareness month in 2011. My son was diagnosed with brain cancer in August of 2010, but it wasn’t until after I saw them taking down some of the “awareness” signs from the playroom at Memorial Sloan Kettering that I learned about September. I didn’t know that gold ribbons were for childhood cancer. I didn’t know that September was “our” awareness month, and I was thrilled and humbled when President Obama signed a proclamation making it official in 2012. I always thought gold was such a perfect color to represent youth, but the dual meaning of “nothing gold can stay” from the Robert Frost poem haunted me immediately. The beauty and newness of “gold” is usurped by unstoppable aging, and there is an underling message of natural progression and eventual death that was my worst nightmare. I understood that “nothing gold can stay” but wondered about just how numbered our days/his days might be. So, September 2012 was the first “official” chil...

For the fifth year in a row, thousands of people gathered to pay tribute to all kids who have been impacted by a childhood cancer diagnosis and to celebrate childhood in their honor at the Mess Fest.  The event was outstanding.   We had more people than ever (which is hard to imagine knowing that 2,000+ people have come year-over-year), we added lots of fun new activities, Peppa Pig was everywhere, the media coverage was what dreams are made of, and there were so many VIP families that touched my heart and made it that much more special.   The day before the Mess Fest, I felt Ty’s presence and it was SO STRONG that I was immediately at ease.   I can’t explain it, but somehow he communicated to me that it was going to be amazing, and I was 100% confident in that notion, enabling me to thoroughly enjoy that magical day. An event of this magnitude takes months upon months of planning, and an army of dedicated Board members and volunteers who work so incredibly hard...